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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Scared....

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Scared....

Post  cba321 on Mon Jan 07, 2013 10:10 am

I had botox done about 5 months ago, and any time now the botox will cease working and i know in my mind that there is a chance i will go back to the way things were and all this money and time spent will just be to rule out another thing that didnt work...i do a lot of physio and stretches in a hope it will continue post botox

Its getting a little bit too much, havent had a proper relationship in years and now im starting to get older i guess by relationship standards...ppl start to think you are weird cause you dont want a boyfriend. To what age can i keep it going that im too independent for a bf

Ive been fairly positive for a long time but im slipping and its stupid cause my condition is by no means the worst at all
Anyway that is my rant, i'm currently seeing a psychologists as well which does help but guess i can't be perfect

cba321

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Re: Scared....

Post  Alana3 on Mon Jan 07, 2013 2:29 pm

Can you do the botox again? I mean with any of the nonsurgical treatments they unfortunately stop working. The important thing is to take what you can from it and maybe it won't stop working and you'll be fine and all the worrying is for nothing. I was in remission for a while and it came back to the point where I opted to have the surgery because I hated the hit and miss of it all. But now that I'm 5 weeks in I'm freaking if it worked or not. I guess there will always be some doubt in all of our minds. I'm taking it you had unprovoked vv? I hope that you can get some more relief if the pain does come back. But hopefully it won't.

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Re: Scared....

Post  cba321 on Tue Jan 08, 2013 10:24 am

Thanks Alana, yes I can do it again, however there was a randomized control trial that showed some women experienced relief after the botox has worn off due to all the stretching. The Physio I see has a few clients where the stretches have allowed the pelvic floor muscles to be stretched permanently. Guess I am hoping I will be one of those people, however I have been getting more pain so not sure if that is a sign of the botox wearing off and the muscles returning to where they were, if that is the case, and it might not be (being positive), I guess if I do it over and and over it will only be temporary. In the case of other conditions like Cerebral Palsy, where botox is used as a treatment, the body will get used to it after multiple doses and the effect botox has will diminish, so botox will probably only work a certain number of times. No I have provoked vv, only on occasion I get the pain unprovoked. I guess it is all the emotional pain of sexual dysfunction and social roles etc etc that is difficult, very difficult sometimes. I go on facebook and all my school friends are in relationships, getting married, having kids and I am too scared to go on a date...Anyway all I can do is keep going and try as many different treatments as possible and try not to freak out! lol. Hope all goes well with your recovery, fingers and toes crossed for you Very Happy

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Re: Scared....

Post  Alana3 on Tue Jan 08, 2013 12:44 pm

Thanks now I feel like I have ic and freaking out I hate this I always have such bad anxiety. Remember that you do not have cerebal palsy.so you cannot compare treatments Smile

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Re: Scared....

Post  cba321 on Wed Jan 09, 2013 1:22 am

Yes it does feel like a constant battle sometimes! Not comparing treatment though! Just how long botox tends to continue to work in the human body in general. Treatment for cerebral palsy is completely different

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Re: Scared....

Post  Alana3 on Wed Jan 09, 2013 1:15 pm

Gotcha I think tho it depends on you.. Some people it doesn't work at all. Ugh I hate v!

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Re: Scared....

Post  cba321 on Thu Jan 10, 2013 2:43 am

Yes very true, it does depend on the person

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Re: Scared....

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