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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Lifelong sufferer and new member -- need advice/support

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Lifelong sufferer and new member -- need advice/support

Post  huigensa on Sun Dec 23, 2012 12:35 am

Hello everybody,
I've never written in a forum like this before, so I'm not quite sure how this goes. I guess I'll start with my background so that I can reach out to anyone who's like me and has found relief.
I have localized pain that only happens when it's provoked by some kind of penetration, whether it be a finger, penis or a tampon. My clitoris only feels pain when it's touched directly, as long as just the hood is stroked I'm fine. Semen also leaves me with a severe stinging sensation, but I've heard that this is relatively normal. My vagina has been this way for as long as I can remember. I started having sex with men when I was fifteen and continued to do so for about three years until I admitted the pain to myself and to my female partner at the time. I thought that I was normal and that that was the reason why women screamed in porn/movies. I thought I was feeling the intensity in a normal way because I never talked about it.
Since then, I've been very honest with my sexual partners who have, thankfully, been very understanding and patient. I wish I could find the right word to describe the emotional and mental pain that go along with this condition. Penetration always hurts at the beginning, but sometimes it can almost completely go away if I'm wet enough and I have orgasms regularly, but the mental stress is always there no matter what. I long to be close to my partners, but sex just makes me sick to my stomach at this point. I feel very anxious, depressed, frustrated and scared after (and sometimes during) intercourse, whether it be with a man or a woman. I cry after sex regularly, and have had to throw up on multiple occasions. I feel totally isolated and lonely even when I'm with someone who is very loving and supportive. Everyone on this forum seems really upbeat and humorous, so I'm sorry for being such a drag, but I just don't know what to do anymore.
I've tried talking to a counselor at school (I'm a college student in Wisconsin) but it didn't do much good. After three sessions of me talking about this chronic problem, he suggested that I "might just be too small." My gynecologist gave me lidocaine, but it just stung terribly and numbed me to a pointless extent. I was just wondering if therapy has worked for anyone who feels the same as me, and if there is such a thing as vulvadynia specialists. Or if someone knows any holistic remedies that work to lessen pain. I don't really like the idea of numbing medication, but I'm probably just being too picky.
Thanks for reading this, I would really appreciate any feedback.


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Location : WI, USA

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Re: Lifelong sufferer and new member -- need advice/support

Post  cba321 on Tue Dec 25, 2012 5:34 am

Hi huigensa

I know exactly how you feel, gone through a similar thing. If you haven't seen a physiotherapist I would really recommend doing that. Only go to a physio who specialises in pelvic floor disorders, pain disorders if possible - google search for one in your area. I have also tried Chiro which has helped a small amount with nerve sensitivity as I don't want to take pain/nerve tablets for that.

Take care xoxox


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Join date : 2012-07-14

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