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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Anyone being treated in St Mary's Hospital in London??

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Anyone being treated in St Mary's Hospital in London??

Post  kukubadi1987 on Mon Oct 15, 2012 10:00 pm

Goodevening my friends!and i call you my friends as it came this time in my life that only someone stranger could realize from the bottom of their heart my problem. a problem that makes me cry without reason, feel tired with no reason, even make me think that my personal life is already destroyed (and i am just 25 years old ...),thinking that how a man can stay with me having to deal with this problem...
my name is Kate and i have started my treatment in St Mary's Hospital since July. i am in this stage that i use lignocain and even from the first month it worked very well that i thought that maybe my problem solved...so silly...i started using the pool on august and thrush came back. so from middle of september that i saw my consultant again in St Mary's i started taking fluconazone once a week and i will keep on until january and at the same time i keep on with the lignocaine 4 times a day.the pain is much better in my everyday life, no ithcing so much, no so much discomfort, but when i had sex yesterday i realised that the pain was so bad...you can imagine how dipressed this made me feel again..since yesterday i just cry with no reason...i just believe that i will never have a proper life again...and ok, to be honest since i enjoy anal sex as well i have it at a "second" choice. but is it a solution to have only anal sex from now on??
i read about low-oxalate diet.is it something that you recommend?also what about exercises?is it something i could try at the same time with my treatment until i see my doctor again??if you have any suggestion i would love to hear from you...
also i was thinking if there are any group therapies that women with our problem see each other all together and speak about that??maybe it sounds silly to you but i am so new to that and i am desperate for any kind of help...maybe i am desperate for someone to tell me that everything will be ok but even in this forum most of the stories are dissapointing...
sometimes i am thinking if it is better that i do not have relationship this period of my life. at least i do not destroy someone else's sexual life with my problem...my sister to make me laugh she says that as long as i like anal sex there is no man that he would not like to be with me!it is so nice i have her in my life to speak about that, she is the only one that knows and supports me so much.

i am looking forward to any reply, at least i feel finally that i am not alone to that. i know i sounds terrible that i am happy that other people have the same problem but i just mean that i am happy that other people can feel my feeling, my pain, my thouhgts, my difficulty some days even to go to the gym, to stop thinking of that....

i hope all of us have a better life, even with this problem to find anythign that in personal way make us feel that at least we keep on our life with the people we love without problem...

wish you all the best to everyone my friends.
katerina

kukubadi1987

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:))

Post  lavrose on Thu Oct 18, 2012 12:25 pm

Hey, I do anal when I feel I have an infection and its actually pretty great, but it takes time, and reading books on it, being really gentle, learning to relax, etc,etc. I also do alot of oral. As long as you do SOMETHING sexual with your man when he wants it, he should be happy. If not, hes a douche.

and for most of my life I was 100% against anal sex, (citing to my then husband that it can cause cancer, and other problems, etc) but after doing lots of research, and finally trying it, I learn to really like it, and I do it about once a week sometimes twice a week (occasionally), with no problems (except for some gas at times, and feeling like you have no time to waste trying to get to a bathroom, but this is only within the first 24 hours of engaging in anal sex, and the funny thing is, after about a year, my body literally got used to it, and I feel completely normal afterwards, and I didnt feel those urgency needs anymore). I do go thru months at a time without doing it at all.

Its not good to do it everyday. I dont think its good for your health, but occasionally, even as much as once a week, is fine for me, and most other people.

I also spoke with alot of gay men about this, and they go well into middle age, doing anal, and dont wear diapers or have problems or anything. On a side note, it makes orgasms stronger, and better, (not to be too graphic) Smile) lol
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Re: Anyone being treated in St Mary's Hospital in London??

Post  kukubadi1987 on Wed Oct 24, 2012 4:04 pm

thanks so much for replying!
you know for me anal sex it was always a part of "nice change" in sex so the good thing is that it is not something that suddenly i had to put in my life.
i read so many stories of girls saying how much their husbands support them and understand them but it is so different if something like that happens to you when you already are married and of course your man is going to be there for you(otherwise is douche as you said!!) and totall different if every time you meet someone you have to deal with the problem of expaining. i see myself not to want to meet anyone because of the fear how to say and how he is going to react. at least now i am single and i don't have sex but what if one day i fall in love and he will eventually leave me because of this problem??how can i recover from that?and how can i blame a man who wants a totally health woman instead of me?i now it sounds very pessimistic what i say but i think that i am realistic. relationship without good sex cannot exist and i know it...
this period, until january i am on fulconazone to defeat thrush as i was positive the last time and at the same time i use lignocaine but i think i will stop it, i don't think it makes any difference.
do you suggest something else for a bit of relief until the 10th of january that i will see my doctor?

thanks for everything,
kate

kukubadi1987

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Re: Anyone being treated in St Mary's Hospital in London??

Post  kalinikta77 on Mon Nov 05, 2012 2:44 am

Have you been diagnosed yet? What are you being treated for?

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Re: Anyone being treated in St Mary's Hospital in London??

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