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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


so depressed and need to vent

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so depressed and need to vent

Post  riag on Sat Jan 12, 2013 11:44 pm

I am new to this board but i have been on it constantly since ive found it. There is so much information here to digest. I used to go the the vulvodynia website on the ic support website because i didnt know any other boards existed for this condition.

I am just so depressed and so tired of juggling all my illnesses. It seems everytime im feeling better for a while, i get knocked back down. im so tired of going from dr to dr looking for answers and help. I am definitely making an appt with dr goldstein as recommended by some other members on this site. this just adds to my depression as we are experiencing financial difficulties and he doesnt take insurance.

Back in oct, i became suicidal. the only thing that got me thru the night was going to a suicide prevention website. I know my children need me. especially my daughter she suffers from mental illness and i alwys need to be here for her. It just gets so hard. My marraige is on the rocks. I am so lonely its unbearable. then to have all this pain , i just sometimes dont want to go on living anymore.

Tomorrow i am calling a psychologist to make an appt i Know i need help. I just know its going to be the run around again. trying to find a good match. Hopefully the first one i see will. any way, thanks for listening. i just needed and outlet right now because i have no one talk to right now.

riag

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Re: so depressed and need to vent

Post  carby148 on Mon Feb 25, 2013 6:28 am

I'm sorry you are struggling, and I'm sorry nobody has replied until now. You posted a while ago -- did you ever make an appointment with a psychologist? How are you feeling now?
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Re: so depressed and need to vent

Post  BpCookie on Mon Feb 25, 2013 10:37 pm

You poor hun. I hope your still on this board and you haven't given up on us. I havent been a member for very long and I didn't see this post until Carby replied to it. I understand how you feel about not wanting to go on living anymore. I have felt like that on many occasion. But Im so glad that Im still here. I have hope that there is a Dr. out there, some where, who can help me.

Hang in there honey and keep trying to find that one thing that will help you. Don't give up. hugs
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Re: so depressed and need to vent

Post  riag on Tue Feb 26, 2013 9:12 pm

thanks to both of you. iwas having a really bad day and really needed to vent. i have ibs, fibro, pelvic floor spasms, and vulvodynia. i found a therapist and have been seeing her for almost a month now. not sure if its helping, but im defiinitely not reaching for a bottle of pills and alcohol anymore. its still really hard. i appreciate the concern. sometimes i feel so alone with all my ailments. i hate juggling all my illnesses and having vulvodynia is the worst. not being able to function as a woman is so difficullt. i had made an appt with dr goldstein but had to cancel. i just cant afford it. so i went to see my old urologist whjo originally diagnosed me and he gave me some new creams, topicals and upped my nortriptlyine dose. just waiting for some results now. I havent been on the board since my original vent. i have just been too depressed. thanks for your support!

riag

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Re: so depressed and need to vent

Post  Alana3 on Tue Feb 26, 2013 9:38 pm

where are you located?

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Re: so depressed and need to vent

Post  riag on Tue Mar 05, 2013 1:37 am

sorry it took so long to reply I had difficulty getting back on the website. The link was not working. Any way , I live in Long Island NY

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Re: so depressed and need to vent

Post  Alana3 on Mon Mar 11, 2013 11:47 am

Hope you're feeling better! I live in Florida was gonna offer My doc but I guess you're too far Sad

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Re: so depressed and need to vent

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