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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


The latest on the essential oils

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The latest on the essential oils

Post  lavrose on Wed Oct 31, 2012 8:28 pm

So, I realize now that I must "switch" up the oils, in order for them to be effective, as my body seems to get used to them after awhile. Lately Ive been doing 2 drops lavender 2 drops rosemary, 3 drops tea tree suppositories for the last 2 weeks up to 3 times a day, and it didnt seem like I feeling any better, worse actually. I figured I might have"burnt" it in there, as Ive done it before, which means I have to lay off the oils for a few days, and c what Happenes. Sometimes I go back to normal, sometimes I dont. Then I have to try again.
Vuvlvodynia is very time consuming.

I never know what my vagina is gonna do day to day. Its so hard, because its something I have absolutely no control over. Its the most unpredictable thing, ever. Just like my Love life, anywhoo...
So something strange happened. I spent the whole day feeling AWFUL!! Sex was the last thing on my mind for the duration. I felt Burned, as Ive been slamming it with oils for the last 2 weeks, almost 3 times a day. I knew, if I layed off of them, for a few days, Id still feel bad, and have to do it again, not knowing if it was gonna get better, or I should try something else. Its so confusing and frustrating. Ive gone months like this before. With Goldenseal and grapefruit seed extract. Its hideous. Meanwhile things are getting tense with my boyfriend as Ive not been able to be sexual.

I decided to try some eucalyptus oil. One drop on my finger, and then I layed down and kind of rubbed it all on the inside as deep as I could, evenly distributed.
At first IT BURNED like the Dickens, but then after 30 minutes I felt 100% back to normal!!
Seriously. Like Normal. Not burnt or sore or anything. Normal. Normal. Not burned. Not "wierd" or "Off". Normal. And not irritated. Like I could have rough sex and it would not hurt me. It felt completely normal again, and great. I ended having awesome pain free sex 3 times with my boyfriend last nite, and we havnt had sex in 2 weeks.

Strange., I didnt think I was any where near ready for sex. and within the hour!!!
Ive had this happened to me before. Back in the early days when tea tree oil used to work for me, and was my "go to" oil. One application and an hour later Im good to go.
Geranium as well. Where I felt awful , and I didnt want anyone or anything near the area, and the next day I feel awesome, great, and ready to go all nite!!

But I seem to have developed a resistance to the Geranium aswell.
I did the Eucalyptus again this morning, just on the finger, and it BURNED even worse, (cuz it was sore from the sexual activity last nite) to wear I was twitching and hoping around on my seat, but it went away in 30 minutes and I feel great (normal) again...so

I have placed an order with Aura Cacia, for Palma Rosa, Mhytle, Patchouili, Peppermint, White Thyme, and Bergamont oil. Gonna try all them at different times. Read up online they can all be used for womens complaints, vaginal yeast infections etc.

It seems Vulvodynia is a process. Day to day, I take it, day by day, and I learn something new everyday.
Its hard tho. My current boyfriend says I smell like Bug spray and its not very sexy, to smell bug spray while gettin it on with your girl, plus its messy, with the coconut oil.
Whatever. Hes ignorant. I Love him. But he knows nothing, anyway...
He also has a large member (not to be too graphic). Which honestly, I mean its nice and all, but when you have Vulvodynia, its REALLY difficult. It seems Im even MORE prone to problems since Ive been with him.
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lavrose

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Post  lavrose on Wed Oct 31, 2012 8:31 pm

another frustrating thing is. If you have Interstitial cystitus. The oils can irritate that too, which is also been happening to me lately, as Ive been on them nonstop for awhile.

UGH...so Miserable.

Good Luck, ladies, and GOD speed!!
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Re: The latest on the essential oils

Post  kukubadi1987 on Thu Nov 01, 2012 4:27 pm

hi girls,
i have already ordered from amazon the tea tree oil and probably i will order lavender oil too so i can combine the and see what will happen.is it ok to apply directly to your vagina the oil or should i mix it with water?
valvadynia has made us create a totally different relationship with our vaginas! my sister make fun of me saying i should give it a name!!!hahaha
any advibe for oils would be much appreciated!
thanks a lot,
kate

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Re: The latest on the essential oils

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