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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


3 Years and Counting

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3 Years and Counting

Post  painfulvag on Thu Nov 29, 2012 6:31 pm

I have been to 3 gynecologists and the third one finally gave me hope. It was actually for a clinic trial, which I was ok with as long as it got me some answers and relief! Unfortunately I'm pretty sure I got the placebo and discontinued use. I know, I know. I shouldn't have stopped. But also, the clinic told me they would reach out and check up on me every so often throughout the trial to see how things were progressing, and they never did. So today I decided to get online to do some more research myself since I'm tired of getting my vagina looked at by strangers. I thought maybe, MAYBE I had some kind of chronic yeast infection issue (I thought this because the last time I went in, I was told I had a yeast infection even though I did not have any tell tale signs). So looking into the infection business led me back to the vulvodynia, which I had come across before. That led me to the National Vulvodynia Association (NVA) which I recommend taking a look at their website if you haven't already. That's where I found what I am almost 99% sure I have: Secondary Vulvar Vestibulitis Syndrome. Quite the mouthful, but it describes my situation to a T. Sooooo, that brings me to my question(s): Does anyone have a magical cure that I am unaware of?? (wishful thinking...) How do you deal with not being able to have sex on a regular basis? Has anyone tried using lidocaine for a temporary fix? (i.e. topical or Dermoplast) Any feedback will be much appreciated. Sorry for the novel.

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Re: 3 Years and Counting

Post  Alana3 on Thu Nov 29, 2012 8:21 pm

No magical cure, I am headed in for surgery next week which my doctor claims will make me feel a lot better. I really hope so because this sucks.

Like you I had a normal sex life (I read your other post) started on tricyclin and was put on loestrin when you guessed it I started having pain! I got off of that went on yaz, seasonique, and finally mircette (I have to be on BC for my period). My pain never went away so I doubt you haven't given it enough time, I think it's just there (sorry). But that being said, I don't know if my pain was caused because of birth control or other related things. I had to go to a gyno when I was 3 because of bleeding issues caused by Mr Bubbles. When I was 17 I went on a sulfa drug that caused me to have a horrible yeast infection. I am also very prone to bladder infections and bacteria. Thrill.

I don't have a boyfriend so sex on a regular bassis doesn't really bother me, but when I did, we took it slow and it was sort of pleasurable. I have only use lidocaine for pain (it burns REALLY bad when you first apply it).

The things I have tried that didn't work (but might for you): Estrace, a compound of gabapentin ami(forget the name its an antidepressant) and lidocaine, a compound of estrogen and lidocaine, acyclovir (herpes medicine I do NOT have herpes but they thought it would help with nerve endings it didn't and not even a treatment), muscle relaxers, allergy medicine, various vitamins/oils, and over the counter pain killers.

I used the NVA to find my new gyno, and I really like him, he said I will be feeling better in a few weeks and I have to believe him, I have done everything I can do and there's not a lot more I can take. Where do you live? The NVA is amazing and their website is pretty awesome too as it gives a lot of information that I didn't know or needed reminding of.

The most important thing at least for me was to never give up. Don't get me wrong, I was very upset and depressed about this, but I knew someone somewhere could help me. I was proven to be right when I found my doctor. He was the first person to ever actually see exactly where the problem was. Make sure to educate yourself as best as you can so you don't try useless treatments and waste more time. The acyclovir for me was a big waste as it's not even a treatment for vulvodynia. Antideprssants for some people work well, but I didn't want to deal with the side effects, and my doctor claims they take a while to work because of the adjusted doses. Let me know if you have any questions, hope I helped Smile

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Re: 3 Years and Counting

Post  painfulvag on Sat Dec 01, 2012 3:54 pm

I live in Arizona. I was trying to look through the NVA for a dr but I guess you have to donate?? Which is fine, I just didn't take the time to do so. I honestly haven't tried anything to solve the problem, I just kind of figured I would be stuck with it for the rest of my life. Thank goodness I have a wonderful boyfriend who has gotten more supportive over time. We had already been together for 2 years before the pain started. Don't get me wrong, it has definitely not been easy for him either, but after seeing me in so much pain I cry or almost throw up after sex, he got the hint. I don't know if I'm interested in antidepressants either, but I'm getting desperate. I've tried a lidocaine ointment which did nothing, but figured I'd try the Dermoplast spray and see how that went. I love the birth control I'm on so I'm also hesitant to switch, but again, I'm getting desperate. Did this one dr prescribe the other treatments you tried or just the surgery?

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Re: 3 Years and Counting

Post  Alana3 on Mon Dec 03, 2012 2:53 am

No I tried other treatments with him but only one I've been going from doctor to doctor and than I found him and to be honest im sick of the maybes just fix it already. I won't even date what's the point? Sex terrified me and ugh I don't know. I can't even wrap my mind around no pain to begin with lol I didn't donate I just found my doc he's in Florida I really like him. Have you been to a specialist

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Re: 3 Years and Counting

Post  tinkerbelle2 on Sat Oct 19, 2013 4:50 pm

Hi girl, do you still post here? I have also had this for 3 years! Hope you're a bit better babes x
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Re: 3 Years and Counting

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