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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Husbands?
4 posters
Page 1 of 1
Husbands?
My wife has suffered from this condition for our entire marriage, and for some time before we met. A total of more than 10 years. She's never known sex to be anything but painful and always something to be avoided. It took me a long long time to understand this, and I'm still coming to terms with it.
Any husbands or boyfriends out there? What's your story and how did you support your woman during the hard times?
Any husbands or boyfriends out there? What's your story and how did you support your woman during the hard times?
gbook- Posts : 7
Join date : 2010-08-01
Re: Husbands?
I don't know what i would do without my partner's love and support. The most valuable thing he can do for me when I'm having a hard time is to express his affection for and attraction to me- to remind me that I am still sexually attractive, wanted and capable of having a mutually enjoyable (if limited) physical relationship.
lisa98- Posts : 33
Join date : 2010-07-31
Re: Husbands?
gbook if you go to www.vulvodynia.com and have a look in the guestbooks there's a guy on there called Frank who's wife has vulvodynia and I'm sure he'd be willing to talk to you.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Husbands?
Welcome gbook, its great to hear from the husbands/boyfriends.
If you guys have been together for 10 years now it already sounds like you are very understanding!
Im not currently in a relationship but I know what does help is like Lisa said is for him to still express his attraction and affection. Many cuddles pleaseeee lol
Even if I have found intercourse too painful It doesnt mean im not longing for sexual contact...to be able to do all sorts of other fun things and for my partner to enjoy this as well is fantastic..also I find that the more you do this the more relaxed you are to attempt intercourse.
Also (unlike my previous partner) its great to know your boyfriend/husband genuinally cares about the fact you are in pain. So empathy is greatly appreciated.
You say you are still coming to terms with it and this is soo understandable. So also get sum support for yourself...this forum is also for those who lives are affected indirectly by Vulval Pain..so if you need to get a few things off your chest by all means do so.
Good Luck and Take Care
Sebby
xx
Re: Husbands?
Thanks for the replies and advice. The toughest part of this is that my wife is no longer in pain. After the vestibulectomy surgery, she's 99% pain free. But... she still avoids any intimacy like the plague. She refuses to seek any kind of therapy or counseling. The only thing she wants from me is for me to not touch her at all. No making out, no non-penetrative sex, no fondling, nada.
It feels like the only outcome she's comfortable with is no intimacy, and that's tough for me. Either I can accept that, not accept it, or preferably find a way to meet half way. I really want to figure out how we can both be comfortable with our sex life together. I'm also more than happy to go to therapy, but it's not too helpful if I go by myself.
Any discussion for treatment/therapy on my side is met with resistance. So I strongly feel her and I need to do something, but I have no idea how to we're going to do it
It feels like the only outcome she's comfortable with is no intimacy, and that's tough for me. Either I can accept that, not accept it, or preferably find a way to meet half way. I really want to figure out how we can both be comfortable with our sex life together. I'm also more than happy to go to therapy, but it's not too helpful if I go by myself.
Any discussion for treatment/therapy on my side is met with resistance. So I strongly feel her and I need to do something, but I have no idea how to we're going to do it
gbook- Posts : 7
Join date : 2010-08-01
Re: Husbands?
That's tricky because obviously with some help she could probably resume sex without too many problems now she's painfree without but at the same time I can understand her fears, I'm sure she thinks sex will send her spiralling back into the hell she was in before. The only thing I can think of is to buy some dilators online and for her to try them very slowly on her own at home to see how penetration feels (lots of lube), the sets have some very small ones and build up in size. I would have thought however the hospital that performed the surgery would have advised this afterwards to get the tissue in optimum condition anyway? If they did'nt it will likely be a necessity to remain painfree anyway.
It might benefit you to go to a therapist on your own anyway as they may have some helpful suggestions about how to approach the situation with your wife, sometimes a slightly different approach can be more helpful and a good therapist will probably have come across similar situations with couples in the past.
It might benefit you to go to a therapist on your own anyway as they may have some helpful suggestions about how to approach the situation with your wife, sometimes a slightly different approach can be more helpful and a good therapist will probably have come across similar situations with couples in the past.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer