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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 12

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Hi all! Just had the surgery, but not before the pain f*cked up my life!

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Hi all! Just had the surgery, but not before the pain f*cked up my life!

Post  Aquarius on Fri Nov 16, 2012 12:02 am

Glad to meet you ladies! And glad for the "interwebs"!

I had a surgical vestibulectomy one week ago. I'm not having any problems at all with it, but of course I don't know if it "worked" yet. Here is my CRAZY story....

When I was 1 year old, I had a severe allergic reaction to Mr. Bubble. (This was common at the time, mid-1960s. They changed the formula after that.) The doctor had to cut open my vulva and urethra, but other than having fairly large "lips" there was no reason to suspect damage.

From the first time I attempted to use a tampon, around age 13, I had extreme "cutting" pain. Same thing with "heavy petting." CUTTING. I tried to have sex a few times and it was just too painful. That put me on a mission to find the reason for the pain. Over the years I saw a sex therapist and at least 6-7 gynecologists, who basically told me the problem was in my head, I needed to find the right guy, have a glass of wine or pop a valium. No I finally "lost" my virginity at age 33 (!!!) and married him.

This problem affected everything about me. I drank a lot to feel safe around men, and was once assaulted. I thought the pain was guilt and became very religious. The sex was only one problem in my abusive marriage, but the fact I had so much pain just gave him one more thing to be angry about. I left him this last February (I'm 49 years old).

Fast forward to a few weeks ago. I contracted an infection and got a golfball-sized abscess on my V, so had to see a gynecological surgeon. Once the golfball was taken care of, he asked what sort of trauma I'd had to my vulva. I told him about the Mr. Bubble, and he said the inside of my vagina along the vestibule (where it "cut") was full of scar tissue that he could remove.

It took a few days to sink in. THIS WAS NEVER IN MY HEAD. It was a physical problem all the time. I was SOOOOOOOO ANGRY ... at the doctor that cut me, and at all the doctors sense who just assumed I was a drama queen. I doubt very seriously I would have been with my husband had my problem been handled correctly. I certainly wouldn't have abused alcohol to the degree that I did.

So even though I might never get laid again, with no prospects in sight, I elected to have the surgery. I'm not having any pain (although I did get a UTI right after I got home). I want to believe this is the beginning of a new life for me.

Thanks for letting me share.

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Re: Hi all! Just had the surgery, but not before the pain f*cked up my life!

Post  Alana3 on Wed Nov 21, 2012 3:39 pm

I had the mr bubbles horror story too!!!! But I was in the 80s when it happened! Did you have a vestibulectomy? what was it like? Do you recommend it? Did you have partial or full? Details please!!!


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