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Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Anybody else get a feeling like electricity buzzing around the affected area

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Anybody else get a feeling like electricity buzzing around the affected area

Post  BerylH on Tue Oct 09, 2012 8:34 am

Hi everyone
Many thanks for your replies to my previous message posted on behalf of my mother, it has been most helpful and I really appreciate the time you take to offer help and advice.
I have another question I wanted to ask for her, and that is her explanation of the feeling is that she feels like electricity is buzzing around constantly, like a pulsating, buzzing feeling, she even mentions feeling like her whole body is swaying, almost like she is on a boat. Does anyone else have this sensation (it is painful as well as buzzing), and she also feels as though there is a boil or something that needs to be lanced to stop the pressure, especially when sitting down, and yet on inspection through the various doctors, gynaecologists, etc there is nothing visible there.
I haven't seen this electricity feeling mentioned on the forum, so just wanted to check if anyone else has a similar feeling, to rule out the fact that maybe she has been misdiagnosed all along and that is why she is having very little success with any of the treatments.
Many thanks for reading and I look forward to hearing from you.

BerylH

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  ButterflyLiz on Wed Oct 10, 2012 9:04 pm

Hi Beryl,

So sorry to hear your mother is suffering with vulvodynia. I spotted this post and thought I would respond as I have had the electricity thing. Normally my pain is of the burning / stinging type, but when it was at the worst of the worst I had the electricity type feeling. It was the weirdest and most horrible sensation and I haven't had it since but it's definitely possible with v. I suppose it is the nerves there going crazy.

In case it helps, I am on lyrica (pregabalin) which helps a lot to supress the pain. It doesn't eliminate it but makes life more bearable. I also use instillagel on the area which is a topical aneasthetic, I put this on at night to help keep the pain signals dampened down. For short term relief your Mum could also try vagisil which you can buy over the counter, it's a cream with anaesthetic in.

Also, if sitting is painful for your Mum I can recommend these cushions:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion

I have two, one for the office and one for the car and they help a lot with the pain of sitting.

All the best to you & your Mum,
Liz
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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  BerylH on Thu Oct 11, 2012 3:15 pm

Thanks so much Liz for your response, it helps me to think she has had the right diagnosis and that we are on the right track. She has had a visit to the pain clinic today so I passed on the details about the pregabalin and the pressure cushion - that particularly seems like a sensible way forward as the sitting is the hardest part and at 70, it's not easy to stay standing and busy all day long.
really appreciate you taking the time to reply and I wish you every success with your treatment and a pain free future.
Take care
Julie

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bless your mom!!

Post  ambielyn on Sat Oct 13, 2012 4:15 am

I know exactly how she feels I can be sitting or standing in one spot for a little while an as soon as I move it feels like a taser is electrifying me an if I try to move the pain will just shoot up my body an about 50% of the time when that happens the pain takes me so off guard that my body will start to rock back an forth. I call it a spasm when it happens because I have to be so still a couple of minutes after it happens just so it will go away! I hope she get something to help with it because for me it's unbearable!!!!!

ambielyn

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  Acintya on Wed Oct 24, 2012 5:28 pm

The buzzing is almost certainly due to some disturbance in the nerves in this area. I have also experienced this over the years
and recently I had several bouts which were like electric shocks. Your mother could have a problem with the Bartholin gland which might explain the swelling she feels. Another cause of this type of sensation is viral infection along a nerve channel such as Herpes.
A vast proportion of the populations carry this virus often with no symptoms...however a lowered immunity for a brief period can result in symptoms of this kind. I hope your Mum is reading this so that she knows she is in very good company. All the best to you x

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  ambielyn on Mon Nov 12, 2012 5:58 pm

Its been I while since the last reply I posted but I went to have a couple of vaginal biopsys and turns out just like Acintya said the Bartholin glands on me had turned into 2 big cysts some I was put to sleep an in operating room my dr went ahead an took both of them out its been 4 days since surgery an im feeling better my pain is gone there is a tiny bit of swelling due to stitches but other then that im doing great im waiting on my post-op appointment Thursday an then im hoping everything will be GREAT!!! definitely recommend this surgery!!!! cheers cheers cheers

ambielyn

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  Kelle_Belle on Mon Nov 12, 2012 8:04 pm

I get like a tingling feeling all the way round down there, the next day is usually a painful day for me x
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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  mary jane on Sun Nov 24, 2013 10:15 am

I have the exact symptoms your mom has. Vibrating, buzzing, electricity type.
my vulva is an electric fence.
did your mom find any help for this ??
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Re: Anybody else get a feeling like electricity buzzing around the affected area

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