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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

New to this forum

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New to this forum

Post  fairymoond84 on Sun Jan 13, 2013 12:48 am

Well let me start off by introducing myself, my name is Erica, I am 29 years old and I live in Florida. About 2 years ago all of a sudden it started to burn during intercourse. I thought "Oh great, another yeast infection". Took the yeast infection pill. Didn't help. Started to get worse. So I went to the ER. They told me I had trichomoniasis. Which did not go to well with my husband. Me and my husband have been together for 13 years. Anyways back to what I was saying. I knew I didn't have a STD, there was no way I could. So I went to planned parenthood, I didn't know where else to go because I was waiting for my health insurance to kick in. Well she said it wasn't trich, I thought thank goodness. She said it was my soap. So I stopped using soap down there. Still burning!!! So a few months later my insurance kicked in. Finally!!! I went to a OBGYN and he said that I had a fungal infection. Gave me the gel to put up there. For a few days no burning. Then by the 4th day, ON FIRE. Like acid was being poured down there. I went back to the same OBGYN office to see the same doc, but he wasn't there. So I had to see a different doc. He did some more tests and then told me that he knew what I had, Vulvodynia. Now here is where my experience with everything gets worse. I asked him what it was. He took a piece of paper and wrote down "Vulvodynia" and told me to google it. Like seriously you couldn't explain it. I was torn. How are you going to diagnose someone and be heartless. Not to mention the whole time he is examining me he is to busy joking with the nurse. And every time I would talk he would interrupt me. Anyways, I haven't been back to any other docs since that experience.

So now 2 years later I have noticed a lot with this Vulvodynia THING. Sex is only possible if I am beyond drunk where I can't feel anything. I noticed that I burn when I have discharge, and that I mostly have brown discharge. Has anyone else noticed that they have more brown discharge since having V? I am also starting to think that it is a little related to food and heartburn. And the reason why I say heartburn, is because I burn more when I have heartburn. Does that make any sense to anyone? Also having V has made it very difficult to TTC. can't TTC when you can't have sex. I found this forum through google. I was apart of some facebook groups which I left them due to no one really being that supportive to others. They would only reply to certain members. I hope I have found a good place I can come and blow of some V steam. Talk to you later, hopefully.


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Re: New to this forum

Post  rhiannon75 on Sun Jan 13, 2013 9:05 pm

Hello Erica! I am so sorry you are also dealing with this. I am new here. You should read my post from last night, where I also talk about brown discharge and feeling like acid has been poured down there. I am not a big drinker at all, and because I am not when I had a few glasses of wine in September I felt frisky and was able tolerate sex with my husband of 12 years. I wonder if it has something to do with the relaxation of muscles, as I am just learning about "pelvic floor dysfunction." Anyway, it doesn't matter if I could have sex or not, the next days afterward were the start of this 4 month issue. I had the worst of it in November and it has calmed down but certainly not gone away.

I didn't put in my original post that at one time 13 years ago I tested postitive for HPV and had some cervical changes but follow up paps have always been normal and no HPV. I have no idea about that. At the time I was having horrendous smelling discharges and recurrent infections so I just accepted that it was HPV. But even when I was a virgin I was succeptible to yeast infections and in my first marriage I just knew my husband was cheating because I pretty much kept non-specific vaginitis and bacterial vaginosis and I always thought they were std's but they never were.

I shutter to think of all the chemicals I used to kill these infections over the years. I have also used spermicides before. I am thinking now that a product designed to "KILL" sperm cannot be good for delicate female tissues. In addition, I had a traumatic delivery at age 18 with my 19 year old son which resulted in 2 full days of pushing and him getting stuck in the birth canal. I know that my episotimy was a mess as well.

Sex with my husband has been hit or miss as far as pain goes. Only a handful of times that I can honestly say it was totally pain free, which is why I always preferred outer stimulation to orgasm instead of intercourse. But now, even that is resulting in spasms and pain and tenderness, including bladder pain, for days afterward.

And I have awful reflux issues too so I think there is a connection.

Last edited by rhiannon75 on Sun Jan 13, 2013 9:07 pm; edited 1 time in total (Reason for editing : left out info)


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Re: New to this forum

Post  Alana3 on Mon Jan 14, 2013 6:31 pm


I'm from Florida too, where are you located?


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Re: New to this forum

Post  Chloe4 on Mon Jan 14, 2013 11:03 pm

Hey I am new on here too

I was recently diagnosed with vulvodynia. I was really scared about what was wrong with me for a long time and so it took me around 3 years to actually ask for help and go to my doctor. After reading other people's posts on here and on other information sites I think I have been quite lucky. I had very understanding doctors who listened to me which was so reassuring, I was worried it was all in my head. I have never bee able to have sex. I have a high pain threshold but it is just not a pain I can power through. I am 20 and from the first time I tried to have sex guys weren't that understanding of what it was like for me. I had pretty much surrendered to the idea that I would never be able to have sex and given up on relationships when I met my current boyfriend. He is so understanding and he even came with me to the doctor's appointment when I got diagnosed.

I have been given anesthetic cream to try but I am still really nervous. I know my boyfriend is really understanding but I don't want a repeat of previous situations. It's reassuring to realize I'm not the only one to go through this. It is difficult to talk about it with friends who don't know what it is like.


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maca, supplements

Post  lavrose on Tue Jan 22, 2013 8:46 pm

Since it started with an infection, it sounds like an infection. So many people Ive read on different forums all say their IC and VV started with a really bad yeast or bladder infection. I know how you feel, when I was having serious problems, I had to get drunk too, to have sex, it was a searing, burning pain, and you just couldnt wait to get it over.

If your having brown discharge it sounds like your hormones may be oof balance and adding to feeling"off" down there, I know vaginal dryness was another one of my major problems too, before I started taking herbal supplements.

I would start with Dong Quai herb, and Maca powder supplements. The Maca you need to put in a smoothie, like a TBSP every morning. Please google and research, its wonderful.

I put mine in a rice milk, yogurt, strawberry banana, raq honey smoothie every morning, (I freeze the bananas and strawberries).

It so worth it, you will get your sex life, and a healthy libido back too.

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oops.. :)

Post  lavrose on Tue Jan 22, 2013 8:46 pm

RAW honey, sorry Smile

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Re: New to this forum

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