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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Vulvodynia an Childbirth arnt a good mix

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Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Fri Oct 12, 2012 1:00 am

Hi my name is amber an I have been struggling with Vv pain. I had symptoms before but they became worse after i had my daughter. When i had her i tore in two places one was very serious on perineum the other doesn't cause any problems. Ever since i had her i can't sit or stand in certain positions i swell up down there and it causes pain. And sex is non existent when me an my husband try to have sex my bad tear opens back up :'( very painful... Thank goodness my husband is understanding... I can't even use tampons because it feels like im giving birth all over again. I have been reading over this forum for months now an everyone seems so understanding an non judging, so I decided to join. So I am 18 an a wife an mother. I have an amazing life other than this vv issue. So I feel like I have no one to talk to because anyone else who is my age and a mother seem to have no idea what im talking about an don't understand. I have tried talking to family but none of them will talk to me because im younger, and me having V issues and sexual problems is like taboo to them. But this is a big problem for me an im very emotional about it an I have severe anxiety so this has been going on for 15months now an since anything causes pain im terrified to go to the dr because I know that if they do an exam or any kind of touching is unbearable. An I have my first appt for this issue on Oct 15 so I was wondering how vv diagnosis test are done an did any other women have there symptoms increased after childbirth.

ambielyn

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Please read my posts

Post  lavrose on Fri Oct 12, 2012 1:57 pm

Please read my posts, i know exactly what you mean. And YES< Ive NEVER been able to use tampons, I dont know how women do it!!
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lavrose

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thanks

Post  ambielyn on Fri Oct 12, 2012 3:25 pm

I read a couple of your post, an some of it sound like what im going through but some of the symptoms I don't have but I will bring it up at my appt that way I can get treated an tested for everything. Im glad im not the only one going through stuff like this.

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Sat Oct 13, 2012 4:55 pm

Hi....I know you said you had vulvodynia before, and obviously that it has been triggered again by childbirth. A lot of women do tear when they give birth, and because of the tearing maybe you are trying to have sex too soon after giving birth...I'm not sure how long your midwife/doctors etc have told you to give it to heal, they usually say resume when it is comfortable to do so....if the tears are splitting open again every time you try to have sex....they are not fully healed....15 months does sound a long time for them not to have healed, but please go to your doctor...as this has more to do with the tearing than vulvodynia, explain where the pain is and exactly what it happening, and they will know what they need to do (without causing you more pain)....it may be that you need restitching and to leave it a few weeks or months longer, or you may need another type of treatment, but definately see your doctor, they are there to help!

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Sat Oct 13, 2012 9:56 pm

We didn't try to have sex again until 6months after she was born. An I tore during sex before I had her its just now there worse because scar tissue doesn't stretch, an my tear was a 3rd degree and only on the inside not on the outside. my pain an swelling now is on the outside so im going to dr Monday but im not looking forward to having surgery. And if I can get things past the outer part then the pain is bearable or at least il make it that way. An at this rate I don't see how people have anymore kids. Or do anything like that an it makes me mad to see people in awful relationships who keep having more kids an dragging them along but me over here is having a whole bunch of stress over this, an my relationship is great with my husband but this is a test as Im trying to see it. an something is just against me. Sorry had to vent an im 18 an have never drank or done drugs an neither has my husband... We are against anything like that even if your 21 no one should drink or take sips so we went to go c a friend of mine at the hospital who had just had her baby an i asked her how she was doing ....an do you know what she said(i am great i can finally go smoke weed an party with my friends) i feel sorry for her daughter an she had no tears or anything an her relationship is awful. Ugh it just mindboggles me. Sorry i have been holding alot in.

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Sun Oct 14, 2012 1:40 pm

I know, it's just so unfair that everyone else can take their sex lives and having children for granted, because they're not suffering from a medical condition...you have a brilliant outlook and it sounds like you have a fantastic relationship with your husband! Hope this can all be sorted out for you, and you can get back to normality!

Ceriane

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thanks

Post  ambielyn on Sun Oct 14, 2012 4:01 pm

I know none of us deserve this but we have it. An my poor hubby is at his peak an can do anything about it. He gets frustrated but he will hide it from me because he knows I will feel bad about it. Its even brought him to tears because I was hurting a lil bit but told him to go a lil slower an he did but I tore open an bled like it was my period he felt awful because he did it. An he rarely cry's ever I may have seen it twice counting that time the other was when he found out our daughter would need to be put in nicu. I want this fixed but it's my worst fear. Ugh this stuff is awful an the past 2weeks I haven't been able to work because it limits me from what I can do. Sad

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Sun Oct 14, 2012 4:13 pm

It's a really bad thing to suffer from, but you need to avoid penetrative sex until it's all healed properly, otherwise you're going to keep opening the wound over and over again....ask your GP how long it's likely to take....and work around it until then....

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Mon Oct 15, 2012 12:29 am

We have only tried a couple of times but it is awful to have an im trying not to panic about tomorrow but it's hard. They should make a real reality show off of us, that way there is some awareness...

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Mon Oct 15, 2012 9:52 pm

Good luck with tommorow. I hope it all goes well and is the answer. Not sure where you live, but I'm in the UK and in this country we have a programme on regularly called Embarrassing Bodies, which is on every week, and to be honest watching that programme has helped me to feel less alone as vulvodynia is one of the most common problems on that show. They reckon about 15% of women suffer from it at some point, that the same amount as people who suffer from hayfever, that's how common it is. It's just not talked about. If you're in the UK you've probably seen it, but if not it'll be on YouTube or type into google Channel 4 Embarrassing Bodies....even though it doesn't cover the nicest subjects in the world, it's a useful programme as it shows just how many people have medical problems that affect their sex lives, that cause them a lot of misery, but difficult to talk about. They always have a lot of sexual problems on there and medical problems that can affect you sexually. It does raise awareness that people have these conditions and takes the shame out of it. (I work in the same hospital as one of the doctors from that show lol and see him almost every day). To be honest, in this country we do quite well for documentaries on things like sexual problems and medical conditions, loads of healthcare documentaries on channel 4 all the time.....It makes you think, how many people are going through something similar....because in general life nobody really talks about it....when my problem started 7 years ago, I felt like it was tabboo and I felt so alone with it.

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Tue Oct 16, 2012 4:04 am

Im in USA an I cried the whole doctors appointment... Poor guy didn't know what hit him. An that show sounds really awesome, I consider myself to be an open book I could talk about weird things all day. I will have to search it on YouTube. Because it sounds like all the shows I watch haha. But my dr gave me 2 types of pills an lidocaine gel 5% so maybe this will help an no sex for a month... That should be easy haha. He said next would be a perineum biopsy... Sounds scary an he said he would put me to sleep when he did it because of my anxiety. Sooo hopefully all goes well an im glad to know we dont feel alone anymore. Smile

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Wed Oct 17, 2012 8:53 am

That's really good.

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Wed Oct 17, 2012 9:56 pm

Ugh my medicine is making my emotions crazy an the lidocaine smells like mint.... Im allergic to scented things an it really burns an Im turning red so ima have to call dr again ugh this is frustrating... Neutral

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Fri Oct 19, 2012 2:09 pm

Not good....hope you can get mint free lidocaine and that you recover from your op soon.

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Sun Oct 21, 2012 2:56 pm

Its been a week an nothing is better. An they are making me do exercises where my husband has to put fingers in an stretch it open for 30 mins per night.... An it HURTS!!!!! an my husband hates doing it. He feels bad that he has to do it to me. Sad an my dr is like it shouldn't hurt you will get used to it... Ugh

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Mon Oct 22, 2012 6:04 pm

painful.....hopefully it will all be worth it in the end.

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Tue Oct 23, 2012 3:26 pm

Im so hoping.. Have you had anything like a biopsy done or anything like that. An have you been on medication if so what kinds??

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Tue Oct 23, 2012 7:20 pm

I haven't had anything like that so far....I think my pain might be slightly different to yours though as I haven't had tearing or given birth or anything yet....I think mine is more related to nervous system damage due to vitamin deficiencies, also I think I may have a candida overgrowth, so I'm just still at the trial and error phase of trying different things to make it better....it's the emotional impact of it that's really got me down, as it affects one of the most emotional areas of your life....your sex life.

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Tue Oct 23, 2012 7:40 pm

It really does... Im depressed an sad all the time, I can't get my real self back an I have alot of other things going on in my life too so it's difficult to handle. I am a very open book I will talk about anything to anyone. An for the past 2years I have had no one to vent to an its very hard for me so bottle everything in. I feel like im going to just explode. An im so glad I have you to talk to!!! An I really hope you don't ever get any tears or anything because they are awful. An I know people who have had worse tears than me an the are perfectly fine an have great sex lifes with there partners... Makes me pretty jealous an like why me.. Sad

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Tue Oct 23, 2012 8:09 pm

I know....it seems the rest of the world are able to take sex for granted, and we're crippled by this...if you had something that prevented you from walking...you could talk about it...if you have something that prevents you from having sex, it's taboo.

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Sat Oct 27, 2012 3:55 pm

Couldn't of said it better myself... That is sooo true. An to me it shouldn't be that way. Im very open an I don't like to hide it.

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Mon Nov 12, 2012 6:04 pm

Went to get vaginal biopsy an dr found two cyst he took them out... I feel Great so far an its only been 4 days since surgery. Im waiting on post appointment an then maybe il feel better an be able to be like a regular person so everyone should get examed an checked because I would definitely recommend this surgery so far. But I have no idea whether I can have sex or not only time will tell Very Happy

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Tue Nov 13, 2012 5:30 pm

That's really good....hope it all goes well.

I'm going to do all I can with diet, vitamin supplements, oil, lidocaine gel, dilators, and if after a year or so it hasn't got better I might consider it, but I am scared it will make things worse, so not an option at the moment....I'll just work my sex life around it unless it gets really bad. In fact I'm not really considering surgery as my problem may be completely different to yours, and with me it might be an allergy or something like that, in which case not something surgery will help with....what I'm doing so far is helping a lot.

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Re: Vulvodynia an Childbirth arnt a good mix

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