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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

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Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

Post  Kelle_Belle on Mon Nov 05, 2012 5:10 am

Hey everyone! My names Kel and I'm 31yrs old. I live in a town called Scunthorpe which is in North Lincs, Uk.
I hope anyone who reads this is well and happy? I'm kinda new to this, I've had what can only be described as migraine of the vagina with all the trimmings for 8 weeks now. After being laughed at and declared a nut job by my doctor who reluctantly referred me to a gyno I cried all the way to my local GUm clinic who ran all the tests they could which came back negative, thye were lovely to me though and examined me, which is more than my doctor did. They found two tiny tiny blisters inside which they swabed and tested for herpes, which came back negative, although at the time i felt relief that there was something there i became very depressed shortly afterwards.
My appointment for the gyno finally came round and she was lovely, so understanding even as i cried through the examination. She went out of her way to help me. She prescibed gabapentin and some oestrogen pessaries to take, which so far have helped slightly. She said it wouldnt be an overnight fix but it would help and it gave me some hope of being "Normal" again. Fingers crossed things will get better.
I dont even know what the cause of this was? I swapped contraceptive pills while taking antibiotics for broncitus, plus i guess ive been run down and stressed?
Anyway, if theres any advice anyone can give me? even if its just to say bthings will get better? Ive been off work for 6 weeks and due back soon but im scared to, i havent even been outside except to the docs or gynos. I'm babbling now I know! Hope to hear from someone, take care, Kel x
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Kelle_Belle

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Age : 36
Location : North Lincs UK

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Re: Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

Post  evanrude on Mon Nov 05, 2012 5:57 am

Hi there.
I read your story. I live in the US. I've had vv for about 5 yrs and I'm 50.
I hope your situation is something that will pass and that you don't really have vulvodynia.
I know It's depressing. I think finding this site will help you. It's nice to know you can talk to others that
can relate. I was really depressed at first but have come along way. Actually I have felt better the past two
weeks than I have in five yrs.
Try to read up and keep going to the doctor untill you get some relief. And don't think that you can't be happy
after this. All of us women on this site deserve love and happiness. We shouldn't be short changed or feel like we
should accept any less because of the condition.
You will get thru this. Your depression will go away and will be able to return to work.
Contact a therapist if you need to. You're very young and have alot of life a head of you.
And you can always come to this site for support and compassion.
We all send you hugs.
Hope you feel better really soon.

evanrude

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Re: Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

Post  Kelle_Belle on Mon Nov 12, 2012 9:22 pm

Hey! Thank you so much for replying! I'm feeling a lot brighter today so fingers crossed and lets see what tomorrow brings. I really hope that its me talking and not the meds!
You must be really brave to have handled this for so long. How do you cope with things? Any advice would be greatly appreciated. I've just ordered some spray which is 10% ligdnocaine but i'm unsure wether it would take my skin off and give me more problems!
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Kelle_Belle

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Age : 36
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Re: Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

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