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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


What has helped your Vulvodynia?

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What has helped your Vulvodynia?

Post  Sebby (Admin) on Sun Dec 20, 2009 8:28 pm

So, what have you found that has reduced your vulval pain? Have you found anything yet which works? If so tell us!

I have found that sleep seems to help! lol actually I often find that when I wake up I dont feel much pain at all especially when I dont wear any knickers, I think this is due to the fact that nothing is touching the vulval area to aggrivate it and as soon as I get up and start walking and getting dressed it creeps up on me.

So along with this theory I only wear soft trousers, leggings and skirts.

I also only wear loose cotton knickers.

So what helps you?

Sebby
xxx
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V-Pain

Post  Micki on Wed Apr 14, 2010 12:58 pm

I just read your post about being in bed and it doesn't hurt until you get up! That's how I feel too!!

Micki

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Re: What has helped your Vulvodynia?

Post  Sebby (Admin) on Thu Apr 15, 2010 6:16 pm

Yep, its funny how sleep cures most things.

Not only is it relaxing but you are not moving about agrivating your conditions!

I do highly recommend not wearing knickers in bed though unless of course its at that time of the month!

Thanks for joining and hope to hear more from you

Sebby
xxx Sleep
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Vulvodynia Pain

Post  Micki on Fri Apr 16, 2010 11:07 am

So far, i haven't found much relieve from V-disorder. Not wearing clothes is a big plus however that being near impossible, not much out there. I tried the tea soaks, but to no avail. I did see my dr. the other day who has been treating me and she prescribed gabapentin 600 x 3 a day, and when i went to the pharmacy it's cost was a staggering $129.00 which I could not afford. I have been taking the gabapentin for several yrs. No result there! Also, a compound amitryptiline that didn't bring any results.Basicly loose pants that don't touch the vulva seem to help for a little while oh with no underwear at all!! Even wearing the most softest underpants don't make any difference either!! Having a support group in place is a huge plus because at least I don't feel as isolated!
I've noticed that when mentioning this problem with a few close females, they look at me like it's all in my head or I fear they think it is a bad girls disease Evil or Very Mad Bye for now!

Micki

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re treatment of Vulvodynia

Post  jules on Sat Apr 17, 2010 1:42 am

Don't give up on relief. I believe it is possible. I'm so sorry to hear you were not able to afford the gabapentin. No health insurance? I am taking 3000 mgs of Gabapentin per day and have been for at least a few months. The gabapentin has relieved the symptoms somewhat (pain reduced quite a bit) but, not completely. Recently, at my request, I was referred by my doc to a pain clinic. I have had two spinal blocks. neither have helped, in my opinion. However my doctor just prescribed Lyrica. Lyrica is in the same family of nerve blockers. I still take 3000 mgs of Gabapentin. I started the Lyrica about a week ago and i have been relatively pain-free the last few days. Now, I don't know if the Lyrica is responsible for the improvement. But, it may be. Months ago, i was at the point where i was in constant pain every day. the pain was horrible, even when i woke up. i'm thinking the sleeping helps because there is no clothing pushing up against the Vulva. I mentioned on this site I bought a foam donut to sit on for work and home. this has helped quite a bit as well. My symptoms have improved over the past few months. I do have several days in a row where i am in pretty bad pain, but, nothing like it was. So..if you have health insurance, i recommend a pain clinic. if not, are you eligible for help? I don't know where you live. cool gel packs can give temporary relief. keep gel packs in the refrigerator. i may get a third nerve block if this lyrica does not work. the doc at the pain clinic shot steroids and anesthetics into two lower nerves. he did not hit the prudenal nerve yet. that nerve goes directly to the vulva. nerve blocks can help some. i'm not giving up until i have almost constant complete relief. btw..i have generalized Vulvodynia (pain all over the vulva)

jules

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nerve pain blockers

Post  Sebby (Admin) on Tue Apr 20, 2010 7:52 pm

Hi guys

Im am very interested to hear about the nerve blockers and anticonvulsants. Its something I have not tried yet and I will pretty much try anything!

Dr is still convinced its my hormones so am on mirogynon combined pill - only been on it 2 months but its not working. Not surprised really.

The whole treatment process is sooooo slow and frustrating in uk nhs. Each apointment is months apart and you are only trying one treatment at a time so after a few failed treatments its a whole year over! Its really frustrating me!! Mad

Anyway thanks for your contributions guys keep it up and good luck with your treatments.

Sebby
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Re: What has helped your Vulvodynia?

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