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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


vaginal valium/alcohol

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vaginal valium/alcohol

Post  hopingforacure on Fri Jan 04, 2013 5:01 am

ok, first ever post here. I am 34, married 10 years, 2 kids. I started having problems at age 30 when my first child was 18 mos old. She was a C-section with no labor. After many doc visits to get anti-yeast, and antibiotics. I am now with a new doctor that says that my muscles at 6 o'clock are too tight and my skin is very thin and sensitive. So now we are doing estrace cream every night and recently started valium 10mg pill but vaginally. I had sex but it was still very painful but less painful. I had a visit with a PT person so explained how they tested the muscles to see if they truly relax etc. Problem is they are 2.5 hrs away from me one way and I would need to go at least once a week. They then tell me there is someone in my town but I am not sure she is qualified. You know one of those people who do things b/c they will be the only one in town.
So my questions are: anyone tried valium? did it help? you put in a couple inches correct? tried estrace? did it help? AND I WAS NOT HAVING A FLARE UNTIL I WENT DANCING/DRINKING. Does alcohol seem to affect your flares? I drink like Smirnoff girl beers.
Please help. I can't exercise and I want to be fit and in shape. This condition totally affects my mental state as well.

hopingforacure

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Re: vaginal valium/alcohol

Post  Alana3 on Fri Jan 04, 2013 10:18 pm

Estrace didn't help me at all. I actually have a random flare with wine it lasts a few minutes and goes away. But I just had a vestibulectomy and it still happens so im not sure how much that has to do with v. I checked that out on another site and it's a common problem not related to v (finally something others can relate to). Pt helped me a lot but the skin was still to sensitive so I opted for surgery we'll see I'd this does the trick. But with estrace some people do respond positively my advice is to try it and see what works for you because were all different unfortunately.

Alana3

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