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    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 4

    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 9

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5

    Does anyone else experience this?

    Sat Oct 14, 2017 5:21 pm by Angelmegs

    Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

    Comments: 0

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 4

    Do you ever worry that you're making it up?

    Fri May 27, 2016 6:50 am by Lucci


    I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

    A few years into treatment, I had the diagnosis of PTSD added on for …

    Comments: 7

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 2

    Cured of Vulvodynia

    Wed Aug 17, 2016 1:39 am by angelique2016

    I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

    Comments: 10

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 1

    Diagnosed at 18

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    Diagnosed at 18

    Post  amy4929 on Mon Sep 17, 2012 4:16 pm


    Hi Everyone, I have recently been diagnosed with Vulvondynia and as I'm sure you all know it's pretty difficult to deal with. I can imagine that it's an awful thing to have at any age but I just didn't expect to be dealing something like this at 18. I have a loving, caring, understanding boyfriend who has never been overly concerned about sex and therefore his personality and sex drive is something that has made this easier. However, I personally feel frustrated, useless, unattractive and also like there's just simply something wrong with me in every way. This problem as really taken a toll on my confidence. I am also heading off to university (with my boyfriend) in 6 days and so I just want it to permanetly go away and be forgotten about, but I have realised that this is not the way it works.

    Will I always have to deal with some form of this for the rest of my life?
    I have read so many success stories on here and they make me feel slightly more positive about things and also happy for everyone who have experienced positive results because I can imagine what the relief would feel like. However, it seems to me like this problem never really goes away and that women who have it have to deal with it forever.

    I have been suffering from this for a year and two months now and it occured when I was coming home from a summer holiday with my boyfriend and family. I had all the syptoms of thrush but the doctors misdiagnosed me for months and gradually the feeling began to change, I suppose this was when the vulvondynia began to set it. My boyfriend found a special clinic for me to go to as my doctors (a eventual total of about 6) had started telling me it could be in my mind and the lady at this clinic immediately told me that it was vulvondynia. I am currently on a course of anti-depressents but I have been suffering with severe tiredness and I also have not noticed any change apart from the occasional numbness of my tongue when I can't swallow the tablet properly Razz

    The pain occurs mainly during sex, it is around the outside and feels like someone is scraping their fingernails across an open wound, I am lucky that it doesn't effect me during day to day life things very often and I really feel for those who are dealing with that. It is still difficult to feel positive though, all i want is a happy, simple relationship with my boyfriend with no pain during something that surely is a given right. Sorry, ranting. It's just good to let it out, I can talk to my family and friends and boyfriend about it but I don't feel that they can really connect with what I'm going through.

    I am considering surgery as a serious option to try and heal this. Has anyone has surgery and experienced positive results?
    Or does anyone just have general advice on coping with this? Most people on here seem so positive about everything, i'd really love to be able to be like that about this.
    Thank you so much for reading,
    Amy x


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    Re: Diagnosed at 18

    Post  LillyK on Tue Sep 18, 2012 4:15 am

    What have you tried so far? Personally I've had amazing success with acupuncture and some success with diet. I would not consider surgery unless I had exhausted absolutely every other option, and possibly not even then. I've had other surgeries..knee surgery and c-section, and surgery is just such a drastic measure. hard to bounce back from, and I can't imagine the pain during recovery.

    You don't always have to suffer! Keep trying until you find something that works for you. Keep trying and fighting to get your life back. This is my second bout with V..first one was over 6 yrs ago and that lasted a year and a half. Then I was pain free for 5 yrs. Now it's back, for the past few weeks, but this time I really had a plan of attack and it is working pretty well. I'm not 100% better, but I was even able to have sex last night without feeling much pain at all. So, there is hope. I promise, there is hope.

    Many people have success with physio or biofeedback. Some people have found the cause for their V..maybe ureaplasma or lichen sclerosis. For some it's persistent yeast. For me, I don't know what it is but I do know acupuncture takes it away. I truly hope you can get yourself healed. I recommend eating as healthy as possible, trying to de-stress and relax, and trying to focus on the positive. You can do this. You can get better! Hang in there.


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