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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Amitriptyline and Lycra

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Amitriptyline and Lycra

Post  Kate1981 on Fri Oct 26, 2012 3:49 pm

Hello Everyone

I have just seen a fourth gyno this one being a vulva specialist. He has now prescribed me lycra to add to my ami of 40mg a day. Has anyone else taken both of these together? Im worried about the side effects of them. I already feel depressed and like a vegetable with ami but now with two drugs im worried!! My pain has decreased massively since taking ami it has gone from 10/10 to about 2-3/10 most days. Im still scared to have sex incase it sets it off again. The specialist is also sending me for some physio. Can this horrible condition ever go? Im so down going to lose my job and my house because I dont feel well enough to go back to work and my employer wont let me work with these drugs!! My doctor wont refer me to counciling and I really need someone to talk to. Fell like im losing it most days!


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Lyrica with amitriptyline

Post  karris87 on Wed Dec 26, 2012 12:10 am

Hi there, I am on 50 mg of amitriptyline and 300 mg of Lyrica per day. ( I am in USA.)
First off, Lyrica is really good. If anyone out there is taking gabapentin, ask your doc if you can take Lyrica instead. They have to offer gabapentin first, is what my doctor told me, because Lyrica is on patent, but Lyrica is superior.

Secondly, Lyrica will make you sleep a lot. BUT I'm told this goes away. I have been on Lyrica for a little less than a month, and my sleepiness has definitely gone down. I have noticed muscle jerks though, when I'm lying down.

I'm also on Cymbalta, which is an SNRI. This is on patent, but it should probably work better than an SSRI, types of which are available off patent. Again, I think the doctor probably has to try SSRI first (which only deals with serotonin) before giving you the SNRI (which deals with serotonin and norepinephrine).

Try to avoid alcohol or other things that your liver has to metabolize, because it is busy with the drugs.


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