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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Anyone being treated in St Mary's Hospital in London??

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Anyone being treated in St Mary's Hospital in London??

Post  kukubadi1987 on Mon Oct 15, 2012 10:00 pm

Goodevening my friends!and i call you my friends as it came this time in my life that only someone stranger could realize from the bottom of their heart my problem. a problem that makes me cry without reason, feel tired with no reason, even make me think that my personal life is already destroyed (and i am just 25 years old ...),thinking that how a man can stay with me having to deal with this problem...
my name is Kate and i have started my treatment in St Mary's Hospital since July. i am in this stage that i use lignocain and even from the first month it worked very well that i thought that maybe my problem solved...so silly...i started using the pool on august and thrush came back. so from middle of september that i saw my consultant again in St Mary's i started taking fluconazone once a week and i will keep on until january and at the same time i keep on with the lignocaine 4 times a day.the pain is much better in my everyday life, no ithcing so much, no so much discomfort, but when i had sex yesterday i realised that the pain was so bad...you can imagine how dipressed this made me feel again..since yesterday i just cry with no reason...i just believe that i will never have a proper life again...and ok, to be honest since i enjoy anal sex as well i have it at a "second" choice. but is it a solution to have only anal sex from now on??
i read about low-oxalate diet.is it something that you recommend?also what about exercises?is it something i could try at the same time with my treatment until i see my doctor again??if you have any suggestion i would love to hear from you...
also i was thinking if there are any group therapies that women with our problem see each other all together and speak about that??maybe it sounds silly to you but i am so new to that and i am desperate for any kind of help...maybe i am desperate for someone to tell me that everything will be ok but even in this forum most of the stories are dissapointing...
sometimes i am thinking if it is better that i do not have relationship this period of my life. at least i do not destroy someone else's sexual life with my problem...my sister to make me laugh she says that as long as i like anal sex there is no man that he would not like to be with me!it is so nice i have her in my life to speak about that, she is the only one that knows and supports me so much.

i am looking forward to any reply, at least i feel finally that i am not alone to that. i know i sounds terrible that i am happy that other people have the same problem but i just mean that i am happy that other people can feel my feeling, my pain, my thouhgts, my difficulty some days even to go to the gym, to stop thinking of that....

i hope all of us have a better life, even with this problem to find anythign that in personal way make us feel that at least we keep on our life with the people we love without problem...

wish you all the best to everyone my friends.
katerina

kukubadi1987

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:))

Post  lavrose on Thu Oct 18, 2012 12:25 pm

Hey, I do anal when I feel I have an infection and its actually pretty great, but it takes time, and reading books on it, being really gentle, learning to relax, etc,etc. I also do alot of oral. As long as you do SOMETHING sexual with your man when he wants it, he should be happy. If not, hes a douche.

and for most of my life I was 100% against anal sex, (citing to my then husband that it can cause cancer, and other problems, etc) but after doing lots of research, and finally trying it, I learn to really like it, and I do it about once a week sometimes twice a week (occasionally), with no problems (except for some gas at times, and feeling like you have no time to waste trying to get to a bathroom, but this is only within the first 24 hours of engaging in anal sex, and the funny thing is, after about a year, my body literally got used to it, and I feel completely normal afterwards, and I didnt feel those urgency needs anymore). I do go thru months at a time without doing it at all.

Its not good to do it everyday. I dont think its good for your health, but occasionally, even as much as once a week, is fine for me, and most other people.

I also spoke with alot of gay men about this, and they go well into middle age, doing anal, and dont wear diapers or have problems or anything. On a side note, it makes orgasms stronger, and better, (not to be too graphic) Smile) lol
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Re: Anyone being treated in St Mary's Hospital in London??

Post  kukubadi1987 on Wed Oct 24, 2012 4:04 pm

thanks so much for replying!
you know for me anal sex it was always a part of "nice change" in sex so the good thing is that it is not something that suddenly i had to put in my life.
i read so many stories of girls saying how much their husbands support them and understand them but it is so different if something like that happens to you when you already are married and of course your man is going to be there for you(otherwise is douche as you said!!) and totall different if every time you meet someone you have to deal with the problem of expaining. i see myself not to want to meet anyone because of the fear how to say and how he is going to react. at least now i am single and i don't have sex but what if one day i fall in love and he will eventually leave me because of this problem??how can i recover from that?and how can i blame a man who wants a totally health woman instead of me?i now it sounds very pessimistic what i say but i think that i am realistic. relationship without good sex cannot exist and i know it...
this period, until january i am on fulconazone to defeat thrush as i was positive the last time and at the same time i use lignocaine but i think i will stop it, i don't think it makes any difference.
do you suggest something else for a bit of relief until the 10th of january that i will see my doctor?

thanks for everything,
kate

kukubadi1987

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Re: Anyone being treated in St Mary's Hospital in London??

Post  kalinikta77 on Mon Nov 05, 2012 2:44 am

Have you been diagnosed yet? What are you being treated for?

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Re: Anyone being treated in St Mary's Hospital in London??

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