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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

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Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

Post  Kelle_Belle on Mon Nov 05, 2012 5:10 am

Hey everyone! My names Kel and I'm 31yrs old. I live in a town called Scunthorpe which is in North Lincs, Uk.
I hope anyone who reads this is well and happy? I'm kinda new to this, I've had what can only be described as migraine of the vagina with all the trimmings for 8 weeks now. After being laughed at and declared a nut job by my doctor who reluctantly referred me to a gyno I cried all the way to my local GUm clinic who ran all the tests they could which came back negative, thye were lovely to me though and examined me, which is more than my doctor did. They found two tiny tiny blisters inside which they swabed and tested for herpes, which came back negative, although at the time i felt relief that there was something there i became very depressed shortly afterwards.
My appointment for the gyno finally came round and she was lovely, so understanding even as i cried through the examination. She went out of her way to help me. She prescibed gabapentin and some oestrogen pessaries to take, which so far have helped slightly. She said it wouldnt be an overnight fix but it would help and it gave me some hope of being "Normal" again. Fingers crossed things will get better.
I dont even know what the cause of this was? I swapped contraceptive pills while taking antibiotics for broncitus, plus i guess ive been run down and stressed?
Anyway, if theres any advice anyone can give me? even if its just to say bthings will get better? Ive been off work for 6 weeks and due back soon but im scared to, i havent even been outside except to the docs or gynos. I'm babbling now I know! Hope to hear from someone, take care, Kel x
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Kelle_Belle

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Re: Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

Post  evanrude on Mon Nov 05, 2012 5:57 am

Hi there.
I read your story. I live in the US. I've had vv for about 5 yrs and I'm 50.
I hope your situation is something that will pass and that you don't really have vulvodynia.
I know It's depressing. I think finding this site will help you. It's nice to know you can talk to others that
can relate. I was really depressed at first but have come along way. Actually I have felt better the past two
weeks than I have in five yrs.
Try to read up and keep going to the doctor untill you get some relief. And don't think that you can't be happy
after this. All of us women on this site deserve love and happiness. We shouldn't be short changed or feel like we
should accept any less because of the condition.
You will get thru this. Your depression will go away and will be able to return to work.
Contact a therapist if you need to. You're very young and have alot of life a head of you.
And you can always come to this site for support and compassion.
We all send you hugs.
Hope you feel better really soon.

evanrude

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Re: Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

Post  Kelle_Belle on Mon Nov 12, 2012 9:22 pm

Hey! Thank you so much for replying! I'm feeling a lot brighter today so fingers crossed and lets see what tomorrow brings. I really hope that its me talking and not the meds!
You must be really brave to have handled this for so long. How do you cope with things? Any advice would be greatly appreciated. I've just ordered some spray which is 10% ligdnocaine but i'm unsure wether it would take my skin off and give me more problems!
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Re: Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

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