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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

I feel i'm the only itchy/irritated v on here

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I feel i'm the only itchy/irritated v on here

Post  ilovebaxter1 on Thu Jan 10, 2013 4:16 am

so, about a year and a half ago i used a baby wipe instead of toilet paper because there wasnt any..Since then my V has been inflamed and irritated. I have been using clobetasol for about a year now 3 times a week and it has helped VERY SLIGHTLY. I see a specialist in Boston working for Elizabeth Stewart and she has been trying different oral medications on me but nothing seems to be working.

I recently had an appointment with Elizabeth Stewart to get a second opinion besides my Dr. in her office and she said that with inflammation and irritation the Oral meds don't really help and the topical creams work better. But I've been trying diff meds for a year now and i've been using clobetasol and thats not helping either:( She is suppose to be the best and she's even written a book and I just dont know what their next step will be to help me:(

I am currently trying this new vulvar soothing cream called Neogyn and it says it takes about 6-8 weeks to work but if this doesn't work I feel like theres no more options to choose from the help me get better:(

My doctor hasn't even really diagnosed me with anything except for calling it "vulvitis" (inflammation of the vulva). I just don't understand why nothing is helping my skin. Shouldn't something be working to stop the inflammation and irritation? Lidocaine is the only thing that gives me relief and i feel 100% better when I use it..but when I shower and don't put it on right away I can feel the irritation and if i put underwear on (100% cotton) without the lidocaine its unbearable! -___- and I use scent free everything.

Does anyone on here have similar symptoms?? I feel as if I'm the only one.


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Re: I feel i'm the only itchy/irritated v on here

Post  jen007 on Thu Jan 10, 2013 3:36 pm


I used to have the same symptoms. I was always feeling a hot, burning sensation. Also I felt sharp knife like pains along with it. It was pretty much like one long amplified yeast infection. I would just try an distract myself from feeling it for the longest time, but eventually it got unbearable. I had seen a hand full of doctors before I found the right ones. I was seeing 3 doctors in one unit. They had never had someone like me before so I was like a lab rat for them. I tried almost every medication that I felt comfortable taking to no avail. I was considering pelvic floor therapy, but my gyno said it probably wouldn't help me since they have to use their fingers in there and I couldn't even handle a Q tip. I had no other options left, but surgery...which I had done in July. It worked out well for me, but like some others on this forum will tell you it isn't for everyone.

I would suggest you to buy this book:

It's by a man name Dr. Andrew Goldstein. He also did my surgery. He is a miracle worker! If there is anyway you could see him you should. I'm on the east coast and he's talked up in my area. He does more than surgeries, like he could be a regular gyno. Also I'd suggest joining the NVA if you haven't already. It allows you to find doctors, surgeons, and they send you discrete news letters in the mail with information towards research on vulvodynia. It was very helpful.



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Hello ilovebaxter

Post  Leslieg on Fri Aug 09, 2013 7:23 pm

Hello, Ilovebaxter! (and others Smile I think you and I have similar stories. My primary symptoms are irritation, rawness, inflammation on the outside, pin-prick feelings and occasional itchiness. The extent of inflammation varies. I also go to Dr. Stewarts clinic in Boston. I've had symptoms for almost 5 years now. The nurse practitioners have prescribed all kinds of topical steroids. I don't use much of the now but I do use lidocaine. I truly thought I had vulvar lichen planus all this time. My first nurse practitioner eluded to this and I went with it. The symptoms just fit. I finally saw Dr. Margesson, a dermatologist in Dr. Stewarts clinic a few weeks ago. 3 Doctors looking at my hoohoo at the same time. Although I am now, unfortunately, used to people with medical licenses looking at me....this experience was very overwhelming. I was tearful and so nervous. Anyway, they ultimately think that I am allergic to something causing my issues. I am scheduled to have a series of allergy testing done in September and I see the doctors again in October. Imagine if all of this is an allergy? 5 years of symptoms. I have done it all....loose clothes, cotton underwear, hypoallergenic detergents. I sometimes wonder if I am having a reaction to Dove sensitive soap. I switched to this 5 years ago when I began symptoms after my son's birth and a lot of antibiotic use. I have recently stopped using in on my vulva and use mostly water or cetaphil gentle cleanser. I feel I am a bit better. Tihis has robbed me of some of my spirit for sure but I am determined to get it back. I am writing this quickly ( I am at work) and apologize for the disorganization. I wanted to get my message to you because we sound very similar in symptoms. I have no pain with q-tip test; I can wear tampons although sometimes they irritate my skin more. I have experienced some burning sensations when my skin is flaring really bad (I have wondered if this is muscle tension related). I had become horribly anxious about all of this which I am learning to control. The anxiety seems to be a major trigger for me. I hope all of you out there find the answers you are looking for. No woman should suffer this way. Keep searching, I will post my results of allergy testing. I had a positive yeast test in office at the start of all this 5 years ago.....but they send a yeast culture with each office visit and its always negative. I never had issues prior to having my 1st baby and it was C-section. Again symptoms started about 3-4 months after birth (?from nursing). Then symptoms went away, then antibiotics, then yeast infection, then symptoms never went away.
I tried homeopathy and still do take it (thinking it was lichen planus). Drs do not think lichen planus now at all. It's actually difficult to get that out of my head....it's been my thought for soooooo long. OK, now I am rambling and need to sign off!
Sending you ALL healing energy out there.......stay positive and light as much as possible.....it helps. <3 Write back ilovebaxter and let me know how you are!


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Re: I feel i'm the only itchy/irritated v on here

Post  cupcake25 on Sun Aug 18, 2013 1:28 am

You definitely aren't alone! My primary symptom is burning, but I also get a lovely itching, hot aching sensation at certain times of the month. I'm pretty sure it's hormonal but I have no idea what to do about it at this point. Any time I start to itch I freak out and use anti-yeast stuff, which I think is what put me in this vicious cycle to begging with Sad

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Re: I feel i'm the only itchy/irritated v on here

Post  Sebby (Admin) on Sun Aug 18, 2013 10:47 am

I avoid any anti yeast creams as I think they also irritate the skin, maybe try going completely cream free except when you need the lidocaine for bad days. I also take a bath in just salt every so often and that doesn't irritate me. I use only white toilet roll and avoid any bubble baths. When in the shower I bend over to rinse my hair to avoid any shampoo flowing to my vulva. I also spray my vulva with just cool water after every bath/shower and that seems to soothe. Go knicker free as often as possible and just wear a long skirt. I tend to do this when I get in from work in case it's a windy day! Don't wear knickers in bed. Get some air to it! I'm all for the very natural approach with the least chemicals down there the better.
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Re: I feel i'm the only itchy/irritated v on here

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