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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


No pain during ovulation?

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No pain during ovulation?

Post  katie220 on Thu Oct 04, 2012 7:20 pm

I noticed that I have no pain during ovulation. The pain is at it's worst after and right before my period. Does anyone know anything about this? Is there a type of birth control I could go on that would eliminate the pain? I figured there would be because the pain seems to be hormonal.

thanks.

katie220

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Re: No pain during ovulation?

Post  Loulou on Thu Oct 04, 2012 9:24 pm

Hi Kate

I think the pain might be hormonal for some women. I wondered about this in my case too, especially as i'm 48 and probably peri-menopausal. My pattern is slightly different to yours, I have my best days just before my period and the first couple of days (when i'm actually bleeding) - in fact over the last couple of cycles these good days have actually been so good i felt normal! but then i always seem to have a flare up from about day 3/4 of my period. The flare ups are not severe (more a slight soreness/irritation or 'thrushy' feeling) as my pain levels have come down hugely in recent months due to regular chiro/yoga/pilates -yay cheers , but the flares do linger for several days afterwards, followed by variable days (some good, some not) until i get close to my period again when things improve again. Thrush tests have come back negative (tho i haven't been tested recently) and in any case i don't get the traditional itching or cottage cheese discharge so i'm pretty sure myself its not thrush it just feels 'thrushy' if that makes sense!

So I had my hormones tested recently and was told they were within normal ranges and 'no further action required' but my estrogen did look high so i'm not sure, i still think there might be something in this i'm just not sure what to do next....

What i would say tho is that some women find that birth control pills might have caused their vvd so just make sure you get whatever tests you can, do research, get good specialist advice before you go down that route.

One of the things i'm wondering about is whether or how hormones affect the vagina and uterus. I do internal massage and this seems to help and i've noticed that when i'm having a flare up I always feel very tight or 'closed in' in my vagina and sometimes I can feel the top of my cervix. Maybe the hormonal cycle affects the internal organs and muscles this way??? I've been trying to research it on t'interweb and it seems that the cervix does move up and down during the monthly cycle. So i'm not sure if it is hormonal (ie a hormone imbalance creates 'abnormal' movement and therefore pain) and/or a muscular problem (i.e tight pelvic floor, pelvic or spinal alignment etc)??



Loulou

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Re: No pain during ovulation?

Post  Need Hope on Sat Oct 06, 2012 6:41 pm

Katie,

I have the same experience. Before and after period is unbearable.
I feel the best around ovulation. I want to have my hormones tested, but doctors have not been very encouraging.
I am 29 and was normal until last year. I try to track my symptoms.....so fed up with it all.

Need Hope

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Re: No pain during ovulation?

Post  Kate1981 on Fri Oct 26, 2012 4:01 pm

I am exactly the same. The pain is much better during ovulation and really bad before and during my period. Ive asked to get my hormones tested as I have very bad acne and im 31 always had bad skin but since the v it has been much worse. I also get very bad PMT I feel down and the slightest thing makes me mad and then teary. I asked my GP to test them but she doesnt know how!!! Great!!! I feel very dry compared to how I used to feel which suggests my estrogen levels could be low. There was an article yesterday in the Mirror (UK) which talked about femaile pain down there and how doctors say there is nothing they can do. It says it is mostly down to estrogen defficiency which caused dryness and thining of the vaginal walls and if it is not treated quickly can lead to nerve pain which I have now got! I have a sharp pain which feels like it is the right side of my vagina sometimes it feels sharp, sometimes i have burning at the back entrance and sometimes its just an itchy dull feeling! Are your symtoms the same?

Kate1981

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Re: No pain during ovulation?

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