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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Suggestions for reducing inflammation?

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Suggestions for reducing inflammation?

Post  penfebruary on Mon Sep 17, 2012 9:14 pm

Hi guys, for most of the summer my pain levels have been pretty intermittent and lowish (yay) but I've noticed that soreness on touch around my vulva and on the left hand side just inside my vestibule doesn't go away, even though it doesn't hurt me unless i poke it.
I'm just wondering if anyone can throw in their suggestions for ways of reducing inflammation, in the hopes that it helps in the long run. At the moment I take 35mg ami which seems to help with the unprovoked pain and I have lidocaine gel for if it gets extra burny, which can sometimes help, but I'd like to try and try some things that work to reduce the inflammation rather than just mask it.
Thanks x
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Re: Suggestions for reducing inflammation?

Post  LillyK on Tue Sep 18, 2012 4:04 am

Have you tried an anti-inflammatory diet? Lots of omega-3's, no red meat. It might be worth a shot if you haven't. It seems to help me.

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Re: Suggestions for reducing inflammation?

Post  penfebruary on Wed Sep 19, 2012 7:20 pm

Hi, thanks for your reply! I'll look into it but I'm not sure it could help me much, as I am practically a pescetarian apart from the odd bit of chicken just out of personal taste anyway.
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Re: Suggestions for reducing inflammation?

Post  Sebby (Admin) on Thu Sep 20, 2012 7:44 pm


Hmm Im thinking research natural anti inflammatorys and start to include in your diet.

http://www.womentowomen.com/inflammation/naturalantiinflammatories.aspx

This article seems to give a lot of suggestions!

Take Care

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Re: Suggestions for reducing inflammation?

Post  junobug85 on Wed Sep 26, 2012 11:52 pm

I had the same exact symptoms and tried diets, vitamins, creams, xanex... it turned out that my pelvic floor muscles are extremely tight not allowing oxygen or blood flow which produces lactic acid and burns your vulva... have you ever had your muscles examined? I didn't believe it either, I thought I had an infection living under my skin but I have been doing pelvic floor physical therapy and using a suppository valium for only 2 weeks and I feel so much relief it is amazing.

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Re: Suggestions for reducing inflammation?

Post  Sarah001 on Thu Sep 27, 2012 9:03 pm

Thanks for posting that junobug85 I've been told the same thing about my red sore skin in the vestibule and I knew it was possible but always great to hear from a live sufferer so thanks. Very Happy
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Re: Suggestions for reducing inflammation?

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