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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


wide awake and net surfing

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wide awake and net surfing

Post  naomi on Fri Aug 27, 2010 2:02 am

I cant bloody well sleep its doing my nut in!! bounce

Does anyone else while-away the hours just cruising the net looking at anything that could help for cure symptoms?...I feel like I spend half my life doing it, its like a job!!! My eyes are needing matchsticks to keep them open but my head is just spinning and wont settle.

So raw and sore today and well and truely fed up. I'm considering doing some voluntery work but i dont want to let people down as I get so low and mentally down. And also Im starving but cant eat anything else as Im doing stooopid weightwatchers so I think Im having chocolate withdrawls and feel ratty.

Oooooooo woe is me! Im proper wingey-pants Smile

I stopped my injection (depo-provera) this month too as ive been on it for 2 years as I found periods just too painful ans sore to deal with. I just got fed up with random hormones and chemicals in my body, so maybe thats why im being a mardy-moo. I kind of have a tiny period but its just so sore.

I also just realised, since I broke up with matt ive been ok, but tonight im reeeeeeeeeeeeallly missing his hugs. Or actually not him , anyones. Yes thats it, I really want a hug. Damn it it's 2.58am...where is an available fitty to hug?? I was even sat watching Bridget Jones ealier eating icecream, lots of. Oh dear.

winge time over now...i feel so lame tonight! Does anyone ever feel like they are clinging on by the skin of their teeth just to feel 'normal' or 'happy', such a struggle.


translations: (for Julie JWAJULES!!)

NUT - its doing my head in/stressing me out

WINGEY-PANTS - feeling pitiful and sorry for ones self

MARDY-MOO - as above

FITTY- fine looking man, for example, Heath Ledger, Brad Pitt.


Right, I might try a cup of camomile tea. Night all xxxxxx
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naomi
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Re: wide awake and net surfing

Post  Sarah001 on Fri Aug 27, 2010 10:33 am

Ha ha! I feel a bit like my "search for a cure" is a full time job too! I never seem to find anything I haven't seen before though so I may try and knock it on the head!

I imagine your hormones are all over the place at the moment, it's a good idea to take a break from birth control though just in case it's adding to your symptoms.

Hope you managed to get some sleep eventually, things always look alot worse in the early hours of the morning when everyone else is asleep. Don't forget you've still got lots of things you can try to help yourself with this so all hope isn't lost! Good luck with the weight watchers, I can't follow diets I get too bored by them.
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Re: wide awake and net surfing

Post  naomi on Fri Aug 27, 2010 12:56 pm

Bloomin' ek! I woke up at 1.30 in the afternoon! I feel like Ive done the night shift Very Happy

Yeh u r right, birth control has a lot to answer for I think. It's just horrid having a period (which is heavier today) as it makes my symptoms worse. Hopefully it wont last too long.

Im waiting now for the 'specialists' to get off their cruise holidays etc and come back and treat me! It seems to be about 4 months between appointments at the moment but with no treatment plan. The last time I saw him he suggested things to use that ive already tried with other specialists (even though I had typed out a through list of treatments tried etc)

Well I weighed myself today after a week and Ive lost 4lbs....no granted I a) made sure i hadnt eaten anything and b) had a poo beforehand it probably wasnt much of a weigh in Smile tehehe! Only another 17lbs to go, crumbs!!

hope everyone has a good weekend! Ive cancelled on my uni pals as we were going camping but i really dont feel up to it with the prospect of crap weather and the extra soreness at the mo. So its a quiet one for me. Eyelash party tonight though! semi permenant ones...I might come away looking like BigBird off Seasame Street....hope not!
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Re: wide awake and net surfing

Post  Sarah001 on Fri Aug 27, 2010 6:26 pm

I can empathise with you right now, I've got extra soreness because of my period and terrible period pains too. What is your next treatment plan? Did you decide not to do the yeast diet?
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Re: wide awake and net surfing

Post  jules on Sat Aug 28, 2010 11:29 pm

Naomi.... LOL, thanks for your translation of English to American ha ha! i would have had no idea what you were talking out..maybe a little. I have searched the web as well. i have more pain right before my period than during. i have never been on shots or the pill...the hubby had a vasectomy years ago(luck me). I can't believe you have to wait like that for pain relief. Sarah001 seems to have done a lot of research that may lead you in the right direction. I need to pick back up w/ my P.T. to see if that will help. what i am realizing now is that physical activity (long walks and working-out cause flare ups for me)...so far that seems to be the one link. unfortunately, this was one of my very favorite things to do (yeah..kind of crazy).

Congrats on the 4 lbs. you don't have much to go, but easy for me to say. it's hard, but you can do it. glad you got some sleep. lack of sleep definitely affects the mood. i'll be interested to see what your doctors have in the works for you next. Sorry i couldn't give you a hug. i'm guessing you would prefer a man. I'm glad you feel good about your decision to end it w/ Matt. You must have done the right thing.

take care!! I would agree that Brad Pitt and Heath Ledger (although dead) are hotties! that's what we call them here.

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Re: wide awake and net surfing

Post  Sarah001 on Sun Aug 29, 2010 6:51 pm

Julie do you think working out and walking cause flare ups because you tense the muscles up? Or is your pelvis out of alignment? I find stretching the adductors is a definite flare up activity for me so I'm doing quite a bit of massage on them at the moment to try and loosen them up a bit. I think it's really useful to know which kinds of exercises create flare ups because I think it gives a more definite direction to work on.
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Re: wide awake and net surfing

Post  jules on Mon Aug 30, 2010 2:19 am

the work outs that create problems for me are cardio related...like the elliptical and trek machines.walking for long periods of time also creates problems some of the time. after 15 minutes of working out...i get warm and then i burn. my P.T. thinks it has to do w/ the core muscles and my muscles are pushing into the floor of the pelvis. there are nerves wrapped around the muscles creating burning pain. it was recommended by her that i only do cardio for 10 minutes and then go do other exercises w/ an exercise ball etc. i think there is just too much pressure on the pelvic muscles at this point.

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Re: wide awake and net surfing

Post  Sarah001 on Mon Aug 30, 2010 11:59 am

The other thing my therapist said about exercise was if some of your global muscles (mobiliser muscles, glutes, hamstrings etc) are weak and don't pull their weight they also put pressure on the pelvic floor and make it spasm harder. That definitely applies to me and I'm currently under strict instructions to do only the absolute basics and nothing else which is weird, usually my physio is pushing me on with more exercises!!
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Re: wide awake and net surfing

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