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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


wide awake and net surfing

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wide awake and net surfing

Post  naomi on Fri Aug 27, 2010 2:02 am

I cant bloody well sleep its doing my nut in!! bounce

Does anyone else while-away the hours just cruising the net looking at anything that could help for cure symptoms?...I feel like I spend half my life doing it, its like a job!!! My eyes are needing matchsticks to keep them open but my head is just spinning and wont settle.

So raw and sore today and well and truely fed up. I'm considering doing some voluntery work but i dont want to let people down as I get so low and mentally down. And also Im starving but cant eat anything else as Im doing stooopid weightwatchers so I think Im having chocolate withdrawls and feel ratty.

Oooooooo woe is me! Im proper wingey-pants Smile

I stopped my injection (depo-provera) this month too as ive been on it for 2 years as I found periods just too painful ans sore to deal with. I just got fed up with random hormones and chemicals in my body, so maybe thats why im being a mardy-moo. I kind of have a tiny period but its just so sore.

I also just realised, since I broke up with matt ive been ok, but tonight im reeeeeeeeeeeeallly missing his hugs. Or actually not him , anyones. Yes thats it, I really want a hug. Damn it it's 2.58am...where is an available fitty to hug?? I was even sat watching Bridget Jones ealier eating icecream, lots of. Oh dear.

winge time over now...i feel so lame tonight! Does anyone ever feel like they are clinging on by the skin of their teeth just to feel 'normal' or 'happy', such a struggle.


translations: (for Julie JWAJULES!!)

NUT - its doing my head in/stressing me out

WINGEY-PANTS - feeling pitiful and sorry for ones self

MARDY-MOO - as above

FITTY- fine looking man, for example, Heath Ledger, Brad Pitt.


Right, I might try a cup of camomile tea. Night all xxxxxx
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naomi
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Re: wide awake and net surfing

Post  Sarah001 on Fri Aug 27, 2010 10:33 am

Ha ha! I feel a bit like my "search for a cure" is a full time job too! I never seem to find anything I haven't seen before though so I may try and knock it on the head!

I imagine your hormones are all over the place at the moment, it's a good idea to take a break from birth control though just in case it's adding to your symptoms.

Hope you managed to get some sleep eventually, things always look alot worse in the early hours of the morning when everyone else is asleep. Don't forget you've still got lots of things you can try to help yourself with this so all hope isn't lost! Good luck with the weight watchers, I can't follow diets I get too bored by them.
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Re: wide awake and net surfing

Post  naomi on Fri Aug 27, 2010 12:56 pm

Bloomin' ek! I woke up at 1.30 in the afternoon! I feel like Ive done the night shift Very Happy

Yeh u r right, birth control has a lot to answer for I think. It's just horrid having a period (which is heavier today) as it makes my symptoms worse. Hopefully it wont last too long.

Im waiting now for the 'specialists' to get off their cruise holidays etc and come back and treat me! It seems to be about 4 months between appointments at the moment but with no treatment plan. The last time I saw him he suggested things to use that ive already tried with other specialists (even though I had typed out a through list of treatments tried etc)

Well I weighed myself today after a week and Ive lost 4lbs....no granted I a) made sure i hadnt eaten anything and b) had a poo beforehand it probably wasnt much of a weigh in Smile tehehe! Only another 17lbs to go, crumbs!!

hope everyone has a good weekend! Ive cancelled on my uni pals as we were going camping but i really dont feel up to it with the prospect of crap weather and the extra soreness at the mo. So its a quiet one for me. Eyelash party tonight though! semi permenant ones...I might come away looking like BigBird off Seasame Street....hope not!
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Re: wide awake and net surfing

Post  Sarah001 on Fri Aug 27, 2010 6:26 pm

I can empathise with you right now, I've got extra soreness because of my period and terrible period pains too. What is your next treatment plan? Did you decide not to do the yeast diet?
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Re: wide awake and net surfing

Post  jules on Sat Aug 28, 2010 11:29 pm

Naomi.... LOL, thanks for your translation of English to American ha ha! i would have had no idea what you were talking out..maybe a little. I have searched the web as well. i have more pain right before my period than during. i have never been on shots or the pill...the hubby had a vasectomy years ago(luck me). I can't believe you have to wait like that for pain relief. Sarah001 seems to have done a lot of research that may lead you in the right direction. I need to pick back up w/ my P.T. to see if that will help. what i am realizing now is that physical activity (long walks and working-out cause flare ups for me)...so far that seems to be the one link. unfortunately, this was one of my very favorite things to do (yeah..kind of crazy).

Congrats on the 4 lbs. you don't have much to go, but easy for me to say. it's hard, but you can do it. glad you got some sleep. lack of sleep definitely affects the mood. i'll be interested to see what your doctors have in the works for you next. Sorry i couldn't give you a hug. i'm guessing you would prefer a man. I'm glad you feel good about your decision to end it w/ Matt. You must have done the right thing.

take care!! I would agree that Brad Pitt and Heath Ledger (although dead) are hotties! that's what we call them here.

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Re: wide awake and net surfing

Post  Sarah001 on Sun Aug 29, 2010 6:51 pm

Julie do you think working out and walking cause flare ups because you tense the muscles up? Or is your pelvis out of alignment? I find stretching the adductors is a definite flare up activity for me so I'm doing quite a bit of massage on them at the moment to try and loosen them up a bit. I think it's really useful to know which kinds of exercises create flare ups because I think it gives a more definite direction to work on.
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Re: wide awake and net surfing

Post  jules on Mon Aug 30, 2010 2:19 am

the work outs that create problems for me are cardio related...like the elliptical and trek machines.walking for long periods of time also creates problems some of the time. after 15 minutes of working out...i get warm and then i burn. my P.T. thinks it has to do w/ the core muscles and my muscles are pushing into the floor of the pelvis. there are nerves wrapped around the muscles creating burning pain. it was recommended by her that i only do cardio for 10 minutes and then go do other exercises w/ an exercise ball etc. i think there is just too much pressure on the pelvic muscles at this point.

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Re: wide awake and net surfing

Post  Sarah001 on Mon Aug 30, 2010 11:59 am

The other thing my therapist said about exercise was if some of your global muscles (mobiliser muscles, glutes, hamstrings etc) are weak and don't pull their weight they also put pressure on the pelvic floor and make it spasm harder. That definitely applies to me and I'm currently under strict instructions to do only the absolute basics and nothing else which is weird, usually my physio is pushing me on with more exercises!!
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Re: wide awake and net surfing

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