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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Bee Pollen!!!!!!!! and new progress with oils

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Bee Pollen!!!!!!!! and new progress with oils

Post  lavrose on Fri Nov 09, 2012 7:15 pm

(Sigh) another day in the life....

well, today, I feel great. I mean not just in the 80th percentile, but almost normal, and guess what?? Pain free sex with my boyfriend this morning!!! Yaaayyy!!! Altho, I had to rape him and force him, as this Bee pollen that Im taking not only made me extremely horny, but I actually had normal HEALTHY vaginal discharge, and the sex was painless, and not the usual (oh God this is agony, just get it over, feeling, etc)!!! I had an actual great orgasm, and it happened easily, and it didnt feel numb, like it usually does!! Arrow What a Face sunny lol! geek

Right now I do in the morning::

The smoothie: Rice milk, 1 frozen banana, 1 Teaspoon spirilina, 1-2 TBLP Maca powder, 1-2 teaspoon Bee Pollen, 1-2 TBSP Virgin Coconut oil
Supplements:: Morning) 2 beta carotene, 2 400mcg folic acid, 2 vitamin E (400Ius water soluble) 1 vitamin D3, 1 Multi vitamin, 2 200mg Selenium, 1 femdophilus harrow brand womens probiotic
evening:: 1 fem probiotic, 2 folic acids, and 2 vitamin e's

My new oils Im trying inside the vag. Sometimes, I just put or 2 drops on a clean finger in the morning and rub it around in "there" lol!!
Patchouili oil( great Smile
Ylang Ylang oil (awesome Smile
Eucalyptus (burns, takes some getting used too, but works )
peppermint (same thing)
Melrose, excellent,
Mountain savory, excellent
juniper oil, can burn a bit, but is effective, stinks...

now. My current boyfriend, is grossed out by the oils thing, and Im actually seeing a therapist right now, cuz all last week I couldnt stop crying.
The psychological impact of having this condition is, in one word, awful.
Hes rejecting to me sexually now, and I think hes looking to cheat.
sigh...aw well.
what I think is unfair is, Im a very sexual person, and I do SOMETHING sexual with him any and everytime he wants it, and I do manage to have sex, (even if its painful, and I smell like bug spray, and his privates are covered in a puddle of coconut oil after) I still try. I make every effort to please him, and I enjoy it, cuz I love him, and I love sex.
but i guess, some guys are just spoiled and dont appreciate.
Thats fine. He can take his ego somewhere else.
But like I said. Its very hard, having these huge sexual problems. Very painful, frustrating and sad.
Its a battle everyday, but I know Im going to win, I feel like Im winning.
I make new progress everyday.

The bladder, interstital cystitus issue::

Another round of bactrim, only this time, 5 days of Bactrim DS, TWO PILLS every 12 hours, THATS RIGHT FOLKS, 4 Bactrim DS pills a day!!!!!
6 months to the day of this nitemare, and I mite be in remision, fingers crossed

This is an unusual and huge amount, but my doctor was so understanding.
They hardly ever give that large a dose of Bactrim, unless its a severe infection and my doctor believes I have a severe staff infection in my bladder.
2 days of the Bactrim, and Im feeling really good, will keep you posted!! flower afro
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lavrose

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Join date : 2012-04-28

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