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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Anyone being treated in St Mary's Hospital in London??

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Anyone being treated in St Mary's Hospital in London??

Post  kukubadi1987 on Mon Oct 15, 2012 10:00 pm

Goodevening my friends!and i call you my friends as it came this time in my life that only someone stranger could realize from the bottom of their heart my problem. a problem that makes me cry without reason, feel tired with no reason, even make me think that my personal life is already destroyed (and i am just 25 years old ...),thinking that how a man can stay with me having to deal with this problem...
my name is Kate and i have started my treatment in St Mary's Hospital since July. i am in this stage that i use lignocain and even from the first month it worked very well that i thought that maybe my problem solved...so silly...i started using the pool on august and thrush came back. so from middle of september that i saw my consultant again in St Mary's i started taking fluconazone once a week and i will keep on until january and at the same time i keep on with the lignocaine 4 times a day.the pain is much better in my everyday life, no ithcing so much, no so much discomfort, but when i had sex yesterday i realised that the pain was so bad...you can imagine how dipressed this made me feel again..since yesterday i just cry with no reason...i just believe that i will never have a proper life again...and ok, to be honest since i enjoy anal sex as well i have it at a "second" choice. but is it a solution to have only anal sex from now on??
i read about low-oxalate diet.is it something that you recommend?also what about exercises?is it something i could try at the same time with my treatment until i see my doctor again??if you have any suggestion i would love to hear from you...
also i was thinking if there are any group therapies that women with our problem see each other all together and speak about that??maybe it sounds silly to you but i am so new to that and i am desperate for any kind of help...maybe i am desperate for someone to tell me that everything will be ok but even in this forum most of the stories are dissapointing...
sometimes i am thinking if it is better that i do not have relationship this period of my life. at least i do not destroy someone else's sexual life with my problem...my sister to make me laugh she says that as long as i like anal sex there is no man that he would not like to be with me!it is so nice i have her in my life to speak about that, she is the only one that knows and supports me so much.

i am looking forward to any reply, at least i feel finally that i am not alone to that. i know i sounds terrible that i am happy that other people have the same problem but i just mean that i am happy that other people can feel my feeling, my pain, my thouhgts, my difficulty some days even to go to the gym, to stop thinking of that....

i hope all of us have a better life, even with this problem to find anythign that in personal way make us feel that at least we keep on our life with the people we love without problem...

wish you all the best to everyone my friends.
katerina

kukubadi1987

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Age : 30
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:))

Post  lavrose on Thu Oct 18, 2012 12:25 pm

Hey, I do anal when I feel I have an infection and its actually pretty great, but it takes time, and reading books on it, being really gentle, learning to relax, etc,etc. I also do alot of oral. As long as you do SOMETHING sexual with your man when he wants it, he should be happy. If not, hes a douche.

and for most of my life I was 100% against anal sex, (citing to my then husband that it can cause cancer, and other problems, etc) but after doing lots of research, and finally trying it, I learn to really like it, and I do it about once a week sometimes twice a week (occasionally), with no problems (except for some gas at times, and feeling like you have no time to waste trying to get to a bathroom, but this is only within the first 24 hours of engaging in anal sex, and the funny thing is, after about a year, my body literally got used to it, and I feel completely normal afterwards, and I didnt feel those urgency needs anymore). I do go thru months at a time without doing it at all.

Its not good to do it everyday. I dont think its good for your health, but occasionally, even as much as once a week, is fine for me, and most other people.

I also spoke with alot of gay men about this, and they go well into middle age, doing anal, and dont wear diapers or have problems or anything. On a side note, it makes orgasms stronger, and better, (not to be too graphic) Smile) lol
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Re: Anyone being treated in St Mary's Hospital in London??

Post  kukubadi1987 on Wed Oct 24, 2012 4:04 pm

thanks so much for replying!
you know for me anal sex it was always a part of "nice change" in sex so the good thing is that it is not something that suddenly i had to put in my life.
i read so many stories of girls saying how much their husbands support them and understand them but it is so different if something like that happens to you when you already are married and of course your man is going to be there for you(otherwise is douche as you said!!) and totall different if every time you meet someone you have to deal with the problem of expaining. i see myself not to want to meet anyone because of the fear how to say and how he is going to react. at least now i am single and i don't have sex but what if one day i fall in love and he will eventually leave me because of this problem??how can i recover from that?and how can i blame a man who wants a totally health woman instead of me?i now it sounds very pessimistic what i say but i think that i am realistic. relationship without good sex cannot exist and i know it...
this period, until january i am on fulconazone to defeat thrush as i was positive the last time and at the same time i use lignocaine but i think i will stop it, i don't think it makes any difference.
do you suggest something else for a bit of relief until the 10th of january that i will see my doctor?

thanks for everything,
kate

kukubadi1987

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Age : 30
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Re: Anyone being treated in St Mary's Hospital in London??

Post  kalinikta77 on Mon Nov 05, 2012 2:44 am

Have you been diagnosed yet? What are you being treated for?

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Re: Anyone being treated in St Mary's Hospital in London??

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