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» Honey decreased my pain considerably!
Yesterday at 12:53 pm by mhhh

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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
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» Hello. In Need of Advice, Please and Thank You. Long Read.
Sun Jul 08, 2018 3:58 am by cg1991

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


The latest on the essential oils

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The latest on the essential oils

Post  lavrose on Wed Oct 31, 2012 8:28 pm

So, I realize now that I must "switch" up the oils, in order for them to be effective, as my body seems to get used to them after awhile. Lately Ive been doing 2 drops lavender 2 drops rosemary, 3 drops tea tree suppositories for the last 2 weeks up to 3 times a day, and it didnt seem like I feeling any better, worse actually. I figured I might have"burnt" it in there, as Ive done it before, which means I have to lay off the oils for a few days, and c what Happenes. Sometimes I go back to normal, sometimes I dont. Then I have to try again.
Vuvlvodynia is very time consuming.

I never know what my vagina is gonna do day to day. Its so hard, because its something I have absolutely no control over. Its the most unpredictable thing, ever. Just like my Love life, anywhoo...
So something strange happened. I spent the whole day feeling AWFUL!! Sex was the last thing on my mind for the duration. I felt Burned, as Ive been slamming it with oils for the last 2 weeks, almost 3 times a day. I knew, if I layed off of them, for a few days, Id still feel bad, and have to do it again, not knowing if it was gonna get better, or I should try something else. Its so confusing and frustrating. Ive gone months like this before. With Goldenseal and grapefruit seed extract. Its hideous. Meanwhile things are getting tense with my boyfriend as Ive not been able to be sexual.

I decided to try some eucalyptus oil. One drop on my finger, and then I layed down and kind of rubbed it all on the inside as deep as I could, evenly distributed.
At first IT BURNED like the Dickens, but then after 30 minutes I felt 100% back to normal!!
Seriously. Like Normal. Not burnt or sore or anything. Normal. Normal. Not burned. Not "wierd" or "Off". Normal. And not irritated. Like I could have rough sex and it would not hurt me. It felt completely normal again, and great. I ended having awesome pain free sex 3 times with my boyfriend last nite, and we havnt had sex in 2 weeks.

Strange., I didnt think I was any where near ready for sex. and within the hour!!!
Ive had this happened to me before. Back in the early days when tea tree oil used to work for me, and was my "go to" oil. One application and an hour later Im good to go.
Geranium as well. Where I felt awful , and I didnt want anyone or anything near the area, and the next day I feel awesome, great, and ready to go all nite!!

But I seem to have developed a resistance to the Geranium aswell.
I did the Eucalyptus again this morning, just on the finger, and it BURNED even worse, (cuz it was sore from the sexual activity last nite) to wear I was twitching and hoping around on my seat, but it went away in 30 minutes and I feel great (normal) again...so

I have placed an order with Aura Cacia, for Palma Rosa, Mhytle, Patchouili, Peppermint, White Thyme, and Bergamont oil. Gonna try all them at different times. Read up online they can all be used for womens complaints, vaginal yeast infections etc.

It seems Vulvodynia is a process. Day to day, I take it, day by day, and I learn something new everyday.
Its hard tho. My current boyfriend says I smell like Bug spray and its not very sexy, to smell bug spray while gettin it on with your girl, plus its messy, with the coconut oil.
Whatever. Hes ignorant. I Love him. But he knows nothing, anyway...
He also has a large member (not to be too graphic). Which honestly, I mean its nice and all, but when you have Vulvodynia, its REALLY difficult. It seems Im even MORE prone to problems since Ive been with him.
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lavrose

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IC

Post  lavrose on Wed Oct 31, 2012 8:31 pm

another frustrating thing is. If you have Interstitial cystitus. The oils can irritate that too, which is also been happening to me lately, as Ive been on them nonstop for awhile.

UGH...so Miserable.

Good Luck, ladies, and GOD speed!!
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Re: The latest on the essential oils

Post  kukubadi1987 on Thu Nov 01, 2012 4:27 pm

hi girls,
i have already ordered from amazon the tea tree oil and probably i will order lavender oil too so i can combine the and see what will happen.is it ok to apply directly to your vagina the oil or should i mix it with water?
valvadynia has made us create a totally different relationship with our vaginas! my sister make fun of me saying i should give it a name!!!hahaha
any advibe for oils would be much appreciated!
thanks a lot,
kate

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Re: The latest on the essential oils

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