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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Recent diagnosis-provoked localized vestobulodynia

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Recent diagnosis-provoked localized vestobulodynia

Post  kalinikta77 on Mon Nov 05, 2012 2:36 am

I'm a 21-year-old college student from Ohio. I lost my virginity about 10 months ago. It hurt, but I expected that. I didn't have sex again for another 5 or 6 months until I started dating my current boyfriend. It still hurt, but I thought it was because I was still inexperienced, and my friends assured me it would get better as time went on. It didn't. After a few months, I knew something was wrong. I consulted my gynocologist. After a few visits, she gave up and recommended I see a sex therapist as they frequently specialize in sexual dysfunction. Fortunately, there was a specialist at a nearby hospital. She performed a simple test-gently stroking me with a moist q-tip-and instantly diagnosed me with provoked localized vestobulodynia, a form of vulvodynia. She's narrowed it down to three possible causes: hormonal, muscular, or congenital; however, the only way to figure out which it is is to treat me for all three. To combat hormonal issues, she took me off my birth control (I was on beyaz, which is often associated with this disorder). To combat muscular possibilities, she recommended a physical therapist. So at the end of this month, I will begin pelvic floor rehabilitation. Yes, there are physical therapists who work with vaginas to help deal with sexual dysfunction. No, I have no idea what vaginal physical therapy entails. I'll keep you posted. If neither of those options work, the cause will be deemed congenital, meaning I was born with too many pain nerves in my vestibule. In that case, I could need surgery to have those nerves removed. Honestly, I don't care what the cause or cure is. I'm so happy and relieved to have been diagnosed with something that can be treated. My advice to anyone suffering-skip the gyno and go straight to a sex therapist. They're not just shrinks who read a lot of Cosmo and pour out tips for hot sex-they're doctors with a lot of knowledge that your run-of-the-mill gyno may not have. Keep searching until you find a doctor who gives you answers. Good luck!


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