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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Hi all! Just had the surgery, but not before the pain f*cked up my life!

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Hi all! Just had the surgery, but not before the pain f*cked up my life!

Post  Aquarius on Fri Nov 16, 2012 12:02 am

Glad to meet you ladies! And glad for the "interwebs"!

I had a surgical vestibulectomy one week ago. I'm not having any problems at all with it, but of course I don't know if it "worked" yet. Here is my CRAZY story....

When I was 1 year old, I had a severe allergic reaction to Mr. Bubble. (This was common at the time, mid-1960s. They changed the formula after that.) The doctor had to cut open my vulva and urethra, but other than having fairly large "lips" there was no reason to suspect damage.

From the first time I attempted to use a tampon, around age 13, I had extreme "cutting" pain. Same thing with "heavy petting." CUTTING. I tried to have sex a few times and it was just too painful. That put me on a mission to find the reason for the pain. Over the years I saw a sex therapist and at least 6-7 gynecologists, who basically told me the problem was in my head, I needed to find the right guy, have a glass of wine or pop a valium. No I finally "lost" my virginity at age 33 (!!!) and married him.

This problem affected everything about me. I drank a lot to feel safe around men, and was once assaulted. I thought the pain was guilt and became very religious. The sex was only one problem in my abusive marriage, but the fact I had so much pain just gave him one more thing to be angry about. I left him this last February (I'm 49 years old).

Fast forward to a few weeks ago. I contracted an infection and got a golfball-sized abscess on my V, so had to see a gynecological surgeon. Once the golfball was taken care of, he asked what sort of trauma I'd had to my vulva. I told him about the Mr. Bubble, and he said the inside of my vagina along the vestibule (where it "cut") was full of scar tissue that he could remove.

It took a few days to sink in. THIS WAS NEVER IN MY HEAD. It was a physical problem all the time. I was SOOOOOOOO ANGRY ... at the doctor that cut me, and at all the doctors sense who just assumed I was a drama queen. I doubt very seriously I would have been with my husband had my problem been handled correctly. I certainly wouldn't have abused alcohol to the degree that I did.

So even though I might never get laid again, with no prospects in sight, I elected to have the surgery. I'm not having any pain (although I did get a UTI right after I got home). I want to believe this is the beginning of a new life for me.

Thanks for letting me share.
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Aquarius

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Re: Hi all! Just had the surgery, but not before the pain f*cked up my life!

Post  Alana3 on Wed Nov 21, 2012 3:39 pm

I had the mr bubbles horror story too!!!! But I was in the 80s when it happened! Did you have a vestibulectomy? what was it like? Do you recommend it? Did you have partial or full? Details please!!!

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