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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Childbirth - Vulvodynia - Premenopause :'(

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Childbirth - Vulvodynia - Premenopause :'(

Post  Pink Pain on Fri Oct 19, 2012 3:09 pm

Hello there, my name is Ela Smile
I'm 43 yrs old living just outside London. I found this forum because I recently started to suffer from the terrible Vulvodynia.
It took me 15 years, two children to discover through this forum that my ON and OFF pain could be related ( Question ) also to giving birth to my son, who is now 15 yrs old.
His birth was very difficult. He weighted 9lbs and 3oz. His head was pressing against my bladder. I lost a lot of blood. I was told I was carrying a small child. I'm quite petite so having delivered such a big baby was a real shock to me.
After giving birth I was fine for 2 years. I so decided to try for a second child and just then my first flare of pain came. I was devastated in total agony didn't know what to do. After many visits to my family doctor I was told to go to a special woman clinic to do see a Gyno. There I had several tests to rule out possible infections and illnesses. The Gyno who saw me at the time came out with a total new word to me which I never heard before VULVODYNIA.
I then started to check the internet found another forum not as good as this one though. I read so many depressing stories I could have easily jump from the first bridge.
The gyno who told me about the new condition mentioned that it wasn't such a good idea to have another baby. I could have suffered even more as a result of a new child. Thy gyno never expressed any ideas as to why I could experienced more pain. In other words I was never told it was a nerve/muscles problems. It would have been touch and go a real trial. I tried for my second in a moment of no pain and managed to sail through pregnancy with the arrival of my baby daughter. During the pregnancy and afterwards I had no real vaginal pain. Throughout the years I managed to control my Vulvodynia (when it came) thanks my 10 mg of Amitriptyline which I only take when in real pain.
The problem now is that I missed my period. As I know that I'm not pregnant I could be starting on an early menopause. Menopause = vaginal dryness :-((( My Vulvodynia is now at its peek. I feel that I need to increase my tablets and will go to speak to a new Gyno soon. My fears is that doctors are very ignorant when it comes to this condition. You get more help from forums like this. So far I read lots helpful advices which I'm going to try thanks reading your stories.
I hope that mine will help to put an answer (not to everyone of course but at least to some) to a terrible condition so underrated by so many doctors Sad

Ela x

Pink Pain

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Join date : 2012-10-19

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