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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

The latest on the essential oils

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The latest on the essential oils

Post  lavrose on Wed Oct 31, 2012 8:28 pm

So, I realize now that I must "switch" up the oils, in order for them to be effective, as my body seems to get used to them after awhile. Lately Ive been doing 2 drops lavender 2 drops rosemary, 3 drops tea tree suppositories for the last 2 weeks up to 3 times a day, and it didnt seem like I feeling any better, worse actually. I figured I might have"burnt" it in there, as Ive done it before, which means I have to lay off the oils for a few days, and c what Happenes. Sometimes I go back to normal, sometimes I dont. Then I have to try again.
Vuvlvodynia is very time consuming.

I never know what my vagina is gonna do day to day. Its so hard, because its something I have absolutely no control over. Its the most unpredictable thing, ever. Just like my Love life, anywhoo...
So something strange happened. I spent the whole day feeling AWFUL!! Sex was the last thing on my mind for the duration. I felt Burned, as Ive been slamming it with oils for the last 2 weeks, almost 3 times a day. I knew, if I layed off of them, for a few days, Id still feel bad, and have to do it again, not knowing if it was gonna get better, or I should try something else. Its so confusing and frustrating. Ive gone months like this before. With Goldenseal and grapefruit seed extract. Its hideous. Meanwhile things are getting tense with my boyfriend as Ive not been able to be sexual.

I decided to try some eucalyptus oil. One drop on my finger, and then I layed down and kind of rubbed it all on the inside as deep as I could, evenly distributed.
At first IT BURNED like the Dickens, but then after 30 minutes I felt 100% back to normal!!
Seriously. Like Normal. Not burnt or sore or anything. Normal. Normal. Not burned. Not "wierd" or "Off". Normal. And not irritated. Like I could have rough sex and it would not hurt me. It felt completely normal again, and great. I ended having awesome pain free sex 3 times with my boyfriend last nite, and we havnt had sex in 2 weeks.

Strange., I didnt think I was any where near ready for sex. and within the hour!!!
Ive had this happened to me before. Back in the early days when tea tree oil used to work for me, and was my "go to" oil. One application and an hour later Im good to go.
Geranium as well. Where I felt awful , and I didnt want anyone or anything near the area, and the next day I feel awesome, great, and ready to go all nite!!

But I seem to have developed a resistance to the Geranium aswell.
I did the Eucalyptus again this morning, just on the finger, and it BURNED even worse, (cuz it was sore from the sexual activity last nite) to wear I was twitching and hoping around on my seat, but it went away in 30 minutes and I feel great (normal) again...so

I have placed an order with Aura Cacia, for Palma Rosa, Mhytle, Patchouili, Peppermint, White Thyme, and Bergamont oil. Gonna try all them at different times. Read up online they can all be used for womens complaints, vaginal yeast infections etc.

It seems Vulvodynia is a process. Day to day, I take it, day by day, and I learn something new everyday.
Its hard tho. My current boyfriend says I smell like Bug spray and its not very sexy, to smell bug spray while gettin it on with your girl, plus its messy, with the coconut oil.
Whatever. Hes ignorant. I Love him. But he knows nothing, anyway...
He also has a large member (not to be too graphic). Which honestly, I mean its nice and all, but when you have Vulvodynia, its REALLY difficult. It seems Im even MORE prone to problems since Ive been with him.

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Post  lavrose on Wed Oct 31, 2012 8:31 pm

another frustrating thing is. If you have Interstitial cystitus. The oils can irritate that too, which is also been happening to me lately, as Ive been on them nonstop for awhile.

UGH...so Miserable.

Good Luck, ladies, and GOD speed!!

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Re: The latest on the essential oils

Post  kukubadi1987 on Thu Nov 01, 2012 4:27 pm

hi girls,
i have already ordered from amazon the tea tree oil and probably i will order lavender oil too so i can combine the and see what will happen.is it ok to apply directly to your vagina the oil or should i mix it with water?
valvadynia has made us create a totally different relationship with our vaginas! my sister make fun of me saying i should give it a name!!!hahaha
any advibe for oils would be much appreciated!
thanks a lot,


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Re: The latest on the essential oils

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