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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Ovary issues!
3 posters
Page 1 of 1
Ovary issues!
Mish Fri Oct 12, 2012 12:34 am
Hi everyone!
I'm wondering whether anyone else has period issues as well? I bleed all the time, pill changes don't help and I get bad cramps to the point that if I'm off the pill I vomit and faint. No doctors can help - does anyone else have this issue combined with vulvodybia and IC?
I'm wondering whether anyone else has period issues as well? I bleed all the time, pill changes don't help and I get bad cramps to the point that if I'm off the pill I vomit and faint. No doctors can help - does anyone else have this issue combined with vulvodybia and IC?
Mish- Posts : 10
Join date : 2012-10-08
Re: Ovary issues!
Kate1981 Fri Oct 12, 2012 2:59 pm
Hi Mish
From my mri 2 weeks ago a cyst full of blood was found on my right ovary and my pain is on the right side high up at the top of my vagina coincidence? My useless gyno said it is nothing to do with the cyst! Im confused! I have had very having painful periods for 4 years and bleed for 10 - 12 days! When this pain or v happened at the beginning of aug i missed my period but had a kind of brown discharge which kind of exploded at the point when the pain was so horrific i couldnt do anything at all. My 2 periods since have been extra light which is unusal for me. I told my gyno but she just looked vacant she is useless. So im like you is it connected is it that which is causing the problem? Is it hormonal? Ever since this has flared up my face is also covered with acne! Im at my wits end with it seen 5 doctors now they are useless!
From my mri 2 weeks ago a cyst full of blood was found on my right ovary and my pain is on the right side high up at the top of my vagina coincidence? My useless gyno said it is nothing to do with the cyst! Im confused! I have had very having painful periods for 4 years and bleed for 10 - 12 days! When this pain or v happened at the beginning of aug i missed my period but had a kind of brown discharge which kind of exploded at the point when the pain was so horrific i couldnt do anything at all. My 2 periods since have been extra light which is unusal for me. I told my gyno but she just looked vacant she is useless. So im like you is it connected is it that which is causing the problem? Is it hormonal? Ever since this has flared up my face is also covered with acne! Im at my wits end with it seen 5 doctors now they are useless!
Kate1981- Posts : 88
Join date : 2012-08-17
Location : Manchester, UK
Useless!
Mish Fri Oct 12, 2012 10:22 pm
You sound like me! I first went to a gyno in my teens and he made a joke about me still being a virgin (useless). I went again in my early 20s and a cyst was found and my right ovary was enlarged but they couldn't understand why or how it relates. For years now I've just put up with a period every fortnight and brown discharge in between. One gyno suggested I have endometriosis and when I read the symptoms it fits but like you, I think it's all related somehow. The problem was the gyno that was going to address the endo insisted I get a Myrina and I wanted to do research first (I have enough issues down there as it is) but they wOuldnt address one without the other so I have just put up with it. Perhaps a gyno who works with v could get it a bit better?? Who's this Marek guy?
Mish- Posts : 10
Join date : 2012-10-08
Re: Ovary issues!
Char29 Wed Oct 24, 2012 6:15 am
Marek Jantos
Office Address
9th Floor, 118 King William St,
Adelaide, South Australia 5000
Behavioural Medicine Institute
Phone (61+
8221 7070Fax (61+
8221 7071Contact mjantos@vulvodynia.com.au
Char29- Posts : 13
Join date : 2012-10-05
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» Please tell me this can get better
» By no means cured, but doing much better!
» How I cured my Vulvodynia!
» 7 months since the diagnosis
» Gabapentin Gel. or other topical creams
» IMPORTANT FOR UK SUFFERERS
» Help New Diagnosis
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!