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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Pain Relief for Vulvodynia

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Pain Relief for Vulvodynia

Post  jenniferjackson on Sat Nov 03, 2012 3:54 pm

I 'm new to this board but I'm so excited to tell you about this.

I've been suffering with vulvodynia for almost 10 years now. I've tried everything. A friend of mine told me about a product that her husband uses for premature ejaculation. It's called Promescent. It's a topical anesthetic spray that slightly numbs the penis so that a man can last longer.

I called the company and they told me that they're working with a few OB-GYNs and have been getting really good results with vulvodynia. They're planning to do a clinical trial.

So I tried it Wow. Amazing results. Dramatic reduction in pain and discomfort. I just spray some on my fingers and rub it on the vulva area.

It's FDA approved so no concerns. And it's available ove-the-counter.

jenniferjackson

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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Sat Nov 03, 2012 7:26 pm

hello,
I just saw your message and it really sounds very interesting and it also sounds logic.
at least if a man uses it in his penis it means that you can use it in genitalia without problem..i suppose that the worse thing to happen to us is not working...I leave in uk, how can I find it? only online??
if you have some more details to say about how you feel that would be great to share with us!
I think we could try it and have an opinion about that...
have a lovely weekend!
kate

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Pain Relief for Vulvodynia

Post  jenniferjackson on Sun Nov 04, 2012 1:27 pm

You can order on-line. I can't post a link being a new member. "www dot promescent dot com" or just to a search for 'promescent' and look for the search results for "premature ejaculation treatment"

I don't know if they'll ship to the UK but I vaguely I recall choosing a country in the shipping information.

I hope you have as good of and experience as I have. Please let us know.

Now I need to convince my husband to try it Wink

jenniferjackson

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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Sun Nov 04, 2012 3:02 pm

of course he will! it is for both pleasure!
I am very happy for you, even that I don't know you. for me any woman in this planet has to deal with this problem is like a close person...
I hope your body keeps on accepting in. with vulvodynia what I have realised is that it could help anything depending to the bodies. do you know what I have realised that helps me??? Vibrators!! it's like the vibrators make massage to the region and make it relax.....how strange?? but real....

wish you the best,
if I order it and try it I will defenately let you know!

hug,
kate

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Re: Pain Relief for Vulvodynia

Post  jenniferjackson on Sun Nov 04, 2012 8:27 pm

I also feel a connection to the women on this board (and other) boards. Good to know you're not alone. Difficult subject to discuss at a dinner party.

Everyone is different so I don't know if Promescent will work for you but apparently the OB-GYN who is leading the effort says that several of his patients say that it is "life changing".

re: the vibrator idea, I've been afraid to try it but I will. What a great way to alleviate symptoms !!


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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Sun Nov 04, 2012 11:48 pm

hahah as long as it does not make things worst why not???? we are girls, we have needs.....
and anyway the women like me that we do not have a boyfriend we have to find a way to see for differences with our v.pain.
do you know what pisses me off most of the times??that with this situation I have my vagina in my mind most of the time during the day!!enough!!!I never thought I was going to have such a close relationship with "my little girl"!! ;-)


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regaining my sexual confidence

Post  jenniferjackson on Thu Nov 15, 2012 5:12 pm

I can't say that the vibrator helps, but it certainly didn't HURT !!

I'm starting to move beyong thinking about my vagina all the time w.r.t. to pain. I'm starting to think about my vagina as a source of pleasure !! I'm starting to regain my sexual confidence. Vibrator helps with that !! Thanks for the idea.

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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Thu Nov 15, 2012 5:37 pm

i'm very happy for that!!i hope it keeps on helping!
i have to try promescent, i still haven't ordered it but i am really curious to see if it will work...
do you keep on using it?is it permitted to use it in everyday basis?
thanks for your message,
kate

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Promescent

Post  jenniferjackson on Wed Nov 21, 2012 2:22 pm

It's not a preventative so it's not a daily use kind of thing. But I use it to relieve pain when that occurs ... and so I do use it often. Do you understand the distinction?

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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Wed Nov 21, 2012 2:31 pm

yes definitely!
thank you so much for the advice, it's so imprtant for me!

have a lovely day,
kate

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Promescent

Post  jenniferjackson on Thu Nov 22, 2012 2:03 am

Let me know if you try Promescent. From what I understand from my OB-GYN, there's just a few handful of us who have used it but every single user is really enthused by the results.

My girls are visiting for Thanksgiving .. gotta run.

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Re: Pain Relief for Vulvodynia

Post  Kate1981 on Thu Nov 22, 2012 9:56 pm

The best pain relief when you are having a really bad flare up and in excrutiating pain is dihydrocoedine! Within 15 minutes of taking one the pain is gone. Need to get them on prescription.

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Re: Pain Relief for Vulvodynia

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