Vulvodynia Support
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» Hope to all my suffering ladies
has any one experienced hair loss? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
has any one experienced hair loss? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
has any one experienced hair loss? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
has any one experienced hair loss? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
has any one experienced hair loss? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
has any one experienced hair loss? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
has any one experienced hair loss? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
has any one experienced hair loss? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
has any one experienced hair loss? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


has any one experienced hair loss?

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Post  zarli Fri Oct 04, 2013 10:25 am

Just wondering if any one else has experienced hair loss from their head? Ive just started losing hair on left side of my head, every thing happens on my left side that's where Vulvodynia started etc...

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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Post  Alana3 Fri Oct 04, 2013 10:55 am

Are you on birth control or any hormones? Some medicines can cause it too...

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  zarli Sat Oct 05, 2013 7:41 am

Thank you, no Im not on birth control but I am suspecting maybe peri menopause....the joys of being a woman!!! Thank for your response Alana

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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Post  Alana3 Sat Oct 05, 2013 3:49 pm

Go to doc they can do addback therapy and help those symptoms. I know it sucks but there are options but v.typically doesnt affect hormones so something else is culprit.. I have endometriosis too and that affects everything

Alana3

Posts : 1093
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Post  burningturning Tue Oct 08, 2013 6:42 pm

Hi zarli, sorry to hear that Sad
Maybe you need to get your hormones tested. I know that for some cases, V is not a disease by itself but it's another symptom of a different condition.

burningturning

Posts : 24
Join date : 2013-09-24

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Post  zarli Tue Oct 08, 2013 11:13 pm

thanks girls. Ive made an appointment with Doctor to get hormones checked, will let you know how I get on thanks again for you response.

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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