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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


It feels so good to get this off my chest....

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It feels so good to get this off my chest....

Post  mypalal8907 on Thu Jan 03, 2013 6:52 am

I've known the name for my condition for a year and a half now, but I've had it since always. At least that's what it feels like. When my doctor asked me to think back on when I first noticed the pain, I realized it was when I first tried to use a tampon. I don't know when the symptoms really began though because I didn't try to use a tampon until I was about 15 or 16. (It wasn't until my doctor told me all the symptoms that I realized that tight pants and sitting wrong also caused pain. I don't know why I thought random, searing, but brief pain in vagina was normal, but I did.) Anyways, my mom figured that I was too young for tampons. I started my period when I was 10 and I never put anything in my vagina to notice if there was pain before I tried to use a tampon. It was so embarrassing when I tried to use them the first time. It hurt and my mom figured that I couldn't put it in right so she helped me. It still didn't work. My dad would get upset because I wouldn't swim in our pool with the family during my period. He actually told me one time that I just needed to "shove it up there". Those were his exact words. I asked my mom if it could be that I hadn't had sex yet and was maybe smaller than average down there. She agreed with me and we both assumed it would get better if I tried to use tampons more and if and when I eventually had sex. I couldn't keep using tampons because if putting them in was painful, and after a period of time they would start to burn, the pain of taking them out was terrible so I just stopped using them. I went to college not using tampons. I couldn't even use the extra small light ones. My friends didn't understand no matter how I tried to explain it to them. They thought I was just weird and that it was gross that I used pads. I started doing more stuff with guys eventually which is when I began to notice that fingering hurt. Those were some conversations!!! I was already told by so many people that a girl's first time having sex would most likely hurt, that I became utterly scared of sex. I still am. I mean I figured if fingering and tampons hurt that sex would only be worse. However, I had this lingering hope that maybe once I finally had sex things would sort themselves out down there. That my vagina might stretch out a bit and the pain would go away and I could have a normal sex life. The summer right after I turned 22, I had a brief fling with this guy. We didn't have sex but when he tried to finger me I had to stop him as per usual. As I didn't know yet what was wrong down there, I explained to him as best I could why he couldn't do that. He was pretty understanding. Then I went to Europe for a few weeks and he moved away. When I came back I decided that I was tired of not being able to go further and that I wanted to have sex. I've never had a boyfriend and my experiences with guys have been limited to mostly drunken encounters. These drunken encounters were getting more serious the more sexually frustrated I became and I was worried that I'd end up drunkenly having sex one night and I was yet to be on birth control. I'd been on it once before but it messed with my emotions and since I wasn't having sex I got off it. Well, now I wanted to be protected just in case and my period pains were usually pretty bad, not to mention my periods were just plain irregular. So, I went to my doctor. She prescribed birth control and asked if I had any questions. I told her about not being able to use tampons and having pain when fingered. She said she wanted to do something called the q-tip test. This is how she diagnosed me with vulvodynia, which she also told me is a fairly broad term. She lightly, and I mean lightly, touched the opening of my vulva and it burned. But, the weird part is that I've never had any physical kind of trauma there, which she thought at first could be the cause. She thought maybe it could be emotional but I don't know. When I was little kids were mean to me about sex stuff I guess, I developed faster than everyone else in my grade and my sex drive is shamed by the religion I used to prescribe to. I no longer do, the feminist in me won't allow it. Maybe the physical pain is a manifestation of the shame I've been made to feel for most of my life concerning my sex drive and now that it's physical just mentally undoing the damage is no longer enough. But, I don't know. I just want to understand this. I want to understand why I just can't be normal. I'm 23 now and I have self-sabotaged so many potential relationships since I've found out because I don't want to have the sex talk. The weird thing is that I still have drunken hook-ups sans sex and drunkenly tell strangers that we can't have sex and why. I was in physical and mental therapy while it was free at school (well practically) and I seemed to be making progress. Now that I'm home and struggling to find a job, my dad won't allow me to use our insurance for either of these things because it's a bank of money not a copay system. I have the dilators my physical therapist gave me and special lubricant she recommended. But, I can't get myself to use them. I'm scared of them. I'm scared because I live at home and have no real privacy. I'm scared because I think I'll hurt myself and make it worse. But, most of all I think I'm scared of sex and what it'll mean to get better. I've been this way for so long that I'm scared of changing. I'm scared of my own sexuality and I hate myself for that. I know that I have to want to get better and a good part of me wants to get better. Yet, there is that small, dark part of me that is just straight scared.


Last edited by mypalal8907 on Thu Jan 03, 2013 6:56 am; edited 1 time in total (Reason for editing : grammar)

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Re: It feels so good to get this off my chest....

Post  Alana3 on Thu Jan 03, 2013 2:12 pm

I think it's normal that you're scared, I am too, and sex can be enjoyable for me. Or it was. I just had the surgery. I think that you need to take a deep breath go to a gyno and figure out a treatment option for your pain. Trust me there are several, but it's quite hit or miss. I couldn't take it anymore so I opted for surgery. All of what you're feeling is normal for people with our condition, so don't discredit yourself. Sucky but true.

I too am scared of having a boyfriend and having that "talk". But I think trying is better than not. I'm told not all guys are idiots. Have you done anything to help your vulvodynia besides physical therapy? Medications, chiropractor, or acupuncture? It can help too. Where are you living? What treatments have you tried? Just know you aren't alone in this, and where it's shitty there are some things that can be done Smile

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Re: It feels so good to get this off my chest....

Post  mypalal8907 on Thu Jan 03, 2013 8:21 pm

Thanks for the support. I live in the United States in Ohio. When I was in college, my mom was able to hide my trips to physical therapy showing up on the insurance from my dad. I wanted to try other things but cost is a big issue right now and I don't really have anyone to turn to for that kind of support at this point. I went to another doctor specializing in vulvodynia here and he prescribed me lidocaine to be used with the dilators because I don't have constant pain, only when things touch it with the exception of occasional spasms and sensitivity around my period. So that is helpful but not exactly because I'm afraid of and uncomfortable with the dilators on my own. Also, with the physical therapist, she would work that whole area including my stomach, legs, and lower back. I also discovered that talking to a psychologist about other issues worked well with the physical stuff, but again cost is an issue there too. My physical therapist thought their might be a link between me holding stress and tension and the vulvodynia. But I'm willing to look at other options and reexamine costs, I've been hearing a lot about biofeedback but I don't know what that is. Do you or anyone was have information on this or links to information?

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Re: It feels so good to get this off my chest....

Post  Alana3 on Thu Jan 03, 2013 9:07 pm

Oh Ohio! I went to school in KY, live in Florida and am obsessed with the Buckeyes. Smile Ok that being said... Why is your dad so against this? I don't really know that I'm aware of biofeedback. I did physical therapy, tried every medication under the sun, and finally did the surgery a month ago yesterday. If it's provoked localized surgery may be an option for you too, it's a long recovery and I'm bored but I heard its worth it. So far it's just long and I want to workout lol... I was never given dilators, but I can imagine that it's pshycohologically intimidating. I don't really know what to tell you, but you def aren't alone in this, I promise! How about acupuncture or massage would your dad be ok with that?

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Re: It feels so good to get this off my chest....

Post  juleps on Tue May 07, 2013 7:38 pm

i just read your part and realized i also had always problems with tampons.
is it possible there is an anatomic reason?
i mean it seems not normal to have so early on such issues no?
i for example still have a bit of my hymen leftover. i never thought it might be an issue but it seems weird to have problems of such a young age on? (like me too)

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Re: It feels so good to get this off my chest....

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