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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Ovary issues!

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Ovary issues!

Post  Mish on Fri Oct 12, 2012 12:34 am

Hi everyone!
I'm wondering whether anyone else has period issues as well? I bleed all the time, pill changes don't help and I get bad cramps to the point that if I'm off the pill I vomit and faint. No doctors can help - does anyone else have this issue combined with vulvodybia and IC?

Mish

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Re: Ovary issues!

Post  Kate1981 on Fri Oct 12, 2012 2:59 pm

Hi Mish

From my mri 2 weeks ago a cyst full of blood was found on my right ovary and my pain is on the right side high up at the top of my vagina coincidence? My useless gyno said it is nothing to do with the cyst! Im confused! I have had very having painful periods for 4 years and bleed for 10 - 12 days! When this pain or v happened at the beginning of aug i missed my period but had a kind of brown discharge which kind of exploded at the point when the pain was so horrific i couldnt do anything at all. My 2 periods since have been extra light which is unusal for me. I told my gyno but she just looked vacant she is useless. So im like you is it connected is it that which is causing the problem? Is it hormonal? Ever since this has flared up my face is also covered with acne! Im at my wits end with it seen 5 doctors now they are useless!

Kate1981

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Location : Manchester, UK

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Useless!

Post  Mish on Fri Oct 12, 2012 10:22 pm

You sound like me! I first went to a gyno in my teens and he made a joke about me still being a virgin (useless). I went again in my early 20s and a cyst was found and my right ovary was enlarged but they couldn't understand why or how it relates. For years now I've just put up with a period every fortnight and brown discharge in between. One gyno suggested I have endometriosis and when I read the symptoms it fits but like you, I think it's all related somehow. The problem was the gyno that was going to address the endo insisted I get a Myrina and I wanted to do research first (I have enough issues down there as it is) but they wOuldnt address one without the other so I have just put up with it. Perhaps a gyno who works with v could get it a bit better?? Who's this Marek guy?

Mish

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Re: Ovary issues!

Post  Char29 on Wed Oct 24, 2012 6:15 am


Marek Jantos

Office Address
9th Floor, 118 King William St,
Adelaide, South Australia 5000

Behavioural Medicine Institute
Phone (61+Cool 8221 7070
Fax (61+Cool 8221 7071

Contact mjantos@vulvodynia.com.au

Char29

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Re: Ovary issues!

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