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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

vaginal valium/alcohol

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vaginal valium/alcohol

Post  hopingforacure on Fri Jan 04, 2013 5:01 am

ok, first ever post here. I am 34, married 10 years, 2 kids. I started having problems at age 30 when my first child was 18 mos old. She was a C-section with no labor. After many doc visits to get anti-yeast, and antibiotics. I am now with a new doctor that says that my muscles at 6 o'clock are too tight and my skin is very thin and sensitive. So now we are doing estrace cream every night and recently started valium 10mg pill but vaginally. I had sex but it was still very painful but less painful. I had a visit with a PT person so explained how they tested the muscles to see if they truly relax etc. Problem is they are 2.5 hrs away from me one way and I would need to go at least once a week. They then tell me there is someone in my town but I am not sure she is qualified. You know one of those people who do things b/c they will be the only one in town.
So my questions are: anyone tried valium? did it help? you put in a couple inches correct? tried estrace? did it help? AND I WAS NOT HAVING A FLARE UNTIL I WENT DANCING/DRINKING. Does alcohol seem to affect your flares? I drink like Smirnoff girl beers.
Please help. I can't exercise and I want to be fit and in shape. This condition totally affects my mental state as well.


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Re: vaginal valium/alcohol

Post  Alana3 on Fri Jan 04, 2013 10:18 pm

Estrace didn't help me at all. I actually have a random flare with wine it lasts a few minutes and goes away. But I just had a vestibulectomy and it still happens so im not sure how much that has to do with v. I checked that out on another site and it's a common problem not related to v (finally something others can relate to). Pt helped me a lot but the skin was still to sensitive so I opted for surgery we'll see I'd this does the trick. But with estrace some people do respond positively my advice is to try it and see what works for you because were all different unfortunately.


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