Vulvodynia Support
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» Hope to all my suffering ladies
Anyone being treated in St Mary's Hospital in London?? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Anyone being treated in St Mary's Hospital in London?? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Anyone being treated in St Mary's Hospital in London?? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Anyone being treated in St Mary's Hospital in London?? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Anyone being treated in St Mary's Hospital in London?? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Anyone being treated in St Mary's Hospital in London?? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Anyone being treated in St Mary's Hospital in London?? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Anyone being treated in St Mary's Hospital in London?? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Anyone being treated in St Mary's Hospital in London?? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Anyone being treated in St Mary's Hospital in London??

3 posters

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Anyone being treated in St Mary's Hospital in London?? Empty Anyone being treated in St Mary's Hospital in London??

Post  kukubadi1987 Mon Oct 15, 2012 10:00 pm

Goodevening my friends!and i call you my friends as it came this time in my life that only someone stranger could realize from the bottom of their heart my problem. a problem that makes me cry without reason, feel tired with no reason, even make me think that my personal life is already destroyed (and i am just 25 years old ...),thinking that how a man can stay with me having to deal with this problem...
my name is Kate and i have started my treatment in St Mary's Hospital since July. i am in this stage that i use lignocain and even from the first month it worked very well that i thought that maybe my problem solved...so silly...i started using the pool on august and thrush came back. so from middle of september that i saw my consultant again in St Mary's i started taking fluconazone once a week and i will keep on until january and at the same time i keep on with the lignocaine 4 times a day.the pain is much better in my everyday life, no ithcing so much, no so much discomfort, but when i had sex yesterday i realised that the pain was so bad...you can imagine how dipressed this made me feel again..since yesterday i just cry with no reason...i just believe that i will never have a proper life again...and ok, to be honest since i enjoy anal sex as well i have it at a "second" choice. but is it a solution to have only anal sex from now on??
i read about low-oxalate diet.is it something that you recommend?also what about exercises?is it something i could try at the same time with my treatment until i see my doctor again??if you have any suggestion i would love to hear from you...
also i was thinking if there are any group therapies that women with our problem see each other all together and speak about that??maybe it sounds silly to you but i am so new to that and i am desperate for any kind of help...maybe i am desperate for someone to tell me that everything will be ok but even in this forum most of the stories are dissapointing...
sometimes i am thinking if it is better that i do not have relationship this period of my life. at least i do not destroy someone else's sexual life with my problem...my sister to make me laugh she says that as long as i like anal sex there is no man that he would not like to be with me!it is so nice i have her in my life to speak about that, she is the only one that knows and supports me so much.

i am looking forward to any reply, at least i feel finally that i am not alone to that. i know i sounds terrible that i am happy that other people have the same problem but i just mean that i am happy that other people can feel my feeling, my pain, my thouhgts, my difficulty some days even to go to the gym, to stop thinking of that....

i hope all of us have a better life, even with this problem to find anythign that in personal way make us feel that at least we keep on our life with the people we love without problem...

wish you all the best to everyone my friends.
katerina

kukubadi1987

Posts : 14
Join date : 2012-10-14
Age : 37
Location : London

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Post  lavrose Thu Oct 18, 2012 12:25 pm

Hey, I do anal when I feel I have an infection and its actually pretty great, but it takes time, and reading books on it, being really gentle, learning to relax, etc,etc. I also do alot of oral. As long as you do SOMETHING sexual with your man when he wants it, he should be happy. If not, hes a douche.

and for most of my life I was 100% against anal sex, (citing to my then husband that it can cause cancer, and other problems, etc) but after doing lots of research, and finally trying it, I learn to really like it, and I do it about once a week sometimes twice a week (occasionally), with no problems (except for some gas at times, and feeling like you have no time to waste trying to get to a bathroom, but this is only within the first 24 hours of engaging in anal sex, and the funny thing is, after about a year, my body literally got used to it, and I feel completely normal afterwards, and I didnt feel those urgency needs anymore). I do go thru months at a time without doing it at all.

Its not good to do it everyday. I dont think its good for your health, but occasionally, even as much as once a week, is fine for me, and most other people.

I also spoke with alot of gay men about this, and they go well into middle age, doing anal, and dont wear diapers or have problems or anything. On a side note, it makes orgasms stronger, and better, (not to be too graphic) Smile) lol
lavrose
lavrose

Posts : 152
Join date : 2012-04-28

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Post  kukubadi1987 Wed Oct 24, 2012 4:04 pm

thanks so much for replying!
you know for me anal sex it was always a part of "nice change" in sex so the good thing is that it is not something that suddenly i had to put in my life.
i read so many stories of girls saying how much their husbands support them and understand them but it is so different if something like that happens to you when you already are married and of course your man is going to be there for you(otherwise is douche as you said!!) and totall different if every time you meet someone you have to deal with the problem of expaining. i see myself not to want to meet anyone because of the fear how to say and how he is going to react. at least now i am single and i don't have sex but what if one day i fall in love and he will eventually leave me because of this problem??how can i recover from that?and how can i blame a man who wants a totally health woman instead of me?i now it sounds very pessimistic what i say but i think that i am realistic. relationship without good sex cannot exist and i know it...
this period, until january i am on fulconazone to defeat thrush as i was positive the last time and at the same time i use lignocaine but i think i will stop it, i don't think it makes any difference.
do you suggest something else for a bit of relief until the 10th of january that i will see my doctor?

thanks for everything,
kate

kukubadi1987

Posts : 14
Join date : 2012-10-14
Age : 37
Location : London

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Post  kalinikta77 Mon Nov 05, 2012 2:44 am

Have you been diagnosed yet? What are you being treated for?

kalinikta77

Posts : 7
Join date : 2012-11-05

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