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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Hey ya'll I am new!

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Hey ya'll I am new!

Post  kellypitts on Sat Jan 05, 2013 12:43 am

My name is Kelly and if you can't tell I am from the great state of Tennessee. I live near Nashville. I am 25 years old and have been married to a great man for three years. Last year my New Years resolution was to seek help for a big problem...I couldn't have sex with my husband. He literally could not penetrate me at all. I did some online research assumed I had vaginismus and mostly pretended like it wasn't happening. I got brave and visited an amazing clinic in Nashville and got diagnosed with high tone PFD. I had never even heard of this before. I did physical therapy and stretched with dialators for almost a year finally my husband and I were able to have penetrative sex!!!!

Throughout this process a "burning" "stabbing" problem I have had and tried my hardest to ignore for years got increasingly worse. I was recently diagnosed with vulvodynia and I am trying to understand the diagnosis and stay positive. Very fortunately sex is not a trigger for me. Mine seems to be unprovoked and sporadic meaning it comes on for no reason but also there are times I am completely pain free. I am currently using a 5% lidocaine numbing cream during flares which takes the edge off occasionally, vaginal Valium, and most recently I am taking Savella a medication that works to calm the nerves in my vulva. I look forward to connecting with you and learning as much as I can!

-Kelly flower


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Re: Hey ya'll I am new!

Post  Alana3 on Sat Jan 05, 2013 12:46 am

Hey I lived in Lexington, KY for 4 years welcome! Sorry you had these problems they're a royal pain. At least you can have sex I hope me too as I just got the surgery. Glad you're doing well Smile


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Post  mcclave96 on Mon Jan 07, 2013 11:03 pm

I live outside of nashville and i would love to talk about dr and therapies you have gone through....I just went to Charlotte NC to see a specialist, but I still have found no one in Nashville or south of Nashville that is familiar with this problem....


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I am also in Kentucky!

Post  rhiannon75 on Sat Jan 12, 2013 11:39 pm

Hey Lexington,
Just wondering if there are any doctos at UK to help me?


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Re: Hey ya'll I am new!

Post  Alana3 on Sun Jan 13, 2013 12:19 am

I live in Florida now and wasn't aware of the problem when I had it but there's a group over at St joes I believe that were really cool (the hospital on Nicholasville near UK) where do you live in lex? As for UK I have no idea


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Re: Hey ya'll I am new!

Post  Alana3 on Sun Jan 13, 2013 12:25 am

I lied it's central baptist not st.joes I looked it up!


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Re: Hey ya'll I am new!

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