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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
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» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


What has helped your Vulvodynia?

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What has helped your Vulvodynia?

Post  Sebby (Admin) on Sun Dec 20, 2009 8:28 pm

So, what have you found that has reduced your vulval pain? Have you found anything yet which works? If so tell us!

I have found that sleep seems to help! lol actually I often find that when I wake up I dont feel much pain at all especially when I dont wear any knickers, I think this is due to the fact that nothing is touching the vulval area to aggrivate it and as soon as I get up and start walking and getting dressed it creeps up on me.

So along with this theory I only wear soft trousers, leggings and skirts.

I also only wear loose cotton knickers.

So what helps you?

Sebby
xxx
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V-Pain

Post  Micki on Wed Apr 14, 2010 12:58 pm

I just read your post about being in bed and it doesn't hurt until you get up! That's how I feel too!!

Micki

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Re: What has helped your Vulvodynia?

Post  Sebby (Admin) on Thu Apr 15, 2010 6:16 pm

Yep, its funny how sleep cures most things.

Not only is it relaxing but you are not moving about agrivating your conditions!

I do highly recommend not wearing knickers in bed though unless of course its at that time of the month!

Thanks for joining and hope to hear more from you

Sebby
xxx Sleep
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Vulvodynia Pain

Post  Micki on Fri Apr 16, 2010 11:07 am

So far, i haven't found much relieve from V-disorder. Not wearing clothes is a big plus however that being near impossible, not much out there. I tried the tea soaks, but to no avail. I did see my dr. the other day who has been treating me and she prescribed gabapentin 600 x 3 a day, and when i went to the pharmacy it's cost was a staggering $129.00 which I could not afford. I have been taking the gabapentin for several yrs. No result there! Also, a compound amitryptiline that didn't bring any results.Basicly loose pants that don't touch the vulva seem to help for a little while oh with no underwear at all!! Even wearing the most softest underpants don't make any difference either!! Having a support group in place is a huge plus because at least I don't feel as isolated!
I've noticed that when mentioning this problem with a few close females, they look at me like it's all in my head or I fear they think it is a bad girls disease Evil or Very Mad Bye for now!

Micki

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re treatment of Vulvodynia

Post  jules on Sat Apr 17, 2010 1:42 am

Don't give up on relief. I believe it is possible. I'm so sorry to hear you were not able to afford the gabapentin. No health insurance? I am taking 3000 mgs of Gabapentin per day and have been for at least a few months. The gabapentin has relieved the symptoms somewhat (pain reduced quite a bit) but, not completely. Recently, at my request, I was referred by my doc to a pain clinic. I have had two spinal blocks. neither have helped, in my opinion. However my doctor just prescribed Lyrica. Lyrica is in the same family of nerve blockers. I still take 3000 mgs of Gabapentin. I started the Lyrica about a week ago and i have been relatively pain-free the last few days. Now, I don't know if the Lyrica is responsible for the improvement. But, it may be. Months ago, i was at the point where i was in constant pain every day. the pain was horrible, even when i woke up. i'm thinking the sleeping helps because there is no clothing pushing up against the Vulva. I mentioned on this site I bought a foam donut to sit on for work and home. this has helped quite a bit as well. My symptoms have improved over the past few months. I do have several days in a row where i am in pretty bad pain, but, nothing like it was. So..if you have health insurance, i recommend a pain clinic. if not, are you eligible for help? I don't know where you live. cool gel packs can give temporary relief. keep gel packs in the refrigerator. i may get a third nerve block if this lyrica does not work. the doc at the pain clinic shot steroids and anesthetics into two lower nerves. he did not hit the prudenal nerve yet. that nerve goes directly to the vulva. nerve blocks can help some. i'm not giving up until i have almost constant complete relief. btw..i have generalized Vulvodynia (pain all over the vulva)

jules

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nerve pain blockers

Post  Sebby (Admin) on Tue Apr 20, 2010 7:52 pm

Hi guys

Im am very interested to hear about the nerve blockers and anticonvulsants. Its something I have not tried yet and I will pretty much try anything!

Dr is still convinced its my hormones so am on mirogynon combined pill - only been on it 2 months but its not working. Not surprised really.

The whole treatment process is sooooo slow and frustrating in uk nhs. Each apointment is months apart and you are only trying one treatment at a time so after a few failed treatments its a whole year over! Its really frustrating me!! Mad

Anyway thanks for your contributions guys keep it up and good luck with your treatments.

Sebby
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Re: What has helped your Vulvodynia?

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