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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

My vulvodynia came back!!!

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My vulvodynia came back!!!

Post  Dandsforever on Wed Nov 28, 2012 7:35 pm

Hi everyone, Im feeling really down right now! My vulvodynia came back after three years of painfree sex.. I was diagnosed with this condition when i was sixteen, I tried every kind of medicine but nothing helped me eventually i just accepted this is how my life is going to be. I was married to a really nice man who accepted me, I was 18 at this time. But we broke up for other reasons. so I met this other guy and I said what the heck im gonna try to have sex and it didn't hurt, it was like my pain disappered just like that. Im still with the same guy and we have been together for three years and have a wonderful son together! I thought I put this horrible condition behind me but 4 days ago I started feeling the pain of vulvodynia. I dont feel like i can go through this again. Im angry at the world, why me. Sad Im sorry i just need to vent and talk to people who understand what im talking about.


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Re: My vulvodynia came back!!!

Post  Loulou on Thu Dec 06, 2012 5:21 pm

I'm so sorry to hear that your vvd came back. Do you have any clues why? Any back or pelvic injury/trauma? recent infection? have you been going thru a stressful period? You've had a pain free period before so thats a good sign.


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i understad

Post  Dra.Cherrym on Fri Dec 07, 2012 7:36 am

hello dear, how are you now? how are you feeling? have you seen a doctor??


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Re: My vulvodynia came back!!!

Post  xmandi88x on Thu Apr 25, 2013 7:14 am

I'm with you on this I had it when I was 21 took 2 years to finally go then I have had 2 years with out and now its back aswell the only difference is I'm not on the medication for it no more and I became I'll with another health issue last year which I'm still battling and maybe the stress of it caused it. I don't have sex as I'm currently single so it can't be that that's agrivated it. X


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Re: My vulvodynia came back!!!

Post  Alana3 on Thu May 02, 2013 11:20 am

When was your son born? Pregnancy can aggravate vulvodynia with.the.stress and hormones on your body....


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Re: My vulvodynia came back!!!

Post  tanyam23xo on Thu May 02, 2013 12:49 pm

Can you describe your symptoms? I am trying to figure out what exactly I have. My whole right vaginal side is killing me. I can barley walk, and it hurts to touch. Please help!


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Re: My vulvodynia came back!!!

Post  katinstras on Tue May 07, 2013 6:13 pm

tanyam23xo wrote:Can you describe your symptoms? I am trying to figure out what exactly I have. My whole right vaginal side is killing me. I can barley walk, and it hurts to touch. Please help!

Hi tanyam23xo,

Could it be pudendal neuralgia or nerve entrapment in your case? If I remember correctly, it often affects the right side of the vaginal/vulvar area. You can look up the symptoms online and, if it looks familiar, you can go for a radiological exam to rule out or confirm the diagnosis.


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Re: My vulvodynia came back!!!

Post  palaisland on Mon May 20, 2013 1:07 pm

hello, I am so sorry your pain has come back... I discovered that my own pain was due to nerve entrapment / piriformis syndrome /musculo-skeletal issues... possibly pudendal neuralgia, i am having the emg test for this next week. through exercise i have pretty much cured my pain, please read my post 'CURED - my story' ... maybe you have hurt your back in some way to make the pain come back? that is what happened to me....
best wishes x


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Re: My vulvodynia came back!!!

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