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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


new member

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new member

Post  JW2012 on Sat Dec 15, 2012 2:54 am

Hello everyone!

So happy to have found this forum. I have hardly told anyone what I am going through and when I do, no one quite gets it.

This whole thing started almost a year ago now. I have never told anyone, even my doctors, how it happened. I went on a trip to Vegas, drank to much and was sexually assaulted basically. I was in some pain down there like the man injured me. The next day I went swimming and fell asleep in my swimsuit, woke up and felt this awful awful burning. I was sure I was getting herpies.

I became obsessed with checking myself all of the time. The pain was unbearable so I knew there was something wrong. I went to my gyno, in tears and she was a bit rude. Said herpies was not a big deal at all. Well I thought if it feels like this it is a HUGE deal. She checked me out and said she was sure that was not it. I was treated for a yeast infection like many others. She did a test for herpies anyway, both swab and blood because my whole vulva looked raw and irritated. It came back negative but the pain came back in full force.

I went back to see another gyno because mine was unavailable. So happy because she was a life saver. She examined me, had another gynecologist look as well as a dermatologist. They could see that it was very irritated and that it didn't look like an STD. Tested me again and came back clean. Ointments did not help so they sent me to a pelvic pain clinic that is special to my hospital. So blessed and lucky to have had these specialists at my local doctor's office.

Now I am going to PT with a therapist that is amazing. She also suffers from similar issues so she actually understands what I am going through. They say my muscles are extremely tight. They aren't sure why. I assume it was the injury mixed with chlorine and possible yeast infection from swimming. Not quite sure. Maybe a mix of things. The PT is not relaxing the muscles as much as hoped so I am going for a botox treatment in january. My doctor also suggests a nerve block but I am nervous for that so just going for botox first. Has anyone had either one? What was it like? Did they put you to sleep?

Overall I am happy because the pain i felt for the first 4-5 months was unbearable. I thought about and contemplated suicide daily. My work and school suffered. I am in a much better place now. It still is irritating and the pain comes and goes but nothing like what i originally experienced. I have a fear that it may one day return to what it was, especially if I attempt to have sex. I guess I have to take it one day at a time and deal with that day if it comes.

Sorry this is so long! Needed to share my situation with someone.

JW2012

Posts : 5
Join date : 2012-12-12

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Re: new member

Post  cba321 on Sat Dec 15, 2012 5:21 am

Hi,
I'm glad to hear you have found some good help.

I have done the botox treatment. I had my injection in Aug this year. It has helped heaps, the muscle pain is gone, i'm just left with nerve sensitivity. I have had to do a lot of dialator work post the botox, but I am now up to the largest dialator 45mins a day. Whether my ability to use that large dialator post botox remains, we will see!

I was put to sleep for the injections, it was painful for a day and then it was gone. It felt very weird to run for a bit, but that is now gone as well.

Overall has been a good experience so far...

cba321

Posts : 69
Join date : 2012-07-14

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