Log in

I forgot my password

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Childbirth - Vulvodynia - Premenopause :'(

View previous topic View next topic Go down

Childbirth - Vulvodynia - Premenopause :'(

Post  Pink Pain on Fri Oct 19, 2012 3:09 pm

Hello there, my name is Ela Smile
I'm 43 yrs old living just outside London. I found this forum because I recently started to suffer from the terrible Vulvodynia.
It took me 15 years, two children to discover through this forum that my ON and OFF pain could be related ( Question ) also to giving birth to my son, who is now 15 yrs old.
His birth was very difficult. He weighted 9lbs and 3oz. His head was pressing against my bladder. I lost a lot of blood. I was told I was carrying a small child. I'm quite petite so having delivered such a big baby was a real shock to me.
After giving birth I was fine for 2 years. I so decided to try for a second child and just then my first flare of pain came. I was devastated in total agony didn't know what to do. After many visits to my family doctor I was told to go to a special woman clinic to do see a Gyno. There I had several tests to rule out possible infections and illnesses. The Gyno who saw me at the time came out with a total new word to me which I never heard before VULVODYNIA.
I then started to check the internet found another forum not as good as this one though. I read so many depressing stories I could have easily jump from the first bridge.
The gyno who told me about the new condition mentioned that it wasn't such a good idea to have another baby. I could have suffered even more as a result of a new child. Thy gyno never expressed any ideas as to why I could experienced more pain. In other words I was never told it was a nerve/muscles problems. It would have been touch and go a real trial. I tried for my second in a moment of no pain and managed to sail through pregnancy with the arrival of my baby daughter. During the pregnancy and afterwards I had no real vaginal pain. Throughout the years I managed to control my Vulvodynia (when it came) thanks my 10 mg of Amitriptyline which I only take when in real pain.
The problem now is that I missed my period. As I know that I'm not pregnant I could be starting on an early menopause. Menopause = vaginal dryness :-((( My Vulvodynia is now at its peek. I feel that I need to increase my tablets and will go to speak to a new Gyno soon. My fears is that doctors are very ignorant when it comes to this condition. You get more help from forums like this. So far I read lots helpful advices which I'm going to try thanks reading your stories.
I hope that mine will help to put an answer (not to everyone of course but at least to some) to a terrible condition so underrated by so many doctors Sad

Ela x

Pink Pain

Posts : 1
Join date : 2012-10-19

View user profile

Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum