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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Pain Relief for Vulvodynia

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Pain Relief for Vulvodynia

Post  jenniferjackson on Sat Nov 03, 2012 3:54 pm

I 'm new to this board but I'm so excited to tell you about this.

I've been suffering with vulvodynia for almost 10 years now. I've tried everything. A friend of mine told me about a product that her husband uses for premature ejaculation. It's called Promescent. It's a topical anesthetic spray that slightly numbs the penis so that a man can last longer.

I called the company and they told me that they're working with a few OB-GYNs and have been getting really good results with vulvodynia. They're planning to do a clinical trial.

So I tried it Wow. Amazing results. Dramatic reduction in pain and discomfort. I just spray some on my fingers and rub it on the vulva area.

It's FDA approved so no concerns. And it's available ove-the-counter.

jenniferjackson

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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Sat Nov 03, 2012 7:26 pm

hello,
I just saw your message and it really sounds very interesting and it also sounds logic.
at least if a man uses it in his penis it means that you can use it in genitalia without problem..i suppose that the worse thing to happen to us is not working...I leave in uk, how can I find it? only online??
if you have some more details to say about how you feel that would be great to share with us!
I think we could try it and have an opinion about that...
have a lovely weekend!
kate

kukubadi1987

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Age : 31
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Pain Relief for Vulvodynia

Post  jenniferjackson on Sun Nov 04, 2012 1:27 pm

You can order on-line. I can't post a link being a new member. "www dot promescent dot com" or just to a search for 'promescent' and look for the search results for "premature ejaculation treatment"

I don't know if they'll ship to the UK but I vaguely I recall choosing a country in the shipping information.

I hope you have as good of and experience as I have. Please let us know.

Now I need to convince my husband to try it Wink

jenniferjackson

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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Sun Nov 04, 2012 3:02 pm

of course he will! it is for both pleasure!
I am very happy for you, even that I don't know you. for me any woman in this planet has to deal with this problem is like a close person...
I hope your body keeps on accepting in. with vulvodynia what I have realised is that it could help anything depending to the bodies. do you know what I have realised that helps me??? Vibrators!! it's like the vibrators make massage to the region and make it relax.....how strange?? but real....

wish you the best,
if I order it and try it I will defenately let you know!

hug,
kate

kukubadi1987

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Re: Pain Relief for Vulvodynia

Post  jenniferjackson on Sun Nov 04, 2012 8:27 pm

I also feel a connection to the women on this board (and other) boards. Good to know you're not alone. Difficult subject to discuss at a dinner party.

Everyone is different so I don't know if Promescent will work for you but apparently the OB-GYN who is leading the effort says that several of his patients say that it is "life changing".

re: the vibrator idea, I've been afraid to try it but I will. What a great way to alleviate symptoms !!


jenniferjackson

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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Sun Nov 04, 2012 11:48 pm

hahah as long as it does not make things worst why not???? we are girls, we have needs.....
and anyway the women like me that we do not have a boyfriend we have to find a way to see for differences with our v.pain.
do you know what pisses me off most of the times??that with this situation I have my vagina in my mind most of the time during the day!!enough!!!I never thought I was going to have such a close relationship with "my little girl"!! ;-)


kukubadi1987

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regaining my sexual confidence

Post  jenniferjackson on Thu Nov 15, 2012 5:12 pm

I can't say that the vibrator helps, but it certainly didn't HURT !!

I'm starting to move beyong thinking about my vagina all the time w.r.t. to pain. I'm starting to think about my vagina as a source of pleasure !! I'm starting to regain my sexual confidence. Vibrator helps with that !! Thanks for the idea.

jenniferjackson

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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Thu Nov 15, 2012 5:37 pm

i'm very happy for that!!i hope it keeps on helping!
i have to try promescent, i still haven't ordered it but i am really curious to see if it will work...
do you keep on using it?is it permitted to use it in everyday basis?
thanks for your message,
kate

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Promescent

Post  jenniferjackson on Wed Nov 21, 2012 2:22 pm

It's not a preventative so it's not a daily use kind of thing. But I use it to relieve pain when that occurs ... and so I do use it often. Do you understand the distinction?

jenniferjackson

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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Wed Nov 21, 2012 2:31 pm

yes definitely!
thank you so much for the advice, it's so imprtant for me!

have a lovely day,
kate

kukubadi1987

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Promescent

Post  jenniferjackson on Thu Nov 22, 2012 2:03 am

Let me know if you try Promescent. From what I understand from my OB-GYN, there's just a few handful of us who have used it but every single user is really enthused by the results.

My girls are visiting for Thanksgiving .. gotta run.

jenniferjackson

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Re: Pain Relief for Vulvodynia

Post  Kate1981 on Thu Nov 22, 2012 9:56 pm

The best pain relief when you are having a really bad flare up and in excrutiating pain is dihydrocoedine! Within 15 minutes of taking one the pain is gone. Need to get them on prescription.

Kate1981

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Re: Pain Relief for Vulvodynia

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