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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Vulvodynia an Childbirth arnt a good mix

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Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Fri Oct 12, 2012 1:00 am

Hi my name is amber an I have been struggling with Vv pain. I had symptoms before but they became worse after i had my daughter. When i had her i tore in two places one was very serious on perineum the other doesn't cause any problems. Ever since i had her i can't sit or stand in certain positions i swell up down there and it causes pain. And sex is non existent when me an my husband try to have sex my bad tear opens back up :'( very painful... Thank goodness my husband is understanding... I can't even use tampons because it feels like im giving birth all over again. I have been reading over this forum for months now an everyone seems so understanding an non judging, so I decided to join. So I am 18 an a wife an mother. I have an amazing life other than this vv issue. So I feel like I have no one to talk to because anyone else who is my age and a mother seem to have no idea what im talking about an don't understand. I have tried talking to family but none of them will talk to me because im younger, and me having V issues and sexual problems is like taboo to them. But this is a big problem for me an im very emotional about it an I have severe anxiety so this has been going on for 15months now an since anything causes pain im terrified to go to the dr because I know that if they do an exam or any kind of touching is unbearable. An I have my first appt for this issue on Oct 15 so I was wondering how vv diagnosis test are done an did any other women have there symptoms increased after childbirth.

ambielyn

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Please read my posts

Post  lavrose on Fri Oct 12, 2012 1:57 pm

Please read my posts, i know exactly what you mean. And YES< Ive NEVER been able to use tampons, I dont know how women do it!!
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lavrose

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thanks

Post  ambielyn on Fri Oct 12, 2012 3:25 pm

I read a couple of your post, an some of it sound like what im going through but some of the symptoms I don't have but I will bring it up at my appt that way I can get treated an tested for everything. Im glad im not the only one going through stuff like this.

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Sat Oct 13, 2012 4:55 pm

Hi....I know you said you had vulvodynia before, and obviously that it has been triggered again by childbirth. A lot of women do tear when they give birth, and because of the tearing maybe you are trying to have sex too soon after giving birth...I'm not sure how long your midwife/doctors etc have told you to give it to heal, they usually say resume when it is comfortable to do so....if the tears are splitting open again every time you try to have sex....they are not fully healed....15 months does sound a long time for them not to have healed, but please go to your doctor...as this has more to do with the tearing than vulvodynia, explain where the pain is and exactly what it happening, and they will know what they need to do (without causing you more pain)....it may be that you need restitching and to leave it a few weeks or months longer, or you may need another type of treatment, but definately see your doctor, they are there to help!

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Sat Oct 13, 2012 9:56 pm

We didn't try to have sex again until 6months after she was born. An I tore during sex before I had her its just now there worse because scar tissue doesn't stretch, an my tear was a 3rd degree and only on the inside not on the outside. my pain an swelling now is on the outside so im going to dr Monday but im not looking forward to having surgery. And if I can get things past the outer part then the pain is bearable or at least il make it that way. An at this rate I don't see how people have anymore kids. Or do anything like that an it makes me mad to see people in awful relationships who keep having more kids an dragging them along but me over here is having a whole bunch of stress over this, an my relationship is great with my husband but this is a test as Im trying to see it. an something is just against me. Sorry had to vent an im 18 an have never drank or done drugs an neither has my husband... We are against anything like that even if your 21 no one should drink or take sips so we went to go c a friend of mine at the hospital who had just had her baby an i asked her how she was doing ....an do you know what she said(i am great i can finally go smoke weed an party with my friends) i feel sorry for her daughter an she had no tears or anything an her relationship is awful. Ugh it just mindboggles me. Sorry i have been holding alot in.

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Sun Oct 14, 2012 1:40 pm

I know, it's just so unfair that everyone else can take their sex lives and having children for granted, because they're not suffering from a medical condition...you have a brilliant outlook and it sounds like you have a fantastic relationship with your husband! Hope this can all be sorted out for you, and you can get back to normality!

Ceriane

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thanks

Post  ambielyn on Sun Oct 14, 2012 4:01 pm

I know none of us deserve this but we have it. An my poor hubby is at his peak an can do anything about it. He gets frustrated but he will hide it from me because he knows I will feel bad about it. Its even brought him to tears because I was hurting a lil bit but told him to go a lil slower an he did but I tore open an bled like it was my period he felt awful because he did it. An he rarely cry's ever I may have seen it twice counting that time the other was when he found out our daughter would need to be put in nicu. I want this fixed but it's my worst fear. Ugh this stuff is awful an the past 2weeks I haven't been able to work because it limits me from what I can do. Sad

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Sun Oct 14, 2012 4:13 pm

It's a really bad thing to suffer from, but you need to avoid penetrative sex until it's all healed properly, otherwise you're going to keep opening the wound over and over again....ask your GP how long it's likely to take....and work around it until then....

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Mon Oct 15, 2012 12:29 am

We have only tried a couple of times but it is awful to have an im trying not to panic about tomorrow but it's hard. They should make a real reality show off of us, that way there is some awareness...

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Mon Oct 15, 2012 9:52 pm

Good luck with tommorow. I hope it all goes well and is the answer. Not sure where you live, but I'm in the UK and in this country we have a programme on regularly called Embarrassing Bodies, which is on every week, and to be honest watching that programme has helped me to feel less alone as vulvodynia is one of the most common problems on that show. They reckon about 15% of women suffer from it at some point, that the same amount as people who suffer from hayfever, that's how common it is. It's just not talked about. If you're in the UK you've probably seen it, but if not it'll be on YouTube or type into google Channel 4 Embarrassing Bodies....even though it doesn't cover the nicest subjects in the world, it's a useful programme as it shows just how many people have medical problems that affect their sex lives, that cause them a lot of misery, but difficult to talk about. They always have a lot of sexual problems on there and medical problems that can affect you sexually. It does raise awareness that people have these conditions and takes the shame out of it. (I work in the same hospital as one of the doctors from that show lol and see him almost every day). To be honest, in this country we do quite well for documentaries on things like sexual problems and medical conditions, loads of healthcare documentaries on channel 4 all the time.....It makes you think, how many people are going through something similar....because in general life nobody really talks about it....when my problem started 7 years ago, I felt like it was tabboo and I felt so alone with it.

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Tue Oct 16, 2012 4:04 am

Im in USA an I cried the whole doctors appointment... Poor guy didn't know what hit him. An that show sounds really awesome, I consider myself to be an open book I could talk about weird things all day. I will have to search it on YouTube. Because it sounds like all the shows I watch haha. But my dr gave me 2 types of pills an lidocaine gel 5% so maybe this will help an no sex for a month... That should be easy haha. He said next would be a perineum biopsy... Sounds scary an he said he would put me to sleep when he did it because of my anxiety. Sooo hopefully all goes well an im glad to know we dont feel alone anymore. Smile

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Wed Oct 17, 2012 8:53 am

That's really good.

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Wed Oct 17, 2012 9:56 pm

Ugh my medicine is making my emotions crazy an the lidocaine smells like mint.... Im allergic to scented things an it really burns an Im turning red so ima have to call dr again ugh this is frustrating... Neutral

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Fri Oct 19, 2012 2:09 pm

Not good....hope you can get mint free lidocaine and that you recover from your op soon.

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Sun Oct 21, 2012 2:56 pm

Its been a week an nothing is better. An they are making me do exercises where my husband has to put fingers in an stretch it open for 30 mins per night.... An it HURTS!!!!! an my husband hates doing it. He feels bad that he has to do it to me. Sad an my dr is like it shouldn't hurt you will get used to it... Ugh

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Mon Oct 22, 2012 6:04 pm

painful.....hopefully it will all be worth it in the end.

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Tue Oct 23, 2012 3:26 pm

Im so hoping.. Have you had anything like a biopsy done or anything like that. An have you been on medication if so what kinds??

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Tue Oct 23, 2012 7:20 pm

I haven't had anything like that so far....I think my pain might be slightly different to yours though as I haven't had tearing or given birth or anything yet....I think mine is more related to nervous system damage due to vitamin deficiencies, also I think I may have a candida overgrowth, so I'm just still at the trial and error phase of trying different things to make it better....it's the emotional impact of it that's really got me down, as it affects one of the most emotional areas of your life....your sex life.

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Tue Oct 23, 2012 7:40 pm

It really does... Im depressed an sad all the time, I can't get my real self back an I have alot of other things going on in my life too so it's difficult to handle. I am a very open book I will talk about anything to anyone. An for the past 2years I have had no one to vent to an its very hard for me so bottle everything in. I feel like im going to just explode. An im so glad I have you to talk to!!! An I really hope you don't ever get any tears or anything because they are awful. An I know people who have had worse tears than me an the are perfectly fine an have great sex lifes with there partners... Makes me pretty jealous an like why me.. Sad

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Tue Oct 23, 2012 8:09 pm

I know....it seems the rest of the world are able to take sex for granted, and we're crippled by this...if you had something that prevented you from walking...you could talk about it...if you have something that prevents you from having sex, it's taboo.

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Sat Oct 27, 2012 3:55 pm

Couldn't of said it better myself... That is sooo true. An to me it shouldn't be that way. Im very open an I don't like to hide it.

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  ambielyn on Mon Nov 12, 2012 6:04 pm

Went to get vaginal biopsy an dr found two cyst he took them out... I feel Great so far an its only been 4 days since surgery. Im waiting on post appointment an then maybe il feel better an be able to be like a regular person so everyone should get examed an checked because I would definitely recommend this surgery so far. But I have no idea whether I can have sex or not only time will tell Very Happy

ambielyn

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Re: Vulvodynia an Childbirth arnt a good mix

Post  Ceriane on Tue Nov 13, 2012 5:30 pm

That's really good....hope it all goes well.

I'm going to do all I can with diet, vitamin supplements, oil, lidocaine gel, dilators, and if after a year or so it hasn't got better I might consider it, but I am scared it will make things worse, so not an option at the moment....I'll just work my sex life around it unless it gets really bad. In fact I'm not really considering surgery as my problem may be completely different to yours, and with me it might be an allergy or something like that, in which case not something surgery will help with....what I'm doing so far is helping a lot.

Ceriane

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Re: Vulvodynia an Childbirth arnt a good mix

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