Vulvodynia Support
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» Hope to all my suffering ladies
I found relief with antihistamines/decongestants EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
I found relief with antihistamines/decongestants EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
I found relief with antihistamines/decongestants EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
I found relief with antihistamines/decongestants EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
I found relief with antihistamines/decongestants EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
I found relief with antihistamines/decongestants EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
I found relief with antihistamines/decongestants EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
I found relief with antihistamines/decongestants EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
I found relief with antihistamines/decongestants EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


I found relief with antihistamines/decongestants

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I found relief with antihistamines/decongestants Empty I found relief with antihistamines/decongestants

Post  Eastview33 Sun Sep 30, 2012 1:30 pm

I've found tremendous relief from pain using antihistamines that include decongestants. I had read about antihistamines so one day desperate to stop the pain I tried taking tavist d which was OTC at the time. Within a half hour of taking it my pain had subsided. After a few days it was gone. I told my doctor about it and he gave me a prescription for antihistamine so I could avoid the drowsy effect. But I found that didn't work as well. Then I realized that it might be the combo of antihistamine and decongestant. If decongestant reduces inflammation in the nasal passages why not elsewhere. Ever since I have been able to control my symptoms with this method and can go years without a problem. I hope by sharing this I can help others.

Eastview33

Posts : 3
Join date : 2012-09-30

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Post  Loulou Mon Oct 01, 2012 8:30 pm

Hi Eastview - thanks for the tip. My GP also mentioned that antihistamines can help some vvd sufferers. It's on my list of things to try. You say that you can go for years without a problem - does this mean that it does come back when you stop using antihistamines?

Loulou

Posts : 124
Join date : 2012-01-18

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Post  Eastview33 Mon Oct 01, 2012 9:57 pm

Actually I found after using the antihistamines/decongestants, I could discontinue it after several days and remain pain free. I don't have to stay on them but could use again if I had a flare up. I'm not always sure what would trigger one. It was never one thing. But I did go years without any significant problems. It was just I found that it was the combination that helped me and not just the antihistamine alone.

Eastview33

Posts : 3
Join date : 2012-09-30

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I found relief with antihistamines/decongestants Empty relief with decongestan

Post  evanrude Tue Oct 02, 2012 3:35 am

Can I ask what type of vulvodynia you have and often you have to take the decongestan?

evanrude

Posts : 15
Join date : 2011-11-01
Location : USA

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Post  Aussie Tue Oct 02, 2012 4:35 am

This is interesting as antihistamines are a essential componant of treatment for some sufferers of Interstial Cystitis. The tissue in the vestibule is the same as in the bladder so if it works for IC why wouldn't it help vv Smile

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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Post  Eastview33 Tue Oct 02, 2012 8:31 pm

I'm not sure what type I have but I take the decongestants continually when I'm having a flare up and after a few days I can generally stop. Sometimes it works better and faster than other times.

Eastview33

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