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    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25


    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 1

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured


    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 1

    Recently Diagnosed which has motivated my research study

    Tue Mar 06, 2018 4:54 pm by ebclose2free

    Hi everyone,

    My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

    Comments: 0


    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

    after having a vestibulectomy with no success, I decided to visit …

    Comments: 3

    New and desperate for advice

    Sat Mar 03, 2018 2:37 pm by srbry

    Hi everyone,

    I'm new here and was told to find a support group because this is all getting a bit much really...

    I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

    Comments: 3

    New and need some help

    Wed Feb 21, 2018 4:30 pm by LindafromNJ

    New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

    Comments: 9

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 12

    Can A Cut In Vestibule cause Vulvodynia?

    Thu Mar 01, 2018 1:07 am by rockylife

    Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

    Comments: 0

    Anyone from New Jersey

    Thu Feb 22, 2018 10:47 pm by LindafromNJ

    Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

    Comments: 3

    Diagnosed at 18

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    Diagnosed at 18

    Post  amy4929 on Mon Sep 17, 2012 4:16 pm


    Hi Everyone, I have recently been diagnosed with Vulvondynia and as I'm sure you all know it's pretty difficult to deal with. I can imagine that it's an awful thing to have at any age but I just didn't expect to be dealing something like this at 18. I have a loving, caring, understanding boyfriend who has never been overly concerned about sex and therefore his personality and sex drive is something that has made this easier. However, I personally feel frustrated, useless, unattractive and also like there's just simply something wrong with me in every way. This problem as really taken a toll on my confidence. I am also heading off to university (with my boyfriend) in 6 days and so I just want it to permanetly go away and be forgotten about, but I have realised that this is not the way it works.

    Will I always have to deal with some form of this for the rest of my life?
    I have read so many success stories on here and they make me feel slightly more positive about things and also happy for everyone who have experienced positive results because I can imagine what the relief would feel like. However, it seems to me like this problem never really goes away and that women who have it have to deal with it forever.

    I have been suffering from this for a year and two months now and it occured when I was coming home from a summer holiday with my boyfriend and family. I had all the syptoms of thrush but the doctors misdiagnosed me for months and gradually the feeling began to change, I suppose this was when the vulvondynia began to set it. My boyfriend found a special clinic for me to go to as my doctors (a eventual total of about 6) had started telling me it could be in my mind and the lady at this clinic immediately told me that it was vulvondynia. I am currently on a course of anti-depressents but I have been suffering with severe tiredness and I also have not noticed any change apart from the occasional numbness of my tongue when I can't swallow the tablet properly Razz

    The pain occurs mainly during sex, it is around the outside and feels like someone is scraping their fingernails across an open wound, I am lucky that it doesn't effect me during day to day life things very often and I really feel for those who are dealing with that. It is still difficult to feel positive though, all i want is a happy, simple relationship with my boyfriend with no pain during something that surely is a given right. Sorry, ranting. It's just good to let it out, I can talk to my family and friends and boyfriend about it but I don't feel that they can really connect with what I'm going through.

    I am considering surgery as a serious option to try and heal this. Has anyone has surgery and experienced positive results?
    Or does anyone just have general advice on coping with this? Most people on here seem so positive about everything, i'd really love to be able to be like that about this.
    Thank you so much for reading,
    Amy x


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    Re: Diagnosed at 18

    Post  LillyK on Tue Sep 18, 2012 4:15 am

    What have you tried so far? Personally I've had amazing success with acupuncture and some success with diet. I would not consider surgery unless I had exhausted absolutely every other option, and possibly not even then. I've had other surgeries..knee surgery and c-section, and surgery is just such a drastic measure. hard to bounce back from, and I can't imagine the pain during recovery.

    You don't always have to suffer! Keep trying until you find something that works for you. Keep trying and fighting to get your life back. This is my second bout with V..first one was over 6 yrs ago and that lasted a year and a half. Then I was pain free for 5 yrs. Now it's back, for the past few weeks, but this time I really had a plan of attack and it is working pretty well. I'm not 100% better, but I was even able to have sex last night without feeling much pain at all. So, there is hope. I promise, there is hope.

    Many people have success with physio or biofeedback. Some people have found the cause for their V..maybe ureaplasma or lichen sclerosis. For some it's persistent yeast. For me, I don't know what it is but I do know acupuncture takes it away. I truly hope you can get yourself healed. I recommend eating as healthy as possible, trying to de-stress and relax, and trying to focus on the positive. You can do this. You can get better! Hang in there.


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