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Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
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» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

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» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

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Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

Post  Kelle_Belle on Mon Nov 05, 2012 5:10 am

Hey everyone! My names Kel and I'm 31yrs old. I live in a town called Scunthorpe which is in North Lincs, Uk.
I hope anyone who reads this is well and happy? I'm kinda new to this, I've had what can only be described as migraine of the vagina with all the trimmings for 8 weeks now. After being laughed at and declared a nut job by my doctor who reluctantly referred me to a gyno I cried all the way to my local GUm clinic who ran all the tests they could which came back negative, thye were lovely to me though and examined me, which is more than my doctor did. They found two tiny tiny blisters inside which they swabed and tested for herpes, which came back negative, although at the time i felt relief that there was something there i became very depressed shortly afterwards.
My appointment for the gyno finally came round and she was lovely, so understanding even as i cried through the examination. She went out of her way to help me. She prescibed gabapentin and some oestrogen pessaries to take, which so far have helped slightly. She said it wouldnt be an overnight fix but it would help and it gave me some hope of being "Normal" again. Fingers crossed things will get better.
I dont even know what the cause of this was? I swapped contraceptive pills while taking antibiotics for broncitus, plus i guess ive been run down and stressed?
Anyway, if theres any advice anyone can give me? even if its just to say bthings will get better? Ive been off work for 6 weeks and due back soon but im scared to, i havent even been outside except to the docs or gynos. I'm babbling now I know! Hope to hear from someone, take care, Kel x

Posts : 15
Join date : 2012-11-05
Age : 37
Location : North Lincs UK

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Re: Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

Post  evanrude on Mon Nov 05, 2012 5:57 am

Hi there.
I read your story. I live in the US. I've had vv for about 5 yrs and I'm 50.
I hope your situation is something that will pass and that you don't really have vulvodynia.
I know It's depressing. I think finding this site will help you. It's nice to know you can talk to others that
can relate. I was really depressed at first but have come along way. Actually I have felt better the past two
weeks than I have in five yrs.
Try to read up and keep going to the doctor untill you get some relief. And don't think that you can't be happy
after this. All of us women on this site deserve love and happiness. We shouldn't be short changed or feel like we
should accept any less because of the condition.
You will get thru this. Your depression will go away and will be able to return to work.
Contact a therapist if you need to. You're very young and have alot of life a head of you.
And you can always come to this site for support and compassion.
We all send you hugs.
Hope you feel better really soon.


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Location : USA

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Re: Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

Post  Kelle_Belle on Mon Nov 12, 2012 9:22 pm

Hey! Thank you so much for replying! I'm feeling a lot brighter today so fingers crossed and lets see what tomorrow brings. I really hope that its me talking and not the meds!
You must be really brave to have handled this for so long. How do you cope with things? Any advice would be greatly appreciated. I've just ordered some spray which is 10% ligdnocaine but i'm unsure wether it would take my skin off and give me more problems!

Posts : 15
Join date : 2012-11-05
Age : 37
Location : North Lincs UK

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Re: Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

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