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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

I'm at a loss... :(

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I'm at a loss... :(

Post  shivajen on Wed Oct 31, 2012 3:51 am

Hi Everyone,

I'm here because I honestly have no idea what to do, no where to turn, and an overwhelming frustration that just grows every day.

I'm 22, was diagnosed with IC, Vulvodynia and Pelvic Floor Dysfunction two years ago this November. I've adapted my diet, done physical therapy, instillation treatments, lidocaine creams and every other remedy you could possibly think of, and still, I struggle with vulvar pain nearly every day of my life. Not one of my boyfriends has been compassionate towards my condition, and because of this I am frightened by the idea of a relationship.

I'm currently touring with the show Rock of Ages as a dancer, and my costumes are...well possibly the WORST idea for a person with Vulvodynia (nylon g-string, tights, 2 pairs of lace panties on top and (not a joke) a sort of thong "harness" that I wear for an hour and a half in the second act. I finish the show every night with horrible pain that leaves me worthless, I can't go out with my cast, I can't even enjoy a movie night because I'm afraid of them judging me because I'm sitting on a heating pad. What's worse, I sometimes feel like the few people I've told think I'm making it all up, or they just don't give a shit.

I honestly don't know what to do. I have an extremely supportive group of family and friends back home, but because I'm touring all of the US and Canada, feeling close to those that understand is practically impossible. I just want to be a normal 22 year old. I'm mad at the universe for dealing me this card, and I just want to be normal. I am truly at a loss.

Anyone been through a similar situation? or know what to say to make me feel like less of a leper?



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Join date : 2012-10-31
Age : 27

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