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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


I found relief with antihistamines/decongestants

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I found relief with antihistamines/decongestants

Post  Eastview33 on Sun Sep 30, 2012 1:30 pm

I've found tremendous relief from pain using antihistamines that include decongestants. I had read about antihistamines so one day desperate to stop the pain I tried taking tavist d which was OTC at the time. Within a half hour of taking it my pain had subsided. After a few days it was gone. I told my doctor about it and he gave me a prescription for antihistamine so I could avoid the drowsy effect. But I found that didn't work as well. Then I realized that it might be the combo of antihistamine and decongestant. If decongestant reduces inflammation in the nasal passages why not elsewhere. Ever since I have been able to control my symptoms with this method and can go years without a problem. I hope by sharing this I can help others.

Eastview33

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Re: I found relief with antihistamines/decongestants

Post  Loulou on Mon Oct 01, 2012 8:30 pm

Hi Eastview - thanks for the tip. My GP also mentioned that antihistamines can help some vvd sufferers. It's on my list of things to try. You say that you can go for years without a problem - does this mean that it does come back when you stop using antihistamines?

Loulou

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I found relief from antihistamines/decongestants

Post  Eastview33 on Mon Oct 01, 2012 9:57 pm

Actually I found after using the antihistamines/decongestants, I could discontinue it after several days and remain pain free. I don't have to stay on them but could use again if I had a flare up. I'm not always sure what would trigger one. It was never one thing. But I did go years without any significant problems. It was just I found that it was the combination that helped me and not just the antihistamine alone.

Eastview33

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relief with decongestan

Post  evanrude on Tue Oct 02, 2012 3:35 am

Can I ask what type of vulvodynia you have and often you have to take the decongestan?

evanrude

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Re: I found relief with antihistamines/decongestants

Post  Aussie on Tue Oct 02, 2012 4:35 am

This is interesting as antihistamines are a essential componant of treatment for some sufferers of Interstial Cystitis. The tissue in the vestibule is the same as in the bladder so if it works for IC why wouldn't it help vv Smile

Aussie

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I found relief with antihistamines/decongestants

Post  Eastview33 on Tue Oct 02, 2012 8:31 pm

I'm not sure what type I have but I take the decongestants continually when I'm having a flare up and after a few days I can generally stop. Sometimes it works better and faster than other times.

Eastview33

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Re: I found relief with antihistamines/decongestants

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