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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

I found relief with antihistamines/decongestants

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I found relief with antihistamines/decongestants

Post  Eastview33 on Sun Sep 30, 2012 1:30 pm

I've found tremendous relief from pain using antihistamines that include decongestants. I had read about antihistamines so one day desperate to stop the pain I tried taking tavist d which was OTC at the time. Within a half hour of taking it my pain had subsided. After a few days it was gone. I told my doctor about it and he gave me a prescription for antihistamine so I could avoid the drowsy effect. But I found that didn't work as well. Then I realized that it might be the combo of antihistamine and decongestant. If decongestant reduces inflammation in the nasal passages why not elsewhere. Ever since I have been able to control my symptoms with this method and can go years without a problem. I hope by sharing this I can help others.


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Re: I found relief with antihistamines/decongestants

Post  Loulou on Mon Oct 01, 2012 8:30 pm

Hi Eastview - thanks for the tip. My GP also mentioned that antihistamines can help some vvd sufferers. It's on my list of things to try. You say that you can go for years without a problem - does this mean that it does come back when you stop using antihistamines?


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I found relief from antihistamines/decongestants

Post  Eastview33 on Mon Oct 01, 2012 9:57 pm

Actually I found after using the antihistamines/decongestants, I could discontinue it after several days and remain pain free. I don't have to stay on them but could use again if I had a flare up. I'm not always sure what would trigger one. It was never one thing. But I did go years without any significant problems. It was just I found that it was the combination that helped me and not just the antihistamine alone.


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relief with decongestan

Post  evanrude on Tue Oct 02, 2012 3:35 am

Can I ask what type of vulvodynia you have and often you have to take the decongestan?


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Re: I found relief with antihistamines/decongestants

Post  Aussie on Tue Oct 02, 2012 4:35 am

This is interesting as antihistamines are a essential componant of treatment for some sufferers of Interstial Cystitis. The tissue in the vestibule is the same as in the bladder so if it works for IC why wouldn't it help vv Smile


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I found relief with antihistamines/decongestants

Post  Eastview33 on Tue Oct 02, 2012 8:31 pm

I'm not sure what type I have but I take the decongestants continually when I'm having a flare up and after a few days I can generally stop. Sometimes it works better and faster than other times.


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Re: I found relief with antihistamines/decongestants

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