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» Struggling
Yesterday at 3:19 am by doublej

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Pain Relief for Vulvodynia

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Pain Relief for Vulvodynia

Post  jenniferjackson on Sat Nov 03, 2012 3:54 pm

I 'm new to this board but I'm so excited to tell you about this.

I've been suffering with vulvodynia for almost 10 years now. I've tried everything. A friend of mine told me about a product that her husband uses for premature ejaculation. It's called Promescent. It's a topical anesthetic spray that slightly numbs the penis so that a man can last longer.

I called the company and they told me that they're working with a few OB-GYNs and have been getting really good results with vulvodynia. They're planning to do a clinical trial.

So I tried it Wow. Amazing results. Dramatic reduction in pain and discomfort. I just spray some on my fingers and rub it on the vulva area.

It's FDA approved so no concerns. And it's available ove-the-counter.

jenniferjackson

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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Sat Nov 03, 2012 7:26 pm

hello,
I just saw your message and it really sounds very interesting and it also sounds logic.
at least if a man uses it in his penis it means that you can use it in genitalia without problem..i suppose that the worse thing to happen to us is not working...I leave in uk, how can I find it? only online??
if you have some more details to say about how you feel that would be great to share with us!
I think we could try it and have an opinion about that...
have a lovely weekend!
kate

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Pain Relief for Vulvodynia

Post  jenniferjackson on Sun Nov 04, 2012 1:27 pm

You can order on-line. I can't post a link being a new member. "www dot promescent dot com" or just to a search for 'promescent' and look for the search results for "premature ejaculation treatment"

I don't know if they'll ship to the UK but I vaguely I recall choosing a country in the shipping information.

I hope you have as good of and experience as I have. Please let us know.

Now I need to convince my husband to try it Wink

jenniferjackson

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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Sun Nov 04, 2012 3:02 pm

of course he will! it is for both pleasure!
I am very happy for you, even that I don't know you. for me any woman in this planet has to deal with this problem is like a close person...
I hope your body keeps on accepting in. with vulvodynia what I have realised is that it could help anything depending to the bodies. do you know what I have realised that helps me??? Vibrators!! it's like the vibrators make massage to the region and make it relax.....how strange?? but real....

wish you the best,
if I order it and try it I will defenately let you know!

hug,
kate

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Re: Pain Relief for Vulvodynia

Post  jenniferjackson on Sun Nov 04, 2012 8:27 pm

I also feel a connection to the women on this board (and other) boards. Good to know you're not alone. Difficult subject to discuss at a dinner party.

Everyone is different so I don't know if Promescent will work for you but apparently the OB-GYN who is leading the effort says that several of his patients say that it is "life changing".

re: the vibrator idea, I've been afraid to try it but I will. What a great way to alleviate symptoms !!


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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Sun Nov 04, 2012 11:48 pm

hahah as long as it does not make things worst why not???? we are girls, we have needs.....
and anyway the women like me that we do not have a boyfriend we have to find a way to see for differences with our v.pain.
do you know what pisses me off most of the times??that with this situation I have my vagina in my mind most of the time during the day!!enough!!!I never thought I was going to have such a close relationship with "my little girl"!! ;-)


kukubadi1987

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regaining my sexual confidence

Post  jenniferjackson on Thu Nov 15, 2012 5:12 pm

I can't say that the vibrator helps, but it certainly didn't HURT !!

I'm starting to move beyong thinking about my vagina all the time w.r.t. to pain. I'm starting to think about my vagina as a source of pleasure !! I'm starting to regain my sexual confidence. Vibrator helps with that !! Thanks for the idea.

jenniferjackson

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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Thu Nov 15, 2012 5:37 pm

i'm very happy for that!!i hope it keeps on helping!
i have to try promescent, i still haven't ordered it but i am really curious to see if it will work...
do you keep on using it?is it permitted to use it in everyday basis?
thanks for your message,
kate

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Promescent

Post  jenniferjackson on Wed Nov 21, 2012 2:22 pm

It's not a preventative so it's not a daily use kind of thing. But I use it to relieve pain when that occurs ... and so I do use it often. Do you understand the distinction?

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Re: Pain Relief for Vulvodynia

Post  kukubadi1987 on Wed Nov 21, 2012 2:31 pm

yes definitely!
thank you so much for the advice, it's so imprtant for me!

have a lovely day,
kate

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Promescent

Post  jenniferjackson on Thu Nov 22, 2012 2:03 am

Let me know if you try Promescent. From what I understand from my OB-GYN, there's just a few handful of us who have used it but every single user is really enthused by the results.

My girls are visiting for Thanksgiving .. gotta run.

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Re: Pain Relief for Vulvodynia

Post  Kate1981 on Thu Nov 22, 2012 9:56 pm

The best pain relief when you are having a really bad flare up and in excrutiating pain is dihydrocoedine! Within 15 minutes of taking one the pain is gone. Need to get them on prescription.

Kate1981

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Re: Pain Relief for Vulvodynia

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