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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


What has helped your Vulvodynia?

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What has helped your Vulvodynia?

Post  Sebby (Admin) on Sun Dec 20, 2009 8:28 pm

So, what have you found that has reduced your vulval pain? Have you found anything yet which works? If so tell us!

I have found that sleep seems to help! lol actually I often find that when I wake up I dont feel much pain at all especially when I dont wear any knickers, I think this is due to the fact that nothing is touching the vulval area to aggrivate it and as soon as I get up and start walking and getting dressed it creeps up on me.

So along with this theory I only wear soft trousers, leggings and skirts.

I also only wear loose cotton knickers.

So what helps you?

Sebby
xxx
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V-Pain

Post  Micki on Wed Apr 14, 2010 12:58 pm

I just read your post about being in bed and it doesn't hurt until you get up! That's how I feel too!!

Micki

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Re: What has helped your Vulvodynia?

Post  Sebby (Admin) on Thu Apr 15, 2010 6:16 pm

Yep, its funny how sleep cures most things.

Not only is it relaxing but you are not moving about agrivating your conditions!

I do highly recommend not wearing knickers in bed though unless of course its at that time of the month!

Thanks for joining and hope to hear more from you

Sebby
xxx Sleep
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Vulvodynia Pain

Post  Micki on Fri Apr 16, 2010 11:07 am

So far, i haven't found much relieve from V-disorder. Not wearing clothes is a big plus however that being near impossible, not much out there. I tried the tea soaks, but to no avail. I did see my dr. the other day who has been treating me and she prescribed gabapentin 600 x 3 a day, and when i went to the pharmacy it's cost was a staggering $129.00 which I could not afford. I have been taking the gabapentin for several yrs. No result there! Also, a compound amitryptiline that didn't bring any results.Basicly loose pants that don't touch the vulva seem to help for a little while oh with no underwear at all!! Even wearing the most softest underpants don't make any difference either!! Having a support group in place is a huge plus because at least I don't feel as isolated!
I've noticed that when mentioning this problem with a few close females, they look at me like it's all in my head or I fear they think it is a bad girls disease Evil or Very Mad Bye for now!

Micki

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re treatment of Vulvodynia

Post  jules on Sat Apr 17, 2010 1:42 am

Don't give up on relief. I believe it is possible. I'm so sorry to hear you were not able to afford the gabapentin. No health insurance? I am taking 3000 mgs of Gabapentin per day and have been for at least a few months. The gabapentin has relieved the symptoms somewhat (pain reduced quite a bit) but, not completely. Recently, at my request, I was referred by my doc to a pain clinic. I have had two spinal blocks. neither have helped, in my opinion. However my doctor just prescribed Lyrica. Lyrica is in the same family of nerve blockers. I still take 3000 mgs of Gabapentin. I started the Lyrica about a week ago and i have been relatively pain-free the last few days. Now, I don't know if the Lyrica is responsible for the improvement. But, it may be. Months ago, i was at the point where i was in constant pain every day. the pain was horrible, even when i woke up. i'm thinking the sleeping helps because there is no clothing pushing up against the Vulva. I mentioned on this site I bought a foam donut to sit on for work and home. this has helped quite a bit as well. My symptoms have improved over the past few months. I do have several days in a row where i am in pretty bad pain, but, nothing like it was. So..if you have health insurance, i recommend a pain clinic. if not, are you eligible for help? I don't know where you live. cool gel packs can give temporary relief. keep gel packs in the refrigerator. i may get a third nerve block if this lyrica does not work. the doc at the pain clinic shot steroids and anesthetics into two lower nerves. he did not hit the prudenal nerve yet. that nerve goes directly to the vulva. nerve blocks can help some. i'm not giving up until i have almost constant complete relief. btw..i have generalized Vulvodynia (pain all over the vulva)

jules

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nerve pain blockers

Post  Sebby (Admin) on Tue Apr 20, 2010 7:52 pm

Hi guys

Im am very interested to hear about the nerve blockers and anticonvulsants. Its something I have not tried yet and I will pretty much try anything!

Dr is still convinced its my hormones so am on mirogynon combined pill - only been on it 2 months but its not working. Not surprised really.

The whole treatment process is sooooo slow and frustrating in uk nhs. Each apointment is months apart and you are only trying one treatment at a time so after a few failed treatments its a whole year over! Its really frustrating me!! Mad

Anyway thanks for your contributions guys keep it up and good luck with your treatments.

Sebby
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Re: What has helped your Vulvodynia?

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