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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Can't believe it!

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Can't believe it!

Post  maudie on Fri Sep 28, 2012 10:47 pm

I am 49, and recently diagnosed with vulvodynia. Due to divorce and an industrial accident, I was non-sexual for two years. When I started up again--ow! But I thought, maybe I was getting drier (peri-menopausal) and also was just not used to sex anymore, was on painkillers; it wasn't very good sex on the guy's part, but I stuck with it, and it quickly went away. Then, after a year with this man, I had another year of no sexual activity. I have to take painkillers because of the accident, so its tough to get any kind of orgasm, on my own or with someone else! Lately, I tried sex again with an understanding guy. We tried different lubes, even plain old vaseline, different positions, but it felt my insides were being pierced with thousands of tiny knives. Screaming pain! Tried several times, and the pain was worse, if possible. I became so inflamed, particularly my perineum, it hurt to sit, pee, drive--all the time. I also had knifelike pain at the very top of my vagina, above the clitoris and into the hairline. There is a goodish fat-pad there, but it felt ready to tear apart if I wasn't careful.

Coincidentally, I went to the Dr. for a routine pap (several years overdue). She could not get the speculum in me. Then, I got my diagnosis, and different gels/creams to try, including one for lichenosis. Now I can sit, and it seems my whole lower area has calmed down, and I'm using the pain gel/ointment less. But I don't dare try the whole sex thing, not yet! I'm not cured, although I feel more normal

Thanks to reading your website for many months, I've been practicing loosening my scrunched up lower muscles, back and belly and all between. I never knew I kept so much tension there! I also, with help from my Dr., got better control of my severe and constant constipation (caused by those necessary painkillers) some of which was so painful (stretched and torn perineum)(landing me in the ER just to get the poop out, brrr), that I'm sure it started this rise in my nerve responses.

But now-- I know why my husband of 20 yrs' very small penis seemed quite enough for me. Why explicit pornography made me shudder and wonder-- "how can she do 4 guys in a row, so big, she looks so dry, etc". Why I knew in my teens I could never be a prostitute simply because of the pain! Why I knew bigger could never be better!

I told my younger sister about this. And she was astounded. She is married, has a 6 year old, and has had these same problems since the birth! Her doctor, a woman, just pooh-poohed it, saying, "well, maybe we can do something with dilators" and went on to another subject. So my sister thought she was alone in her pain, and was very surprised by the info I passed on. I am appalled! In 2012! To treat a married woman with a previously lusty sex life so --recklessly. By a woman gyn!

maudie

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Need to ask!

Post  maudie on Tue Oct 02, 2012 8:23 pm

Forgot to ask-- does anybody have concurrent urological symptoms, like: sometimes feels a hesitancy to go, sometimes the urinary tract seems so inflamed! but I get tested and no infection. Urgent need to go often, but no apparent infection. What do you do for this, for comfort or cure?

I read a post here about women using their muscles wrong when peeing, pushing instead of relaxing? I remember being toilet trained to urinate, me crying on the pot, my mom screaming at me to PUSH!!!-- and being completely at a loss as to what I needed to do. It was always PUSH! Finally I pushed it (urine) out. So I've always pushed, and ,man, was I a strong, fast urinator! Also, as a little girl, my perineum ripped a tiny bit several times, for no apparent reason. I'm just all out of sorts in my whosit-whatsits and it seems so complicated. Isn't there just one answer to all this?

And do hormone suppositories help with vulvodynia and vestibulitis

maudie

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Re: Can't believe it!

Post  LillyK on Wed Oct 03, 2012 5:00 am

I have has some trouble with pushing when peeing too and my aunt has told me that my mother used to tell me to PUSH all the time when I was potty training. Apparently it was so bad that I was in tears because my mom wanted me to go at her will, not mine. My aunt even tried to talk to her about it but my mom was adamant. I actually think this may be part of a cause of my V problem! So I can truly relate. I have learned that double voiding really helps me though. And trying to relax and not push.

FWIW, acupuncture has helped me tremendously and so has eating a low acid/anti-inflammation diet. I hope you find something that works really well for you! Hang in there!

LillyK

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Re: Can't believe it!

Post  Aussie on Mon Oct 08, 2012 11:22 pm

maudie wrote:Forgot to ask-- does anybody have concurrent urological symptoms, like: sometimes feels a hesitancy to go, sometimes the urinary tract seems so inflamed! but I get tested and no infection. Urgent need to go often, but no apparent infection. What do you do for this, for comfort or cure?

I read a post here about women using their muscles wrong when peeing, pushing instead of relaxing? I remember being toilet trained to urinate, me crying on the pot, my mom screaming at me to PUSH!!!-- and being completely at a loss as to what I needed to do. It was always PUSH! Finally I pushed it (urine) out. So I've always pushed, and ,man, was I a strong, fast urinator! Also, as a little girl, my perineum ripped a tiny bit several times, for no apparent reason. I'm just all out of sorts in my whosit-whatsits and it seems so complicated. Isn't there just one answer to all this?

And do hormone suppositories help with vulvodynia and vestibulitis


Your urological symptoms could be IC - it is related to vv. Go to the IC Network forum and get on the IC diet as a precaution... It could also be overly tight pelvic floor muscles and not IC at all. Your experience of toilet training sounds awful. Go the a physical therapsit! This could all be your pelvic floor judging by the way your were told to push not relax your muscles!!!

Aussie

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Thank you!

Post  Mish on Tue Oct 09, 2012 11:14 am

I don't have any answers but thank you because I too have urinary problems! I constantly have a urinary tract infection and am just uncomfortable - feeling like I need to pee and then find it hard to pee - just always a irritated - thanks for sharing!! I don't feel so weird!

Mish

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Re: Can't believe it!

Post  Aussie on Tue Oct 09, 2012 10:30 pm

Mish don't drink cranberry juice for the "'infections'' it's highly acidic and will make symptoms worse if it is in fact IC. Stay away from coffee chocoloate and citrus. More detail can be found on the IC Network website Smile

Aussie

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Tough one

Post  Mish on Fri Oct 12, 2012 12:16 am

Thanks so much!! It's really tough because if I don't treat the UTI I end up bleeding in hospital but the preventions (cranberry, ural, apple cider vinegar etc) prevent it when it comes on... Noone seems to be able to balance this... ??

Mish

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Re: Can't believe it!

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