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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Ovary issues!

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Ovary issues!

Post  Mish on Fri Oct 12, 2012 12:34 am

Hi everyone!
I'm wondering whether anyone else has period issues as well? I bleed all the time, pill changes don't help and I get bad cramps to the point that if I'm off the pill I vomit and faint. No doctors can help - does anyone else have this issue combined with vulvodybia and IC?

Mish

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Join date : 2012-10-08

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Re: Ovary issues!

Post  Kate1981 on Fri Oct 12, 2012 2:59 pm

Hi Mish

From my mri 2 weeks ago a cyst full of blood was found on my right ovary and my pain is on the right side high up at the top of my vagina coincidence? My useless gyno said it is nothing to do with the cyst! Im confused! I have had very having painful periods for 4 years and bleed for 10 - 12 days! When this pain or v happened at the beginning of aug i missed my period but had a kind of brown discharge which kind of exploded at the point when the pain was so horrific i couldnt do anything at all. My 2 periods since have been extra light which is unusal for me. I told my gyno but she just looked vacant she is useless. So im like you is it connected is it that which is causing the problem? Is it hormonal? Ever since this has flared up my face is also covered with acne! Im at my wits end with it seen 5 doctors now they are useless!

Kate1981

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Join date : 2012-08-17
Location : Manchester, UK

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Useless!

Post  Mish on Fri Oct 12, 2012 10:22 pm

You sound like me! I first went to a gyno in my teens and he made a joke about me still being a virgin (useless). I went again in my early 20s and a cyst was found and my right ovary was enlarged but they couldn't understand why or how it relates. For years now I've just put up with a period every fortnight and brown discharge in between. One gyno suggested I have endometriosis and when I read the symptoms it fits but like you, I think it's all related somehow. The problem was the gyno that was going to address the endo insisted I get a Myrina and I wanted to do research first (I have enough issues down there as it is) but they wOuldnt address one without the other so I have just put up with it. Perhaps a gyno who works with v could get it a bit better?? Who's this Marek guy?

Mish

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Re: Ovary issues!

Post  Char29 on Wed Oct 24, 2012 6:15 am


Marek Jantos

Office Address
9th Floor, 118 King William St,
Adelaide, South Australia 5000

Behavioural Medicine Institute
Phone (61+Cool 8221 7070
Fax (61+Cool 8221 7071

Contact mjantos@vulvodynia.com.au

Char29

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Re: Ovary issues!

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