Log in

I forgot my password

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Salicylate sensitivity may be causing your Vulodynia

View previous topic View next topic Go down

Salicylate sensitivity may be causing your Vulodynia

Post  bCherie on Sat Dec 29, 2012 3:45 am

Hi Ladies,

I have posted my 'full' story in another thread:
http://www.vulvodyniasupportforum.com/t932-very-hopeful-a-treatment-i-would-never-have-guessed

But I wanted to post here about Salicylates as I feel it's REALLY important for women with V to know all the possible causes and cures for V!!

If you read my full story you'll see that you could have some purely physical causes (like damaged vertebra). But for me my story happily ends with a food chemical called Salicylate!!

To give you my condensed history (as we could all go on forever about our Odysseys!) I have suffered from V for 6 years now! Apologies but below is as condensed as I could get it!! Skip the brackets if your not keen to read my personal sutff!!

------------------

I have been to 7 GP's, 4 Gynocologist, 1 Dermatologist, 3 naturopaths/dieticians, 1 dermatologist, 1 physio and one medical dietician.

I have been told I have: HYPOCHONDRIA, thrush, recurring bacterial infections, genital warts, systemic candida, food allergies (separately and combined: wheat, dairy, sugar, cashews, caffeine, EVERYTHING) depression (ok that one was true but you understand why), vulvodynia, damaged vertebra, damaged internal organs, salicylate sensitivity.

My symptoms have been: excruciating external vaginal pain, excruciating internal stabbing vaginal pain, painful stomach to the point of feeling my internal organs will drop out my nethers, slight incontinence, waking up with searing stomach or vaginal pain to the point I'm screaming, inability to have sex due to internal and external contact pain, many many self induced symptoms due to using unnecessary creams douches and homoeopathic treatments (please see my full story on why these are a bad ideas), crazy black mood swings, hives, swollen face, weight gain as I can't exercise, excessively heavy periods ( I can go through a pack of overnight pads in one day), rhinitus (runny nose), tinitus (damn but my ears ring all the time), anxiety attacks... blah blah blah

---------------------------

... I read all that and I think maybe I'm a hypochondriac too!

BUT I'm also determined to stop this, I know it's not in my head! So I've pushed to see the BEST in every field I've been recommended to consult for the last 2 years. It's been financially crippling but also in the end rewarding.

If your symptoms sound like mine then here is your possible explanation below:

IN SHORT: You may have a food chemical sensitivity!! There are a few. For me it is Salicylates. If you have a Salicylate sensitivity you are unable to process a chemical that is present in ALL foods. This is NOT a food allergy but a chemical intolerance. If you go on a LOW CHEMICAL/LOW Salicylate diet many of your symptoms will disappear within days. Once you've removed Salicylate from your diet (as much as you can) depending on how bad your sensitivity is your Vulvodynia will either fully heal with time or the pain will be reduced to a manageable level..

READ ON FOR A FULL EXPLANATION:

How Could Something not related to my vagina cause vulvodynia?
Well it's possible that your V is a skin/dermatitis related issue and ceasing to use a certain chemical/natural chemical will solve your problems.

But most V is in fact a physical SYMPTOM of an internal problem.
Up behind your pelvic floor are a bunch of nerve endings that connect into your uterus and vaginal passage. If these nerve endings get pulled on by internal tensions it creates nerve pain.

There is also a tendon that runs along your legs then up through your vaginal passage and into your uterus. If this has strain on it you will experience deep pain and/or the stabbing pain that runs up through your vaginal passage. (this can also cause shooting pains in your legs!)

One common cause of the nerves getting pulled on can be pregnancy. Think of all the extra weight you are carrying above your vaginal passage. This pulls all the nerves out of place!! It is quite common for pregnant women to experience V symptoms.

Another common cause of V can be damage to the lower two vertebra of your spine. If these nerves get compressed it can have a knock on effect with your internal organs that eventually pulls your uterus out of place causing nerve tension in your vagina and eventually Vulvodynia. Seeing a Physio can alleviate this as can getting spacers inserted in between the vertebra to alleviate the nerve compression.

There are absolutely other illnesses that can cause vulvodynia and as I am no expert I'm afraid I can't comment on those! But I would bet internal damage caused by these illnesses is causing the V as it is the nerve endings getting pulled on that causes V.

For me my V is caused by a food sensitivity. Food sensitivities or allergies will cause damage to your upper and/or lower intestines. They will become inflamed and twisted by the damage from the sensitivity/allergy and this twisting and inflammation will in turn pull on your uterus which will pull all the nerve endings attached between your uterus and vaginal passage which will cause Vulvodynia.

If your like me you've been on many elimination diets and cut out many different foods all to no effect. I have personally cut out wheat, dairy, sugar, caffeine, nuts, eggs, many varieties of vegetable and some types of meat. I've even gone vegan. I've done this three different times under the guidance of natruopathic dieticians all to no effect. I appeared to get heather but my V was still present and excruciating! I was eating nothing but bunny food and I was so 'healthy' my skin was glowing but I'd wake up in the middle of the night hyperventilating and in tears from the excruciating V pain.

In the course of looking for answers I eventually got put onto and amazing physio who explained HOW the V was happening (as I explained above). We just had to work out WHY. In the end she identified that I was suffering recurring damage to my lower intestines. Which meant it was something I was eating. But I've already BEEN on every kind of low allergy diet. I was feeling a bit lost (and to be honest crapped off and disbelieving). So I decided to find a medically trained dietician. In fact I looked up the best one in Sydney.

She has 30 years experience and more importantly (and intriguingly) she specialised in food chemical intolerances. Something I had never heard of! On my first visit I filled in the symptoms part of the patient form as being Vulvadynia not expecting the doctor to have heard of it.

In fact she told me she'd treated many patients with Vulvadynia and 80% of them ended up having an intolerance to Salicylates. After hearing my symptoms and all the treatments I've tried she felt confident I was suffering from Salicylate sensitivity and asked me to go on a 5 week low Salicylate elimination diet.

Salicylate is a naturally occurring chemical present in ALL food. It's job is to act like a preservative and pesticide/immune hormone. It's found in Asprin and many medications because of it's pain killing and anti-inflammatory properties. It's so good at it's job that we humans have created artificial preservatives and pain killers that mimic Salicylate so well that people with Salicylate intolerance will react to fake preservative chemicals also.

The worst part is Salicylate is found in most foods, most herbs and spices, most alcohols and drinks many medications and most make-ups, personal hygiene products and cleaning products.

Unlike a food allergy Salicylate intolerance is an inability to process a chemical rather than a reaction to a food. This means that if you are intolerant the chemical will build up in your system like water in a damn. Your body absorbs the chemical from the environment and food until you reach a tipping point and have an episode (whichever your symptoms may be). For me this means my Vulvodynia gets bad!!!

Two days into the diet the excruciating stomach pain I've been suffering completely disappeared. The crazy mood swings I suffer from eased off, the constant rhinitis (runny nose) and itchy mouth I've been suffering (and thought was hay-fever) disappeared. Three weeks in I still have Vulvodynia but it's eased off and based on my understanding from my Physio it is much like a bad sports injury and now that I've removed the recurring damage it should heal with time. Interestingly my insanely heavy periods have also eased off.

Sooo... if this all sounds just a little too familiar too you, find a dietician with food chemical experience and ask them to help you work out what you are reacting too. It may be salicylates it may be Amines it may be one specific thing like pepper or tomatoes!!

If you can't get to/afford a dietician check out the salicylatesensitivity.com website for a list of low salicylate foods and more info. Just trying a low salicylate diet for a week should tell you if you have a problem or not!!

I hope that helps some of you!!! And PM me if you'd like info on the Dietician I see in Sydney, Australia!

xx

bCherie

Posts : 14
Join date : 2012-07-12

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum