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» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 1:33 pm by mary jane

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3


Vulvodynia and living on NO-SPA Forte

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Vulvodynia and living on NO-SPA Forte

Post  maria1985 on Thu Oct 18, 2012 10:26 am

Hello everyone,
My name is Maria and I'm 27 yrs
old. For about 18 months now I have been suffered with this major discomfort down below for which the doctors did not yet find a cause. Nothing comes up on the urine tests they have perform, even though, it all started after a bad UTI session for which i have been treated with 3 diferent antibiotics which unfortunatelly did not cure me 100% and also gave me THRUSH.

I have been going back to my GP and for my dissapointment I have been adviced to "DRINK MORE WATER" and so I did (needless to mention im a romanian national living in UK for around the same period of time this horrible condition started). I have been gulping on litres of water and over the counter cystitis remedies leading me basically nowhere. Everytime i went back to the doctors they yet again went through urine test revealing nothing and so again the old story i needed to drink more water. They went throught blood tests (i have been unlucky to encounter a nurse who couldnt take blood so she made me jump and run and stung me with the needle unsuccesfully 6 times, being then sent home to of course what else but drinking more water as i obviously been dehidrated and thats the reason she couldnt substract blood.) Blood test came back and revealed no abnormality however, the discomfort was still there. Kidney scans been ordered and again nothing been found (needless to say they forgot to refer me and so i have been waiting 12 weeks for my scans.)

Meanwhile, engaged and not being able to get intimate with my fiancee, not being able to find a job as i did not yet have a work permit, my world started to colapse. There have been nights i had to spend in the hot tub for anything else wouldnt not calm the spasms and shots of pains i experienced and what made it works i couldnt put my finger on where they were coming from. I had a slight burning sensation when urination however was raw senation when trying intercourse. After using tampons for more than 10 years i had to go back to pads, which i hate.

Long story short (even though its too late) I have gone back to Romania to visit my parents and so i have seen this advert at TV for the NO-SPA tablets for spasms of the smooth muscles and urinary tract conditions and so I decided to try it. I paid around 4 US dollars on 20 tablets of NO-SPA FORTE 80 mg and I have to say that is god's gift to women suffering with any urinary of vaginal discomfort and its safe. They give it to pregnat women to calm the spasms and avoid miscarriage and also for gastritis. How it works? It totally numbs everything down below and life is back to normal. I have been taking it for about 1 year now and I can pretend my life is normal.

Now i decided to go back to doctors to investigate more and my new GP mention for the first time vulvodynia. As far as i was concerned i self diagnosed myself with interstitial cystitis and so I was getting information from the interstitial cystitis forum. The truth is both conditions have similarities. My GP said "Dont worry there are treatments nowadays, they do botox shots in the vulva and completely relieve the discomfort". She refered me to a gyno-urologist. I have hope now even thought NO-SPA ofered me a normal life.

If you have the chance try it.

I apologize for taking so much of your time,
Maria

maria1985

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Re: Vulvodynia and living on NO-SPA Forte

Post  Kate1981 on Thu Oct 18, 2012 11:53 am

Hi Maria

Where can i get these tablets from? I am in the UK. I am willing to try anything. I like you have burning when urinating but its the vulva skin which burns not my urethra. Please keep updated with your progress x

Kate1981

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Hi Kate

Post  maria1985 on Thu Oct 18, 2012 12:09 pm

When i ran out of my tabs i found on ebay
Its polish made but works just as good. I usually chew on them for a rapid effect. They taste horribly bitter but 30 minutes later i have no discomfort whatsoever.

Goodluck

maria1985

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Re: Vulvodynia and living on NO-SPA Forte

Post  Kate1981 on Thu Oct 18, 2012 12:34 pm

Thanks Maria I will have a look now on ebay for them x

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Meetings

Post  maria1985 on Thu Oct 18, 2012 12:45 pm

Hi,
Im back with a question. Do women on this forum ever gather together on meetings or such? It be nice to be able to discuss face to face about this condition.

thanks

maria1985

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if this helps buying no-spa

Post  maria1985 on Thu Oct 18, 2012 12:49 pm

rxpharmacy.md/pain-relief/brand-no-spa.html

maria1985

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Re: Vulvodynia and living on NO-SPA Forte

Post  Kate1981 on Thu Oct 18, 2012 12:54 pm

Hi Maria

I think there are some support groups but I dont know where. Im near to Mancheter where are you?

Kate1981

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Hi Kate

Post  maria1985 on Thu Oct 18, 2012 12:56 pm

Im in Leeds. You're not that far away. If you ever come down to Leeds I could spare some No-spa so u can try Razz

maria1985

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Re: Vulvodynia and living on NO-SPA Forte

Post  Kate1981 on Thu Oct 18, 2012 1:15 pm

Hi Maria

Yeah I would definetly like to meet up with you. Im about 40 mins south of Manchester. What is your email? We can try and arrange something x

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Vulvodynia and living on NO-SPA Forte

Post  maria1985 on Thu Oct 18, 2012 1:18 pm

hi kate
Could you give me your email or messenger id as i dont want my familly to find out i have been silently suffered of this. they are already panicking im so far away from them.

maria1985

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Vulvodynia and living on NO-SPA Forte

Post  maria1985 on Thu Oct 18, 2012 1:32 pm

let me know if you get my private message Kate

maria1985

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Re: Vulvodynia and living on NO-SPA Forte

Post  Kate1981 on Thu Oct 18, 2012 1:47 pm

My email is in my profile. If you can email me

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Re: Vulvodynia and living on NO-SPA Forte

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