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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Bee Pollen!! and new progress with the oils

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Bee Pollen!! and new progress with the oils

Post  lavrose on Fri Nov 09, 2012 7:19 pm

(Sigh) another day in the life....

well, today, I feel great. I mean not just in the 80th percentile, but almost normal, and guess what?? Pain free sex with my boyfriend this morning!!! Yaaayyy!!! Altho, I had to rape him and force him, as this Bee pollen that Im taking not only made me extremely horny, but I actually had normal HEALTHY vaginal discharge, and the sex was painless, and not the usual (oh God this is agony, just get it over, feeling, etc)!!! I had an actual great orgasm, and it happened easily, and it didnt feel numb, like it usually does!!

Right now I do in the morning::

The smoothie: Rice milk, 1 frozen banana, 1 Teaspoon spirilina, 1-2 TBLP Maca powder, 1-2 teaspoon Bee Pollen, 1-2 TBSP Virgin Coconut oil
Supplements:: Morning) 2 beta carotene, 2 400mcg folic acid, 2 vitamin E (400Ius water soluble) 1 vitamin D3, 1 Multi vitamin, 2 200mg Selenium, 1 femdophilus harrow brand womens probiotic
evening:: 1 fem probiotic, 2 folic acids, and 2 vitamin e's

My new oils Im trying inside the vag. Sometimes, I just put or 2 drops on a clean finger in the morning and rub it around in "there" lol!!
Patchouili oil( great
Ylang Ylang oil (awesome
Eucalyptus (burns, takes some getting used too, but works )
peppermint (same thing)
Melrose, excellent,
Mountain savory, excellent
juniper oil, can burn a bit, but is effective, stinks...

now. My current boyfriend, is grossed out by the oils thing, and Im actually seeing a therapist right now, cuz all last week I couldnt stop crying.
The psychological impact of having this condition is, in one word, awful.
Hes rejecting to me sexually now, and I think hes looking to cheat.
sigh...aw well.
what I think is unfair is, Im a very sexual person, and I do SOMETHING sexual with him any and everytime he wants it, and I do manage to have sex, (even if its painful, and I smell like bug spray, and his privates are covered in a puddle of coconut oil after) I still try. I make every effort to please him, and I enjoy it, cuz I love him, and I love sex.
but i guess, some guys are just spoiled and dont appreciate.
Thats fine. He can take his ego somewhere else.
But like I said. Its very hard, having these huge sexual problems. Very painful, frustrating and sad.
Its a battle everyday, but I know Im going to win, I feel like Im winning.
I make new progress everyday.

The bladder, interstital cystitus issue::

Another round of bactrim, only this time, 5 days of Bactrim DS, TWO PILLS every 12 hours, THATS RIGHT FOLKS, 4 Bactrim DS pills a day!!!!!
6 months to the day of this nitemare, and I mite be in remision, fingers crossed

This is an unusual and huge amount, but my doctor was so understanding.
They hardly ever give that large a dose of Bactrim, unless its a severe infection and my doctor believes I have a severe staff infection in my bladder.
2 days of the Bactrim, and Im feeling really good, will keep you posted!! .
lavrose


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lavrose

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oils..

Post  lavrose on Fri Nov 09, 2012 7:20 pm

I googled everyone of these oils before testing on my flowers...and all of them have been used by people for vaginal infections/issues...
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Post  lavrose on Tue Nov 13, 2012 1:23 am

I meant to say. 2 or 3 days off the bactrim and I feel great. It has now been a week and a half and Im on my period and I feel really good, Im even on my period and I feel the infection may be gone, will keep posted...
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Re: Bee Pollen!! and new progress with the oils

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