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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


new member

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new member

Post  JW2012 on Sat Dec 15, 2012 2:54 am

Hello everyone!

So happy to have found this forum. I have hardly told anyone what I am going through and when I do, no one quite gets it.

This whole thing started almost a year ago now. I have never told anyone, even my doctors, how it happened. I went on a trip to Vegas, drank to much and was sexually assaulted basically. I was in some pain down there like the man injured me. The next day I went swimming and fell asleep in my swimsuit, woke up and felt this awful awful burning. I was sure I was getting herpies.

I became obsessed with checking myself all of the time. The pain was unbearable so I knew there was something wrong. I went to my gyno, in tears and she was a bit rude. Said herpies was not a big deal at all. Well I thought if it feels like this it is a HUGE deal. She checked me out and said she was sure that was not it. I was treated for a yeast infection like many others. She did a test for herpies anyway, both swab and blood because my whole vulva looked raw and irritated. It came back negative but the pain came back in full force.

I went back to see another gyno because mine was unavailable. So happy because she was a life saver. She examined me, had another gynecologist look as well as a dermatologist. They could see that it was very irritated and that it didn't look like an STD. Tested me again and came back clean. Ointments did not help so they sent me to a pelvic pain clinic that is special to my hospital. So blessed and lucky to have had these specialists at my local doctor's office.

Now I am going to PT with a therapist that is amazing. She also suffers from similar issues so she actually understands what I am going through. They say my muscles are extremely tight. They aren't sure why. I assume it was the injury mixed with chlorine and possible yeast infection from swimming. Not quite sure. Maybe a mix of things. The PT is not relaxing the muscles as much as hoped so I am going for a botox treatment in january. My doctor also suggests a nerve block but I am nervous for that so just going for botox first. Has anyone had either one? What was it like? Did they put you to sleep?

Overall I am happy because the pain i felt for the first 4-5 months was unbearable. I thought about and contemplated suicide daily. My work and school suffered. I am in a much better place now. It still is irritating and the pain comes and goes but nothing like what i originally experienced. I have a fear that it may one day return to what it was, especially if I attempt to have sex. I guess I have to take it one day at a time and deal with that day if it comes.

Sorry this is so long! Needed to share my situation with someone.

JW2012

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Join date : 2012-12-12

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Re: new member

Post  cba321 on Sat Dec 15, 2012 5:21 am

Hi,
I'm glad to hear you have found some good help.

I have done the botox treatment. I had my injection in Aug this year. It has helped heaps, the muscle pain is gone, i'm just left with nerve sensitivity. I have had to do a lot of dialator work post the botox, but I am now up to the largest dialator 45mins a day. Whether my ability to use that large dialator post botox remains, we will see!

I was put to sleep for the injections, it was painful for a day and then it was gone. It felt very weird to run for a bit, but that is now gone as well.

Overall has been a good experience so far...

cba321

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