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» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


No pain during ovulation?

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No pain during ovulation?

Post  katie220 on Thu Oct 04, 2012 7:20 pm

I noticed that I have no pain during ovulation. The pain is at it's worst after and right before my period. Does anyone know anything about this? Is there a type of birth control I could go on that would eliminate the pain? I figured there would be because the pain seems to be hormonal.

thanks.

katie220

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Re: No pain during ovulation?

Post  Loulou on Thu Oct 04, 2012 9:24 pm

Hi Kate

I think the pain might be hormonal for some women. I wondered about this in my case too, especially as i'm 48 and probably peri-menopausal. My pattern is slightly different to yours, I have my best days just before my period and the first couple of days (when i'm actually bleeding) - in fact over the last couple of cycles these good days have actually been so good i felt normal! but then i always seem to have a flare up from about day 3/4 of my period. The flare ups are not severe (more a slight soreness/irritation or 'thrushy' feeling) as my pain levels have come down hugely in recent months due to regular chiro/yoga/pilates -yay cheers , but the flares do linger for several days afterwards, followed by variable days (some good, some not) until i get close to my period again when things improve again. Thrush tests have come back negative (tho i haven't been tested recently) and in any case i don't get the traditional itching or cottage cheese discharge so i'm pretty sure myself its not thrush it just feels 'thrushy' if that makes sense!

So I had my hormones tested recently and was told they were within normal ranges and 'no further action required' but my estrogen did look high so i'm not sure, i still think there might be something in this i'm just not sure what to do next....

What i would say tho is that some women find that birth control pills might have caused their vvd so just make sure you get whatever tests you can, do research, get good specialist advice before you go down that route.

One of the things i'm wondering about is whether or how hormones affect the vagina and uterus. I do internal massage and this seems to help and i've noticed that when i'm having a flare up I always feel very tight or 'closed in' in my vagina and sometimes I can feel the top of my cervix. Maybe the hormonal cycle affects the internal organs and muscles this way??? I've been trying to research it on t'interweb and it seems that the cervix does move up and down during the monthly cycle. So i'm not sure if it is hormonal (ie a hormone imbalance creates 'abnormal' movement and therefore pain) and/or a muscular problem (i.e tight pelvic floor, pelvic or spinal alignment etc)??



Loulou

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Re: No pain during ovulation?

Post  Need Hope on Sat Oct 06, 2012 6:41 pm

Katie,

I have the same experience. Before and after period is unbearable.
I feel the best around ovulation. I want to have my hormones tested, but doctors have not been very encouraging.
I am 29 and was normal until last year. I try to track my symptoms.....so fed up with it all.

Need Hope

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Re: No pain during ovulation?

Post  Kate1981 on Fri Oct 26, 2012 4:01 pm

I am exactly the same. The pain is much better during ovulation and really bad before and during my period. Ive asked to get my hormones tested as I have very bad acne and im 31 always had bad skin but since the v it has been much worse. I also get very bad PMT I feel down and the slightest thing makes me mad and then teary. I asked my GP to test them but she doesnt know how!!! Great!!! I feel very dry compared to how I used to feel which suggests my estrogen levels could be low. There was an article yesterday in the Mirror (UK) which talked about femaile pain down there and how doctors say there is nothing they can do. It says it is mostly down to estrogen defficiency which caused dryness and thining of the vaginal walls and if it is not treated quickly can lead to nerve pain which I have now got! I have a sharp pain which feels like it is the right side of my vagina sometimes it feels sharp, sometimes i have burning at the back entrance and sometimes its just an itchy dull feeling! Are your symtoms the same?

Kate1981

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Re: No pain during ovulation?

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