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» Change in birth control question
Yesterday at 3:47 pm by Jo44

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


How do you cure vulvodynia? PLEASE HELP

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How do you cure vulvodynia? PLEASE HELP

Post  m18 on Thu Nov 01, 2012 12:31 am

Hey everyone

I've suffered from vulvodynia for a nearly two years now and its getting to the point where its driving me insane! I'm currently in a 2 year relationship however have not yet lost my virginity due to suffering from this. I'm not quite sure how it was developed as i've not yet had sex but i can't even participate in sexual activity. The pain is unbarable and its put me off wanting to have sex due to me unable to become excited sexually in anyway whatsoever, my boyfriends really supportive and ever so patient but I have a huge amount of guilt and burden for him having to wait so long. I've tried talking to doctors and a sexual health counsellor but they were completely useless and I'm now desperate for a cure!! i've read quite a few online but not sure which one would be the most successful, I'm currently taking amitriptyline to reduce the pain however it seems to still flare up occassionally and I feel as if these could be numbing my hormones and stopping me from feeling any excitement when it comes to any to sexual activity, i'm deffinitely acttracted to my boyfriend so I don't really understand and wondered if any one has felt the same as me? Also I heard hypnotheraphy was a popular cure and wanted to look into that but wasn't sure who to contact. I'ts really getting me down and can't stop bursting into tears from the destress and the pain so any suggestions would be really apreciated, thanks.

m18

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Re how to cure vulvodynia

Post  Sunflower82 on Thu Nov 01, 2012 9:05 am

Hi,
Sorry to hear you are suffering, I have vulvodynia but before I was able to have a relationship, but now I can only just manage to have sex after lots of treatment. I've been taking anti depressants for over a year and a half, the best treatment I've had is physio from a women's health physio I have had to pay for it and it is very expensive, also seen a chiropractor who deals with vulvar pain. It's very normal to not want to do anything or for u to not be turned on as you are waiting for the pain. Do u have pain all the time ? Where about do u live? Good book to read is a headache in the pelvis, take this with u when u see the doctor !

Hope this helps

Kt

Sunflower82

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Re: How do you cure vulvodynia? PLEASE HELP

Post  m18 on Thu Nov 01, 2012 11:47 am


Hey, thankyou so much for your advice i've thought of getting a chiropractor cause I do actually have back problems as well I was just worried about the expenses as i'm still at uni and can't really afford it but desperate to get rid of this condition. My pain can vary from being constant to randomly hurting, with taking the amitritylene now I find their are days it doesnt but it all of a sudden flares up if my boyfriend tries to touch me. I'm glad its normal but its stressing myself and my boyfriend out as he worries about hurting me is there anything that will help me to get that feeling back? I live just outside of london and thankyou whos the book by?

Thankyouu for your help! Smile

m18

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Re how to cure vulvodynia

Post  Sunflower82 on Thu Nov 01, 2012 5:38 pm

Hi,
Sorry don't have the book to hand but if u search for it by the name it will come up on google. In terms of getting the feeling back it's not easy, u may have to have some treatment first! When I first went to physio I must admitt my vular pain got worse she got me doing perineal massage for 5 mins everyday which to start with was horrible then gradually it became easier, adventually I could build up and started using dilators! Started by using them in the bath as this will hèlp to relax the muscles. As long as I had been having a good day, I would be able to use a vibrator just on the clitoral area so we would use that rather than having sex. Also don't be affraid of using lots of lube, this brand is expensive but is good (yes lube) if you google it it should come up. The physio I see is in London, are u seeing a gyno at the moment ?

Kt

Sunflower82

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Re: How do you cure vulvodynia? PLEASE HELP

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