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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

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Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

Post  Kelle_Belle on Mon Nov 05, 2012 5:10 am

Hey everyone! My names Kel and I'm 31yrs old. I live in a town called Scunthorpe which is in North Lincs, Uk.
I hope anyone who reads this is well and happy? I'm kinda new to this, I've had what can only be described as migraine of the vagina with all the trimmings for 8 weeks now. After being laughed at and declared a nut job by my doctor who reluctantly referred me to a gyno I cried all the way to my local GUm clinic who ran all the tests they could which came back negative, thye were lovely to me though and examined me, which is more than my doctor did. They found two tiny tiny blisters inside which they swabed and tested for herpes, which came back negative, although at the time i felt relief that there was something there i became very depressed shortly afterwards.
My appointment for the gyno finally came round and she was lovely, so understanding even as i cried through the examination. She went out of her way to help me. She prescibed gabapentin and some oestrogen pessaries to take, which so far have helped slightly. She said it wouldnt be an overnight fix but it would help and it gave me some hope of being "Normal" again. Fingers crossed things will get better.
I dont even know what the cause of this was? I swapped contraceptive pills while taking antibiotics for broncitus, plus i guess ive been run down and stressed?
Anyway, if theres any advice anyone can give me? even if its just to say bthings will get better? Ive been off work for 6 weeks and due back soon but im scared to, i havent even been outside except to the docs or gynos. I'm babbling now I know! Hope to hear from someone, take care, Kel x

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Join date : 2012-11-05
Age : 36
Location : North Lincs UK

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Re: Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

Post  evanrude on Mon Nov 05, 2012 5:57 am

Hi there.
I read your story. I live in the US. I've had vv for about 5 yrs and I'm 50.
I hope your situation is something that will pass and that you don't really have vulvodynia.
I know It's depressing. I think finding this site will help you. It's nice to know you can talk to others that
can relate. I was really depressed at first but have come along way. Actually I have felt better the past two
weeks than I have in five yrs.
Try to read up and keep going to the doctor untill you get some relief. And don't think that you can't be happy
after this. All of us women on this site deserve love and happiness. We shouldn't be short changed or feel like we
should accept any less because of the condition.
You will get thru this. Your depression will go away and will be able to return to work.
Contact a therapist if you need to. You're very young and have alot of life a head of you.
And you can always come to this site for support and compassion.
We all send you hugs.
Hope you feel better really soon.


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Location : USA

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Re: Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

Post  Kelle_Belle on Mon Nov 12, 2012 9:22 pm

Hey! Thank you so much for replying! I'm feeling a lot brighter today so fingers crossed and lets see what tomorrow brings. I really hope that its me talking and not the meds!
You must be really brave to have handled this for so long. How do you cope with things? Any advice would be greatly appreciated. I've just ordered some spray which is 10% ligdnocaine but i'm unsure wether it would take my skin off and give me more problems!

Posts : 15
Join date : 2012-11-05
Age : 36
Location : North Lincs UK

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Re: Hey there! I'm a newbie who needs help and advice and some kind of reasurance this is gonna get better!

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