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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


so depressed and need to vent

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so depressed and need to vent

Post  riag on Sat Jan 12, 2013 11:44 pm

I am new to this board but i have been on it constantly since ive found it. There is so much information here to digest. I used to go the the vulvodynia website on the ic support website because i didnt know any other boards existed for this condition.

I am just so depressed and so tired of juggling all my illnesses. It seems everytime im feeling better for a while, i get knocked back down. im so tired of going from dr to dr looking for answers and help. I am definitely making an appt with dr goldstein as recommended by some other members on this site. this just adds to my depression as we are experiencing financial difficulties and he doesnt take insurance.

Back in oct, i became suicidal. the only thing that got me thru the night was going to a suicide prevention website. I know my children need me. especially my daughter she suffers from mental illness and i alwys need to be here for her. It just gets so hard. My marraige is on the rocks. I am so lonely its unbearable. then to have all this pain , i just sometimes dont want to go on living anymore.

Tomorrow i am calling a psychologist to make an appt i Know i need help. I just know its going to be the run around again. trying to find a good match. Hopefully the first one i see will. any way, thanks for listening. i just needed and outlet right now because i have no one talk to right now.

riag

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Re: so depressed and need to vent

Post  carby148 on Mon Feb 25, 2013 6:28 am

I'm sorry you are struggling, and I'm sorry nobody has replied until now. You posted a while ago -- did you ever make an appointment with a psychologist? How are you feeling now?
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Re: so depressed and need to vent

Post  BpCookie on Mon Feb 25, 2013 10:37 pm

You poor hun. I hope your still on this board and you haven't given up on us. I havent been a member for very long and I didn't see this post until Carby replied to it. I understand how you feel about not wanting to go on living anymore. I have felt like that on many occasion. But Im so glad that Im still here. I have hope that there is a Dr. out there, some where, who can help me.

Hang in there honey and keep trying to find that one thing that will help you. Don't give up. hugs
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Re: so depressed and need to vent

Post  riag on Tue Feb 26, 2013 9:12 pm

thanks to both of you. iwas having a really bad day and really needed to vent. i have ibs, fibro, pelvic floor spasms, and vulvodynia. i found a therapist and have been seeing her for almost a month now. not sure if its helping, but im defiinitely not reaching for a bottle of pills and alcohol anymore. its still really hard. i appreciate the concern. sometimes i feel so alone with all my ailments. i hate juggling all my illnesses and having vulvodynia is the worst. not being able to function as a woman is so difficullt. i had made an appt with dr goldstein but had to cancel. i just cant afford it. so i went to see my old urologist whjo originally diagnosed me and he gave me some new creams, topicals and upped my nortriptlyine dose. just waiting for some results now. I havent been on the board since my original vent. i have just been too depressed. thanks for your support!

riag

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Re: so depressed and need to vent

Post  Alana3 on Tue Feb 26, 2013 9:38 pm

where are you located?

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Re: so depressed and need to vent

Post  riag on Tue Mar 05, 2013 1:37 am

sorry it took so long to reply I had difficulty getting back on the website. The link was not working. Any way , I live in Long Island NY

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Re: so depressed and need to vent

Post  Alana3 on Mon Mar 11, 2013 11:47 am

Hope you're feeling better! I live in Florida was gonna offer My doc but I guess you're too far Sad

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Re: so depressed and need to vent

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