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» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Can't believe it!

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Can't believe it!

Post  maudie on Fri Sep 28, 2012 10:47 pm

I am 49, and recently diagnosed with vulvodynia. Due to divorce and an industrial accident, I was non-sexual for two years. When I started up again--ow! But I thought, maybe I was getting drier (peri-menopausal) and also was just not used to sex anymore, was on painkillers; it wasn't very good sex on the guy's part, but I stuck with it, and it quickly went away. Then, after a year with this man, I had another year of no sexual activity. I have to take painkillers because of the accident, so its tough to get any kind of orgasm, on my own or with someone else! Lately, I tried sex again with an understanding guy. We tried different lubes, even plain old vaseline, different positions, but it felt my insides were being pierced with thousands of tiny knives. Screaming pain! Tried several times, and the pain was worse, if possible. I became so inflamed, particularly my perineum, it hurt to sit, pee, drive--all the time. I also had knifelike pain at the very top of my vagina, above the clitoris and into the hairline. There is a goodish fat-pad there, but it felt ready to tear apart if I wasn't careful.

Coincidentally, I went to the Dr. for a routine pap (several years overdue). She could not get the speculum in me. Then, I got my diagnosis, and different gels/creams to try, including one for lichenosis. Now I can sit, and it seems my whole lower area has calmed down, and I'm using the pain gel/ointment less. But I don't dare try the whole sex thing, not yet! I'm not cured, although I feel more normal

Thanks to reading your website for many months, I've been practicing loosening my scrunched up lower muscles, back and belly and all between. I never knew I kept so much tension there! I also, with help from my Dr., got better control of my severe and constant constipation (caused by those necessary painkillers) some of which was so painful (stretched and torn perineum)(landing me in the ER just to get the poop out, brrr), that I'm sure it started this rise in my nerve responses.

But now-- I know why my husband of 20 yrs' very small penis seemed quite enough for me. Why explicit pornography made me shudder and wonder-- "how can she do 4 guys in a row, so big, she looks so dry, etc". Why I knew in my teens I could never be a prostitute simply because of the pain! Why I knew bigger could never be better!

I told my younger sister about this. And she was astounded. She is married, has a 6 year old, and has had these same problems since the birth! Her doctor, a woman, just pooh-poohed it, saying, "well, maybe we can do something with dilators" and went on to another subject. So my sister thought she was alone in her pain, and was very surprised by the info I passed on. I am appalled! In 2012! To treat a married woman with a previously lusty sex life so --recklessly. By a woman gyn!

maudie

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Need to ask!

Post  maudie on Tue Oct 02, 2012 8:23 pm

Forgot to ask-- does anybody have concurrent urological symptoms, like: sometimes feels a hesitancy to go, sometimes the urinary tract seems so inflamed! but I get tested and no infection. Urgent need to go often, but no apparent infection. What do you do for this, for comfort or cure?

I read a post here about women using their muscles wrong when peeing, pushing instead of relaxing? I remember being toilet trained to urinate, me crying on the pot, my mom screaming at me to PUSH!!!-- and being completely at a loss as to what I needed to do. It was always PUSH! Finally I pushed it (urine) out. So I've always pushed, and ,man, was I a strong, fast urinator! Also, as a little girl, my perineum ripped a tiny bit several times, for no apparent reason. I'm just all out of sorts in my whosit-whatsits and it seems so complicated. Isn't there just one answer to all this?

And do hormone suppositories help with vulvodynia and vestibulitis

maudie

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Re: Can't believe it!

Post  LillyK on Wed Oct 03, 2012 5:00 am

I have has some trouble with pushing when peeing too and my aunt has told me that my mother used to tell me to PUSH all the time when I was potty training. Apparently it was so bad that I was in tears because my mom wanted me to go at her will, not mine. My aunt even tried to talk to her about it but my mom was adamant. I actually think this may be part of a cause of my V problem! So I can truly relate. I have learned that double voiding really helps me though. And trying to relax and not push.

FWIW, acupuncture has helped me tremendously and so has eating a low acid/anti-inflammation diet. I hope you find something that works really well for you! Hang in there!

LillyK

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Re: Can't believe it!

Post  Aussie on Mon Oct 08, 2012 11:22 pm

maudie wrote:Forgot to ask-- does anybody have concurrent urological symptoms, like: sometimes feels a hesitancy to go, sometimes the urinary tract seems so inflamed! but I get tested and no infection. Urgent need to go often, but no apparent infection. What do you do for this, for comfort or cure?

I read a post here about women using their muscles wrong when peeing, pushing instead of relaxing? I remember being toilet trained to urinate, me crying on the pot, my mom screaming at me to PUSH!!!-- and being completely at a loss as to what I needed to do. It was always PUSH! Finally I pushed it (urine) out. So I've always pushed, and ,man, was I a strong, fast urinator! Also, as a little girl, my perineum ripped a tiny bit several times, for no apparent reason. I'm just all out of sorts in my whosit-whatsits and it seems so complicated. Isn't there just one answer to all this?

And do hormone suppositories help with vulvodynia and vestibulitis


Your urological symptoms could be IC - it is related to vv. Go to the IC Network forum and get on the IC diet as a precaution... It could also be overly tight pelvic floor muscles and not IC at all. Your experience of toilet training sounds awful. Go the a physical therapsit! This could all be your pelvic floor judging by the way your were told to push not relax your muscles!!!

Aussie

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Thank you!

Post  Mish on Tue Oct 09, 2012 11:14 am

I don't have any answers but thank you because I too have urinary problems! I constantly have a urinary tract infection and am just uncomfortable - feeling like I need to pee and then find it hard to pee - just always a irritated - thanks for sharing!! I don't feel so weird!

Mish

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Re: Can't believe it!

Post  Aussie on Tue Oct 09, 2012 10:30 pm

Mish don't drink cranberry juice for the "'infections'' it's highly acidic and will make symptoms worse if it is in fact IC. Stay away from coffee chocoloate and citrus. More detail can be found on the IC Network website Smile

Aussie

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Tough one

Post  Mish on Fri Oct 12, 2012 12:16 am

Thanks so much!! It's really tough because if I don't treat the UTI I end up bleeding in hospital but the preventions (cranberry, ural, apple cider vinegar etc) prevent it when it comes on... Noone seems to be able to balance this... ??

Mish

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Re: Can't believe it!

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