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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Hi all! Just had the surgery, but not before the pain f*cked up my life!

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Hi all! Just had the surgery, but not before the pain f*cked up my life!

Post  Aquarius on Fri Nov 16, 2012 12:02 am

Glad to meet you ladies! And glad for the "interwebs"!

I had a surgical vestibulectomy one week ago. I'm not having any problems at all with it, but of course I don't know if it "worked" yet. Here is my CRAZY story....

When I was 1 year old, I had a severe allergic reaction to Mr. Bubble. (This was common at the time, mid-1960s. They changed the formula after that.) The doctor had to cut open my vulva and urethra, but other than having fairly large "lips" there was no reason to suspect damage.

From the first time I attempted to use a tampon, around age 13, I had extreme "cutting" pain. Same thing with "heavy petting." CUTTING. I tried to have sex a few times and it was just too painful. That put me on a mission to find the reason for the pain. Over the years I saw a sex therapist and at least 6-7 gynecologists, who basically told me the problem was in my head, I needed to find the right guy, have a glass of wine or pop a valium. No I finally "lost" my virginity at age 33 (!!!) and married him.

This problem affected everything about me. I drank a lot to feel safe around men, and was once assaulted. I thought the pain was guilt and became very religious. The sex was only one problem in my abusive marriage, but the fact I had so much pain just gave him one more thing to be angry about. I left him this last February (I'm 49 years old).

Fast forward to a few weeks ago. I contracted an infection and got a golfball-sized abscess on my V, so had to see a gynecological surgeon. Once the golfball was taken care of, he asked what sort of trauma I'd had to my vulva. I told him about the Mr. Bubble, and he said the inside of my vagina along the vestibule (where it "cut") was full of scar tissue that he could remove.

It took a few days to sink in. THIS WAS NEVER IN MY HEAD. It was a physical problem all the time. I was SOOOOOOOO ANGRY ... at the doctor that cut me, and at all the doctors sense who just assumed I was a drama queen. I doubt very seriously I would have been with my husband had my problem been handled correctly. I certainly wouldn't have abused alcohol to the degree that I did.

So even though I might never get laid again, with no prospects in sight, I elected to have the surgery. I'm not having any pain (although I did get a UTI right after I got home). I want to believe this is the beginning of a new life for me.

Thanks for letting me share.
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Aquarius

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Re: Hi all! Just had the surgery, but not before the pain f*cked up my life!

Post  Alana3 on Wed Nov 21, 2012 3:39 pm

I had the mr bubbles horror story too!!!! But I was in the 80s when it happened! Did you have a vestibulectomy? what was it like? Do you recommend it? Did you have partial or full? Details please!!!

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