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» Vulvodynia is a secret
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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

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BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  Cambria on Wed Dec 19, 2012 5:27 pm

LADIES AVOID HOT TUBS AT ALL COST!!!

I have V and last Thursday I stupidly went in a hot tub/jacuzzi thinking it would help relax me. How wrong I was!!!! I was in the hot tub for about 45 mins and straight after had a quick shower to flush the area. Felt fine until a couple of hours later when I started feeling really sore, more sore than usual like a stinging rawness. Got home and got in the bath to try and flush the area some more. Next day still felt this raw kind of soreness which is worse than my normal v. Saturday still feeling the same, but went out shopping all day and drank plenty of water. Then Sunday, started to get worse. I was sitting on frozen peas and alternating with a hot water bottle every 5 mins or so, which seemed to help at the time. Monday the soreness was so bad I didn't go to work. Tuesday (yesterday) I attempted to go into work but was sent home as could not sit down or walk properly I was so sore! Got an emergency appointment with my GP that night who said the chlorine has probably irritated the nerve endings and could take weeks if not months to settle down. She has given me 1% HC cream but I put it on last night and it stung the entire night. Not sure whether this is normal? I am also massaging emulsifying ointment into the area and having tepid baths. I asked my doctor why it was getting worse and she didn't know why! The entire area is red raw!!! Labia menora, labia minora, clitoris, vulva, vaginal entrance you name it!!! Its blood red!!!! I have never had pain in my labia menora before, so I know this is something to do with the Chlorine as it is the only thing I did different but I can't even wear pants! I'm also on my period but can't wear anything cause it's that sore!!

Please, has anyone else had a reaction like this and if so, what did they do the relieve the symptoms??? How long did it last?? I'm going out of my mind and it's all my fault for going in the hot tub!!!! No

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  Sarah001 on Wed Dec 19, 2012 6:35 pm

I sometimes get like this after too much sitting or certain clothes and what I do is mix the 1% hydrocortisone cream with vaseline and apply that for a few days but it is worth trying a test patch seeing as you're so raw. It might be the area is burnt and that would likely mean applying nothing for a while to let it calm down. Maybe backing off from all topical treatments and giving it a while might be the only suitable option. Sorry not to be more helpful and hopefully it will soon settle back down.
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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  Alana3 on Wed Dec 19, 2012 8:15 pm

maybe try ice?

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  angrybird84 on Thu Dec 20, 2012 9:17 pm

Ice works for me. I'd leave it on all day!

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  evanrude on Fri Dec 21, 2012 5:58 am

The best thing that has worked for me is Aquaphor ointment. It does not irratate me at all. I put in on everday after I shower. It helps soothes that area and helps when I'm sitting or wearing pants.
I hope you heal and your pain goes away soon.

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  JW2012 on Wed Dec 26, 2012 7:36 am

This is interesting to me because my V started after spending the day in a hot tub and swimming pool. I refuse to go into a pool or hot tub now. Thanks for letting me know it isn't just me!

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

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