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    » Had this for 5 years, looking for people who understand
    Sun Nov 18, 2018 11:22 pm by srbry

    » IMPORTANT FOR UK SUFFERERS
    Sun Nov 18, 2018 8:42 pm by srbry

    » Found relief after more than 15 years of pain!
    Thu Oct 25, 2018 4:29 pm by AlwaysInPain

    » Back pain, burning feet and vulvodynia....all related?
    Sat Oct 20, 2018 3:50 am by lindsey_taylor

    » Anyone have pain with urination?
    Thu Oct 18, 2018 9:55 am by Gaby

    » New member - just looking for feedback
    Mon Oct 15, 2018 5:40 pm by mertzwl

    » Will I ever be able to wear jeans?
    Sun Oct 14, 2018 4:14 pm by Npage14

    » Amitriptyline Success and new-found love
    Thu Oct 11, 2018 8:29 pm by megaanx

    » Diagnosed recently, looking for advice
    Wed Oct 10, 2018 2:30 pm by wuhujen

    Had this for 5 years, looking for people who understand

    Sat Oct 06, 2018 9:46 pm by blackberrie

    Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

    Comments: 3

    Anyone have pain with urination?

    Tue Oct 16, 2018 2:35 pm by mertzwl

    Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

    I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

    Comments: 6

    Diagnosed recently, looking for advice

    Sun Sep 02, 2018 12:51 am by Cloudberry

    Hi everyone,

    I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

    I’m a woman in my late 20s. Before getting diagnosed …

    Comments: 4

    From a concerned husband

    Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

    Hello everyone,

    This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

    I’m sure a lot …

    Comments: 4

    6 year sufferer but I’ve found some hope

    Wed Oct 10, 2018 1:33 am by Npage14

    Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

    Comments: 0

    Hurting, Burning, Itching, and Worn Out

    Thu Aug 09, 2018 10:55 pm by donnambr

    This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

    Comments: 5

    Hi girls! New in this forum

    Fri Jul 13, 2018 2:31 pm by Gaby

    Hi everyone!

    Also joining the V club, Here my story:

    It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

    Comments: 1

    Newbie and feeling helpless

    Wed Jul 11, 2018 1:52 pm by Taylor1

    Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

    Comments: 3

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 6


    What worked for me.

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    What worked for me.

    Post  bhaukti on Tue Dec 11, 2012 9:21 pm

    Hi, I had suffered from vulvodynia for over 10 years. After several bladder infections and a few episodes of yeast it then became apparent later that I had a chronic pain with intercourse that then later became a debilitating almost full time stinging,rawness that consumed my life. I tryed everything you can imagine and spent a whole lot of money and time looking for answers and like many here thought of suicide many times because nothing worked and the pain was so unrelenting for so long and I wasn't able to function well anymore. Finally by accident I went back to something an alternative M.D gave me for my health in general, as he tested my hair and said I had too high copper and some mercury and thought that taking NAC,C and spirulina would slowly take these heavy metals out. I only did this for a short time and moved on to other things like acupunture ect. Years later I thought maybe I would do it again and to my surprise I found that this practically 24/7 discomfort would go away in about 4 hours after taking this combo (NAC 600mgs, Vit.C 2,000mgs and spirulina) all pretty cheap supplements from my local vitamin shop. Right now I very rarely need to take the combo as I took it daily for a year and then felt that after I read that NAC can not only take out heavy metals but also good minerals that I needed to back off and take some minerals. But I found that the burning didn't come back and if I felt something I just take it once and then it seems to go away for a long time now a days. I know of two women who tryed this also and got the same relief as me,,,so if anyone is in constant pain like I was I think it's worth a try. And I want to add that the only negative side effects of taking this combo is that over a long period you can deplete some good minerals, so you need to supplement with a mineral complex and also you need to take NAC with 3 times the amount of vitamin C. flower

    bhaukti

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    Re: What worked for me.

    Post  sablenicoise on Tue Aug 13, 2013 9:06 am

    hello
    can you please tell me if you took NAC 600mg, Vitamin C 2000 mg and Spirulin 3 capules all at once or did you take them fractioned, like 600mg Vitamin C in the morning, 600 at lunch and 600 at evening and 1 capsule of Spirulin in the morning, lunch and evening? (as far as for NAC i noticed that it is in 600 mg dose so i assume that couldn't be fractioned)
    i already take this combination of meds for about a week and don t feel better but i took them as follows :
    morning- vitamin c 600 mg, 1 spirulin
    lunch- vitamin c- 600 mg, 1 spirulin, 1 NAC
    evening- vitamin c 600 mg, 1 spirulin
    should i try taking all 7 pills at once, because that seems a bit scary but i'm willing to try anything!
    thanks a lot!

    sablenicoise

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    Re: What worked for me.

    Post  Alana3 on Tue Aug 13, 2013 2:10 pm

    Be aware you can take too much vitamin c and you'll eventually just pee it all out...

    Alana3

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    Re: What worked for me.

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