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    » Can you guys tell me your experiences with diflucan/Fluconazole?
    Today at 1:29 am by ryn207

    » So frustrating!!
    Today at 1:25 am by ryn207

    » Looking for suggestions or encouragement
    Today at 1:19 am by ryn207

    » Looking for a friend..... and new problems
    Yesterday at 10:00 pm by VVSSufferer

    » Vestibulectomy recovery question!
    Sun Jan 14, 2018 11:37 pm by Kezz

    » Prescription creams that work!
    Sun Jan 14, 2018 4:46 am by Mintaherb

    » Struggling
    Sun Jan 14, 2018 4:29 am by Mintaherb

    » Went Away and Came Back
    Sat Jan 13, 2018 10:56 am by mary jane

    » Amitriptyline given for vulvodyina pain
    Sat Jan 13, 2018 1:39 am by ryn207

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

    Comments: 5

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 11

    7 years later and life looks bleak :(

    Wed Dec 06, 2017 2:50 am by RainyShay77

    So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

    Comments: 7

    Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

    Sun Jan 07, 2018 9:38 am by sophiarp

    Hi everyone,

    I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

    I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

    Comments: 2

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 11

    Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

    Mon Nov 20, 2017 8:15 pm by WVR00

    Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

    Comments: 1

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules


    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1

    Diagnosed at 18

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    Diagnosed at 18

    Post  amy4929 on Mon Sep 17, 2012 4:16 pm


    Hi Everyone, I have recently been diagnosed with Vulvondynia and as I'm sure you all know it's pretty difficult to deal with. I can imagine that it's an awful thing to have at any age but I just didn't expect to be dealing something like this at 18. I have a loving, caring, understanding boyfriend who has never been overly concerned about sex and therefore his personality and sex drive is something that has made this easier. However, I personally feel frustrated, useless, unattractive and also like there's just simply something wrong with me in every way. This problem as really taken a toll on my confidence. I am also heading off to university (with my boyfriend) in 6 days and so I just want it to permanetly go away and be forgotten about, but I have realised that this is not the way it works.

    Will I always have to deal with some form of this for the rest of my life?
    I have read so many success stories on here and they make me feel slightly more positive about things and also happy for everyone who have experienced positive results because I can imagine what the relief would feel like. However, it seems to me like this problem never really goes away and that women who have it have to deal with it forever.

    I have been suffering from this for a year and two months now and it occured when I was coming home from a summer holiday with my boyfriend and family. I had all the syptoms of thrush but the doctors misdiagnosed me for months and gradually the feeling began to change, I suppose this was when the vulvondynia began to set it. My boyfriend found a special clinic for me to go to as my doctors (a eventual total of about 6) had started telling me it could be in my mind and the lady at this clinic immediately told me that it was vulvondynia. I am currently on a course of anti-depressents but I have been suffering with severe tiredness and I also have not noticed any change apart from the occasional numbness of my tongue when I can't swallow the tablet properly Razz

    The pain occurs mainly during sex, it is around the outside and feels like someone is scraping their fingernails across an open wound, I am lucky that it doesn't effect me during day to day life things very often and I really feel for those who are dealing with that. It is still difficult to feel positive though, all i want is a happy, simple relationship with my boyfriend with no pain during something that surely is a given right. Sorry, ranting. It's just good to let it out, I can talk to my family and friends and boyfriend about it but I don't feel that they can really connect with what I'm going through.

    I am considering surgery as a serious option to try and heal this. Has anyone has surgery and experienced positive results?
    Or does anyone just have general advice on coping with this? Most people on here seem so positive about everything, i'd really love to be able to be like that about this.
    Thank you so much for reading,
    Amy x


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    Re: Diagnosed at 18

    Post  LillyK on Tue Sep 18, 2012 4:15 am

    What have you tried so far? Personally I've had amazing success with acupuncture and some success with diet. I would not consider surgery unless I had exhausted absolutely every other option, and possibly not even then. I've had other surgeries..knee surgery and c-section, and surgery is just such a drastic measure. hard to bounce back from, and I can't imagine the pain during recovery.

    You don't always have to suffer! Keep trying until you find something that works for you. Keep trying and fighting to get your life back. This is my second bout with V..first one was over 6 yrs ago and that lasted a year and a half. Then I was pain free for 5 yrs. Now it's back, for the past few weeks, but this time I really had a plan of attack and it is working pretty well. I'm not 100% better, but I was even able to have sex last night without feeling much pain at all. So, there is hope. I promise, there is hope.

    Many people have success with physio or biofeedback. Some people have found the cause for their V..maybe ureaplasma or lichen sclerosis. For some it's persistent yeast. For me, I don't know what it is but I do know acupuncture takes it away. I truly hope you can get yourself healed. I recommend eating as healthy as possible, trying to de-stress and relax, and trying to focus on the positive. You can do this. You can get better! Hang in there.


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