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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

Hey ya'll I am new!

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Hey ya'll I am new!

Post  kellypitts on Sat Jan 05, 2013 12:43 am

My name is Kelly and if you can't tell I am from the great state of Tennessee. I live near Nashville. I am 25 years old and have been married to a great man for three years. Last year my New Years resolution was to seek help for a big problem...I couldn't have sex with my husband. He literally could not penetrate me at all. I did some online research assumed I had vaginismus and mostly pretended like it wasn't happening. I got brave and visited an amazing clinic in Nashville and got diagnosed with high tone PFD. I had never even heard of this before. I did physical therapy and stretched with dialators for almost a year finally my husband and I were able to have penetrative sex!!!!

Throughout this process a "burning" "stabbing" problem I have had and tried my hardest to ignore for years got increasingly worse. I was recently diagnosed with vulvodynia and I am trying to understand the diagnosis and stay positive. Very fortunately sex is not a trigger for me. Mine seems to be unprovoked and sporadic meaning it comes on for no reason but also there are times I am completely pain free. I am currently using a 5% lidocaine numbing cream during flares which takes the edge off occasionally, vaginal Valium, and most recently I am taking Savella a medication that works to calm the nerves in my vulva. I look forward to connecting with you and learning as much as I can!

-Kelly flower


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Re: Hey ya'll I am new!

Post  Alana3 on Sat Jan 05, 2013 12:46 am

Hey I lived in Lexington, KY for 4 years welcome! Sorry you had these problems they're a royal pain. At least you can have sex I hope me too as I just got the surgery. Glad you're doing well Smile


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Post  mcclave96 on Mon Jan 07, 2013 11:03 pm

I live outside of nashville and i would love to talk about dr and therapies you have gone through....I just went to Charlotte NC to see a specialist, but I still have found no one in Nashville or south of Nashville that is familiar with this problem....


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I am also in Kentucky!

Post  rhiannon75 on Sat Jan 12, 2013 11:39 pm

Hey Lexington,
Just wondering if there are any doctos at UK to help me?


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Re: Hey ya'll I am new!

Post  Alana3 on Sun Jan 13, 2013 12:19 am

I live in Florida now and wasn't aware of the problem when I had it but there's a group over at St joes I believe that were really cool (the hospital on Nicholasville near UK) where do you live in lex? As for UK I have no idea


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Re: Hey ya'll I am new!

Post  Alana3 on Sun Jan 13, 2013 12:25 am

I lied it's central baptist not st.joes I looked it up!


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Re: Hey ya'll I am new!

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