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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 6

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Bee Pollen!!!!!!!! and new progress with oils

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Bee Pollen!!!!!!!! and new progress with oils

Post  lavrose on Fri Nov 09, 2012 7:15 pm

(Sigh) another day in the life....

well, today, I feel great. I mean not just in the 80th percentile, but almost normal, and guess what?? Pain free sex with my boyfriend this morning!!! Yaaayyy!!! Altho, I had to rape him and force him, as this Bee pollen that Im taking not only made me extremely horny, but I actually had normal HEALTHY vaginal discharge, and the sex was painless, and not the usual (oh God this is agony, just get it over, feeling, etc)!!! I had an actual great orgasm, and it happened easily, and it didnt feel numb, like it usually does!! Arrow What a Face sunny lol! geek

Right now I do in the morning::

The smoothie: Rice milk, 1 frozen banana, 1 Teaspoon spirilina, 1-2 TBLP Maca powder, 1-2 teaspoon Bee Pollen, 1-2 TBSP Virgin Coconut oil
Supplements:: Morning) 2 beta carotene, 2 400mcg folic acid, 2 vitamin E (400Ius water soluble) 1 vitamin D3, 1 Multi vitamin, 2 200mg Selenium, 1 femdophilus harrow brand womens probiotic
evening:: 1 fem probiotic, 2 folic acids, and 2 vitamin e's

My new oils Im trying inside the vag. Sometimes, I just put or 2 drops on a clean finger in the morning and rub it around in "there" lol!!
Patchouili oil( great Smile
Ylang Ylang oil (awesome Smile
Eucalyptus (burns, takes some getting used too, but works )
peppermint (same thing)
Melrose, excellent,
Mountain savory, excellent
juniper oil, can burn a bit, but is effective, stinks...

now. My current boyfriend, is grossed out by the oils thing, and Im actually seeing a therapist right now, cuz all last week I couldnt stop crying.
The psychological impact of having this condition is, in one word, awful.
Hes rejecting to me sexually now, and I think hes looking to cheat.
sigh...aw well.
what I think is unfair is, Im a very sexual person, and I do SOMETHING sexual with him any and everytime he wants it, and I do manage to have sex, (even if its painful, and I smell like bug spray, and his privates are covered in a puddle of coconut oil after) I still try. I make every effort to please him, and I enjoy it, cuz I love him, and I love sex.
but i guess, some guys are just spoiled and dont appreciate.
Thats fine. He can take his ego somewhere else.
But like I said. Its very hard, having these huge sexual problems. Very painful, frustrating and sad.
Its a battle everyday, but I know Im going to win, I feel like Im winning.
I make new progress everyday.

The bladder, interstital cystitus issue::

Another round of bactrim, only this time, 5 days of Bactrim DS, TWO PILLS every 12 hours, THATS RIGHT FOLKS, 4 Bactrim DS pills a day!!!!!
6 months to the day of this nitemare, and I mite be in remision, fingers crossed

This is an unusual and huge amount, but my doctor was so understanding.
They hardly ever give that large a dose of Bactrim, unless its a severe infection and my doctor believes I have a severe staff infection in my bladder.
2 days of the Bactrim, and Im feeling really good, will keep you posted!! flower afro
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lavrose

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