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» Struggling
Yesterday at 3:19 am by doublej

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Salicylate sensitivity may be causing your Vulodynia

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Salicylate sensitivity may be causing your Vulodynia

Post  bCherie on Sat Dec 29, 2012 3:45 am

Hi Ladies,

I have posted my 'full' story in another thread:
http://www.vulvodyniasupportforum.com/t932-very-hopeful-a-treatment-i-would-never-have-guessed

But I wanted to post here about Salicylates as I feel it's REALLY important for women with V to know all the possible causes and cures for V!!

If you read my full story you'll see that you could have some purely physical causes (like damaged vertebra). But for me my story happily ends with a food chemical called Salicylate!!

To give you my condensed history (as we could all go on forever about our Odysseys!) I have suffered from V for 6 years now! Apologies but below is as condensed as I could get it!! Skip the brackets if your not keen to read my personal sutff!!

------------------

I have been to 7 GP's, 4 Gynocologist, 1 Dermatologist, 3 naturopaths/dieticians, 1 dermatologist, 1 physio and one medical dietician.

I have been told I have: HYPOCHONDRIA, thrush, recurring bacterial infections, genital warts, systemic candida, food allergies (separately and combined: wheat, dairy, sugar, cashews, caffeine, EVERYTHING) depression (ok that one was true but you understand why), vulvodynia, damaged vertebra, damaged internal organs, salicylate sensitivity.

My symptoms have been: excruciating external vaginal pain, excruciating internal stabbing vaginal pain, painful stomach to the point of feeling my internal organs will drop out my nethers, slight incontinence, waking up with searing stomach or vaginal pain to the point I'm screaming, inability to have sex due to internal and external contact pain, many many self induced symptoms due to using unnecessary creams douches and homoeopathic treatments (please see my full story on why these are a bad ideas), crazy black mood swings, hives, swollen face, weight gain as I can't exercise, excessively heavy periods ( I can go through a pack of overnight pads in one day), rhinitus (runny nose), tinitus (damn but my ears ring all the time), anxiety attacks... blah blah blah

---------------------------

... I read all that and I think maybe I'm a hypochondriac too!

BUT I'm also determined to stop this, I know it's not in my head! So I've pushed to see the BEST in every field I've been recommended to consult for the last 2 years. It's been financially crippling but also in the end rewarding.

If your symptoms sound like mine then here is your possible explanation below:

IN SHORT: You may have a food chemical sensitivity!! There are a few. For me it is Salicylates. If you have a Salicylate sensitivity you are unable to process a chemical that is present in ALL foods. This is NOT a food allergy but a chemical intolerance. If you go on a LOW CHEMICAL/LOW Salicylate diet many of your symptoms will disappear within days. Once you've removed Salicylate from your diet (as much as you can) depending on how bad your sensitivity is your Vulvodynia will either fully heal with time or the pain will be reduced to a manageable level..

READ ON FOR A FULL EXPLANATION:

How Could Something not related to my vagina cause vulvodynia?
Well it's possible that your V is a skin/dermatitis related issue and ceasing to use a certain chemical/natural chemical will solve your problems.

But most V is in fact a physical SYMPTOM of an internal problem.
Up behind your pelvic floor are a bunch of nerve endings that connect into your uterus and vaginal passage. If these nerve endings get pulled on by internal tensions it creates nerve pain.

There is also a tendon that runs along your legs then up through your vaginal passage and into your uterus. If this has strain on it you will experience deep pain and/or the stabbing pain that runs up through your vaginal passage. (this can also cause shooting pains in your legs!)

One common cause of the nerves getting pulled on can be pregnancy. Think of all the extra weight you are carrying above your vaginal passage. This pulls all the nerves out of place!! It is quite common for pregnant women to experience V symptoms.

Another common cause of V can be damage to the lower two vertebra of your spine. If these nerves get compressed it can have a knock on effect with your internal organs that eventually pulls your uterus out of place causing nerve tension in your vagina and eventually Vulvodynia. Seeing a Physio can alleviate this as can getting spacers inserted in between the vertebra to alleviate the nerve compression.

There are absolutely other illnesses that can cause vulvodynia and as I am no expert I'm afraid I can't comment on those! But I would bet internal damage caused by these illnesses is causing the V as it is the nerve endings getting pulled on that causes V.

For me my V is caused by a food sensitivity. Food sensitivities or allergies will cause damage to your upper and/or lower intestines. They will become inflamed and twisted by the damage from the sensitivity/allergy and this twisting and inflammation will in turn pull on your uterus which will pull all the nerve endings attached between your uterus and vaginal passage which will cause Vulvodynia.

If your like me you've been on many elimination diets and cut out many different foods all to no effect. I have personally cut out wheat, dairy, sugar, caffeine, nuts, eggs, many varieties of vegetable and some types of meat. I've even gone vegan. I've done this three different times under the guidance of natruopathic dieticians all to no effect. I appeared to get heather but my V was still present and excruciating! I was eating nothing but bunny food and I was so 'healthy' my skin was glowing but I'd wake up in the middle of the night hyperventilating and in tears from the excruciating V pain.

In the course of looking for answers I eventually got put onto and amazing physio who explained HOW the V was happening (as I explained above). We just had to work out WHY. In the end she identified that I was suffering recurring damage to my lower intestines. Which meant it was something I was eating. But I've already BEEN on every kind of low allergy diet. I was feeling a bit lost (and to be honest crapped off and disbelieving). So I decided to find a medically trained dietician. In fact I looked up the best one in Sydney.

She has 30 years experience and more importantly (and intriguingly) she specialised in food chemical intolerances. Something I had never heard of! On my first visit I filled in the symptoms part of the patient form as being Vulvadynia not expecting the doctor to have heard of it.

In fact she told me she'd treated many patients with Vulvadynia and 80% of them ended up having an intolerance to Salicylates. After hearing my symptoms and all the treatments I've tried she felt confident I was suffering from Salicylate sensitivity and asked me to go on a 5 week low Salicylate elimination diet.

Salicylate is a naturally occurring chemical present in ALL food. It's job is to act like a preservative and pesticide/immune hormone. It's found in Asprin and many medications because of it's pain killing and anti-inflammatory properties. It's so good at it's job that we humans have created artificial preservatives and pain killers that mimic Salicylate so well that people with Salicylate intolerance will react to fake preservative chemicals also.

The worst part is Salicylate is found in most foods, most herbs and spices, most alcohols and drinks many medications and most make-ups, personal hygiene products and cleaning products.

Unlike a food allergy Salicylate intolerance is an inability to process a chemical rather than a reaction to a food. This means that if you are intolerant the chemical will build up in your system like water in a damn. Your body absorbs the chemical from the environment and food until you reach a tipping point and have an episode (whichever your symptoms may be). For me this means my Vulvodynia gets bad!!!

Two days into the diet the excruciating stomach pain I've been suffering completely disappeared. The crazy mood swings I suffer from eased off, the constant rhinitis (runny nose) and itchy mouth I've been suffering (and thought was hay-fever) disappeared. Three weeks in I still have Vulvodynia but it's eased off and based on my understanding from my Physio it is much like a bad sports injury and now that I've removed the recurring damage it should heal with time. Interestingly my insanely heavy periods have also eased off.

Sooo... if this all sounds just a little too familiar too you, find a dietician with food chemical experience and ask them to help you work out what you are reacting too. It may be salicylates it may be Amines it may be one specific thing like pepper or tomatoes!!

If you can't get to/afford a dietician check out the salicylatesensitivity.com website for a list of low salicylate foods and more info. Just trying a low salicylate diet for a week should tell you if you have a problem or not!!

I hope that helps some of you!!! And PM me if you'd like info on the Dietician I see in Sydney, Australia!

xx

bCherie

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Join date : 2012-07-12

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