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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

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BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  Cambria on Wed Dec 19, 2012 5:27 pm

LADIES AVOID HOT TUBS AT ALL COST!!!

I have V and last Thursday I stupidly went in a hot tub/jacuzzi thinking it would help relax me. How wrong I was!!!! I was in the hot tub for about 45 mins and straight after had a quick shower to flush the area. Felt fine until a couple of hours later when I started feeling really sore, more sore than usual like a stinging rawness. Got home and got in the bath to try and flush the area some more. Next day still felt this raw kind of soreness which is worse than my normal v. Saturday still feeling the same, but went out shopping all day and drank plenty of water. Then Sunday, started to get worse. I was sitting on frozen peas and alternating with a hot water bottle every 5 mins or so, which seemed to help at the time. Monday the soreness was so bad I didn't go to work. Tuesday (yesterday) I attempted to go into work but was sent home as could not sit down or walk properly I was so sore! Got an emergency appointment with my GP that night who said the chlorine has probably irritated the nerve endings and could take weeks if not months to settle down. She has given me 1% HC cream but I put it on last night and it stung the entire night. Not sure whether this is normal? I am also massaging emulsifying ointment into the area and having tepid baths. I asked my doctor why it was getting worse and she didn't know why! The entire area is red raw!!! Labia menora, labia minora, clitoris, vulva, vaginal entrance you name it!!! Its blood red!!!! I have never had pain in my labia menora before, so I know this is something to do with the Chlorine as it is the only thing I did different but I can't even wear pants! I'm also on my period but can't wear anything cause it's that sore!!

Please, has anyone else had a reaction like this and if so, what did they do the relieve the symptoms??? How long did it last?? I'm going out of my mind and it's all my fault for going in the hot tub!!!! No

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  Sarah001 on Wed Dec 19, 2012 6:35 pm

I sometimes get like this after too much sitting or certain clothes and what I do is mix the 1% hydrocortisone cream with vaseline and apply that for a few days but it is worth trying a test patch seeing as you're so raw. It might be the area is burnt and that would likely mean applying nothing for a while to let it calm down. Maybe backing off from all topical treatments and giving it a while might be the only suitable option. Sorry not to be more helpful and hopefully it will soon settle back down.
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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  Alana3 on Wed Dec 19, 2012 8:15 pm

maybe try ice?

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  angrybird84 on Thu Dec 20, 2012 9:17 pm

Ice works for me. I'd leave it on all day!

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  evanrude on Fri Dec 21, 2012 5:58 am

The best thing that has worked for me is Aquaphor ointment. It does not irratate me at all. I put in on everday after I shower. It helps soothes that area and helps when I'm sitting or wearing pants.
I hope you heal and your pain goes away soon.

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  JW2012 on Wed Dec 26, 2012 7:36 am

This is interesting to me because my V started after spending the day in a hot tub and swimming pool. I refuse to go into a pool or hot tub now. Thanks for letting me know it isn't just me!

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

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