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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Anybody else get a feeling like electricity buzzing around the affected area

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Anybody else get a feeling like electricity buzzing around the affected area

Post  BerylH on Tue Oct 09, 2012 8:34 am

Hi everyone
Many thanks for your replies to my previous message posted on behalf of my mother, it has been most helpful and I really appreciate the time you take to offer help and advice.
I have another question I wanted to ask for her, and that is her explanation of the feeling is that she feels like electricity is buzzing around constantly, like a pulsating, buzzing feeling, she even mentions feeling like her whole body is swaying, almost like she is on a boat. Does anyone else have this sensation (it is painful as well as buzzing), and she also feels as though there is a boil or something that needs to be lanced to stop the pressure, especially when sitting down, and yet on inspection through the various doctors, gynaecologists, etc there is nothing visible there.
I haven't seen this electricity feeling mentioned on the forum, so just wanted to check if anyone else has a similar feeling, to rule out the fact that maybe she has been misdiagnosed all along and that is why she is having very little success with any of the treatments.
Many thanks for reading and I look forward to hearing from you.

BerylH

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  ButterflyLiz on Wed Oct 10, 2012 9:04 pm

Hi Beryl,

So sorry to hear your mother is suffering with vulvodynia. I spotted this post and thought I would respond as I have had the electricity thing. Normally my pain is of the burning / stinging type, but when it was at the worst of the worst I had the electricity type feeling. It was the weirdest and most horrible sensation and I haven't had it since but it's definitely possible with v. I suppose it is the nerves there going crazy.

In case it helps, I am on lyrica (pregabalin) which helps a lot to supress the pain. It doesn't eliminate it but makes life more bearable. I also use instillagel on the area which is a topical aneasthetic, I put this on at night to help keep the pain signals dampened down. For short term relief your Mum could also try vagisil which you can buy over the counter, it's a cream with anaesthetic in.

Also, if sitting is painful for your Mum I can recommend these cushions:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion

I have two, one for the office and one for the car and they help a lot with the pain of sitting.

All the best to you & your Mum,
Liz
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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  BerylH on Thu Oct 11, 2012 3:15 pm

Thanks so much Liz for your response, it helps me to think she has had the right diagnosis and that we are on the right track. She has had a visit to the pain clinic today so I passed on the details about the pregabalin and the pressure cushion - that particularly seems like a sensible way forward as the sitting is the hardest part and at 70, it's not easy to stay standing and busy all day long.
really appreciate you taking the time to reply and I wish you every success with your treatment and a pain free future.
Take care
Julie

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bless your mom!!

Post  ambielyn on Sat Oct 13, 2012 4:15 am

I know exactly how she feels I can be sitting or standing in one spot for a little while an as soon as I move it feels like a taser is electrifying me an if I try to move the pain will just shoot up my body an about 50% of the time when that happens the pain takes me so off guard that my body will start to rock back an forth. I call it a spasm when it happens because I have to be so still a couple of minutes after it happens just so it will go away! I hope she get something to help with it because for me it's unbearable!!!!!

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  Acintya on Wed Oct 24, 2012 5:28 pm

The buzzing is almost certainly due to some disturbance in the nerves in this area. I have also experienced this over the years
and recently I had several bouts which were like electric shocks. Your mother could have a problem with the Bartholin gland which might explain the swelling she feels. Another cause of this type of sensation is viral infection along a nerve channel such as Herpes.
A vast proportion of the populations carry this virus often with no symptoms...however a lowered immunity for a brief period can result in symptoms of this kind. I hope your Mum is reading this so that she knows she is in very good company. All the best to you x

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  ambielyn on Mon Nov 12, 2012 5:58 pm

Its been I while since the last reply I posted but I went to have a couple of vaginal biopsys and turns out just like Acintya said the Bartholin glands on me had turned into 2 big cysts some I was put to sleep an in operating room my dr went ahead an took both of them out its been 4 days since surgery an im feeling better my pain is gone there is a tiny bit of swelling due to stitches but other then that im doing great im waiting on my post-op appointment Thursday an then im hoping everything will be GREAT!!! definitely recommend this surgery!!!! cheers cheers cheers

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  Kelle_Belle on Mon Nov 12, 2012 8:04 pm

I get like a tingling feeling all the way round down there, the next day is usually a painful day for me x
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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  mary jane on Sun Nov 24, 2013 10:15 am

I have the exact symptoms your mom has. Vibrating, buzzing, electricity type.
my vulva is an electric fence.
did your mom find any help for this ??
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Re: Anybody else get a feeling like electricity buzzing around the affected area

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