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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Vuvlodynia and onset

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Vuvlodynia and onset

Post  bjs156 on Wed Dec 26, 2012 10:19 pm

Hi all, new to this as well and not quite sure if im posting in the write way! But anyway, have suffered from this horrible thing for over a yr and a half, started with a new sexual partner. The thing is a had a huge reaction which all doctors and gyno thought was thrush or bacteria vaganosis, both negative. To this day i still believe i have a different discharge and smell, yet everything appears normal! Is the discharge a case for anyone else? yet a day doesnt go by where my vuvla is itchy sore burning etc.

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Re: Vuvlodynia and onset

Post  Kathye10 on Thu Feb 21, 2013 4:50 am

You may have a different type of bacteria/yeast that they didn't pick up on a normal vaginal culture. I don't know if you are still suffering (I saw your post was from last year) but call your insurance company and ask if they cover a bacterial DNA probe. It will show EVERYTHING. I wasn't showing anything on a normal culture but tested positive for 3 different types of bacteria on the DNA probe. It took 5 Dr's before one of them offered me the test. Just make sure your insurance covers it because it costs about $3,000. I still don't know how much of it my insurance covers but regardless I was glad to finally find out. Good luck!!
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Re: Vuvlodynia and onset

Post  raquelll on Thu Feb 21, 2013 8:52 am

What kind of stuff do they show on a DNA probe? Would this be useful for someone who has a lot of discharge? In my mind there is something "off" about the smell and texture of it, yet I never have bacteria or yeast either. Perhaps this is something I should ask for...

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Re: Vuvlodynia and onset

Post  jen007 on Fri Feb 22, 2013 2:13 am

I always had a lot of discharge and chronic yeast infections back when I first discovered my vulvodynia. I had a thick paste like discharge, usually white and when I had the yeast or was starting to get yeasty it would smell. One thing that helps is keeping the area clean. Not to say you ladies aren't clean, just to be even more clean than usual. Now I only use unscented ivory soap on my private areas and I use the target brand, up & up, woman's sanitary wipes. They haven't given me a problem and they smell good and keep me fresh all day. Another thing too, 100% cotton underwear! It keeps moisture away which keeps the yeast away. After doing all those things I noticed a big difference!

-Jen

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Re: Vuvlodynia and onset

Post  raquelll on Sun Feb 24, 2013 6:24 am

Is it still possible that there is yeast that is causing odor if I keep getting tested by my gynecologist for yeast and there's nothing? Even she thought there would be some yeast but then when she tested, she said there was none!

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Re: Vuvlodynia and onset

Post  Kathye10 on Sun Feb 24, 2013 7:36 am

Hi raquelll,

The DNA probe shows anything and everything possible as far as both yeast and bacteria goes. I think the regular culture shows things like candida albicans (regular yeast) gardenella (BV), group b strep, and maybe 1 or 2 others. The DNA probe shows like 5 or 6 different kinds of yeast and 10-15 types of bacteria. When I got the paperwork back, I was amazed at how many things could be living up there affraid

So to answer your last question, I'd say IF you have some form or yeast or bacteria that is not showing up on a normal culture, YES, that could be the reason for the discharge and odor. Have you tried probiotics or eating yogurt?
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Re: Vuvlodynia and onset

Post  carby148 on Mon Feb 25, 2013 6:35 am

I've always felt I've had different discharge than the average woman, although I'll never really know for sure unless I go asking or look at other women's discharge, which obviously won't be happening.

I've always had daily discharge, enough to have to change pantiliners about twice a day. I've recently had to stop wearing them as I think they contribute to my chronic yeast infections and vulva pain, but I've worn one every day since high school (I'm 26 now).

It's a burden really, because I feel like I'm constantly wiping or walking around with wet underwear. I can't imagine that's normal, as I've never met another woman who has had to deal with it like I have, unless they are just too embarrassed to talk about it.

I don't know if the odor I have down there is normal, although everyone says if it's not foul smelling, it probably is. My husband doesn't seem to mind it, so I'm assuming it's a normal vagina smell.

When my pap smears or cultures don't come up positive for any type of infection, the doctors don't say anything of concern, so I'm assuming I'm "normal," but I still think the amount of discharge I produce is abnormal.
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Re: Vuvlodynia and onset

Post  raquelll on Mon Feb 25, 2013 6:46 am

Yes, that is how I feel about the discharge! I've just given up wearing pantiliners or anything like that and have wet underwear all the time. Also, stained underwear. And yeah, nobody has ever complained about the smell or anything, but I personally am pretty sure it's not normal, even if a gynecologist has never really said anything about it. UGH vulvodynia mysteries...

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Re: Vuvlodynia and onset

Post  carby148 on Mon Feb 25, 2013 5:49 pm

raquelll wrote:Yes, that is how I feel about the discharge! I've just given up wearing pantiliners or anything like that and have wet underwear all the time. Also, stained underwear. And yeah, nobody has ever complained about the smell or anything, but I personally am pretty sure it's not normal, even if a gynecologist has never really said anything about it. UGH vulvodynia mysteries...

I feel ya. I've looked up "normal vaginal odor" and most sites say a "musky" smell, but like, what the heck does "musk" smell like?

I know for me, part of the unfavorable odor is my natural odor and sweat, so I notice a more normal smell after showering. I also blow dry my vagina after showers instead of using towels, which reduces the moisture down there and reducing the risk of bacteria from the towels.
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Re: Vuvlodynia and onset

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