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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

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BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  Cambria on Wed Dec 19, 2012 5:27 pm

LADIES AVOID HOT TUBS AT ALL COST!!!

I have V and last Thursday I stupidly went in a hot tub/jacuzzi thinking it would help relax me. How wrong I was!!!! I was in the hot tub for about 45 mins and straight after had a quick shower to flush the area. Felt fine until a couple of hours later when I started feeling really sore, more sore than usual like a stinging rawness. Got home and got in the bath to try and flush the area some more. Next day still felt this raw kind of soreness which is worse than my normal v. Saturday still feeling the same, but went out shopping all day and drank plenty of water. Then Sunday, started to get worse. I was sitting on frozen peas and alternating with a hot water bottle every 5 mins or so, which seemed to help at the time. Monday the soreness was so bad I didn't go to work. Tuesday (yesterday) I attempted to go into work but was sent home as could not sit down or walk properly I was so sore! Got an emergency appointment with my GP that night who said the chlorine has probably irritated the nerve endings and could take weeks if not months to settle down. She has given me 1% HC cream but I put it on last night and it stung the entire night. Not sure whether this is normal? I am also massaging emulsifying ointment into the area and having tepid baths. I asked my doctor why it was getting worse and she didn't know why! The entire area is red raw!!! Labia menora, labia minora, clitoris, vulva, vaginal entrance you name it!!! Its blood red!!!! I have never had pain in my labia menora before, so I know this is something to do with the Chlorine as it is the only thing I did different but I can't even wear pants! I'm also on my period but can't wear anything cause it's that sore!!

Please, has anyone else had a reaction like this and if so, what did they do the relieve the symptoms??? How long did it last?? I'm going out of my mind and it's all my fault for going in the hot tub!!!! No

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  Sarah001 on Wed Dec 19, 2012 6:35 pm

I sometimes get like this after too much sitting or certain clothes and what I do is mix the 1% hydrocortisone cream with vaseline and apply that for a few days but it is worth trying a test patch seeing as you're so raw. It might be the area is burnt and that would likely mean applying nothing for a while to let it calm down. Maybe backing off from all topical treatments and giving it a while might be the only suitable option. Sorry not to be more helpful and hopefully it will soon settle back down.
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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  Alana3 on Wed Dec 19, 2012 8:15 pm

maybe try ice?

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  angrybird84 on Thu Dec 20, 2012 9:17 pm

Ice works for me. I'd leave it on all day!

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  evanrude on Fri Dec 21, 2012 5:58 am

The best thing that has worked for me is Aquaphor ointment. It does not irratate me at all. I put in on everday after I shower. It helps soothes that area and helps when I'm sitting or wearing pants.
I hope you heal and your pain goes away soon.

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  JW2012 on Wed Dec 26, 2012 7:36 am

This is interesting to me because my V started after spending the day in a hot tub and swimming pool. I refuse to go into a pool or hot tub now. Thanks for letting me know it isn't just me!

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

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