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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
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» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

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Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

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Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

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Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  mcm on Tue Nov 27, 2012 2:17 pm

Thank you so much for this forum...

I will make this brief but would greatly appreciate your input. My 18 year old daughter is going to be registering here in the future, for much needed support beyond what "mom" can offer - but I do have a very important question I'm hoping you can help with...

A year ago, my daughter started complaining of vulvar pain and we just "rode it out" for a while. She had/still has a steady boyfriend, was sexually active - wasn't sure what it was, but felt certain it was related to intercourse or latex allergy, etc. Then she noticed a little "tear" so off to the ob/gyn we went last spring. The gynecologist did not diagnose VV at that time. Then she put silver nitrate on the tear! At that appointment she said the sting should go away in 24 hours, etc.

Well as you might guess, the pain intensified x 1000 for weeks, making us go back for follow up. The skin tear was gone, the tissue looked perfect and healthy, yet my daughter couldn't bear the pain of touch in the area.

THAT was when she was diagnosed with VV.

Since then, we have absorbed everything on virtually every VV site on the internet, we devisied a care "plan", trying one thing at a time, taking notes on any change. To date, nothing helps and my daughter is becoming very depressed. But we haven't been at this long and we have many hopeful things to try in the future.

Here is what keeps nagging at me as we keep trying this, trying that:

How did the silver nitrate on already damaged VV tissue impact my daughter's recovery (can tissue recover from silver nitrate, will response be longer, pain be worse)?

I can see how this "error" could happen with women who initially present with a tear/abrasion in the area...with gyne not thinking it is VV at first. I worry this gyne made things much, much worse by using this treatment. My daughter's pain has certainly been worse since silver nitrate was administered last spring. I'm upset that her doctor did this, absolutely...but my energy needs to be spent on helping my daughter find peace and healing.

Thanks so much in advance for your time...

mcm

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 on Wed Nov 28, 2012 7:43 pm

I know absolutely nothing about silver nitrate, but once you have Vulvodynia, you have it, there is no "recovery". You can try different treatments, or I'm doing surgery to help resolve mine...

As for being made worse and from last spring, I'd assume its going to stay like that, but get a knowledgable doctor regarding VV and you should be on a good path. I know when I tried different things if it was made worse, there was no getting better by itself, but everyone's different and there are treatments. Where are you from?

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  mcm on Wed Nov 28, 2012 8:40 pm

Thanks for your reply...

My concern with my daughter's vestibulitis is that the painful area already has thin skin, susceptible to tears, etc. Nerves are more sensitized in that area already - so worried that the silver nitrate caused even more damage to nerves. Her pain was never as bad as it has been since it was administered.

I call both Montana and Illinois home, by the way (rv full time)...

mcm

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 on Wed Nov 28, 2012 8:56 pm

I don't mean to be a party pooper, but (at least in my case) when the damage is done its done and I had to just move foward and not focus on what happened in the past. That being said most doctors are morons. I have an amazing doctor down here in Florida if you can work up to coming here he is doing my surgery but really is conservative and will help with your needs. Where in Illinois???

I don't even know what silver nitrate is to be honest but I'm assuming if it caused damage it won't be reveresed, but I don't know for sure, I'm just going off my personal case. I will tell you though, my pain was made worse with certain treatments. Thin skin could have atrophy and there is hormonal treatment for it... But all of us who have vv unforunately have a ton of nerve issues. Sad

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Sarah001 on Wed Nov 28, 2012 10:12 pm

I'm very confused why silver nitrate was used, here's a link:

http://www.nhs.uk/medicine-guides/pages/MedicineOverview.aspx?medicine=Silver%20nitrate

It would seem to imply the doctor thought he was dealing with warts but it does state it should not be used on genital warts so it seems it would definitely be inappropriate to use it on your daughter's tear.

Some forms of vulvar pain do produce tears in the skin, my physio has mentioned it briefly to me before but not in depth as I don't have tears. I don't know if the area will calm down or not, I have seen a few women on forums who've had tears during childbirth mention silver nitrate and some of them have said it has since calmed down so it's still possible. My advice to anyone is try everything you can by yourself first so removing irritants, calcium citrate tablets and the low oxalate diet, being screened for evey infection possible and steroid creams for a week and no longer to see what happens. After that read "When Sex Hurts" which helps establish the cause. It is possible your daughter has tensed her muscles up because of the silver nitrate pain and they could need some physio (PT) or perhaps medication would dull the pain down in the meantime too. If something makes no difference there's nothing to be gained by obssessing about it so in my case removing bubble bath didn't help so I put it back in again. There are a couple of books about the PT angle if you want to read them, "Ending Female Pain" by Isa Herrera and "Heal Pelvic Pain" by Amy Stein, they can be helpful in giving an idea of what needs to be done, biofeedback on it's own isn't going to help if there are trigger points etc etc. Relaxing the pelvic floor is explained in both books and if it helps to relax it at all it's worth pursuing PT.

I hope your daughter finds her cause and cure and don't listen to anyone who says she will never recover because without knowing the cause it isn't possible to make such a prediction.
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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 on Wed Nov 28, 2012 10:56 pm

Wait a second I never said she wouldn't recover if that was in reference to me I would never say that! But that being said there are lots.of.options to go thru

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  mcm on Thu Nov 29, 2012 12:29 am

Oh Geez,

I hope I was clear enough...never meant to cause a rift...

I'm gonna try once more (and appreciate everyone's input! thank you!)...

Before ever knowing my daughter had vestibulitis (even before her gyne made the diagnosis), my daughter had a small "tear." Doc thought tear was from intercourse OR latex allergy OR tampon use, etc...it was an "out of the blue" thing and tissue looked healthy, so assumption was made that my daughter's pain was from tear.

Silver nitrate was used to "quickly heal up the tear" and would "be better in a few days." However, now that we know it was vestibulitis, with thin skin exposing more sensitive nerves, etc...adding that onto such damaged skin caused much, much more pain for the long haul.

I'm not looking backwards wishing we didn't do it...I'm wondering if silver nitrate incorrectly being placed on vestibulitis tissue will make the different treatments/trials we are doing much less likely to succeed...causing MORE damage to already damaged tissue. Did it make an already uphill climb become a nearly 100% vertical climb?

Hope this clarification helps?

Thanks again....

mcm

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 on Thu Nov 29, 2012 4:05 am

No rift I just wanted to make sure I wasn't saying it was a cure. Honestly it's a question for the doc but I can safely tell you that my problem was made worse from drugs however I was given periods of relief. Regardless of whether or not it was made worse there are possibilities to make it better. I doubting made it any more or less worse but the treatment is the same I would imagine I honestly wouldn't concentrate on that idk whether anyone can tell you if it made it worse but.im not sure it matters or has a huge effect. The only thing id it would have an affect is id it miraculously went away which .bb it gonna lie would be awesome!

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Sarah001 on Thu Nov 29, 2012 1:51 pm

It's not referring to you Alana3 it's referring to all the people online and offline who will say it can't be cured without even knowing what the cause is.
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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 on Thu Nov 29, 2012 1:58 pm

Ahh gotcha, sorry I just wanted to clarify and mention that's not what I meant if it came out like that lol I'm the first that will say there can be something done.

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 on Thu Nov 29, 2012 2:22 pm

I just read about silver nitrate from a vulvodynia point of view. Essentially, it is used for bladder pain and if you have cervix bleeding (and perhaps warts I didn't get into that). Most of the people said they ALSO had vulvodynia but the silver nitrate was NOT used for that particular issue. Some people said it made their problems worse. Others were used for cauterization or granulation. So perhaps this was a treatment for your daughter's tear, but in some people it works and others it doesn't? Just like every other treatment for vv- sometimes it works sometimes it doesn't. That's what I got out of what I read, but again I could have misinterperted it and I only read a few things, but none were mentioned for specific vulvodynia but other gynecological issues (which I'm guessing is what the doctor thought she originally had).

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Loulou on Sat Dec 01, 2012 10:00 pm

Mcm - i don't know anything about silver nitrate but if it has further irritated your daughter's already irritated skin then i guess it might take a little longer for things to settle down. But people respond to treatments differently and heal at different rates so its impossible to predict. My personal view, based on my own experience, is that i would be wary of further topical treatments in her situation - if you keep putting stuff on an irritated vulva (stuff that is not natural to your vulva) its not going to help when the nerves are on fire. Is it possible to focus on non-topical treatments first e.g. physical therapy? Even if tight pelvic floor muscles aren't the primary cause of your daughter's vvd it is likely that they will have tightened up in response to the pain (a guarding effect), so some physical therapy might help ease your daughter's pain somewhat to allow her to then try other treatments.

Also I think the body does have an underlying natural need and drive to heal in order to be in a healthy balanced state (i'm got a bit evangelical about that since my vvd!) so i've been giving it as much of a helping hand as i can by being as healthy as possible so your daughter might want to try this too - good multivitamins (especially the B vits which help with repair of nerve damage), exercise (gentle yoga and pilates have helped to significantly reduce my pain), plenty of sleep, manage stress, etc. At the very least doing all that won't make things worse!


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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

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