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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

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New to this forum

Post  fairymoond84 on Sun Jan 13, 2013 12:48 am

Well let me start off by introducing myself, my name is Erica, I am 29 years old and I live in Florida. About 2 years ago all of a sudden it started to burn during intercourse. I thought "Oh great, another yeast infection". Took the yeast infection pill. Didn't help. Started to get worse. So I went to the ER. They told me I had trichomoniasis. Which did not go to well with my husband. Me and my husband have been together for 13 years. Anyways back to what I was saying. I knew I didn't have a STD, there was no way I could. So I went to planned parenthood, I didn't know where else to go because I was waiting for my health insurance to kick in. Well she said it wasn't trich, I thought thank goodness. She said it was my soap. So I stopped using soap down there. Still burning!!! So a few months later my insurance kicked in. Finally!!! I went to a OBGYN and he said that I had a fungal infection. Gave me the gel to put up there. For a few days no burning. Then by the 4th day, ON FIRE. Like acid was being poured down there. I went back to the same OBGYN office to see the same doc, but he wasn't there. So I had to see a different doc. He did some more tests and then told me that he knew what I had, Vulvodynia. Now here is where my experience with everything gets worse. I asked him what it was. He took a piece of paper and wrote down "Vulvodynia" and told me to google it. Like seriously you couldn't explain it. I was torn. How are you going to diagnose someone and be heartless. Not to mention the whole time he is examining me he is to busy joking with the nurse. And every time I would talk he would interrupt me. Anyways, I haven't been back to any other docs since that experience.

So now 2 years later I have noticed a lot with this Vulvodynia THING. Sex is only possible if I am beyond drunk where I can't feel anything. I noticed that I burn when I have discharge, and that I mostly have brown discharge. Has anyone else noticed that they have more brown discharge since having V? I am also starting to think that it is a little related to food and heartburn. And the reason why I say heartburn, is because I burn more when I have heartburn. Does that make any sense to anyone? Also having V has made it very difficult to TTC. can't TTC when you can't have sex. I found this forum through google. I was apart of some facebook groups which I left them due to no one really being that supportive to others. They would only reply to certain members. I hope I have found a good place I can come and blow of some V steam. Talk to you later, hopefully.


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Re: New to this forum

Post  rhiannon75 on Sun Jan 13, 2013 9:05 pm

Hello Erica! I am so sorry you are also dealing with this. I am new here. You should read my post from last night, where I also talk about brown discharge and feeling like acid has been poured down there. I am not a big drinker at all, and because I am not when I had a few glasses of wine in September I felt frisky and was able tolerate sex with my husband of 12 years. I wonder if it has something to do with the relaxation of muscles, as I am just learning about "pelvic floor dysfunction." Anyway, it doesn't matter if I could have sex or not, the next days afterward were the start of this 4 month issue. I had the worst of it in November and it has calmed down but certainly not gone away.

I didn't put in my original post that at one time 13 years ago I tested postitive for HPV and had some cervical changes but follow up paps have always been normal and no HPV. I have no idea about that. At the time I was having horrendous smelling discharges and recurrent infections so I just accepted that it was HPV. But even when I was a virgin I was succeptible to yeast infections and in my first marriage I just knew my husband was cheating because I pretty much kept non-specific vaginitis and bacterial vaginosis and I always thought they were std's but they never were.

I shutter to think of all the chemicals I used to kill these infections over the years. I have also used spermicides before. I am thinking now that a product designed to "KILL" sperm cannot be good for delicate female tissues. In addition, I had a traumatic delivery at age 18 with my 19 year old son which resulted in 2 full days of pushing and him getting stuck in the birth canal. I know that my episotimy was a mess as well.

Sex with my husband has been hit or miss as far as pain goes. Only a handful of times that I can honestly say it was totally pain free, which is why I always preferred outer stimulation to orgasm instead of intercourse. But now, even that is resulting in spasms and pain and tenderness, including bladder pain, for days afterward.

And I have awful reflux issues too so I think there is a connection.

Last edited by rhiannon75 on Sun Jan 13, 2013 9:07 pm; edited 1 time in total (Reason for editing : left out info)


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Re: New to this forum

Post  Alana3 on Mon Jan 14, 2013 6:31 pm


I'm from Florida too, where are you located?


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Re: New to this forum

Post  Chloe4 on Mon Jan 14, 2013 11:03 pm

Hey I am new on here too

I was recently diagnosed with vulvodynia. I was really scared about what was wrong with me for a long time and so it took me around 3 years to actually ask for help and go to my doctor. After reading other people's posts on here and on other information sites I think I have been quite lucky. I had very understanding doctors who listened to me which was so reassuring, I was worried it was all in my head. I have never bee able to have sex. I have a high pain threshold but it is just not a pain I can power through. I am 20 and from the first time I tried to have sex guys weren't that understanding of what it was like for me. I had pretty much surrendered to the idea that I would never be able to have sex and given up on relationships when I met my current boyfriend. He is so understanding and he even came with me to the doctor's appointment when I got diagnosed.

I have been given anesthetic cream to try but I am still really nervous. I know my boyfriend is really understanding but I don't want a repeat of previous situations. It's reassuring to realize I'm not the only one to go through this. It is difficult to talk about it with friends who don't know what it is like.


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maca, supplements

Post  lavrose on Tue Jan 22, 2013 8:46 pm

Since it started with an infection, it sounds like an infection. So many people Ive read on different forums all say their IC and VV started with a really bad yeast or bladder infection. I know how you feel, when I was having serious problems, I had to get drunk too, to have sex, it was a searing, burning pain, and you just couldnt wait to get it over.

If your having brown discharge it sounds like your hormones may be oof balance and adding to feeling"off" down there, I know vaginal dryness was another one of my major problems too, before I started taking herbal supplements.

I would start with Dong Quai herb, and Maca powder supplements. The Maca you need to put in a smoothie, like a TBSP every morning. Please google and research, its wonderful.

I put mine in a rice milk, yogurt, strawberry banana, raq honey smoothie every morning, (I freeze the bananas and strawberries).

It so worth it, you will get your sex life, and a healthy libido back too.

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oops.. :)

Post  lavrose on Tue Jan 22, 2013 8:46 pm

RAW honey, sorry Smile

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Re: New to this forum

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