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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

How do you cure vulvodynia? PLEASE HELP

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How do you cure vulvodynia? PLEASE HELP

Post  m18 on Thu Nov 01, 2012 12:31 am

Hey everyone

I've suffered from vulvodynia for a nearly two years now and its getting to the point where its driving me insane! I'm currently in a 2 year relationship however have not yet lost my virginity due to suffering from this. I'm not quite sure how it was developed as i've not yet had sex but i can't even participate in sexual activity. The pain is unbarable and its put me off wanting to have sex due to me unable to become excited sexually in anyway whatsoever, my boyfriends really supportive and ever so patient but I have a huge amount of guilt and burden for him having to wait so long. I've tried talking to doctors and a sexual health counsellor but they were completely useless and I'm now desperate for a cure!! i've read quite a few online but not sure which one would be the most successful, I'm currently taking amitriptyline to reduce the pain however it seems to still flare up occassionally and I feel as if these could be numbing my hormones and stopping me from feeling any excitement when it comes to any to sexual activity, i'm deffinitely acttracted to my boyfriend so I don't really understand and wondered if any one has felt the same as me? Also I heard hypnotheraphy was a popular cure and wanted to look into that but wasn't sure who to contact. I'ts really getting me down and can't stop bursting into tears from the destress and the pain so any suggestions would be really apreciated, thanks.


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Re how to cure vulvodynia

Post  Sunflower82 on Thu Nov 01, 2012 9:05 am

Sorry to hear you are suffering, I have vulvodynia but before I was able to have a relationship, but now I can only just manage to have sex after lots of treatment. I've been taking anti depressants for over a year and a half, the best treatment I've had is physio from a women's health physio I have had to pay for it and it is very expensive, also seen a chiropractor who deals with vulvar pain. It's very normal to not want to do anything or for u to not be turned on as you are waiting for the pain. Do u have pain all the time ? Where about do u live? Good book to read is a headache in the pelvis, take this with u when u see the doctor !

Hope this helps



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Re: How do you cure vulvodynia? PLEASE HELP

Post  m18 on Thu Nov 01, 2012 11:47 am

Hey, thankyou so much for your advice i've thought of getting a chiropractor cause I do actually have back problems as well I was just worried about the expenses as i'm still at uni and can't really afford it but desperate to get rid of this condition. My pain can vary from being constant to randomly hurting, with taking the amitritylene now I find their are days it doesnt but it all of a sudden flares up if my boyfriend tries to touch me. I'm glad its normal but its stressing myself and my boyfriend out as he worries about hurting me is there anything that will help me to get that feeling back? I live just outside of london and thankyou whos the book by?

Thankyouu for your help! Smile


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Re how to cure vulvodynia

Post  Sunflower82 on Thu Nov 01, 2012 5:38 pm

Sorry don't have the book to hand but if u search for it by the name it will come up on google. In terms of getting the feeling back it's not easy, u may have to have some treatment first! When I first went to physio I must admitt my vular pain got worse she got me doing perineal massage for 5 mins everyday which to start with was horrible then gradually it became easier, adventually I could build up and started using dilators! Started by using them in the bath as this will hèlp to relax the muscles. As long as I had been having a good day, I would be able to use a vibrator just on the clitoral area so we would use that rather than having sex. Also don't be affraid of using lots of lube, this brand is expensive but is good (yes lube) if you google it it should come up. The physio I see is in London, are u seeing a gyno at the moment ?



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Re: How do you cure vulvodynia? PLEASE HELP

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