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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


My vulvodynia came back!!!

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My vulvodynia came back!!!

Post  Dandsforever on Wed Nov 28, 2012 7:35 pm

Hi everyone, Im feeling really down right now! My vulvodynia came back after three years of painfree sex.. I was diagnosed with this condition when i was sixteen, I tried every kind of medicine but nothing helped me eventually i just accepted this is how my life is going to be. I was married to a really nice man who accepted me, I was 18 at this time. But we broke up for other reasons. so I met this other guy and I said what the heck im gonna try to have sex and it didn't hurt, it was like my pain disappered just like that. Im still with the same guy and we have been together for three years and have a wonderful son together! I thought I put this horrible condition behind me but 4 days ago I started feeling the pain of vulvodynia. I dont feel like i can go through this again. Im angry at the world, why me. Sad Im sorry i just need to vent and talk to people who understand what im talking about.

Dandsforever

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Re: My vulvodynia came back!!!

Post  Loulou on Thu Dec 06, 2012 5:21 pm

I'm so sorry to hear that your vvd came back. Do you have any clues why? Any back or pelvic injury/trauma? recent infection? have you been going thru a stressful period? You've had a pain free period before so thats a good sign.

Loulou

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i understad

Post  Dra.Cherrym on Fri Dec 07, 2012 7:36 am

hello dear, how are you now? how are you feeling? have you seen a doctor??

Dra.Cherrym

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Re: My vulvodynia came back!!!

Post  xmandi88x on Thu Apr 25, 2013 7:14 am

I'm with you on this I had it when I was 21 took 2 years to finally go then I have had 2 years with out and now its back aswell the only difference is I'm not on the medication for it no more and I became I'll with another health issue last year which I'm still battling and maybe the stress of it caused it. I don't have sex as I'm currently single so it can't be that that's agrivated it. X

xmandi88x

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Re: My vulvodynia came back!!!

Post  Alana3 on Thu May 02, 2013 11:20 am

When was your son born? Pregnancy can aggravate vulvodynia with.the.stress and hormones on your body....

Alana3

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Re: My vulvodynia came back!!!

Post  tanyam23xo on Thu May 02, 2013 12:49 pm

Can you describe your symptoms? I am trying to figure out what exactly I have. My whole right vaginal side is killing me. I can barley walk, and it hurts to touch. Please help!

tanyam23xo

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Re: My vulvodynia came back!!!

Post  katinstras on Tue May 07, 2013 6:13 pm

tanyam23xo wrote:Can you describe your symptoms? I am trying to figure out what exactly I have. My whole right vaginal side is killing me. I can barley walk, and it hurts to touch. Please help!

Hi tanyam23xo,

Could it be pudendal neuralgia or nerve entrapment in your case? If I remember correctly, it often affects the right side of the vaginal/vulvar area. You can look up the symptoms online and, if it looks familiar, you can go for a radiological exam to rule out or confirm the diagnosis.

katinstras

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Re: My vulvodynia came back!!!

Post  palaisland on Mon May 20, 2013 1:07 pm

hello, I am so sorry your pain has come back... I discovered that my own pain was due to nerve entrapment / piriformis syndrome /musculo-skeletal issues... possibly pudendal neuralgia, i am having the emg test for this next week. through exercise i have pretty much cured my pain, please read my post 'CURED - my story' ... maybe you have hurt your back in some way to make the pain come back? that is what happened to me....
best wishes x

palaisland

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Re: My vulvodynia came back!!!

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