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    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 19

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 1

    New member

    Sat Mar 18, 2017 7:37 pm by Lisa1627

    Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

    Comments: 12

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 3

    Recovered from Vulvodynia

    Thu May 04, 2017 9:42 pm by chancesunny

    Hey everyone,

    Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

    I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

    Comments: 2

    New here, my story and looking for advice

    Wed Apr 26, 2017 9:02 am by rachiecakes

    Hi All!

    I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

    Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

    Comments: 4

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 2

    Male visitor

    Wed Jan 18, 2017 11:19 pm by outsider

    Hello!

    I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
    So I am interested in learning more about female sexual disorders. Do young …

    Comments: 3

    New Here: Question/My Story

    Mon Apr 03, 2017 2:00 am by overit14

    Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

    This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

    Comments: 6


    Vuvlodynia and onset

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    Vuvlodynia and onset

    Post  bjs156 on Wed Dec 26, 2012 10:19 pm

    Hi all, new to this as well and not quite sure if im posting in the write way! But anyway, have suffered from this horrible thing for over a yr and a half, started with a new sexual partner. The thing is a had a huge reaction which all doctors and gyno thought was thrush or bacteria vaganosis, both negative. To this day i still believe i have a different discharge and smell, yet everything appears normal! Is the discharge a case for anyone else? yet a day doesnt go by where my vuvla is itchy sore burning etc.

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    Re: Vuvlodynia and onset

    Post  Kathye10 on Thu Feb 21, 2013 4:50 am

    You may have a different type of bacteria/yeast that they didn't pick up on a normal vaginal culture. I don't know if you are still suffering (I saw your post was from last year) but call your insurance company and ask if they cover a bacterial DNA probe. It will show EVERYTHING. I wasn't showing anything on a normal culture but tested positive for 3 different types of bacteria on the DNA probe. It took 5 Dr's before one of them offered me the test. Just make sure your insurance covers it because it costs about $3,000. I still don't know how much of it my insurance covers but regardless I was glad to finally find out. Good luck!!
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    Re: Vuvlodynia and onset

    Post  raquelll on Thu Feb 21, 2013 8:52 am

    What kind of stuff do they show on a DNA probe? Would this be useful for someone who has a lot of discharge? In my mind there is something "off" about the smell and texture of it, yet I never have bacteria or yeast either. Perhaps this is something I should ask for...

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    Re: Vuvlodynia and onset

    Post  jen007 on Fri Feb 22, 2013 2:13 am

    I always had a lot of discharge and chronic yeast infections back when I first discovered my vulvodynia. I had a thick paste like discharge, usually white and when I had the yeast or was starting to get yeasty it would smell. One thing that helps is keeping the area clean. Not to say you ladies aren't clean, just to be even more clean than usual. Now I only use unscented ivory soap on my private areas and I use the target brand, up & up, woman's sanitary wipes. They haven't given me a problem and they smell good and keep me fresh all day. Another thing too, 100% cotton underwear! It keeps moisture away which keeps the yeast away. After doing all those things I noticed a big difference!

    -Jen

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    Re: Vuvlodynia and onset

    Post  raquelll on Sun Feb 24, 2013 6:24 am

    Is it still possible that there is yeast that is causing odor if I keep getting tested by my gynecologist for yeast and there's nothing? Even she thought there would be some yeast but then when she tested, she said there was none!

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    Re: Vuvlodynia and onset

    Post  Kathye10 on Sun Feb 24, 2013 7:36 am

    Hi raquelll,

    The DNA probe shows anything and everything possible as far as both yeast and bacteria goes. I think the regular culture shows things like candida albicans (regular yeast) gardenella (BV), group b strep, and maybe 1 or 2 others. The DNA probe shows like 5 or 6 different kinds of yeast and 10-15 types of bacteria. When I got the paperwork back, I was amazed at how many things could be living up there affraid

    So to answer your last question, I'd say IF you have some form or yeast or bacteria that is not showing up on a normal culture, YES, that could be the reason for the discharge and odor. Have you tried probiotics or eating yogurt?
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    Re: Vuvlodynia and onset

    Post  carby148 on Mon Feb 25, 2013 6:35 am

    I've always felt I've had different discharge than the average woman, although I'll never really know for sure unless I go asking or look at other women's discharge, which obviously won't be happening.

    I've always had daily discharge, enough to have to change pantiliners about twice a day. I've recently had to stop wearing them as I think they contribute to my chronic yeast infections and vulva pain, but I've worn one every day since high school (I'm 26 now).

    It's a burden really, because I feel like I'm constantly wiping or walking around with wet underwear. I can't imagine that's normal, as I've never met another woman who has had to deal with it like I have, unless they are just too embarrassed to talk about it.

    I don't know if the odor I have down there is normal, although everyone says if it's not foul smelling, it probably is. My husband doesn't seem to mind it, so I'm assuming it's a normal vagina smell.

    When my pap smears or cultures don't come up positive for any type of infection, the doctors don't say anything of concern, so I'm assuming I'm "normal," but I still think the amount of discharge I produce is abnormal.
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    Re: Vuvlodynia and onset

    Post  raquelll on Mon Feb 25, 2013 6:46 am

    Yes, that is how I feel about the discharge! I've just given up wearing pantiliners or anything like that and have wet underwear all the time. Also, stained underwear. And yeah, nobody has ever complained about the smell or anything, but I personally am pretty sure it's not normal, even if a gynecologist has never really said anything about it. UGH vulvodynia mysteries...

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    Re: Vuvlodynia and onset

    Post  carby148 on Mon Feb 25, 2013 5:49 pm

    raquelll wrote:Yes, that is how I feel about the discharge! I've just given up wearing pantiliners or anything like that and have wet underwear all the time. Also, stained underwear. And yeah, nobody has ever complained about the smell or anything, but I personally am pretty sure it's not normal, even if a gynecologist has never really said anything about it. UGH vulvodynia mysteries...

    I feel ya. I've looked up "normal vaginal odor" and most sites say a "musky" smell, but like, what the heck does "musk" smell like?

    I know for me, part of the unfavorable odor is my natural odor and sweat, so I notice a more normal smell after showering. I also blow dry my vagina after showers instead of using towels, which reduces the moisture down there and reducing the risk of bacteria from the towels.
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    Re: Vuvlodynia and onset

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