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» Change in birth control question
Yesterday at 7:34 pm by Jo44

» Weird Reactions to Natural Remedies
Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


wide awake and net surfing

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wide awake and net surfing

Post  naomi on Fri Aug 27, 2010 2:02 am

I cant bloody well sleep its doing my nut in!! bounce

Does anyone else while-away the hours just cruising the net looking at anything that could help for cure symptoms?...I feel like I spend half my life doing it, its like a job!!! My eyes are needing matchsticks to keep them open but my head is just spinning and wont settle.

So raw and sore today and well and truely fed up. I'm considering doing some voluntery work but i dont want to let people down as I get so low and mentally down. And also Im starving but cant eat anything else as Im doing stooopid weightwatchers so I think Im having chocolate withdrawls and feel ratty.

Oooooooo woe is me! Im proper wingey-pants Smile

I stopped my injection (depo-provera) this month too as ive been on it for 2 years as I found periods just too painful ans sore to deal with. I just got fed up with random hormones and chemicals in my body, so maybe thats why im being a mardy-moo. I kind of have a tiny period but its just so sore.

I also just realised, since I broke up with matt ive been ok, but tonight im reeeeeeeeeeeeallly missing his hugs. Or actually not him , anyones. Yes thats it, I really want a hug. Damn it it's 2.58am...where is an available fitty to hug?? I was even sat watching Bridget Jones ealier eating icecream, lots of. Oh dear.

winge time over now...i feel so lame tonight! Does anyone ever feel like they are clinging on by the skin of their teeth just to feel 'normal' or 'happy', such a struggle.


translations: (for Julie JWAJULES!!)

NUT - its doing my head in/stressing me out

WINGEY-PANTS - feeling pitiful and sorry for ones self

MARDY-MOO - as above

FITTY- fine looking man, for example, Heath Ledger, Brad Pitt.


Right, I might try a cup of camomile tea. Night all xxxxxx
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naomi
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Re: wide awake and net surfing

Post  Sarah001 on Fri Aug 27, 2010 10:33 am

Ha ha! I feel a bit like my "search for a cure" is a full time job too! I never seem to find anything I haven't seen before though so I may try and knock it on the head!

I imagine your hormones are all over the place at the moment, it's a good idea to take a break from birth control though just in case it's adding to your symptoms.

Hope you managed to get some sleep eventually, things always look alot worse in the early hours of the morning when everyone else is asleep. Don't forget you've still got lots of things you can try to help yourself with this so all hope isn't lost! Good luck with the weight watchers, I can't follow diets I get too bored by them.
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Re: wide awake and net surfing

Post  naomi on Fri Aug 27, 2010 12:56 pm

Bloomin' ek! I woke up at 1.30 in the afternoon! I feel like Ive done the night shift Very Happy

Yeh u r right, birth control has a lot to answer for I think. It's just horrid having a period (which is heavier today) as it makes my symptoms worse. Hopefully it wont last too long.

Im waiting now for the 'specialists' to get off their cruise holidays etc and come back and treat me! It seems to be about 4 months between appointments at the moment but with no treatment plan. The last time I saw him he suggested things to use that ive already tried with other specialists (even though I had typed out a through list of treatments tried etc)

Well I weighed myself today after a week and Ive lost 4lbs....no granted I a) made sure i hadnt eaten anything and b) had a poo beforehand it probably wasnt much of a weigh in Smile tehehe! Only another 17lbs to go, crumbs!!

hope everyone has a good weekend! Ive cancelled on my uni pals as we were going camping but i really dont feel up to it with the prospect of crap weather and the extra soreness at the mo. So its a quiet one for me. Eyelash party tonight though! semi permenant ones...I might come away looking like BigBird off Seasame Street....hope not!
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Re: wide awake and net surfing

Post  Sarah001 on Fri Aug 27, 2010 6:26 pm

I can empathise with you right now, I've got extra soreness because of my period and terrible period pains too. What is your next treatment plan? Did you decide not to do the yeast diet?
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Re: wide awake and net surfing

Post  jules on Sat Aug 28, 2010 11:29 pm

Naomi.... LOL, thanks for your translation of English to American ha ha! i would have had no idea what you were talking out..maybe a little. I have searched the web as well. i have more pain right before my period than during. i have never been on shots or the pill...the hubby had a vasectomy years ago(luck me). I can't believe you have to wait like that for pain relief. Sarah001 seems to have done a lot of research that may lead you in the right direction. I need to pick back up w/ my P.T. to see if that will help. what i am realizing now is that physical activity (long walks and working-out cause flare ups for me)...so far that seems to be the one link. unfortunately, this was one of my very favorite things to do (yeah..kind of crazy).

Congrats on the 4 lbs. you don't have much to go, but easy for me to say. it's hard, but you can do it. glad you got some sleep. lack of sleep definitely affects the mood. i'll be interested to see what your doctors have in the works for you next. Sorry i couldn't give you a hug. i'm guessing you would prefer a man. I'm glad you feel good about your decision to end it w/ Matt. You must have done the right thing.

take care!! I would agree that Brad Pitt and Heath Ledger (although dead) are hotties! that's what we call them here.

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Re: wide awake and net surfing

Post  Sarah001 on Sun Aug 29, 2010 6:51 pm

Julie do you think working out and walking cause flare ups because you tense the muscles up? Or is your pelvis out of alignment? I find stretching the adductors is a definite flare up activity for me so I'm doing quite a bit of massage on them at the moment to try and loosen them up a bit. I think it's really useful to know which kinds of exercises create flare ups because I think it gives a more definite direction to work on.
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Re: wide awake and net surfing

Post  jules on Mon Aug 30, 2010 2:19 am

the work outs that create problems for me are cardio related...like the elliptical and trek machines.walking for long periods of time also creates problems some of the time. after 15 minutes of working out...i get warm and then i burn. my P.T. thinks it has to do w/ the core muscles and my muscles are pushing into the floor of the pelvis. there are nerves wrapped around the muscles creating burning pain. it was recommended by her that i only do cardio for 10 minutes and then go do other exercises w/ an exercise ball etc. i think there is just too much pressure on the pelvic muscles at this point.

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Re: wide awake and net surfing

Post  Sarah001 on Mon Aug 30, 2010 11:59 am

The other thing my therapist said about exercise was if some of your global muscles (mobiliser muscles, glutes, hamstrings etc) are weak and don't pull their weight they also put pressure on the pelvic floor and make it spasm harder. That definitely applies to me and I'm currently under strict instructions to do only the absolute basics and nothing else which is weird, usually my physio is pushing me on with more exercises!!
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Re: wide awake and net surfing

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