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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Amitriptyline and Lycra

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Amitriptyline and Lycra

Post  Kate1981 on Fri Oct 26, 2012 3:49 pm

Hello Everyone

I have just seen a fourth gyno this one being a vulva specialist. He has now prescribed me lycra to add to my ami of 40mg a day. Has anyone else taken both of these together? Im worried about the side effects of them. I already feel depressed and like a vegetable with ami but now with two drugs im worried!! My pain has decreased massively since taking ami it has gone from 10/10 to about 2-3/10 most days. Im still scared to have sex incase it sets it off again. The specialist is also sending me for some physio. Can this horrible condition ever go? Im so down going to lose my job and my house because I dont feel well enough to go back to work and my employer wont let me work with these drugs!! My doctor wont refer me to counciling and I really need someone to talk to. Fell like im losing it most days!

Kate1981

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Lyrica with amitriptyline

Post  karris87 on Wed Dec 26, 2012 12:10 am

Hi there, I am on 50 mg of amitriptyline and 300 mg of Lyrica per day. ( I am in USA.)
First off, Lyrica is really good. If anyone out there is taking gabapentin, ask your doc if you can take Lyrica instead. They have to offer gabapentin first, is what my doctor told me, because Lyrica is on patent, but Lyrica is superior.

Secondly, Lyrica will make you sleep a lot. BUT I'm told this goes away. I have been on Lyrica for a little less than a month, and my sleepiness has definitely gone down. I have noticed muscle jerks though, when I'm lying down.

I'm also on Cymbalta, which is an SNRI. This is on patent, but it should probably work better than an SSRI, types of which are available off patent. Again, I think the doctor probably has to try SSRI first (which only deals with serotonin) before giving you the SNRI (which deals with serotonin and norepinephrine).

Try to avoid alcohol or other things that your liver has to metabolize, because it is busy with the drugs.



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