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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

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Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  mcm on Tue Nov 27, 2012 2:17 pm

Thank you so much for this forum...

I will make this brief but would greatly appreciate your input. My 18 year old daughter is going to be registering here in the future, for much needed support beyond what "mom" can offer - but I do have a very important question I'm hoping you can help with...

A year ago, my daughter started complaining of vulvar pain and we just "rode it out" for a while. She had/still has a steady boyfriend, was sexually active - wasn't sure what it was, but felt certain it was related to intercourse or latex allergy, etc. Then she noticed a little "tear" so off to the ob/gyn we went last spring. The gynecologist did not diagnose VV at that time. Then she put silver nitrate on the tear! At that appointment she said the sting should go away in 24 hours, etc.

Well as you might guess, the pain intensified x 1000 for weeks, making us go back for follow up. The skin tear was gone, the tissue looked perfect and healthy, yet my daughter couldn't bear the pain of touch in the area.

THAT was when she was diagnosed with VV.

Since then, we have absorbed everything on virtually every VV site on the internet, we devisied a care "plan", trying one thing at a time, taking notes on any change. To date, nothing helps and my daughter is becoming very depressed. But we haven't been at this long and we have many hopeful things to try in the future.

Here is what keeps nagging at me as we keep trying this, trying that:

How did the silver nitrate on already damaged VV tissue impact my daughter's recovery (can tissue recover from silver nitrate, will response be longer, pain be worse)?

I can see how this "error" could happen with women who initially present with a tear/abrasion in the area...with gyne not thinking it is VV at first. I worry this gyne made things much, much worse by using this treatment. My daughter's pain has certainly been worse since silver nitrate was administered last spring. I'm upset that her doctor did this, absolutely...but my energy needs to be spent on helping my daughter find peace and healing.

Thanks so much in advance for your time...

mcm

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 on Wed Nov 28, 2012 7:43 pm

I know absolutely nothing about silver nitrate, but once you have Vulvodynia, you have it, there is no "recovery". You can try different treatments, or I'm doing surgery to help resolve mine...

As for being made worse and from last spring, I'd assume its going to stay like that, but get a knowledgable doctor regarding VV and you should be on a good path. I know when I tried different things if it was made worse, there was no getting better by itself, but everyone's different and there are treatments. Where are you from?

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  mcm on Wed Nov 28, 2012 8:40 pm

Thanks for your reply...

My concern with my daughter's vestibulitis is that the painful area already has thin skin, susceptible to tears, etc. Nerves are more sensitized in that area already - so worried that the silver nitrate caused even more damage to nerves. Her pain was never as bad as it has been since it was administered.

I call both Montana and Illinois home, by the way (rv full time)...

mcm

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 on Wed Nov 28, 2012 8:56 pm

I don't mean to be a party pooper, but (at least in my case) when the damage is done its done and I had to just move foward and not focus on what happened in the past. That being said most doctors are morons. I have an amazing doctor down here in Florida if you can work up to coming here he is doing my surgery but really is conservative and will help with your needs. Where in Illinois???

I don't even know what silver nitrate is to be honest but I'm assuming if it caused damage it won't be reveresed, but I don't know for sure, I'm just going off my personal case. I will tell you though, my pain was made worse with certain treatments. Thin skin could have atrophy and there is hormonal treatment for it... But all of us who have vv unforunately have a ton of nerve issues. Sad

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Sarah001 on Wed Nov 28, 2012 10:12 pm

I'm very confused why silver nitrate was used, here's a link:

http://www.nhs.uk/medicine-guides/pages/MedicineOverview.aspx?medicine=Silver%20nitrate

It would seem to imply the doctor thought he was dealing with warts but it does state it should not be used on genital warts so it seems it would definitely be inappropriate to use it on your daughter's tear.

Some forms of vulvar pain do produce tears in the skin, my physio has mentioned it briefly to me before but not in depth as I don't have tears. I don't know if the area will calm down or not, I have seen a few women on forums who've had tears during childbirth mention silver nitrate and some of them have said it has since calmed down so it's still possible. My advice to anyone is try everything you can by yourself first so removing irritants, calcium citrate tablets and the low oxalate diet, being screened for evey infection possible and steroid creams for a week and no longer to see what happens. After that read "When Sex Hurts" which helps establish the cause. It is possible your daughter has tensed her muscles up because of the silver nitrate pain and they could need some physio (PT) or perhaps medication would dull the pain down in the meantime too. If something makes no difference there's nothing to be gained by obssessing about it so in my case removing bubble bath didn't help so I put it back in again. There are a couple of books about the PT angle if you want to read them, "Ending Female Pain" by Isa Herrera and "Heal Pelvic Pain" by Amy Stein, they can be helpful in giving an idea of what needs to be done, biofeedback on it's own isn't going to help if there are trigger points etc etc. Relaxing the pelvic floor is explained in both books and if it helps to relax it at all it's worth pursuing PT.

I hope your daughter finds her cause and cure and don't listen to anyone who says she will never recover because without knowing the cause it isn't possible to make such a prediction.
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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 on Wed Nov 28, 2012 10:56 pm

Wait a second I never said she wouldn't recover if that was in reference to me I would never say that! But that being said there are lots.of.options to go thru

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  mcm on Thu Nov 29, 2012 12:29 am

Oh Geez,

I hope I was clear enough...never meant to cause a rift...

I'm gonna try once more (and appreciate everyone's input! thank you!)...

Before ever knowing my daughter had vestibulitis (even before her gyne made the diagnosis), my daughter had a small "tear." Doc thought tear was from intercourse OR latex allergy OR tampon use, etc...it was an "out of the blue" thing and tissue looked healthy, so assumption was made that my daughter's pain was from tear.

Silver nitrate was used to "quickly heal up the tear" and would "be better in a few days." However, now that we know it was vestibulitis, with thin skin exposing more sensitive nerves, etc...adding that onto such damaged skin caused much, much more pain for the long haul.

I'm not looking backwards wishing we didn't do it...I'm wondering if silver nitrate incorrectly being placed on vestibulitis tissue will make the different treatments/trials we are doing much less likely to succeed...causing MORE damage to already damaged tissue. Did it make an already uphill climb become a nearly 100% vertical climb?

Hope this clarification helps?

Thanks again....

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 on Thu Nov 29, 2012 4:05 am

No rift I just wanted to make sure I wasn't saying it was a cure. Honestly it's a question for the doc but I can safely tell you that my problem was made worse from drugs however I was given periods of relief. Regardless of whether or not it was made worse there are possibilities to make it better. I doubting made it any more or less worse but the treatment is the same I would imagine I honestly wouldn't concentrate on that idk whether anyone can tell you if it made it worse but.im not sure it matters or has a huge effect. The only thing id it would have an affect is id it miraculously went away which .bb it gonna lie would be awesome!

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Sarah001 on Thu Nov 29, 2012 1:51 pm

It's not referring to you Alana3 it's referring to all the people online and offline who will say it can't be cured without even knowing what the cause is.
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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 on Thu Nov 29, 2012 1:58 pm

Ahh gotcha, sorry I just wanted to clarify and mention that's not what I meant if it came out like that lol I'm the first that will say there can be something done.

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Alana3 on Thu Nov 29, 2012 2:22 pm

I just read about silver nitrate from a vulvodynia point of view. Essentially, it is used for bladder pain and if you have cervix bleeding (and perhaps warts I didn't get into that). Most of the people said they ALSO had vulvodynia but the silver nitrate was NOT used for that particular issue. Some people said it made their problems worse. Others were used for cauterization or granulation. So perhaps this was a treatment for your daughter's tear, but in some people it works and others it doesn't? Just like every other treatment for vv- sometimes it works sometimes it doesn't. That's what I got out of what I read, but again I could have misinterperted it and I only read a few things, but none were mentioned for specific vulvodynia but other gynecological issues (which I'm guessing is what the doctor thought she originally had).

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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

Post  Loulou on Sat Dec 01, 2012 10:00 pm

Mcm - i don't know anything about silver nitrate but if it has further irritated your daughter's already irritated skin then i guess it might take a little longer for things to settle down. But people respond to treatments differently and heal at different rates so its impossible to predict. My personal view, based on my own experience, is that i would be wary of further topical treatments in her situation - if you keep putting stuff on an irritated vulva (stuff that is not natural to your vulva) its not going to help when the nerves are on fire. Is it possible to focus on non-topical treatments first e.g. physical therapy? Even if tight pelvic floor muscles aren't the primary cause of your daughter's vvd it is likely that they will have tightened up in response to the pain (a guarding effect), so some physical therapy might help ease your daughter's pain somewhat to allow her to then try other treatments.

Also I think the body does have an underlying natural need and drive to heal in order to be in a healthy balanced state (i'm got a bit evangelical about that since my vvd!) so i've been giving it as much of a helping hand as i can by being as healthy as possible so your daughter might want to try this too - good multivitamins (especially the B vits which help with repair of nerve damage), exercise (gentle yoga and pilates have helped to significantly reduce my pain), plenty of sleep, manage stress, etc. At the very least doing all that won't make things worse!


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Re: Help Please - Doctor Put Silver Nitrate On Daughter With VV - What Does This Mean For Recovery?

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