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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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vestibulectomy

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Re: vestibulectomy

Post  Alana3 on Tue Dec 04, 2012 8:48 pm

last minute pep talk please!

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Re: vestibulectomy

Post  jen007 on Wed Dec 05, 2012 3:43 am

Aw thanks Alana! I really enjoy talking to you here.

Ok pep talk....You're going to do GREAT! I swear! You're going to walk in there, they'll put you in a gown and then you go to sleep. The anesthesia is awesome btw, best sleep of your life. It'll feel like you blinked and it'll be over.

I'm sorry I'm responding so late! I hope you see this before you go into surgery! I know you'll be fine! Try not to worry so much if you can. I don't know how I managed to not pass out before I went in...I'm always a panicky mess, haha. I'll be thinking of you tomorrow! If you can/ feel up to it tomorrow let me know how it went! I'll be anxious to check the forum!

Good Luck!!!!! Very Happy

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Re: vestibulectomy

Post  Alana3 on Wed Dec 05, 2012 10:31 am

I saw it thank you so much Smile I'll let you know!

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Re: vestibulectomy

Post  Alana3 on Wed Dec 05, 2012 6:26 pm

Home!

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Re: vestibulectomy

Post  Alana3 on Wed Dec 05, 2012 8:17 pm

Did you pee a lot after surgery

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Re: vestibulectomy

Post  Alana3 on Wed Dec 05, 2012 9:08 pm

Did you pee a lot after surgery

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Re: vestibulectomy

Post  jen007 on Wed Dec 05, 2012 11:33 pm

How did it go ?? How are you feeling ?? And yes I did pee a lot after. I made the stupid decision to not go before surgery... Big mistake haha. I peed like 100 times haha.

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Re: vestibulectomy

Post  Alana3 on Wed Dec 05, 2012 11:59 pm

He thinks he got all of it. I threw up after but it's more muscle pain and one stitch is mimicking vv which im not gonna lie id really annoying. Yeah I thought I had a uti because of how much im peeing but I guess it's normal. Originally it looked like I got shot but the blood is going away. Im able to sit pee and eat and walk by myself to ths potty so I guess im ok. It feels more like muscle pain than anything tho

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Re: vestibulectomy

Post  jen007 on Thu Dec 06, 2012 12:30 am

See it wasn't so bad Smile. I'm glad you're able to walk and sit and mostly feel comfortable. The stitches are so annoying but it'll get better. The more you soak them the fast they'll dissolve. They'll start to get itchy in a few weeks, which sucks. Your I've pack will be your best friend haha.

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Re: vestibulectomy

Post  Alana3 on Thu Dec 06, 2012 1:12 am

He doesn't want me soak for a bit. Probably not til my two week he just called me lol

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Re: vestibulectomy

Post  jen007 on Thu Dec 06, 2012 3:32 am

Oh great! It's good that he keeps in contact with you.

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Re: vestibulectomy

Post  Alana3 on Thu Dec 06, 2012 4:28 am

Yeah it is. I ended Yup being allergic to drug but realized after I spoke with him thankfully dads a doc so he wrote me new. Then I thought I pulled a stitch out but I guess I didn't. Good news is the bleeding is already spotting but now instead of vulvodynia pain I have surgical pain n how long til it goes away? I'm scared to poop too Lol (I'm on softener but I threw up and it hurt so bad because of those muscles)

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Re: vestibulectomy

Post  Alana3 on Thu Dec 06, 2012 1:34 pm

Im afraid to poo

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Re: vestibulectomy

Post  Loulou on Thu Dec 06, 2012 4:00 pm

Alana - if you can bear it drink lots of prune juice. That should help keep things running smoothly if you see what i mean!

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Re: vestibulectomy

Post  Alana3 on Thu Dec 06, 2012 4:28 pm

Lol I def see what you mean! Im taking stool softeners but im still afraid lol did you get one too? Omg the painkillers are making me so loopy haha

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Re: vestibulectomy

Post  Loulou on Thu Dec 06, 2012 4:40 pm

No Alana i haven't had surgery (my vvd is more generalised so it wouldn't work for me) but i got very bunged up in the early days of my vvd when i was taking loads of painkillers.

Good luck with your recovery. Feeling loopy sounds fun?!

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Re: vestibulectomy

Post  Alana3 on Thu Dec 06, 2012 4:57 pm

Loopy is terrible I can't do anything but lay in bed. But for now that's all I need I guess. Yeah im more afraid that it's gonna hurt I could go now but im scared to

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Re: vestibulectomy

Post  Loulou on Thu Dec 06, 2012 5:11 pm

Aw sorry hun - in that case loopy is NOT good. But laying in bed, although frustrating, probably is what your body needs right now. As for 'going' - might be better to go before it builds up even more? (the things we talk about here lol!)

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Re: vestibulectomy

Post  jen007 on Thu Dec 06, 2012 5:46 pm

Alana,

You should be good to go. Prune juice is so gross but I drank it after my surgery to help. I also ate prunes and took a fiber supplement. Don't be scared! It'll be just fine. Just try not to push too hard, haha. I hated those pills they made me so stupid. I only took them before bed for the first 2 days. That pain you're feeling should go away with in 2 to 3 weeks. It really depends on what toe of healer you are. Like I healed petty quickly. If you want to feel less loopy you could take naproxen or Advil. It's strong enough to help the pain if its just that muscle ache feeling.

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Re: vestibulectomy

Post  Alana3 on Thu Dec 06, 2012 6:12 pm

Yeah I switched to Advil I think im gonna poo soon but im still scared. 2 to 3 weeks what the?! And I've been walking a bit it gets easier but damn this is uncomfortable lol

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Re: vestibulectomy

Post  jen007 on Thu Dec 06, 2012 11:50 pm

Like I said it just depends on what type of healer you are. It could be less than that. And good, you should go poo haha!

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Re: vestibulectomy

Post  Alana3 on Fri Dec 07, 2012 12:03 am

I still can't poo lmao ugh! I stopped taking pain killers tho

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Re: vestibulectomy

Post  jen007 on Fri Dec 07, 2012 12:34 am

Aw Neutral , you will don't worry. The pain pills can constipate you.

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Re: vestibulectomy

Post  Alana3 on Fri Dec 07, 2012 12:38 am

Did u have pain that felt like vulvodynia pain at all Im flipping out because it started feeling like that again

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Re: vestibulectomy

Post  jen007 on Fri Dec 07, 2012 2:32 am

Not really, but everyones healing experiences are different. I've read from other women that they had vuvlodynia like pain after surgery, but it went away. I'd say it's perfectly normal to still feel some of the pain. Don't stress about every pain. It's most likely going to go away within the next few weeks.

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Re: vestibulectomy

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