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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Childbirth - Vulvodynia - Premenopause :'(

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Childbirth - Vulvodynia - Premenopause :'(

Post  Pink Pain on Fri Oct 19, 2012 3:09 pm

Hello there, my name is Ela Smile
I'm 43 yrs old living just outside London. I found this forum because I recently started to suffer from the terrible Vulvodynia.
It took me 15 years, two children to discover through this forum that my ON and OFF pain could be related ( Question ) also to giving birth to my son, who is now 15 yrs old.
His birth was very difficult. He weighted 9lbs and 3oz. His head was pressing against my bladder. I lost a lot of blood. I was told I was carrying a small child. I'm quite petite so having delivered such a big baby was a real shock to me.
After giving birth I was fine for 2 years. I so decided to try for a second child and just then my first flare of pain came. I was devastated in total agony didn't know what to do. After many visits to my family doctor I was told to go to a special woman clinic to do see a Gyno. There I had several tests to rule out possible infections and illnesses. The Gyno who saw me at the time came out with a total new word to me which I never heard before VULVODYNIA.
I then started to check the internet found another forum not as good as this one though. I read so many depressing stories I could have easily jump from the first bridge.
The gyno who told me about the new condition mentioned that it wasn't such a good idea to have another baby. I could have suffered even more as a result of a new child. Thy gyno never expressed any ideas as to why I could experienced more pain. In other words I was never told it was a nerve/muscles problems. It would have been touch and go a real trial. I tried for my second in a moment of no pain and managed to sail through pregnancy with the arrival of my baby daughter. During the pregnancy and afterwards I had no real vaginal pain. Throughout the years I managed to control my Vulvodynia (when it came) thanks my 10 mg of Amitriptyline which I only take when in real pain.
The problem now is that I missed my period. As I know that I'm not pregnant I could be starting on an early menopause. Menopause = vaginal dryness :-((( My Vulvodynia is now at its peek. I feel that I need to increase my tablets and will go to speak to a new Gyno soon. My fears is that doctors are very ignorant when it comes to this condition. You get more help from forums like this. So far I read lots helpful advices which I'm going to try thanks reading your stories.
I hope that mine will help to put an answer (not to everyone of course but at least to some) to a terrible condition so underrated by so many doctors Sad

Ela x

Pink Pain

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Join date : 2012-10-19

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