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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Anybody else get a feeling like electricity buzzing around the affected area

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Anybody else get a feeling like electricity buzzing around the affected area

Post  BerylH on Tue Oct 09, 2012 8:34 am

Hi everyone
Many thanks for your replies to my previous message posted on behalf of my mother, it has been most helpful and I really appreciate the time you take to offer help and advice.
I have another question I wanted to ask for her, and that is her explanation of the feeling is that she feels like electricity is buzzing around constantly, like a pulsating, buzzing feeling, she even mentions feeling like her whole body is swaying, almost like she is on a boat. Does anyone else have this sensation (it is painful as well as buzzing), and she also feels as though there is a boil or something that needs to be lanced to stop the pressure, especially when sitting down, and yet on inspection through the various doctors, gynaecologists, etc there is nothing visible there.
I haven't seen this electricity feeling mentioned on the forum, so just wanted to check if anyone else has a similar feeling, to rule out the fact that maybe she has been misdiagnosed all along and that is why she is having very little success with any of the treatments.
Many thanks for reading and I look forward to hearing from you.

BerylH

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  ButterflyLiz on Wed Oct 10, 2012 9:04 pm

Hi Beryl,

So sorry to hear your mother is suffering with vulvodynia. I spotted this post and thought I would respond as I have had the electricity thing. Normally my pain is of the burning / stinging type, but when it was at the worst of the worst I had the electricity type feeling. It was the weirdest and most horrible sensation and I haven't had it since but it's definitely possible with v. I suppose it is the nerves there going crazy.

In case it helps, I am on lyrica (pregabalin) which helps a lot to supress the pain. It doesn't eliminate it but makes life more bearable. I also use instillagel on the area which is a topical aneasthetic, I put this on at night to help keep the pain signals dampened down. For short term relief your Mum could also try vagisil which you can buy over the counter, it's a cream with anaesthetic in.

Also, if sitting is painful for your Mum I can recommend these cushions:

http://putnams.co.uk/sitting/bonyparts-sero-pressure-cushion

I have two, one for the office and one for the car and they help a lot with the pain of sitting.

All the best to you & your Mum,
Liz
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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  BerylH on Thu Oct 11, 2012 3:15 pm

Thanks so much Liz for your response, it helps me to think she has had the right diagnosis and that we are on the right track. She has had a visit to the pain clinic today so I passed on the details about the pregabalin and the pressure cushion - that particularly seems like a sensible way forward as the sitting is the hardest part and at 70, it's not easy to stay standing and busy all day long.
really appreciate you taking the time to reply and I wish you every success with your treatment and a pain free future.
Take care
Julie

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bless your mom!!

Post  ambielyn on Sat Oct 13, 2012 4:15 am

I know exactly how she feels I can be sitting or standing in one spot for a little while an as soon as I move it feels like a taser is electrifying me an if I try to move the pain will just shoot up my body an about 50% of the time when that happens the pain takes me so off guard that my body will start to rock back an forth. I call it a spasm when it happens because I have to be so still a couple of minutes after it happens just so it will go away! I hope she get something to help with it because for me it's unbearable!!!!!

ambielyn

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  Acintya on Wed Oct 24, 2012 5:28 pm

The buzzing is almost certainly due to some disturbance in the nerves in this area. I have also experienced this over the years
and recently I had several bouts which were like electric shocks. Your mother could have a problem with the Bartholin gland which might explain the swelling she feels. Another cause of this type of sensation is viral infection along a nerve channel such as Herpes.
A vast proportion of the populations carry this virus often with no symptoms...however a lowered immunity for a brief period can result in symptoms of this kind. I hope your Mum is reading this so that she knows she is in very good company. All the best to you x

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  ambielyn on Mon Nov 12, 2012 5:58 pm

Its been I while since the last reply I posted but I went to have a couple of vaginal biopsys and turns out just like Acintya said the Bartholin glands on me had turned into 2 big cysts some I was put to sleep an in operating room my dr went ahead an took both of them out its been 4 days since surgery an im feeling better my pain is gone there is a tiny bit of swelling due to stitches but other then that im doing great im waiting on my post-op appointment Thursday an then im hoping everything will be GREAT!!! definitely recommend this surgery!!!! cheers cheers cheers

ambielyn

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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  Kelle_Belle on Mon Nov 12, 2012 8:04 pm

I get like a tingling feeling all the way round down there, the next day is usually a painful day for me x
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Re: Anybody else get a feeling like electricity buzzing around the affected area

Post  mary jane on Sun Nov 24, 2013 10:15 am

I have the exact symptoms your mom has. Vibrating, buzzing, electricity type.
my vulva is an electric fence.
did your mom find any help for this ??
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