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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

My vulvodynia came back!!!

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My vulvodynia came back!!!

Post  Dandsforever on Wed Nov 28, 2012 7:35 pm

Hi everyone, Im feeling really down right now! My vulvodynia came back after three years of painfree sex.. I was diagnosed with this condition when i was sixteen, I tried every kind of medicine but nothing helped me eventually i just accepted this is how my life is going to be. I was married to a really nice man who accepted me, I was 18 at this time. But we broke up for other reasons. so I met this other guy and I said what the heck im gonna try to have sex and it didn't hurt, it was like my pain disappered just like that. Im still with the same guy and we have been together for three years and have a wonderful son together! I thought I put this horrible condition behind me but 4 days ago I started feeling the pain of vulvodynia. I dont feel like i can go through this again. Im angry at the world, why me. Sad Im sorry i just need to vent and talk to people who understand what im talking about.


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Re: My vulvodynia came back!!!

Post  Loulou on Thu Dec 06, 2012 5:21 pm

I'm so sorry to hear that your vvd came back. Do you have any clues why? Any back or pelvic injury/trauma? recent infection? have you been going thru a stressful period? You've had a pain free period before so thats a good sign.


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i understad

Post  Dra.Cherrym on Fri Dec 07, 2012 7:36 am

hello dear, how are you now? how are you feeling? have you seen a doctor??


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Re: My vulvodynia came back!!!

Post  xmandi88x on Thu Apr 25, 2013 7:14 am

I'm with you on this I had it when I was 21 took 2 years to finally go then I have had 2 years with out and now its back aswell the only difference is I'm not on the medication for it no more and I became I'll with another health issue last year which I'm still battling and maybe the stress of it caused it. I don't have sex as I'm currently single so it can't be that that's agrivated it. X


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Re: My vulvodynia came back!!!

Post  Alana3 on Thu May 02, 2013 11:20 am

When was your son born? Pregnancy can aggravate vulvodynia with.the.stress and hormones on your body....


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Re: My vulvodynia came back!!!

Post  tanyam23xo on Thu May 02, 2013 12:49 pm

Can you describe your symptoms? I am trying to figure out what exactly I have. My whole right vaginal side is killing me. I can barley walk, and it hurts to touch. Please help!


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Re: My vulvodynia came back!!!

Post  katinstras on Tue May 07, 2013 6:13 pm

tanyam23xo wrote:Can you describe your symptoms? I am trying to figure out what exactly I have. My whole right vaginal side is killing me. I can barley walk, and it hurts to touch. Please help!

Hi tanyam23xo,

Could it be pudendal neuralgia or nerve entrapment in your case? If I remember correctly, it often affects the right side of the vaginal/vulvar area. You can look up the symptoms online and, if it looks familiar, you can go for a radiological exam to rule out or confirm the diagnosis.


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Re: My vulvodynia came back!!!

Post  palaisland on Mon May 20, 2013 1:07 pm

hello, I am so sorry your pain has come back... I discovered that my own pain was due to nerve entrapment / piriformis syndrome /musculo-skeletal issues... possibly pudendal neuralgia, i am having the emg test for this next week. through exercise i have pretty much cured my pain, please read my post 'CURED - my story' ... maybe you have hurt your back in some way to make the pain come back? that is what happened to me....
best wishes x


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Re: My vulvodynia came back!!!

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