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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


so depressed and need to vent

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so depressed and need to vent

Post  riag on Sat Jan 12, 2013 11:44 pm

I am new to this board but i have been on it constantly since ive found it. There is so much information here to digest. I used to go the the vulvodynia website on the ic support website because i didnt know any other boards existed for this condition.

I am just so depressed and so tired of juggling all my illnesses. It seems everytime im feeling better for a while, i get knocked back down. im so tired of going from dr to dr looking for answers and help. I am definitely making an appt with dr goldstein as recommended by some other members on this site. this just adds to my depression as we are experiencing financial difficulties and he doesnt take insurance.

Back in oct, i became suicidal. the only thing that got me thru the night was going to a suicide prevention website. I know my children need me. especially my daughter she suffers from mental illness and i alwys need to be here for her. It just gets so hard. My marraige is on the rocks. I am so lonely its unbearable. then to have all this pain , i just sometimes dont want to go on living anymore.

Tomorrow i am calling a psychologist to make an appt i Know i need help. I just know its going to be the run around again. trying to find a good match. Hopefully the first one i see will. any way, thanks for listening. i just needed and outlet right now because i have no one talk to right now.

riag

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Re: so depressed and need to vent

Post  carby148 on Mon Feb 25, 2013 6:28 am

I'm sorry you are struggling, and I'm sorry nobody has replied until now. You posted a while ago -- did you ever make an appointment with a psychologist? How are you feeling now?
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Re: so depressed and need to vent

Post  BpCookie on Mon Feb 25, 2013 10:37 pm

You poor hun. I hope your still on this board and you haven't given up on us. I havent been a member for very long and I didn't see this post until Carby replied to it. I understand how you feel about not wanting to go on living anymore. I have felt like that on many occasion. But Im so glad that Im still here. I have hope that there is a Dr. out there, some where, who can help me.

Hang in there honey and keep trying to find that one thing that will help you. Don't give up. hugs
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Re: so depressed and need to vent

Post  riag on Tue Feb 26, 2013 9:12 pm

thanks to both of you. iwas having a really bad day and really needed to vent. i have ibs, fibro, pelvic floor spasms, and vulvodynia. i found a therapist and have been seeing her for almost a month now. not sure if its helping, but im defiinitely not reaching for a bottle of pills and alcohol anymore. its still really hard. i appreciate the concern. sometimes i feel so alone with all my ailments. i hate juggling all my illnesses and having vulvodynia is the worst. not being able to function as a woman is so difficullt. i had made an appt with dr goldstein but had to cancel. i just cant afford it. so i went to see my old urologist whjo originally diagnosed me and he gave me some new creams, topicals and upped my nortriptlyine dose. just waiting for some results now. I havent been on the board since my original vent. i have just been too depressed. thanks for your support!

riag

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Re: so depressed and need to vent

Post  Alana3 on Tue Feb 26, 2013 9:38 pm

where are you located?

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Re: so depressed and need to vent

Post  riag on Tue Mar 05, 2013 1:37 am

sorry it took so long to reply I had difficulty getting back on the website. The link was not working. Any way , I live in Long Island NY

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Re: so depressed and need to vent

Post  Alana3 on Mon Mar 11, 2013 11:47 am

Hope you're feeling better! I live in Florida was gonna offer My doc but I guess you're too far Sad

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Re: so depressed and need to vent

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