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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


The latest on the essential oils

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The latest on the essential oils

Post  lavrose on Wed Oct 31, 2012 8:28 pm

So, I realize now that I must "switch" up the oils, in order for them to be effective, as my body seems to get used to them after awhile. Lately Ive been doing 2 drops lavender 2 drops rosemary, 3 drops tea tree suppositories for the last 2 weeks up to 3 times a day, and it didnt seem like I feeling any better, worse actually. I figured I might have"burnt" it in there, as Ive done it before, which means I have to lay off the oils for a few days, and c what Happenes. Sometimes I go back to normal, sometimes I dont. Then I have to try again.
Vuvlvodynia is very time consuming.

I never know what my vagina is gonna do day to day. Its so hard, because its something I have absolutely no control over. Its the most unpredictable thing, ever. Just like my Love life, anywhoo...
So something strange happened. I spent the whole day feeling AWFUL!! Sex was the last thing on my mind for the duration. I felt Burned, as Ive been slamming it with oils for the last 2 weeks, almost 3 times a day. I knew, if I layed off of them, for a few days, Id still feel bad, and have to do it again, not knowing if it was gonna get better, or I should try something else. Its so confusing and frustrating. Ive gone months like this before. With Goldenseal and grapefruit seed extract. Its hideous. Meanwhile things are getting tense with my boyfriend as Ive not been able to be sexual.

I decided to try some eucalyptus oil. One drop on my finger, and then I layed down and kind of rubbed it all on the inside as deep as I could, evenly distributed.
At first IT BURNED like the Dickens, but then after 30 minutes I felt 100% back to normal!!
Seriously. Like Normal. Not burnt or sore or anything. Normal. Normal. Not burned. Not "wierd" or "Off". Normal. And not irritated. Like I could have rough sex and it would not hurt me. It felt completely normal again, and great. I ended having awesome pain free sex 3 times with my boyfriend last nite, and we havnt had sex in 2 weeks.

Strange., I didnt think I was any where near ready for sex. and within the hour!!!
Ive had this happened to me before. Back in the early days when tea tree oil used to work for me, and was my "go to" oil. One application and an hour later Im good to go.
Geranium as well. Where I felt awful , and I didnt want anyone or anything near the area, and the next day I feel awesome, great, and ready to go all nite!!

But I seem to have developed a resistance to the Geranium aswell.
I did the Eucalyptus again this morning, just on the finger, and it BURNED even worse, (cuz it was sore from the sexual activity last nite) to wear I was twitching and hoping around on my seat, but it went away in 30 minutes and I feel great (normal) again...so

I have placed an order with Aura Cacia, for Palma Rosa, Mhytle, Patchouili, Peppermint, White Thyme, and Bergamont oil. Gonna try all them at different times. Read up online they can all be used for womens complaints, vaginal yeast infections etc.

It seems Vulvodynia is a process. Day to day, I take it, day by day, and I learn something new everyday.
Its hard tho. My current boyfriend says I smell like Bug spray and its not very sexy, to smell bug spray while gettin it on with your girl, plus its messy, with the coconut oil.
Whatever. Hes ignorant. I Love him. But he knows nothing, anyway...
He also has a large member (not to be too graphic). Which honestly, I mean its nice and all, but when you have Vulvodynia, its REALLY difficult. It seems Im even MORE prone to problems since Ive been with him.
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lavrose

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Post  lavrose on Wed Oct 31, 2012 8:31 pm

another frustrating thing is. If you have Interstitial cystitus. The oils can irritate that too, which is also been happening to me lately, as Ive been on them nonstop for awhile.

UGH...so Miserable.

Good Luck, ladies, and GOD speed!!
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Re: The latest on the essential oils

Post  kukubadi1987 on Thu Nov 01, 2012 4:27 pm

hi girls,
i have already ordered from amazon the tea tree oil and probably i will order lavender oil too so i can combine the and see what will happen.is it ok to apply directly to your vagina the oil or should i mix it with water?
valvadynia has made us create a totally different relationship with our vaginas! my sister make fun of me saying i should give it a name!!!hahaha
any advibe for oils would be much appreciated!
thanks a lot,
kate

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Re: The latest on the essential oils

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