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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


No pain during ovulation?

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No pain during ovulation?

Post  katie220 on Thu Oct 04, 2012 7:20 pm

I noticed that I have no pain during ovulation. The pain is at it's worst after and right before my period. Does anyone know anything about this? Is there a type of birth control I could go on that would eliminate the pain? I figured there would be because the pain seems to be hormonal.

thanks.

katie220

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Re: No pain during ovulation?

Post  Loulou on Thu Oct 04, 2012 9:24 pm

Hi Kate

I think the pain might be hormonal for some women. I wondered about this in my case too, especially as i'm 48 and probably peri-menopausal. My pattern is slightly different to yours, I have my best days just before my period and the first couple of days (when i'm actually bleeding) - in fact over the last couple of cycles these good days have actually been so good i felt normal! but then i always seem to have a flare up from about day 3/4 of my period. The flare ups are not severe (more a slight soreness/irritation or 'thrushy' feeling) as my pain levels have come down hugely in recent months due to regular chiro/yoga/pilates -yay cheers , but the flares do linger for several days afterwards, followed by variable days (some good, some not) until i get close to my period again when things improve again. Thrush tests have come back negative (tho i haven't been tested recently) and in any case i don't get the traditional itching or cottage cheese discharge so i'm pretty sure myself its not thrush it just feels 'thrushy' if that makes sense!

So I had my hormones tested recently and was told they were within normal ranges and 'no further action required' but my estrogen did look high so i'm not sure, i still think there might be something in this i'm just not sure what to do next....

What i would say tho is that some women find that birth control pills might have caused their vvd so just make sure you get whatever tests you can, do research, get good specialist advice before you go down that route.

One of the things i'm wondering about is whether or how hormones affect the vagina and uterus. I do internal massage and this seems to help and i've noticed that when i'm having a flare up I always feel very tight or 'closed in' in my vagina and sometimes I can feel the top of my cervix. Maybe the hormonal cycle affects the internal organs and muscles this way??? I've been trying to research it on t'interweb and it seems that the cervix does move up and down during the monthly cycle. So i'm not sure if it is hormonal (ie a hormone imbalance creates 'abnormal' movement and therefore pain) and/or a muscular problem (i.e tight pelvic floor, pelvic or spinal alignment etc)??



Loulou

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Re: No pain during ovulation?

Post  Need Hope on Sat Oct 06, 2012 6:41 pm

Katie,

I have the same experience. Before and after period is unbearable.
I feel the best around ovulation. I want to have my hormones tested, but doctors have not been very encouraging.
I am 29 and was normal until last year. I try to track my symptoms.....so fed up with it all.

Need Hope

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Re: No pain during ovulation?

Post  Kate1981 on Fri Oct 26, 2012 4:01 pm

I am exactly the same. The pain is much better during ovulation and really bad before and during my period. Ive asked to get my hormones tested as I have very bad acne and im 31 always had bad skin but since the v it has been much worse. I also get very bad PMT I feel down and the slightest thing makes me mad and then teary. I asked my GP to test them but she doesnt know how!!! Great!!! I feel very dry compared to how I used to feel which suggests my estrogen levels could be low. There was an article yesterday in the Mirror (UK) which talked about femaile pain down there and how doctors say there is nothing they can do. It says it is mostly down to estrogen defficiency which caused dryness and thining of the vaginal walls and if it is not treated quickly can lead to nerve pain which I have now got! I have a sharp pain which feels like it is the right side of my vagina sometimes it feels sharp, sometimes i have burning at the back entrance and sometimes its just an itchy dull feeling! Are your symtoms the same?

Kate1981

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Re: No pain during ovulation?

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