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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

New to this forum

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New to this forum

Post  fairymoond84 on Sun Jan 13, 2013 12:48 am

Well let me start off by introducing myself, my name is Erica, I am 29 years old and I live in Florida. About 2 years ago all of a sudden it started to burn during intercourse. I thought "Oh great, another yeast infection". Took the yeast infection pill. Didn't help. Started to get worse. So I went to the ER. They told me I had trichomoniasis. Which did not go to well with my husband. Me and my husband have been together for 13 years. Anyways back to what I was saying. I knew I didn't have a STD, there was no way I could. So I went to planned parenthood, I didn't know where else to go because I was waiting for my health insurance to kick in. Well she said it wasn't trich, I thought thank goodness. She said it was my soap. So I stopped using soap down there. Still burning!!! So a few months later my insurance kicked in. Finally!!! I went to a OBGYN and he said that I had a fungal infection. Gave me the gel to put up there. For a few days no burning. Then by the 4th day, ON FIRE. Like acid was being poured down there. I went back to the same OBGYN office to see the same doc, but he wasn't there. So I had to see a different doc. He did some more tests and then told me that he knew what I had, Vulvodynia. Now here is where my experience with everything gets worse. I asked him what it was. He took a piece of paper and wrote down "Vulvodynia" and told me to google it. Like seriously you couldn't explain it. I was torn. How are you going to diagnose someone and be heartless. Not to mention the whole time he is examining me he is to busy joking with the nurse. And every time I would talk he would interrupt me. Anyways, I haven't been back to any other docs since that experience.

So now 2 years later I have noticed a lot with this Vulvodynia THING. Sex is only possible if I am beyond drunk where I can't feel anything. I noticed that I burn when I have discharge, and that I mostly have brown discharge. Has anyone else noticed that they have more brown discharge since having V? I am also starting to think that it is a little related to food and heartburn. And the reason why I say heartburn, is because I burn more when I have heartburn. Does that make any sense to anyone? Also having V has made it very difficult to TTC. can't TTC when you can't have sex. I found this forum through google. I was apart of some facebook groups which I left them due to no one really being that supportive to others. They would only reply to certain members. I hope I have found a good place I can come and blow of some V steam. Talk to you later, hopefully.


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Re: New to this forum

Post  rhiannon75 on Sun Jan 13, 2013 9:05 pm

Hello Erica! I am so sorry you are also dealing with this. I am new here. You should read my post from last night, where I also talk about brown discharge and feeling like acid has been poured down there. I am not a big drinker at all, and because I am not when I had a few glasses of wine in September I felt frisky and was able tolerate sex with my husband of 12 years. I wonder if it has something to do with the relaxation of muscles, as I am just learning about "pelvic floor dysfunction." Anyway, it doesn't matter if I could have sex or not, the next days afterward were the start of this 4 month issue. I had the worst of it in November and it has calmed down but certainly not gone away.

I didn't put in my original post that at one time 13 years ago I tested postitive for HPV and had some cervical changes but follow up paps have always been normal and no HPV. I have no idea about that. At the time I was having horrendous smelling discharges and recurrent infections so I just accepted that it was HPV. But even when I was a virgin I was succeptible to yeast infections and in my first marriage I just knew my husband was cheating because I pretty much kept non-specific vaginitis and bacterial vaginosis and I always thought they were std's but they never were.

I shutter to think of all the chemicals I used to kill these infections over the years. I have also used spermicides before. I am thinking now that a product designed to "KILL" sperm cannot be good for delicate female tissues. In addition, I had a traumatic delivery at age 18 with my 19 year old son which resulted in 2 full days of pushing and him getting stuck in the birth canal. I know that my episotimy was a mess as well.

Sex with my husband has been hit or miss as far as pain goes. Only a handful of times that I can honestly say it was totally pain free, which is why I always preferred outer stimulation to orgasm instead of intercourse. But now, even that is resulting in spasms and pain and tenderness, including bladder pain, for days afterward.

And I have awful reflux issues too so I think there is a connection.

Last edited by rhiannon75 on Sun Jan 13, 2013 9:07 pm; edited 1 time in total (Reason for editing : left out info)


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Re: New to this forum

Post  Alana3 on Mon Jan 14, 2013 6:31 pm


I'm from Florida too, where are you located?


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Re: New to this forum

Post  Chloe4 on Mon Jan 14, 2013 11:03 pm

Hey I am new on here too

I was recently diagnosed with vulvodynia. I was really scared about what was wrong with me for a long time and so it took me around 3 years to actually ask for help and go to my doctor. After reading other people's posts on here and on other information sites I think I have been quite lucky. I had very understanding doctors who listened to me which was so reassuring, I was worried it was all in my head. I have never bee able to have sex. I have a high pain threshold but it is just not a pain I can power through. I am 20 and from the first time I tried to have sex guys weren't that understanding of what it was like for me. I had pretty much surrendered to the idea that I would never be able to have sex and given up on relationships when I met my current boyfriend. He is so understanding and he even came with me to the doctor's appointment when I got diagnosed.

I have been given anesthetic cream to try but I am still really nervous. I know my boyfriend is really understanding but I don't want a repeat of previous situations. It's reassuring to realize I'm not the only one to go through this. It is difficult to talk about it with friends who don't know what it is like.


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maca, supplements

Post  lavrose on Tue Jan 22, 2013 8:46 pm

Since it started with an infection, it sounds like an infection. So many people Ive read on different forums all say their IC and VV started with a really bad yeast or bladder infection. I know how you feel, when I was having serious problems, I had to get drunk too, to have sex, it was a searing, burning pain, and you just couldnt wait to get it over.

If your having brown discharge it sounds like your hormones may be oof balance and adding to feeling"off" down there, I know vaginal dryness was another one of my major problems too, before I started taking herbal supplements.

I would start with Dong Quai herb, and Maca powder supplements. The Maca you need to put in a smoothie, like a TBSP every morning. Please google and research, its wonderful.

I put mine in a rice milk, yogurt, strawberry banana, raq honey smoothie every morning, (I freeze the bananas and strawberries).

It so worth it, you will get your sex life, and a healthy libido back too.

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oops.. :)

Post  lavrose on Tue Jan 22, 2013 8:46 pm

RAW honey, sorry Smile

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Re: New to this forum

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