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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


so depressed and need to vent

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so depressed and need to vent

Post  riag on Sat Jan 12, 2013 11:44 pm

I am new to this board but i have been on it constantly since ive found it. There is so much information here to digest. I used to go the the vulvodynia website on the ic support website because i didnt know any other boards existed for this condition.

I am just so depressed and so tired of juggling all my illnesses. It seems everytime im feeling better for a while, i get knocked back down. im so tired of going from dr to dr looking for answers and help. I am definitely making an appt with dr goldstein as recommended by some other members on this site. this just adds to my depression as we are experiencing financial difficulties and he doesnt take insurance.

Back in oct, i became suicidal. the only thing that got me thru the night was going to a suicide prevention website. I know my children need me. especially my daughter she suffers from mental illness and i alwys need to be here for her. It just gets so hard. My marraige is on the rocks. I am so lonely its unbearable. then to have all this pain , i just sometimes dont want to go on living anymore.

Tomorrow i am calling a psychologist to make an appt i Know i need help. I just know its going to be the run around again. trying to find a good match. Hopefully the first one i see will. any way, thanks for listening. i just needed and outlet right now because i have no one talk to right now.

riag

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Re: so depressed and need to vent

Post  carby148 on Mon Feb 25, 2013 6:28 am

I'm sorry you are struggling, and I'm sorry nobody has replied until now. You posted a while ago -- did you ever make an appointment with a psychologist? How are you feeling now?
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Re: so depressed and need to vent

Post  BpCookie on Mon Feb 25, 2013 10:37 pm

You poor hun. I hope your still on this board and you haven't given up on us. I havent been a member for very long and I didn't see this post until Carby replied to it. I understand how you feel about not wanting to go on living anymore. I have felt like that on many occasion. But Im so glad that Im still here. I have hope that there is a Dr. out there, some where, who can help me.

Hang in there honey and keep trying to find that one thing that will help you. Don't give up. hugs
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Re: so depressed and need to vent

Post  riag on Tue Feb 26, 2013 9:12 pm

thanks to both of you. iwas having a really bad day and really needed to vent. i have ibs, fibro, pelvic floor spasms, and vulvodynia. i found a therapist and have been seeing her for almost a month now. not sure if its helping, but im defiinitely not reaching for a bottle of pills and alcohol anymore. its still really hard. i appreciate the concern. sometimes i feel so alone with all my ailments. i hate juggling all my illnesses and having vulvodynia is the worst. not being able to function as a woman is so difficullt. i had made an appt with dr goldstein but had to cancel. i just cant afford it. so i went to see my old urologist whjo originally diagnosed me and he gave me some new creams, topicals and upped my nortriptlyine dose. just waiting for some results now. I havent been on the board since my original vent. i have just been too depressed. thanks for your support!

riag

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Re: so depressed and need to vent

Post  Alana3 on Tue Feb 26, 2013 9:38 pm

where are you located?

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Re: so depressed and need to vent

Post  riag on Tue Mar 05, 2013 1:37 am

sorry it took so long to reply I had difficulty getting back on the website. The link was not working. Any way , I live in Long Island NY

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Re: so depressed and need to vent

Post  Alana3 on Mon Mar 11, 2013 11:47 am

Hope you're feeling better! I live in Florida was gonna offer My doc but I guess you're too far Sad

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Re: so depressed and need to vent

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