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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


I feel i'm the only itchy/irritated v on here

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I feel i'm the only itchy/irritated v on here

Post  ilovebaxter1 on Thu Jan 10, 2013 4:16 am

so, about a year and a half ago i used a baby wipe instead of toilet paper because there wasnt any..Since then my V has been inflamed and irritated. I have been using clobetasol for about a year now 3 times a week and it has helped VERY SLIGHTLY. I see a specialist in Boston working for Elizabeth Stewart and she has been trying different oral medications on me but nothing seems to be working.

I recently had an appointment with Elizabeth Stewart to get a second opinion besides my Dr. in her office and she said that with inflammation and irritation the Oral meds don't really help and the topical creams work better. But I've been trying diff meds for a year now and i've been using clobetasol and thats not helping either:( She is suppose to be the best and she's even written a book and I just dont know what their next step will be to help me:(

I am currently trying this new vulvar soothing cream called Neogyn and it says it takes about 6-8 weeks to work but if this doesn't work I feel like theres no more options to choose from the help me get better:(

My doctor hasn't even really diagnosed me with anything except for calling it "vulvitis" (inflammation of the vulva). I just don't understand why nothing is helping my skin. Shouldn't something be working to stop the inflammation and irritation? Lidocaine is the only thing that gives me relief and i feel 100% better when I use it..but when I shower and don't put it on right away I can feel the irritation and if i put underwear on (100% cotton) without the lidocaine its unbearable! -___- and I use scent free everything.

Does anyone on here have similar symptoms?? I feel as if I'm the only one.

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Re: I feel i'm the only itchy/irritated v on here

Post  jen007 on Thu Jan 10, 2013 3:36 pm

ilovebaxter1,

I used to have the same symptoms. I was always feeling a hot, burning sensation. Also I felt sharp knife like pains along with it. It was pretty much like one long amplified yeast infection. I would just try an distract myself from feeling it for the longest time, but eventually it got unbearable. I had seen a hand full of doctors before I found the right ones. I was seeing 3 doctors in one unit. They had never had someone like me before so I was like a lab rat for them. I tried almost every medication that I felt comfortable taking to no avail. I was considering pelvic floor therapy, but my gyno said it probably wouldn't help me since they have to use their fingers in there and I couldn't even handle a Q tip. I had no other options left, but surgery...which I had done in July. It worked out well for me, but like some others on this forum will tell you it isn't for everyone.

I would suggest you to buy this book:
http://www.amazon.com/When-Sex-Hurts-Womans-Banishing/dp/0738213985

It's by a man name Dr. Andrew Goldstein. He also did my surgery. He is a miracle worker! If there is anyway you could see him you should. I'm on the east coast and he's talked up in my area. He does more than surgeries, like he could be a regular gyno. Also I'd suggest joining the NVA if you haven't already. It allows you to find doctors, surgeons, and they send you discrete news letters in the mail with information towards research on vulvodynia. It was very helpful.

-Jen

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Hello ilovebaxter

Post  Leslieg on Fri Aug 09, 2013 7:23 pm

Hello, Ilovebaxter! (and others Smile I think you and I have similar stories. My primary symptoms are irritation, rawness, inflammation on the outside, pin-prick feelings and occasional itchiness. The extent of inflammation varies. I also go to Dr. Stewarts clinic in Boston. I've had symptoms for almost 5 years now. The nurse practitioners have prescribed all kinds of topical steroids. I don't use much of the now but I do use lidocaine. I truly thought I had vulvar lichen planus all this time. My first nurse practitioner eluded to this and I went with it. The symptoms just fit. I finally saw Dr. Margesson, a dermatologist in Dr. Stewarts clinic a few weeks ago. 3 Doctors looking at my hoohoo at the same time. Although I am now, unfortunately, used to people with medical licenses looking at me....this experience was very overwhelming. I was tearful and so nervous. Anyway, they ultimately think that I am allergic to something causing my issues. I am scheduled to have a series of allergy testing done in September and I see the doctors again in October. Imagine if all of this is an allergy? 5 years of symptoms. I have done it all....loose clothes, cotton underwear, hypoallergenic detergents. I sometimes wonder if I am having a reaction to Dove sensitive soap. I switched to this 5 years ago when I began symptoms after my son's birth and a lot of antibiotic use. I have recently stopped using in on my vulva and use mostly water or cetaphil gentle cleanser. I feel I am a bit better. Tihis has robbed me of some of my spirit for sure but I am determined to get it back. I am writing this quickly ( I am at work) and apologize for the disorganization. I wanted to get my message to you because we sound very similar in symptoms. I have no pain with q-tip test; I can wear tampons although sometimes they irritate my skin more. I have experienced some burning sensations when my skin is flaring really bad (I have wondered if this is muscle tension related). I had become horribly anxious about all of this which I am learning to control. The anxiety seems to be a major trigger for me. I hope all of you out there find the answers you are looking for. No woman should suffer this way. Keep searching, I will post my results of allergy testing. I had a positive yeast test in office at the start of all this 5 years ago.....but they send a yeast culture with each office visit and its always negative. I never had issues prior to having my 1st baby and it was C-section. Again symptoms started about 3-4 months after birth (?from nursing). Then symptoms went away, then antibiotics, then yeast infection, then symptoms never went away.
I tried homeopathy and still do take it (thinking it was lichen planus). Drs do not think lichen planus now at all. It's actually difficult to get that out of my head....it's been my thought for soooooo long. OK, now I am rambling and need to sign off!
Sending you ALL healing energy out there.......stay positive and light as much as possible.....it helps. <3 Write back ilovebaxter and let me know how you are!

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Re: I feel i'm the only itchy/irritated v on here

Post  cupcake25 on Sun Aug 18, 2013 1:28 am

You definitely aren't alone! My primary symptom is burning, but I also get a lovely itching, hot aching sensation at certain times of the month. I'm pretty sure it's hormonal but I have no idea what to do about it at this point. Any time I start to itch I freak out and use anti-yeast stuff, which I think is what put me in this vicious cycle to begging with Sad
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Re: I feel i'm the only itchy/irritated v on here

Post  Sebby (Admin) on Sun Aug 18, 2013 10:47 am

I avoid any anti yeast creams as I think they also irritate the skin, maybe try going completely cream free except when you need the lidocaine for bad days. I also take a bath in just salt every so often and that doesn't irritate me. I use only white toilet roll and avoid any bubble baths. When in the shower I bend over to rinse my hair to avoid any shampoo flowing to my vulva. I also spray my vulva with just cool water after every bath/shower and that seems to soothe. Go knicker free as often as possible and just wear a long skirt. I tend to do this when I get in from work in case it's a windy day! Don't wear knickers in bed. Get some air to it! I'm all for the very natural approach with the least chemicals down there the better.
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