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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Can't believe it!

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Can't believe it!

Post  maudie on Fri Sep 28, 2012 10:47 pm

I am 49, and recently diagnosed with vulvodynia. Due to divorce and an industrial accident, I was non-sexual for two years. When I started up again--ow! But I thought, maybe I was getting drier (peri-menopausal) and also was just not used to sex anymore, was on painkillers; it wasn't very good sex on the guy's part, but I stuck with it, and it quickly went away. Then, after a year with this man, I had another year of no sexual activity. I have to take painkillers because of the accident, so its tough to get any kind of orgasm, on my own or with someone else! Lately, I tried sex again with an understanding guy. We tried different lubes, even plain old vaseline, different positions, but it felt my insides were being pierced with thousands of tiny knives. Screaming pain! Tried several times, and the pain was worse, if possible. I became so inflamed, particularly my perineum, it hurt to sit, pee, drive--all the time. I also had knifelike pain at the very top of my vagina, above the clitoris and into the hairline. There is a goodish fat-pad there, but it felt ready to tear apart if I wasn't careful.

Coincidentally, I went to the Dr. for a routine pap (several years overdue). She could not get the speculum in me. Then, I got my diagnosis, and different gels/creams to try, including one for lichenosis. Now I can sit, and it seems my whole lower area has calmed down, and I'm using the pain gel/ointment less. But I don't dare try the whole sex thing, not yet! I'm not cured, although I feel more normal

Thanks to reading your website for many months, I've been practicing loosening my scrunched up lower muscles, back and belly and all between. I never knew I kept so much tension there! I also, with help from my Dr., got better control of my severe and constant constipation (caused by those necessary painkillers) some of which was so painful (stretched and torn perineum)(landing me in the ER just to get the poop out, brrr), that I'm sure it started this rise in my nerve responses.

But now-- I know why my husband of 20 yrs' very small penis seemed quite enough for me. Why explicit pornography made me shudder and wonder-- "how can she do 4 guys in a row, so big, she looks so dry, etc". Why I knew in my teens I could never be a prostitute simply because of the pain! Why I knew bigger could never be better!

I told my younger sister about this. And she was astounded. She is married, has a 6 year old, and has had these same problems since the birth! Her doctor, a woman, just pooh-poohed it, saying, "well, maybe we can do something with dilators" and went on to another subject. So my sister thought she was alone in her pain, and was very surprised by the info I passed on. I am appalled! In 2012! To treat a married woman with a previously lusty sex life so --recklessly. By a woman gyn!

maudie

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Need to ask!

Post  maudie on Tue Oct 02, 2012 8:23 pm

Forgot to ask-- does anybody have concurrent urological symptoms, like: sometimes feels a hesitancy to go, sometimes the urinary tract seems so inflamed! but I get tested and no infection. Urgent need to go often, but no apparent infection. What do you do for this, for comfort or cure?

I read a post here about women using their muscles wrong when peeing, pushing instead of relaxing? I remember being toilet trained to urinate, me crying on the pot, my mom screaming at me to PUSH!!!-- and being completely at a loss as to what I needed to do. It was always PUSH! Finally I pushed it (urine) out. So I've always pushed, and ,man, was I a strong, fast urinator! Also, as a little girl, my perineum ripped a tiny bit several times, for no apparent reason. I'm just all out of sorts in my whosit-whatsits and it seems so complicated. Isn't there just one answer to all this?

And do hormone suppositories help with vulvodynia and vestibulitis

maudie

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Re: Can't believe it!

Post  LillyK on Wed Oct 03, 2012 5:00 am

I have has some trouble with pushing when peeing too and my aunt has told me that my mother used to tell me to PUSH all the time when I was potty training. Apparently it was so bad that I was in tears because my mom wanted me to go at her will, not mine. My aunt even tried to talk to her about it but my mom was adamant. I actually think this may be part of a cause of my V problem! So I can truly relate. I have learned that double voiding really helps me though. And trying to relax and not push.

FWIW, acupuncture has helped me tremendously and so has eating a low acid/anti-inflammation diet. I hope you find something that works really well for you! Hang in there!

LillyK

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Re: Can't believe it!

Post  Aussie on Mon Oct 08, 2012 11:22 pm

maudie wrote:Forgot to ask-- does anybody have concurrent urological symptoms, like: sometimes feels a hesitancy to go, sometimes the urinary tract seems so inflamed! but I get tested and no infection. Urgent need to go often, but no apparent infection. What do you do for this, for comfort or cure?

I read a post here about women using their muscles wrong when peeing, pushing instead of relaxing? I remember being toilet trained to urinate, me crying on the pot, my mom screaming at me to PUSH!!!-- and being completely at a loss as to what I needed to do. It was always PUSH! Finally I pushed it (urine) out. So I've always pushed, and ,man, was I a strong, fast urinator! Also, as a little girl, my perineum ripped a tiny bit several times, for no apparent reason. I'm just all out of sorts in my whosit-whatsits and it seems so complicated. Isn't there just one answer to all this?

And do hormone suppositories help with vulvodynia and vestibulitis


Your urological symptoms could be IC - it is related to vv. Go to the IC Network forum and get on the IC diet as a precaution... It could also be overly tight pelvic floor muscles and not IC at all. Your experience of toilet training sounds awful. Go the a physical therapsit! This could all be your pelvic floor judging by the way your were told to push not relax your muscles!!!

Aussie

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Thank you!

Post  Mish on Tue Oct 09, 2012 11:14 am

I don't have any answers but thank you because I too have urinary problems! I constantly have a urinary tract infection and am just uncomfortable - feeling like I need to pee and then find it hard to pee - just always a irritated - thanks for sharing!! I don't feel so weird!

Mish

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Re: Can't believe it!

Post  Aussie on Tue Oct 09, 2012 10:30 pm

Mish don't drink cranberry juice for the "'infections'' it's highly acidic and will make symptoms worse if it is in fact IC. Stay away from coffee chocoloate and citrus. More detail can be found on the IC Network website Smile

Aussie

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Tough one

Post  Mish on Fri Oct 12, 2012 12:16 am

Thanks so much!! It's really tough because if I don't treat the UTI I end up bleeding in hospital but the preventions (cranberry, ural, apple cider vinegar etc) prevent it when it comes on... Noone seems to be able to balance this... ??

Mish

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Re: Can't believe it!

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