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    » Can you guys tell me your experiences with diflucan/Fluconazole?
    Today at 1:29 am by ryn207

    » So frustrating!!
    Today at 1:25 am by ryn207

    » Looking for suggestions or encouragement
    Today at 1:19 am by ryn207

    » Looking for a friend..... and new problems
    Yesterday at 10:00 pm by VVSSufferer

    » Vestibulectomy recovery question!
    Sun Jan 14, 2018 11:37 pm by Kezz

    » Prescription creams that work!
    Sun Jan 14, 2018 4:46 am by Mintaherb

    » Struggling
    Sun Jan 14, 2018 4:29 am by Mintaherb

    » Went Away and Came Back
    Sat Jan 13, 2018 10:56 am by mary jane

    » Amitriptyline given for vulvodyina pain
    Sat Jan 13, 2018 1:39 am by ryn207

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



    Comments: 5

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 11

    7 years later and life looks bleak :(

    Wed Dec 06, 2017 2:50 am by RainyShay77

    So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

    Comments: 7

    Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

    Sun Jan 07, 2018 9:38 am by sophiarp

    Hi everyone,

    I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

    I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

    Comments: 2

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 11

    Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

    Mon Nov 20, 2017 8:15 pm by WVR00

    Hello,
    Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

    Comments: 1

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules

    Hi,

    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1


    What worked for me!

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    What worked for me!

    Post  katemate on Fri Nov 09, 2012 10:14 am

    I have posted the same thing on support and advice- I want as many people as possible to read my advice so I am posting it here too, I hope that is OK!

    Hi Ladies,

    I suffered with vulvodynia for at least a year before I found what worked for me and now I am pretty much painless. It is such a awful condition to have and I always note how grateful I am that I have basically cracked it.

    I posted on here a year or so ago and probably posted the same thing- but I wanted to post again to new members, or those that didn't try what I'm suggesting.

    OK so after various doctors, dermatologists, etc etc I decided to pay privately for a gynecologist in Sloane Square in London (super posh!) and he helped me LOADS. But I can pass this wisdom on for you guys, so the three things that helped me (and I think you need to do ALL of these- at the same time! however difficult at first they may be)

    *Take Amitryptiline- or other antidepressent prescribed for pain.
    *Wash everyday- with Vagisil
    *Use dialators

    Ok So i'll go into more detail below:

    Amitriptyline- now I was worried at first, taking an antidepressent for pain?! But it really does work. You have to start on a low dose and then build up (TALK to a doctor before obviously!) I had a few weeks of feeling tired and weird on them, then the body gets used to them and is FINE. I built up to take 75mg daily, and now I only take 50mg daily because I don't need any more than that! Sometimes it may take some trying of different antidepressents for one that works for you. amitriptyline for instance has been around for years.

    Wash Everyday- Very necessary, wash EVERYDAY with vagisil. NOT soap! Someone told me they wash down there three times a day with soap, no wonder they were uncomfortable! You have to clean the area everyday, and Vagisil is hypersensitive so I think the best one to go for.

    Dialators- this I think is the main thing that helped me. You need to put something in your vagina everyday- this is what my gynecologist told me. Now putting something up there can be the most daunting thing- when he told me this I literally gasped and reaaalllly didn't want to. But it is necessary, and now I am so so glad that I did because not only has it reduced pain, but it means that I can now have sex and am generally much more comfortable with that area. The ones I got are like these http://www.ennovations.co.uk/p/41/vaginal-dilator-set-femmax you can't see them there but basically there are different sizes, you start off on the smallest size, apply lubricant, and place in your vagina and rotate for 15 minutes each day, 2 weeks on one size, then you move up to the next size and do that 15 minutes a day for another 2 weeks. This is what I did. There are instructions with them so that will make it more clear what you do.

    Now everyone has slightly different cases of Vulvodynia, so these might not work for everyone, or people may need to do things differently with the dialators. But really these are the best ways of reducing pain and I think you should all try them (for at least a couple of weeks).

    I hope this advice helps you. Now I still occasionally get a little pain if I have my period, but barely at all- maybe 2 minutes of pain every 3 months!!! and I still can't ride a bike Sad BUT literally I went from pain every single day to nearly never. I hardly even think about my vulvodynia now and am so glad it is out of my life. I have accepted that I may have to be on the amitriptyline for a while, but it is such a low dose that it doesn't effect my life.

    Anyway, I hope you all try these things (at the same time!) and wish you all my wishes for your health. After going through Vulvodynia I do feel like a stronger person and am now proud of my vagina! Very Happy

    All the best,

    Kate

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    Re: What worked for me!

    Post  jen007 on Sat Nov 10, 2012 3:59 am

    katemate,

    I'm new to the forum and just saw this post. I'm so happy to hear that amitryptiline as worked for you! I used to take it about maybe 9 or 10 months ago for vestibuldynia. It helped reduce the pain I had been experiencing, but unfortunately wasn't successful in the long run. I also had some weird side effects from it. For example, my doctor told me before I started taking it that it might make me gain a little weight. At the time I was about 115 lbs, so gaining a little weight didn't concern me. After about a month of taking amitryptiline I lost about 10 lbs. It totally curved my hunger and I was never hungry anymore. I'm still struggling to gain the weight back.

    I wonder if anyone else had has a similar situation happen to them?

    -Jen

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    Re: What worked for me!

    Post  katemate on Wed Dec 05, 2012 2:47 pm

    Hi Jen,

    I'm sorry to hear about your trouble with amitriptyline. It seems it doesn't agree with everyone, have you looked into trying other tricilic antidepressents? You might be able to find one that suits you.

    Also, have you used dialators?

    All the best,

    Kate

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    Re: What worked for me!

    Post  jen007 on Tue Dec 11, 2012 9:48 pm

    Katemate,

    Sorry I didn't respond sooner. I didn't see this until now Sad

    I never tried any other medications after that because I was worried about all of the side effects. I actually had a vestibulectomy this past July. It's really given me a lot of relief. I'm now using dilators, before surgery it was impossible.

    -Jen

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    Re: What worked for me!

    Post  mary jane on Sat Oct 05, 2013 11:02 pm

    thanks for sharing !
    I'll definitely look into this private clinic, I'm in London as well.
    But first i'll see a specialist at St Mary's
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    Re: What worked for me!

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