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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

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BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  Cambria on Wed Dec 19, 2012 5:27 pm

LADIES AVOID HOT TUBS AT ALL COST!!!

I have V and last Thursday I stupidly went in a hot tub/jacuzzi thinking it would help relax me. How wrong I was!!!! I was in the hot tub for about 45 mins and straight after had a quick shower to flush the area. Felt fine until a couple of hours later when I started feeling really sore, more sore than usual like a stinging rawness. Got home and got in the bath to try and flush the area some more. Next day still felt this raw kind of soreness which is worse than my normal v. Saturday still feeling the same, but went out shopping all day and drank plenty of water. Then Sunday, started to get worse. I was sitting on frozen peas and alternating with a hot water bottle every 5 mins or so, which seemed to help at the time. Monday the soreness was so bad I didn't go to work. Tuesday (yesterday) I attempted to go into work but was sent home as could not sit down or walk properly I was so sore! Got an emergency appointment with my GP that night who said the chlorine has probably irritated the nerve endings and could take weeks if not months to settle down. She has given me 1% HC cream but I put it on last night and it stung the entire night. Not sure whether this is normal? I am also massaging emulsifying ointment into the area and having tepid baths. I asked my doctor why it was getting worse and she didn't know why! The entire area is red raw!!! Labia menora, labia minora, clitoris, vulva, vaginal entrance you name it!!! Its blood red!!!! I have never had pain in my labia menora before, so I know this is something to do with the Chlorine as it is the only thing I did different but I can't even wear pants! I'm also on my period but can't wear anything cause it's that sore!!

Please, has anyone else had a reaction like this and if so, what did they do the relieve the symptoms??? How long did it last?? I'm going out of my mind and it's all my fault for going in the hot tub!!!! No

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  Sarah001 on Wed Dec 19, 2012 6:35 pm

I sometimes get like this after too much sitting or certain clothes and what I do is mix the 1% hydrocortisone cream with vaseline and apply that for a few days but it is worth trying a test patch seeing as you're so raw. It might be the area is burnt and that would likely mean applying nothing for a while to let it calm down. Maybe backing off from all topical treatments and giving it a while might be the only suitable option. Sorry not to be more helpful and hopefully it will soon settle back down.
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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  Alana3 on Wed Dec 19, 2012 8:15 pm

maybe try ice?

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  angrybird84 on Thu Dec 20, 2012 9:17 pm

Ice works for me. I'd leave it on all day!

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  evanrude on Fri Dec 21, 2012 5:58 am

The best thing that has worked for me is Aquaphor ointment. It does not irratate me at all. I put in on everday after I shower. It helps soothes that area and helps when I'm sitting or wearing pants.
I hope you heal and your pain goes away soon.

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

Post  JW2012 on Wed Dec 26, 2012 7:36 am

This is interesting to me because my V started after spending the day in a hot tub and swimming pool. I refuse to go into a pool or hot tub now. Thanks for letting me know it isn't just me!

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Re: BAD REACTION TO CHLORINE IN A HOT TUB!!! PLEASE HELP!!!

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