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Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


My vulvodynia came back!!!

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My vulvodynia came back!!!

Post  Dandsforever on Wed Nov 28, 2012 7:35 pm

Hi everyone, Im feeling really down right now! My vulvodynia came back after three years of painfree sex.. I was diagnosed with this condition when i was sixteen, I tried every kind of medicine but nothing helped me eventually i just accepted this is how my life is going to be. I was married to a really nice man who accepted me, I was 18 at this time. But we broke up for other reasons. so I met this other guy and I said what the heck im gonna try to have sex and it didn't hurt, it was like my pain disappered just like that. Im still with the same guy and we have been together for three years and have a wonderful son together! I thought I put this horrible condition behind me but 4 days ago I started feeling the pain of vulvodynia. I dont feel like i can go through this again. Im angry at the world, why me. Sad Im sorry i just need to vent and talk to people who understand what im talking about.

Dandsforever

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Re: My vulvodynia came back!!!

Post  Loulou on Thu Dec 06, 2012 5:21 pm

I'm so sorry to hear that your vvd came back. Do you have any clues why? Any back or pelvic injury/trauma? recent infection? have you been going thru a stressful period? You've had a pain free period before so thats a good sign.

Loulou

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i understad

Post  Dra.Cherrym on Fri Dec 07, 2012 7:36 am

hello dear, how are you now? how are you feeling? have you seen a doctor??

Dra.Cherrym

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Re: My vulvodynia came back!!!

Post  xmandi88x on Thu Apr 25, 2013 7:14 am

I'm with you on this I had it when I was 21 took 2 years to finally go then I have had 2 years with out and now its back aswell the only difference is I'm not on the medication for it no more and I became I'll with another health issue last year which I'm still battling and maybe the stress of it caused it. I don't have sex as I'm currently single so it can't be that that's agrivated it. X

xmandi88x

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Re: My vulvodynia came back!!!

Post  Alana3 on Thu May 02, 2013 11:20 am

When was your son born? Pregnancy can aggravate vulvodynia with.the.stress and hormones on your body....

Alana3

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Re: My vulvodynia came back!!!

Post  tanyam23xo on Thu May 02, 2013 12:49 pm

Can you describe your symptoms? I am trying to figure out what exactly I have. My whole right vaginal side is killing me. I can barley walk, and it hurts to touch. Please help!

tanyam23xo

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Re: My vulvodynia came back!!!

Post  katinstras on Tue May 07, 2013 6:13 pm

tanyam23xo wrote:Can you describe your symptoms? I am trying to figure out what exactly I have. My whole right vaginal side is killing me. I can barley walk, and it hurts to touch. Please help!

Hi tanyam23xo,

Could it be pudendal neuralgia or nerve entrapment in your case? If I remember correctly, it often affects the right side of the vaginal/vulvar area. You can look up the symptoms online and, if it looks familiar, you can go for a radiological exam to rule out or confirm the diagnosis.

katinstras

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Re: My vulvodynia came back!!!

Post  palaisland on Mon May 20, 2013 1:07 pm

hello, I am so sorry your pain has come back... I discovered that my own pain was due to nerve entrapment / piriformis syndrome /musculo-skeletal issues... possibly pudendal neuralgia, i am having the emg test for this next week. through exercise i have pretty much cured my pain, please read my post 'CURED - my story' ... maybe you have hurt your back in some way to make the pain come back? that is what happened to me....
best wishes x

palaisland

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Re: My vulvodynia came back!!!

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