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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Anybody else get a feeling like electricity buzzing around the affected area

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Anybody else get a feeling like electricity buzzing around the affected area

Post  BerylH on Tue Oct 09, 2012 8:34 am

Hi everyone
Many thanks for your replies to my previous message posted on behalf of my mother, it has been most helpful and I really appreciate the time you take to offer help and advice.
I have another question I wanted to ask for her, and that is her explanation of the feeling is that she feels like electricity is buzzing around constantly, like a pulsating, buzzing feeling, she even mentions feeling like her whole body is swaying, almost like she is on a boat. Does anyone else have this sensation (it is painful as well as buzzing), and she also feels as though there is a boil or something that needs to be lanced to stop the pressure, especially when sitting down, and yet on inspection through the various doctors, gynaecologists, etc there is nothing visible there.
I haven't seen this electricity feeling mentioned on the forum, so just wanted to check if anyone else has a similar feeling, to rule out the fact that maybe she has been misdiagnosed all along and that is why she is having very little success with any of the treatments.
Many thanks for reading and I look forward to hearing from you.

BerylH

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  ButterflyLiz on Wed Oct 10, 2012 9:04 pm

Hi Beryl,

So sorry to hear your mother is suffering with vulvodynia. I spotted this post and thought I would respond as I have had the electricity thing. Normally my pain is of the burning / stinging type, but when it was at the worst of the worst I had the electricity type feeling. It was the weirdest and most horrible sensation and I haven't had it since but it's definitely possible with v. I suppose it is the nerves there going crazy.

In case it helps, I am on lyrica (pregabalin) which helps a lot to supress the pain. It doesn't eliminate it but makes life more bearable. I also use instillagel on the area which is a topical aneasthetic, I put this on at night to help keep the pain signals dampened down. For short term relief your Mum could also try vagisil which you can buy over the counter, it's a cream with anaesthetic in.

Also, if sitting is painful for your Mum I can recommend these cushions:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion

I have two, one for the office and one for the car and they help a lot with the pain of sitting.

All the best to you & your Mum,
Liz
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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  BerylH on Thu Oct 11, 2012 3:15 pm

Thanks so much Liz for your response, it helps me to think she has had the right diagnosis and that we are on the right track. She has had a visit to the pain clinic today so I passed on the details about the pregabalin and the pressure cushion - that particularly seems like a sensible way forward as the sitting is the hardest part and at 70, it's not easy to stay standing and busy all day long.
really appreciate you taking the time to reply and I wish you every success with your treatment and a pain free future.
Take care
Julie

BerylH

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bless your mom!!

Post  ambielyn on Sat Oct 13, 2012 4:15 am

I know exactly how she feels I can be sitting or standing in one spot for a little while an as soon as I move it feels like a taser is electrifying me an if I try to move the pain will just shoot up my body an about 50% of the time when that happens the pain takes me so off guard that my body will start to rock back an forth. I call it a spasm when it happens because I have to be so still a couple of minutes after it happens just so it will go away! I hope she get something to help with it because for me it's unbearable!!!!!

ambielyn

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  Acintya on Wed Oct 24, 2012 5:28 pm

The buzzing is almost certainly due to some disturbance in the nerves in this area. I have also experienced this over the years
and recently I had several bouts which were like electric shocks. Your mother could have a problem with the Bartholin gland which might explain the swelling she feels. Another cause of this type of sensation is viral infection along a nerve channel such as Herpes.
A vast proportion of the populations carry this virus often with no symptoms...however a lowered immunity for a brief period can result in symptoms of this kind. I hope your Mum is reading this so that she knows she is in very good company. All the best to you x

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  ambielyn on Mon Nov 12, 2012 5:58 pm

Its been I while since the last reply I posted but I went to have a couple of vaginal biopsys and turns out just like Acintya said the Bartholin glands on me had turned into 2 big cysts some I was put to sleep an in operating room my dr went ahead an took both of them out its been 4 days since surgery an im feeling better my pain is gone there is a tiny bit of swelling due to stitches but other then that im doing great im waiting on my post-op appointment Thursday an then im hoping everything will be GREAT!!! definitely recommend this surgery!!!! cheers cheers cheers

ambielyn

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  Kelle_Belle on Mon Nov 12, 2012 8:04 pm

I get like a tingling feeling all the way round down there, the next day is usually a painful day for me x
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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  mary jane on Sun Nov 24, 2013 10:15 am

I have the exact symptoms your mom has. Vibrating, buzzing, electricity type.
my vulva is an electric fence.
did your mom find any help for this ??
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Re: Anybody else get a feeling like electricity buzzing around the affected area

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