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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

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vestibulectomy

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Re: vestibulectomy

Post  Alana3 on Tue Dec 04, 2012 8:48 pm

last minute pep talk please!

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Re: vestibulectomy

Post  jen007 on Wed Dec 05, 2012 3:43 am

Aw thanks Alana! I really enjoy talking to you here.

Ok pep talk....You're going to do GREAT! I swear! You're going to walk in there, they'll put you in a gown and then you go to sleep. The anesthesia is awesome btw, best sleep of your life. It'll feel like you blinked and it'll be over.

I'm sorry I'm responding so late! I hope you see this before you go into surgery! I know you'll be fine! Try not to worry so much if you can. I don't know how I managed to not pass out before I went in...I'm always a panicky mess, haha. I'll be thinking of you tomorrow! If you can/ feel up to it tomorrow let me know how it went! I'll be anxious to check the forum!

Good Luck!!!!! Very Happy

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Re: vestibulectomy

Post  Alana3 on Wed Dec 05, 2012 10:31 am

I saw it thank you so much Smile I'll let you know!

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Re: vestibulectomy

Post  Alana3 on Wed Dec 05, 2012 6:26 pm

Home!

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Re: vestibulectomy

Post  Alana3 on Wed Dec 05, 2012 8:17 pm

Did you pee a lot after surgery

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Re: vestibulectomy

Post  Alana3 on Wed Dec 05, 2012 9:08 pm

Did you pee a lot after surgery

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Re: vestibulectomy

Post  jen007 on Wed Dec 05, 2012 11:33 pm

How did it go ?? How are you feeling ?? And yes I did pee a lot after. I made the stupid decision to not go before surgery... Big mistake haha. I peed like 100 times haha.

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Re: vestibulectomy

Post  Alana3 on Wed Dec 05, 2012 11:59 pm

He thinks he got all of it. I threw up after but it's more muscle pain and one stitch is mimicking vv which im not gonna lie id really annoying. Yeah I thought I had a uti because of how much im peeing but I guess it's normal. Originally it looked like I got shot but the blood is going away. Im able to sit pee and eat and walk by myself to ths potty so I guess im ok. It feels more like muscle pain than anything tho

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Re: vestibulectomy

Post  jen007 on Thu Dec 06, 2012 12:30 am

See it wasn't so bad Smile. I'm glad you're able to walk and sit and mostly feel comfortable. The stitches are so annoying but it'll get better. The more you soak them the fast they'll dissolve. They'll start to get itchy in a few weeks, which sucks. Your I've pack will be your best friend haha.

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Re: vestibulectomy

Post  Alana3 on Thu Dec 06, 2012 1:12 am

He doesn't want me soak for a bit. Probably not til my two week he just called me lol

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Re: vestibulectomy

Post  jen007 on Thu Dec 06, 2012 3:32 am

Oh great! It's good that he keeps in contact with you.

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Re: vestibulectomy

Post  Alana3 on Thu Dec 06, 2012 4:28 am

Yeah it is. I ended Yup being allergic to drug but realized after I spoke with him thankfully dads a doc so he wrote me new. Then I thought I pulled a stitch out but I guess I didn't. Good news is the bleeding is already spotting but now instead of vulvodynia pain I have surgical pain n how long til it goes away? I'm scared to poop too Lol (I'm on softener but I threw up and it hurt so bad because of those muscles)

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Re: vestibulectomy

Post  Alana3 on Thu Dec 06, 2012 1:34 pm

Im afraid to poo

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Re: vestibulectomy

Post  Loulou on Thu Dec 06, 2012 4:00 pm

Alana - if you can bear it drink lots of prune juice. That should help keep things running smoothly if you see what i mean!

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Re: vestibulectomy

Post  Alana3 on Thu Dec 06, 2012 4:28 pm

Lol I def see what you mean! Im taking stool softeners but im still afraid lol did you get one too? Omg the painkillers are making me so loopy haha

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Re: vestibulectomy

Post  Loulou on Thu Dec 06, 2012 4:40 pm

No Alana i haven't had surgery (my vvd is more generalised so it wouldn't work for me) but i got very bunged up in the early days of my vvd when i was taking loads of painkillers.

Good luck with your recovery. Feeling loopy sounds fun?!

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Re: vestibulectomy

Post  Alana3 on Thu Dec 06, 2012 4:57 pm

Loopy is terrible I can't do anything but lay in bed. But for now that's all I need I guess. Yeah im more afraid that it's gonna hurt I could go now but im scared to

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Re: vestibulectomy

Post  Loulou on Thu Dec 06, 2012 5:11 pm

Aw sorry hun - in that case loopy is NOT good. But laying in bed, although frustrating, probably is what your body needs right now. As for 'going' - might be better to go before it builds up even more? (the things we talk about here lol!)

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Re: vestibulectomy

Post  jen007 on Thu Dec 06, 2012 5:46 pm

Alana,

You should be good to go. Prune juice is so gross but I drank it after my surgery to help. I also ate prunes and took a fiber supplement. Don't be scared! It'll be just fine. Just try not to push too hard, haha. I hated those pills they made me so stupid. I only took them before bed for the first 2 days. That pain you're feeling should go away with in 2 to 3 weeks. It really depends on what toe of healer you are. Like I healed petty quickly. If you want to feel less loopy you could take naproxen or Advil. It's strong enough to help the pain if its just that muscle ache feeling.

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Re: vestibulectomy

Post  Alana3 on Thu Dec 06, 2012 6:12 pm

Yeah I switched to Advil I think im gonna poo soon but im still scared. 2 to 3 weeks what the?! And I've been walking a bit it gets easier but damn this is uncomfortable lol

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Re: vestibulectomy

Post  jen007 on Thu Dec 06, 2012 11:50 pm

Like I said it just depends on what type of healer you are. It could be less than that. And good, you should go poo haha!

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Re: vestibulectomy

Post  Alana3 on Fri Dec 07, 2012 12:03 am

I still can't poo lmao ugh! I stopped taking pain killers tho

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Re: vestibulectomy

Post  jen007 on Fri Dec 07, 2012 12:34 am

Aw Neutral , you will don't worry. The pain pills can constipate you.

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Re: vestibulectomy

Post  Alana3 on Fri Dec 07, 2012 12:38 am

Did u have pain that felt like vulvodynia pain at all Im flipping out because it started feeling like that again

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Re: vestibulectomy

Post  jen007 on Fri Dec 07, 2012 2:32 am

Not really, but everyones healing experiences are different. I've read from other women that they had vuvlodynia like pain after surgery, but it went away. I'd say it's perfectly normal to still feel some of the pain. Don't stress about every pain. It's most likely going to go away within the next few weeks.

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Re: vestibulectomy

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