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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Hi all! Just had the surgery, but not before the pain f*cked up my life!

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Hi all! Just had the surgery, but not before the pain f*cked up my life!

Post  Aquarius on Fri Nov 16, 2012 12:02 am

Glad to meet you ladies! And glad for the "interwebs"!

I had a surgical vestibulectomy one week ago. I'm not having any problems at all with it, but of course I don't know if it "worked" yet. Here is my CRAZY story....

When I was 1 year old, I had a severe allergic reaction to Mr. Bubble. (This was common at the time, mid-1960s. They changed the formula after that.) The doctor had to cut open my vulva and urethra, but other than having fairly large "lips" there was no reason to suspect damage.

From the first time I attempted to use a tampon, around age 13, I had extreme "cutting" pain. Same thing with "heavy petting." CUTTING. I tried to have sex a few times and it was just too painful. That put me on a mission to find the reason for the pain. Over the years I saw a sex therapist and at least 6-7 gynecologists, who basically told me the problem was in my head, I needed to find the right guy, have a glass of wine or pop a valium. No I finally "lost" my virginity at age 33 (!!!) and married him.

This problem affected everything about me. I drank a lot to feel safe around men, and was once assaulted. I thought the pain was guilt and became very religious. The sex was only one problem in my abusive marriage, but the fact I had so much pain just gave him one more thing to be angry about. I left him this last February (I'm 49 years old).

Fast forward to a few weeks ago. I contracted an infection and got a golfball-sized abscess on my V, so had to see a gynecological surgeon. Once the golfball was taken care of, he asked what sort of trauma I'd had to my vulva. I told him about the Mr. Bubble, and he said the inside of my vagina along the vestibule (where it "cut") was full of scar tissue that he could remove.

It took a few days to sink in. THIS WAS NEVER IN MY HEAD. It was a physical problem all the time. I was SOOOOOOOO ANGRY ... at the doctor that cut me, and at all the doctors sense who just assumed I was a drama queen. I doubt very seriously I would have been with my husband had my problem been handled correctly. I certainly wouldn't have abused alcohol to the degree that I did.

So even though I might never get laid again, with no prospects in sight, I elected to have the surgery. I'm not having any pain (although I did get a UTI right after I got home). I want to believe this is the beginning of a new life for me.

Thanks for letting me share.
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Aquarius

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Re: Hi all! Just had the surgery, but not before the pain f*cked up my life!

Post  Alana3 on Wed Nov 21, 2012 3:39 pm

I had the mr bubbles horror story too!!!! But I was in the 80s when it happened! Did you have a vestibulectomy? what was it like? Do you recommend it? Did you have partial or full? Details please!!!

Alana3

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