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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Hey ya'll I am new!

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Hey ya'll I am new!

Post  kellypitts on Sat Jan 05, 2013 12:43 am

My name is Kelly and if you can't tell I am from the great state of Tennessee. I live near Nashville. I am 25 years old and have been married to a great man for three years. Last year my New Years resolution was to seek help for a big problem...I couldn't have sex with my husband. He literally could not penetrate me at all. I did some online research assumed I had vaginismus and mostly pretended like it wasn't happening. I got brave and visited an amazing clinic in Nashville and got diagnosed with high tone PFD. I had never even heard of this before. I did physical therapy and stretched with dialators for almost a year finally my husband and I were able to have penetrative sex!!!!

Throughout this process a "burning" "stabbing" problem I have had and tried my hardest to ignore for years got increasingly worse. I was recently diagnosed with vulvodynia and I am trying to understand the diagnosis and stay positive. Very fortunately sex is not a trigger for me. Mine seems to be unprovoked and sporadic meaning it comes on for no reason but also there are times I am completely pain free. I am currently using a 5% lidocaine numbing cream during flares which takes the edge off occasionally, vaginal Valium, and most recently I am taking Savella a medication that works to calm the nerves in my vulva. I look forward to connecting with you and learning as much as I can!

-Kelly flower

kellypitts

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Re: Hey ya'll I am new!

Post  Alana3 on Sat Jan 05, 2013 12:46 am

Hey I lived in Lexington, KY for 4 years welcome! Sorry you had these problems they're a royal pain. At least you can have sex I hope me too as I just got the surgery. Glad you're doing well Smile

Alana3

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tn

Post  mcclave96 on Mon Jan 07, 2013 11:03 pm

I live outside of nashville and i would love to talk about dr and therapies you have gone through....I just went to Charlotte NC to see a specialist, but I still have found no one in Nashville or south of Nashville that is familiar with this problem....

mcclave96

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I am also in Kentucky!

Post  rhiannon75 on Sat Jan 12, 2013 11:39 pm

Hey Lexington,
Just wondering if there are any doctos at UK to help me?

rhiannon75

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Re: Hey ya'll I am new!

Post  Alana3 on Sun Jan 13, 2013 12:19 am

I live in Florida now and wasn't aware of the problem when I had it but there's a group over at St joes I believe that were really cool (the hospital on Nicholasville near UK) where do you live in lex? As for UK I have no idea

Alana3

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Re: Hey ya'll I am new!

Post  Alana3 on Sun Jan 13, 2013 12:25 am

I lied it's central baptist not st.joes I looked it up!

Alana3

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Re: Hey ya'll I am new!

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