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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Bee Pollen!!!!!!!! and new progress with oils

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Bee Pollen!!!!!!!! and new progress with oils

Post  lavrose on Fri Nov 09, 2012 7:15 pm

(Sigh) another day in the life....

well, today, I feel great. I mean not just in the 80th percentile, but almost normal, and guess what?? Pain free sex with my boyfriend this morning!!! Yaaayyy!!! Altho, I had to rape him and force him, as this Bee pollen that Im taking not only made me extremely horny, but I actually had normal HEALTHY vaginal discharge, and the sex was painless, and not the usual (oh God this is agony, just get it over, feeling, etc)!!! I had an actual great orgasm, and it happened easily, and it didnt feel numb, like it usually does!! Arrow What a Face sunny lol! geek

Right now I do in the morning::

The smoothie: Rice milk, 1 frozen banana, 1 Teaspoon spirilina, 1-2 TBLP Maca powder, 1-2 teaspoon Bee Pollen, 1-2 TBSP Virgin Coconut oil
Supplements:: Morning) 2 beta carotene, 2 400mcg folic acid, 2 vitamin E (400Ius water soluble) 1 vitamin D3, 1 Multi vitamin, 2 200mg Selenium, 1 femdophilus harrow brand womens probiotic
evening:: 1 fem probiotic, 2 folic acids, and 2 vitamin e's

My new oils Im trying inside the vag. Sometimes, I just put or 2 drops on a clean finger in the morning and rub it around in "there" lol!!
Patchouili oil( great Smile
Ylang Ylang oil (awesome Smile
Eucalyptus (burns, takes some getting used too, but works )
peppermint (same thing)
Melrose, excellent,
Mountain savory, excellent
juniper oil, can burn a bit, but is effective, stinks...

now. My current boyfriend, is grossed out by the oils thing, and Im actually seeing a therapist right now, cuz all last week I couldnt stop crying.
The psychological impact of having this condition is, in one word, awful.
Hes rejecting to me sexually now, and I think hes looking to cheat.
sigh...aw well.
what I think is unfair is, Im a very sexual person, and I do SOMETHING sexual with him any and everytime he wants it, and I do manage to have sex, (even if its painful, and I smell like bug spray, and his privates are covered in a puddle of coconut oil after) I still try. I make every effort to please him, and I enjoy it, cuz I love him, and I love sex.
but i guess, some guys are just spoiled and dont appreciate.
Thats fine. He can take his ego somewhere else.
But like I said. Its very hard, having these huge sexual problems. Very painful, frustrating and sad.
Its a battle everyday, but I know Im going to win, I feel like Im winning.
I make new progress everyday.

The bladder, interstital cystitus issue::

Another round of bactrim, only this time, 5 days of Bactrim DS, TWO PILLS every 12 hours, THATS RIGHT FOLKS, 4 Bactrim DS pills a day!!!!!
6 months to the day of this nitemare, and I mite be in remision, fingers crossed

This is an unusual and huge amount, but my doctor was so understanding.
They hardly ever give that large a dose of Bactrim, unless its a severe infection and my doctor believes I have a severe staff infection in my bladder.
2 days of the Bactrim, and Im feeling really good, will keep you posted!! flower afro
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lavrose

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Join date : 2012-04-28

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