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» What's next?
Fri Apr 20, 2018 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Childbirth - Vulvodynia - Premenopause :'(

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Childbirth - Vulvodynia - Premenopause :'(

Post  Pink Pain on Fri Oct 19, 2012 3:09 pm

Hello there, my name is Ela Smile
I'm 43 yrs old living just outside London. I found this forum because I recently started to suffer from the terrible Vulvodynia.
It took me 15 years, two children to discover through this forum that my ON and OFF pain could be related ( Question ) also to giving birth to my son, who is now 15 yrs old.
His birth was very difficult. He weighted 9lbs and 3oz. His head was pressing against my bladder. I lost a lot of blood. I was told I was carrying a small child. I'm quite petite so having delivered such a big baby was a real shock to me.
After giving birth I was fine for 2 years. I so decided to try for a second child and just then my first flare of pain came. I was devastated in total agony didn't know what to do. After many visits to my family doctor I was told to go to a special woman clinic to do see a Gyno. There I had several tests to rule out possible infections and illnesses. The Gyno who saw me at the time came out with a total new word to me which I never heard before VULVODYNIA.
I then started to check the internet found another forum not as good as this one though. I read so many depressing stories I could have easily jump from the first bridge.
The gyno who told me about the new condition mentioned that it wasn't such a good idea to have another baby. I could have suffered even more as a result of a new child. Thy gyno never expressed any ideas as to why I could experienced more pain. In other words I was never told it was a nerve/muscles problems. It would have been touch and go a real trial. I tried for my second in a moment of no pain and managed to sail through pregnancy with the arrival of my baby daughter. During the pregnancy and afterwards I had no real vaginal pain. Throughout the years I managed to control my Vulvodynia (when it came) thanks my 10 mg of Amitriptyline which I only take when in real pain.
The problem now is that I missed my period. As I know that I'm not pregnant I could be starting on an early menopause. Menopause = vaginal dryness :-((( My Vulvodynia is now at its peek. I feel that I need to increase my tablets and will go to speak to a new Gyno soon. My fears is that doctors are very ignorant when it comes to this condition. You get more help from forums like this. So far I read lots helpful advices which I'm going to try thanks reading your stories.
I hope that mine will help to put an answer (not to everyone of course but at least to some) to a terrible condition so underrated by so many doctors Sad

Ela x

Pink Pain

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Join date : 2012-10-19

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