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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
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» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Recently diagnosed and the tips I was given..

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Recently diagnosed and the tips I was given..

Post  Newbieadelaide on Fri Sep 14, 2012 11:56 am

Hey guys

So I usually never post on forums but I am doing so in hopes that the advice I got will help you too...

I have had a rough few months. I was diagnosed with endometriosis within seconds of my
Gyno reviewing me. It was quite a shock...within 48 hours I was having surgery!

After my laparoscopy I thought everything was ok...until I got hit with a strep b infection! Then I got thrush from the antibiotics and then got strep b again. My doc says that my body has been traumatised so everything was out of whack. After a heap of antibiotics and thrush treatments the infection went away but I still had pain, irritation and sensitivity around my vulvar. Naturally my doc thought maybe it was STD related but all the tests came back nagative which included swabs and blood tests.

After 3 months of constant pain and irritation my wonderful doc was able to get me an appointment with a dermatologist in adelaide who specializes in vulvar disorders.

Within seconds of the dermatologist reviewing me she diagnosed me with vulvadynia. Her tips were as follows:

- massage vaseline at least twice a day into the vulvar where the pain is. If possible you could do it a few times a day. The more the better!
-increased my endep to 25mls each night - I was only 10mls to relief pain from endometriosis. Endep is the original antidepressant that it used more for pain relief these days. Beware though it does leave you drowsy the next day. In order for it to be effective as antidepressant you would need to take around 100-125ml a day.
- don't overly wash the vagina as it naturally cleans itself. I think I was overly cleaning it which was irritating the skin
- try to reduce stress as this could be contributing to your pain
- consider pelvic floor physio

In addition to her advice my doc said

- cotton underwear only. Now this is hard to find because even bonds don't make pure cotton but it's pretty close
- discontinue using soap for your vagina including femfresh. Use the sorbolene cream that has at least 10% glycerin
- do not wear pads unless you have your period as this can cause dermatitis
- use the sensitive washing powder - its quite expensive but this is important as you don't want to be washing chemicals on your underwear which is then touching your vagina
- use unbleached toilet paper which is free of chemicals
- avoid tight clothing including tights. I bought the tight things that go up to the top of your leg

The dermatologist's advice of using the Vaseline and massaging this into the vulvar was quite shocking and I looked at her with a 'huh' kind of look! However, I have been doing this for 5 days and my pain has decreased. Still not heeled but certainly has helped. I guess it's like when you have a knot in your back and you get a massage to get rid of it...guess its kind of the same thing really it's about massaging your nerve endings. In the beginning it hurts but it does get easier. Be gentle though dont push yourself. The dermatologist has asked to see me again in 3 months but she is hopeful the above techniques will help me greatly.

Fingers crossed and I hope I'm not jinxing myself but I just hope that this info could help other people, even one person would be great because I know how debilitating it can be.

Take care guys Smile

Newbieadelaide

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Re: Recently diagnosed and the tips I was given..

Post  Char29 on Wed Oct 10, 2012 8:16 am

Hi - thank you so much for your advice.
I have had V for almost 40 years now and by trial and error I just wanted to share:
There are two things I think you should be careful of.
The Endep may work initially, but it stops working after a while. It makes you put on weight and also makes you stop feeling anything. When I was on it, I could hear a really funny joke and would not crack a smile. Not a good way to live. And it did nothing to soothe my V.
And also putting vaseline/petroleum jelly on the area may feel good initially, but it is not a natural product and will make things worse long term. From trial and error, coconut oil (organic) or even olive oil are much better. For soothing and as a lubricant.
Diet plays a huge part in all of this as well - at the moment I am in the process of changing everything in my diet.
Gluten free, Dairy free, sugar free and low alkaline.
Good luck on your journey.
Hugs,
Charmaine xxx


Char29

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Re: Recently diagnosed and the tips I was given..

Post  Alana3 on Thu Oct 11, 2012 2:42 pm

Also, to add. I was freaked out to gain weight or have any more awful side effects from oral pills (antidepressants, pain killers, etc). I told my doctor my fear of this (I am a zumba instructor and work out 4-5 days a week plus horseback ride) I can't be gaining weight, especially after I work so hard to keep it off Smile Plus I'm used to V why would I want to complicate it with anything worse or more ugh!

He mentioned that if you use a topical it absorbs thru the skin wall and not thru your liver which is where all the crazy side effects happen. I have been on a gabapentin, ami (whatever that antidepressant is) and lidocaine compound for a week now and have zero symptoms from the meds and it's helped. Ask for a topical compound, it's so much better! Be careful with the pills it can make things so much worse, and pain killers work for a bit and than your body adjusts. At least that's what I have found :/

Alana3

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Re: Recently diagnosed and the tips I was given..

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