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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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overwhelmed with gratitude at finding this forum -here's my story

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overwhelmed with gratitude at finding this forum -here's my story

Post  lauramw on Sat Dec 08, 2012 1:29 pm

hello ladies
my name is laura, i have been suffering from vulvodynia since i was 18, i am now 22 years old. i accidentally stumbled across this forum earlier today and have been so moved and inspired and saddened by reading all of your posts. the isolation of this condition seems unbearable at times and it is such a relief to be able to hear all of your stories and share mine.

i have secondary v, meaning there was a time in my life where i experienced pain free sex. this period was only about 6 months, when i was with my first proper boyfriend. after six months of love and happiness, i got my first UTI infection. this turned into a recurrent thing, where i experienced an infection every 2 weeks or so for a number of months. this was at times excruciating (definitely intensified by drinking white wine and caffeine so avoid these if you have UTI's) but when the infections died down i still continued to have sex with my partner. a few months later, sex suddenly became always painful, to the point that i could no longer do it. it seemed the infections had traumatised the area - has anyone experienced this as the 'cause' for the start of their condition?
i went through unbelievable hell - so many doctors who were complete unsympathetic assholes, close to zero support from family and confusion from friends, my only support was my partner. i came close to losing it with a friend once who exclaimed frustratingly 'oh man i just want to have sex!! its been two months, oh my godddddd'. i wanted to scream, i irrationally hated her, having not slept with my boyfriend for over 18 months out of pure terror for the pain it would cause me.

i was officially diagnosed by a physiotherapist who specialised in vulval conditions, and she has been an amazing support. i was on endep 50mg p/d for 3 and half years until recently where i decided to go off it because the drowsy symptoms drove me completely crazy. i am now on no medication as i desperately want to believe i can heal naturally. i feel like I've tried so many things. i have had periods in my life where i have had mostly pain free sex with partners and felt relatively happy and calm about it, even that it might be getting better.
for the first time since my diagnosis, i am completely single and alone with this condition. now all these new symptoms are arising. i feel itchy, sore and uncomfortable on a daily basis but it isn't thrush or any sort of std. my skin is red and irritated but the pain seems separate to the vulvodynia, like a different problem. i have read bits and pieces about lichen sclerosis and am absolutely terrified that i have that as well, another incurable disease. has anyone experience these sorts of symptoms? some days i can't bear this, it seems like i could cry for hours, get drunk, stoned, do other things i love, be successful in other ways, and yet still i can't get past it.

other days i feel like maybe its all gonna be okay. i want to stay thank you to all the amazing strong women out there. honestly, i feel connected to you all. it is such horror that we have to go through this, it seems so ridiculous.
so pointless.
i live in melbourne, australia. i would love to meet other melbournians out there who have v. thanks for listening.

lauramw

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Re: overwhelmed with gratitude at finding this forum -here's my story

Post  Sarah001 on Sat Dec 08, 2012 2:07 pm

Hi Laura, welcome to our forum! I was going to say to you that UTIs can make the pelvic floor spasm which in turn can cause V but I see later in your post you're seeing a physiotherapist, has she established whether your pelvic floor is tight? As for the itching, some women on here do have it as part of their symptoms and it isn't necessarily a skin condition it can be part of the same problem. You could ask to be referred to a vulval dermatologist through to rule skin conditions out if you're worried. I would guess it's not as you didn't have it when your symptoms started, I would guess it's a natural progression of the original problem. I think alot of women start with a UTI or what feels like one, I started with provoked only which went on for a couple of years and wasn't a big problem for me (it was very mild) then woke up one day feeling like I had a cross between a yeast infection and a UTI. I assume you had your urine checked to confirm it was a UTI on each occasion? Sometimes a tight pelvic floor can give symptoms very close to a UTI when there is no infection present.

I'd be interested to hear what your physio's findings are and how she's treating you, the irritated feeling can easily be part of the pelvic floor picture. If you haven't already I'd advise reading "When Sex Hurts" which is a really good book to establish cause and "Heal Pelvic Pain" by Amy Stein is a good one for the physio angle too. Both are inexpensive and available online.

Anyway welcome!
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Sarah001

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Re: overwhelmed with gratitude at finding this forum -here's my story

Post  Karen818 on Fri Dec 14, 2012 7:43 am

My vulvodyniq began just like yours and just like you I have had periods of great love making, but then it always goes away after a while and the horrid pain comes back and tortures me :/ I don't have support from family because they don't know that I have had sex and my friends have NO idea what my condition is! Sometimes i think to myself what have i done to deserve this Sad I can't afford doctors as I am a young student with a part time job so doctors are unaffordable Sad the only thing I have tried that helps with that irritation specially on my period days when the pad puts my vulva on fire is a cream specially designed for vulvadynia, it's called "neogyn" and it helps, of course doesn't cure but helps, coconut oil is also very soothing try them out...just stay positive and hope that one day there will be a cure to this sad and unfair disorder

Karen818

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Re: overwhelmed with gratitude at finding this forum -here's my story

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