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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Lifelong sufferer and new member -- need advice/support

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Lifelong sufferer and new member -- need advice/support

Post  huigensa on Sun Dec 23, 2012 12:35 am

Hello everybody,
I've never written in a forum like this before, so I'm not quite sure how this goes. I guess I'll start with my background so that I can reach out to anyone who's like me and has found relief.
I have localized pain that only happens when it's provoked by some kind of penetration, whether it be a finger, penis or a tampon. My clitoris only feels pain when it's touched directly, as long as just the hood is stroked I'm fine. Semen also leaves me with a severe stinging sensation, but I've heard that this is relatively normal. My vagina has been this way for as long as I can remember. I started having sex with men when I was fifteen and continued to do so for about three years until I admitted the pain to myself and to my female partner at the time. I thought that I was normal and that that was the reason why women screamed in porn/movies. I thought I was feeling the intensity in a normal way because I never talked about it.
Since then, I've been very honest with my sexual partners who have, thankfully, been very understanding and patient. I wish I could find the right word to describe the emotional and mental pain that go along with this condition. Penetration always hurts at the beginning, but sometimes it can almost completely go away if I'm wet enough and I have orgasms regularly, but the mental stress is always there no matter what. I long to be close to my partners, but sex just makes me sick to my stomach at this point. I feel very anxious, depressed, frustrated and scared after (and sometimes during) intercourse, whether it be with a man or a woman. I cry after sex regularly, and have had to throw up on multiple occasions. I feel totally isolated and lonely even when I'm with someone who is very loving and supportive. Everyone on this forum seems really upbeat and humorous, so I'm sorry for being such a drag, but I just don't know what to do anymore.
I've tried talking to a counselor at school (I'm a college student in Wisconsin) but it didn't do much good. After three sessions of me talking about this chronic problem, he suggested that I "might just be too small." My gynecologist gave me lidocaine, but it just stung terribly and numbed me to a pointless extent. I was just wondering if therapy has worked for anyone who feels the same as me, and if there is such a thing as vulvadynia specialists. Or if someone knows any holistic remedies that work to lessen pain. I don't really like the idea of numbing medication, but I'm probably just being too picky.
Thanks for reading this, I would really appreciate any feedback.


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Location : WI, USA

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Re: Lifelong sufferer and new member -- need advice/support

Post  cba321 on Tue Dec 25, 2012 5:34 am

Hi huigensa

I know exactly how you feel, gone through a similar thing. If you haven't seen a physiotherapist I would really recommend doing that. Only go to a physio who specialises in pelvic floor disorders, pain disorders if possible - google search for one in your area. I have also tried Chiro which has helped a small amount with nerve sensitivity as I don't want to take pain/nerve tablets for that.

Take care xoxox


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