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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Diagnosed at 18

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Diagnosed at 18

Post  amy4929 on Mon Sep 17, 2012 4:16 pm

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Hi Everyone, I have recently been diagnosed with Vulvondynia and as I'm sure you all know it's pretty difficult to deal with. I can imagine that it's an awful thing to have at any age but I just didn't expect to be dealing something like this at 18. I have a loving, caring, understanding boyfriend who has never been overly concerned about sex and therefore his personality and sex drive is something that has made this easier. However, I personally feel frustrated, useless, unattractive and also like there's just simply something wrong with me in every way. This problem as really taken a toll on my confidence. I am also heading off to university (with my boyfriend) in 6 days and so I just want it to permanetly go away and be forgotten about, but I have realised that this is not the way it works.

Will I always have to deal with some form of this for the rest of my life?
I have read so many success stories on here and they make me feel slightly more positive about things and also happy for everyone who have experienced positive results because I can imagine what the relief would feel like. However, it seems to me like this problem never really goes away and that women who have it have to deal with it forever.

I have been suffering from this for a year and two months now and it occured when I was coming home from a summer holiday with my boyfriend and family. I had all the syptoms of thrush but the doctors misdiagnosed me for months and gradually the feeling began to change, I suppose this was when the vulvondynia began to set it. My boyfriend found a special clinic for me to go to as my doctors (a eventual total of about 6) had started telling me it could be in my mind and the lady at this clinic immediately told me that it was vulvondynia. I am currently on a course of anti-depressents but I have been suffering with severe tiredness and I also have not noticed any change apart from the occasional numbness of my tongue when I can't swallow the tablet properly Razz

The pain occurs mainly during sex, it is around the outside and feels like someone is scraping their fingernails across an open wound, I am lucky that it doesn't effect me during day to day life things very often and I really feel for those who are dealing with that. It is still difficult to feel positive though, all i want is a happy, simple relationship with my boyfriend with no pain during something that surely is a given right. Sorry, ranting. It's just good to let it out, I can talk to my family and friends and boyfriend about it but I don't feel that they can really connect with what I'm going through.

I am considering surgery as a serious option to try and heal this. Has anyone has surgery and experienced positive results?
Or does anyone just have general advice on coping with this? Most people on here seem so positive about everything, i'd really love to be able to be like that about this.
Thank you so much for reading,
Amy x

amy4929

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Re: Diagnosed at 18

Post  LillyK on Tue Sep 18, 2012 4:15 am

What have you tried so far? Personally I've had amazing success with acupuncture and some success with diet. I would not consider surgery unless I had exhausted absolutely every other option, and possibly not even then. I've had other surgeries..knee surgery and c-section, and surgery is just such a drastic measure. hard to bounce back from, and I can't imagine the pain during recovery.

You don't always have to suffer! Keep trying until you find something that works for you. Keep trying and fighting to get your life back. This is my second bout with V..first one was over 6 yrs ago and that lasted a year and a half. Then I was pain free for 5 yrs. Now it's back, for the past few weeks, but this time I really had a plan of attack and it is working pretty well. I'm not 100% better, but I was even able to have sex last night without feeling much pain at all. So, there is hope. I promise, there is hope.

Many people have success with physio or biofeedback. Some people have found the cause for their V..maybe ureaplasma or lichen sclerosis. For some it's persistent yeast. For me, I don't know what it is but I do know acupuncture takes it away. I truly hope you can get yourself healed. I recommend eating as healthy as possible, trying to de-stress and relax, and trying to focus on the positive. You can do this. You can get better! Hang in there.

LillyK

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Join date : 2012-09-01

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