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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Lifelong sufferer and new member -- need advice/support

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Lifelong sufferer and new member -- need advice/support

Post  huigensa on Sun Dec 23, 2012 12:35 am

Hello everybody,
I've never written in a forum like this before, so I'm not quite sure how this goes. I guess I'll start with my background so that I can reach out to anyone who's like me and has found relief.
I have localized pain that only happens when it's provoked by some kind of penetration, whether it be a finger, penis or a tampon. My clitoris only feels pain when it's touched directly, as long as just the hood is stroked I'm fine. Semen also leaves me with a severe stinging sensation, but I've heard that this is relatively normal. My vagina has been this way for as long as I can remember. I started having sex with men when I was fifteen and continued to do so for about three years until I admitted the pain to myself and to my female partner at the time. I thought that I was normal and that that was the reason why women screamed in porn/movies. I thought I was feeling the intensity in a normal way because I never talked about it.
Since then, I've been very honest with my sexual partners who have, thankfully, been very understanding and patient. I wish I could find the right word to describe the emotional and mental pain that go along with this condition. Penetration always hurts at the beginning, but sometimes it can almost completely go away if I'm wet enough and I have orgasms regularly, but the mental stress is always there no matter what. I long to be close to my partners, but sex just makes me sick to my stomach at this point. I feel very anxious, depressed, frustrated and scared after (and sometimes during) intercourse, whether it be with a man or a woman. I cry after sex regularly, and have had to throw up on multiple occasions. I feel totally isolated and lonely even when I'm with someone who is very loving and supportive. Everyone on this forum seems really upbeat and humorous, so I'm sorry for being such a drag, but I just don't know what to do anymore.
I've tried talking to a counselor at school (I'm a college student in Wisconsin) but it didn't do much good. After three sessions of me talking about this chronic problem, he suggested that I "might just be too small." My gynecologist gave me lidocaine, but it just stung terribly and numbed me to a pointless extent. I was just wondering if therapy has worked for anyone who feels the same as me, and if there is such a thing as vulvadynia specialists. Or if someone knows any holistic remedies that work to lessen pain. I don't really like the idea of numbing medication, but I'm probably just being too picky.
Thanks for reading this, I would really appreciate any feedback.

huigensa

Posts : 7
Join date : 2012-12-23
Location : WI, USA

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Re: Lifelong sufferer and new member -- need advice/support

Post  cba321 on Tue Dec 25, 2012 5:34 am

Hi huigensa

I know exactly how you feel, gone through a similar thing. If you haven't seen a physiotherapist I would really recommend doing that. Only go to a physio who specialises in pelvic floor disorders, pain disorders if possible - google search for one in your area. I have also tried Chiro which has helped a small amount with nerve sensitivity as I don't want to take pain/nerve tablets for that.

Take care xoxox

cba321

Posts : 69
Join date : 2012-07-14

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