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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


new member

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new member

Post  JW2012 on Sat Dec 15, 2012 2:54 am

Hello everyone!

So happy to have found this forum. I have hardly told anyone what I am going through and when I do, no one quite gets it.

This whole thing started almost a year ago now. I have never told anyone, even my doctors, how it happened. I went on a trip to Vegas, drank to much and was sexually assaulted basically. I was in some pain down there like the man injured me. The next day I went swimming and fell asleep in my swimsuit, woke up and felt this awful awful burning. I was sure I was getting herpies.

I became obsessed with checking myself all of the time. The pain was unbearable so I knew there was something wrong. I went to my gyno, in tears and she was a bit rude. Said herpies was not a big deal at all. Well I thought if it feels like this it is a HUGE deal. She checked me out and said she was sure that was not it. I was treated for a yeast infection like many others. She did a test for herpies anyway, both swab and blood because my whole vulva looked raw and irritated. It came back negative but the pain came back in full force.

I went back to see another gyno because mine was unavailable. So happy because she was a life saver. She examined me, had another gynecologist look as well as a dermatologist. They could see that it was very irritated and that it didn't look like an STD. Tested me again and came back clean. Ointments did not help so they sent me to a pelvic pain clinic that is special to my hospital. So blessed and lucky to have had these specialists at my local doctor's office.

Now I am going to PT with a therapist that is amazing. She also suffers from similar issues so she actually understands what I am going through. They say my muscles are extremely tight. They aren't sure why. I assume it was the injury mixed with chlorine and possible yeast infection from swimming. Not quite sure. Maybe a mix of things. The PT is not relaxing the muscles as much as hoped so I am going for a botox treatment in january. My doctor also suggests a nerve block but I am nervous for that so just going for botox first. Has anyone had either one? What was it like? Did they put you to sleep?

Overall I am happy because the pain i felt for the first 4-5 months was unbearable. I thought about and contemplated suicide daily. My work and school suffered. I am in a much better place now. It still is irritating and the pain comes and goes but nothing like what i originally experienced. I have a fear that it may one day return to what it was, especially if I attempt to have sex. I guess I have to take it one day at a time and deal with that day if it comes.

Sorry this is so long! Needed to share my situation with someone.

JW2012

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Join date : 2012-12-12

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Re: new member

Post  cba321 on Sat Dec 15, 2012 5:21 am

Hi,
I'm glad to hear you have found some good help.

I have done the botox treatment. I had my injection in Aug this year. It has helped heaps, the muscle pain is gone, i'm just left with nerve sensitivity. I have had to do a lot of dialator work post the botox, but I am now up to the largest dialator 45mins a day. Whether my ability to use that large dialator post botox remains, we will see!

I was put to sleep for the injections, it was painful for a day and then it was gone. It felt very weird to run for a bit, but that is now gone as well.

Overall has been a good experience so far...

cba321

Posts : 69
Join date : 2012-07-14

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