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» Change in birth control question
Yesterday at 7:34 pm by Jo44

» Weird Reactions to Natural Remedies
Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


3 Years and Counting

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3 Years and Counting

Post  painfulvag on Thu Nov 29, 2012 6:31 pm

I have been to 3 gynecologists and the third one finally gave me hope. It was actually for a clinic trial, which I was ok with as long as it got me some answers and relief! Unfortunately I'm pretty sure I got the placebo and discontinued use. I know, I know. I shouldn't have stopped. But also, the clinic told me they would reach out and check up on me every so often throughout the trial to see how things were progressing, and they never did. So today I decided to get online to do some more research myself since I'm tired of getting my vagina looked at by strangers. I thought maybe, MAYBE I had some kind of chronic yeast infection issue (I thought this because the last time I went in, I was told I had a yeast infection even though I did not have any tell tale signs). So looking into the infection business led me back to the vulvodynia, which I had come across before. That led me to the National Vulvodynia Association (NVA) which I recommend taking a look at their website if you haven't already. That's where I found what I am almost 99% sure I have: Secondary Vulvar Vestibulitis Syndrome. Quite the mouthful, but it describes my situation to a T. Sooooo, that brings me to my question(s): Does anyone have a magical cure that I am unaware of?? (wishful thinking...) How do you deal with not being able to have sex on a regular basis? Has anyone tried using lidocaine for a temporary fix? (i.e. topical or Dermoplast) Any feedback will be much appreciated. Sorry for the novel.

painfulvag

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Re: 3 Years and Counting

Post  Alana3 on Thu Nov 29, 2012 8:21 pm

No magical cure, I am headed in for surgery next week which my doctor claims will make me feel a lot better. I really hope so because this sucks.

Like you I had a normal sex life (I read your other post) started on tricyclin and was put on loestrin when you guessed it I started having pain! I got off of that went on yaz, seasonique, and finally mircette (I have to be on BC for my period). My pain never went away so I doubt you haven't given it enough time, I think it's just there (sorry). But that being said, I don't know if my pain was caused because of birth control or other related things. I had to go to a gyno when I was 3 because of bleeding issues caused by Mr Bubbles. When I was 17 I went on a sulfa drug that caused me to have a horrible yeast infection. I am also very prone to bladder infections and bacteria. Thrill.

I don't have a boyfriend so sex on a regular bassis doesn't really bother me, but when I did, we took it slow and it was sort of pleasurable. I have only use lidocaine for pain (it burns REALLY bad when you first apply it).

The things I have tried that didn't work (but might for you): Estrace, a compound of gabapentin ami(forget the name its an antidepressant) and lidocaine, a compound of estrogen and lidocaine, acyclovir (herpes medicine I do NOT have herpes but they thought it would help with nerve endings it didn't and not even a treatment), muscle relaxers, allergy medicine, various vitamins/oils, and over the counter pain killers.

I used the NVA to find my new gyno, and I really like him, he said I will be feeling better in a few weeks and I have to believe him, I have done everything I can do and there's not a lot more I can take. Where do you live? The NVA is amazing and their website is pretty awesome too as it gives a lot of information that I didn't know or needed reminding of.

The most important thing at least for me was to never give up. Don't get me wrong, I was very upset and depressed about this, but I knew someone somewhere could help me. I was proven to be right when I found my doctor. He was the first person to ever actually see exactly where the problem was. Make sure to educate yourself as best as you can so you don't try useless treatments and waste more time. The acyclovir for me was a big waste as it's not even a treatment for vulvodynia. Antideprssants for some people work well, but I didn't want to deal with the side effects, and my doctor claims they take a while to work because of the adjusted doses. Let me know if you have any questions, hope I helped Smile

Alana3

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Re: 3 Years and Counting

Post  painfulvag on Sat Dec 01, 2012 3:54 pm

I live in Arizona. I was trying to look through the NVA for a dr but I guess you have to donate?? Which is fine, I just didn't take the time to do so. I honestly haven't tried anything to solve the problem, I just kind of figured I would be stuck with it for the rest of my life. Thank goodness I have a wonderful boyfriend who has gotten more supportive over time. We had already been together for 2 years before the pain started. Don't get me wrong, it has definitely not been easy for him either, but after seeing me in so much pain I cry or almost throw up after sex, he got the hint. I don't know if I'm interested in antidepressants either, but I'm getting desperate. I've tried a lidocaine ointment which did nothing, but figured I'd try the Dermoplast spray and see how that went. I love the birth control I'm on so I'm also hesitant to switch, but again, I'm getting desperate. Did this one dr prescribe the other treatments you tried or just the surgery?

painfulvag

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Re: 3 Years and Counting

Post  Alana3 on Mon Dec 03, 2012 2:53 am

No I tried other treatments with him but only one I've been going from doctor to doctor and than I found him and to be honest im sick of the maybes just fix it already. I won't even date what's the point? Sex terrified me and ugh I don't know. I can't even wrap my mind around no pain to begin with lol I didn't donate I just found my doc he's in Florida I really like him. Have you been to a specialist

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Re: 3 Years and Counting

Post  tinkerbelle2 on Sat Oct 19, 2013 4:50 pm

Hi girl, do you still post here? I have also had this for 3 years! Hope you're a bit better babes x
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Re: 3 Years and Counting

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