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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Suggestions for reducing inflammation?

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Suggestions for reducing inflammation?

Post  penfebruary on Mon Sep 17, 2012 9:14 pm

Hi guys, for most of the summer my pain levels have been pretty intermittent and lowish (yay) but I've noticed that soreness on touch around my vulva and on the left hand side just inside my vestibule doesn't go away, even though it doesn't hurt me unless i poke it.
I'm just wondering if anyone can throw in their suggestions for ways of reducing inflammation, in the hopes that it helps in the long run. At the moment I take 35mg ami which seems to help with the unprovoked pain and I have lidocaine gel for if it gets extra burny, which can sometimes help, but I'd like to try and try some things that work to reduce the inflammation rather than just mask it.
Thanks x
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Re: Suggestions for reducing inflammation?

Post  LillyK on Tue Sep 18, 2012 4:04 am

Have you tried an anti-inflammatory diet? Lots of omega-3's, no red meat. It might be worth a shot if you haven't. It seems to help me.

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Re: Suggestions for reducing inflammation?

Post  penfebruary on Wed Sep 19, 2012 7:20 pm

Hi, thanks for your reply! I'll look into it but I'm not sure it could help me much, as I am practically a pescetarian apart from the odd bit of chicken just out of personal taste anyway.
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Re: Suggestions for reducing inflammation?

Post  Sebby (Admin) on Thu Sep 20, 2012 7:44 pm


Hmm Im thinking research natural anti inflammatorys and start to include in your diet.

http://www.womentowomen.com/inflammation/naturalantiinflammatories.aspx

This article seems to give a lot of suggestions!

Take Care

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Re: Suggestions for reducing inflammation?

Post  junobug85 on Wed Sep 26, 2012 11:52 pm

I had the same exact symptoms and tried diets, vitamins, creams, xanex... it turned out that my pelvic floor muscles are extremely tight not allowing oxygen or blood flow which produces lactic acid and burns your vulva... have you ever had your muscles examined? I didn't believe it either, I thought I had an infection living under my skin but I have been doing pelvic floor physical therapy and using a suppository valium for only 2 weeks and I feel so much relief it is amazing.

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Re: Suggestions for reducing inflammation?

Post  Sarah001 on Thu Sep 27, 2012 9:03 pm

Thanks for posting that junobug85 I've been told the same thing about my red sore skin in the vestibule and I knew it was possible but always great to hear from a live sufferer so thanks. Very Happy
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Re: Suggestions for reducing inflammation?

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