Log in

I forgot my password

Latest topics
New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Scared....

Go down

Scared....

Post  cba321 on Mon Jan 07, 2013 10:10 am

I had botox done about 5 months ago, and any time now the botox will cease working and i know in my mind that there is a chance i will go back to the way things were and all this money and time spent will just be to rule out another thing that didnt work...i do a lot of physio and stretches in a hope it will continue post botox

Its getting a little bit too much, havent had a proper relationship in years and now im starting to get older i guess by relationship standards...ppl start to think you are weird cause you dont want a boyfriend. To what age can i keep it going that im too independent for a bf

Ive been fairly positive for a long time but im slipping and its stupid cause my condition is by no means the worst at all
Anyway that is my rant, i'm currently seeing a psychologists as well which does help but guess i can't be perfect

cba321

Posts : 69
Join date : 2012-07-14

View user profile

Back to top Go down

Re: Scared....

Post  Alana3 on Mon Jan 07, 2013 2:29 pm

Can you do the botox again? I mean with any of the nonsurgical treatments they unfortunately stop working. The important thing is to take what you can from it and maybe it won't stop working and you'll be fine and all the worrying is for nothing. I was in remission for a while and it came back to the point where I opted to have the surgery because I hated the hit and miss of it all. But now that I'm 5 weeks in I'm freaking if it worked or not. I guess there will always be some doubt in all of our minds. I'm taking it you had unprovoked vv? I hope that you can get some more relief if the pain does come back. But hopefully it won't.

Alana3

Posts : 1093
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Scared....

Post  cba321 on Tue Jan 08, 2013 10:24 am

Thanks Alana, yes I can do it again, however there was a randomized control trial that showed some women experienced relief after the botox has worn off due to all the stretching. The Physio I see has a few clients where the stretches have allowed the pelvic floor muscles to be stretched permanently. Guess I am hoping I will be one of those people, however I have been getting more pain so not sure if that is a sign of the botox wearing off and the muscles returning to where they were, if that is the case, and it might not be (being positive), I guess if I do it over and and over it will only be temporary. In the case of other conditions like Cerebral Palsy, where botox is used as a treatment, the body will get used to it after multiple doses and the effect botox has will diminish, so botox will probably only work a certain number of times. No I have provoked vv, only on occasion I get the pain unprovoked. I guess it is all the emotional pain of sexual dysfunction and social roles etc etc that is difficult, very difficult sometimes. I go on facebook and all my school friends are in relationships, getting married, having kids and I am too scared to go on a date...Anyway all I can do is keep going and try as many different treatments as possible and try not to freak out! lol. Hope all goes well with your recovery, fingers and toes crossed for you Very Happy

cba321

Posts : 69
Join date : 2012-07-14

View user profile

Back to top Go down

Re: Scared....

Post  Alana3 on Tue Jan 08, 2013 12:44 pm

Thanks now I feel like I have ic and freaking out I hate this I always have such bad anxiety. Remember that you do not have cerebal palsy.so you cannot compare treatments Smile

Alana3

Posts : 1093
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Scared....

Post  cba321 on Wed Jan 09, 2013 1:22 am

Yes it does feel like a constant battle sometimes! Not comparing treatment though! Just how long botox tends to continue to work in the human body in general. Treatment for cerebral palsy is completely different

cba321

Posts : 69
Join date : 2012-07-14

View user profile

Back to top Go down

Re: Scared....

Post  Alana3 on Wed Jan 09, 2013 1:15 pm

Gotcha I think tho it depends on you.. Some people it doesn't work at all. Ugh I hate v!

Alana3

Posts : 1093
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Scared....

Post  cba321 on Thu Jan 10, 2013 2:43 am

Yes very true, it does depend on the person

cba321

Posts : 69
Join date : 2012-07-14

View user profile

Back to top Go down

Re: Scared....

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum