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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


wide awake and net surfing

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wide awake and net surfing

Post  naomi on Fri Aug 27, 2010 2:02 am

I cant bloody well sleep its doing my nut in!! bounce

Does anyone else while-away the hours just cruising the net looking at anything that could help for cure symptoms?...I feel like I spend half my life doing it, its like a job!!! My eyes are needing matchsticks to keep them open but my head is just spinning and wont settle.

So raw and sore today and well and truely fed up. I'm considering doing some voluntery work but i dont want to let people down as I get so low and mentally down. And also Im starving but cant eat anything else as Im doing stooopid weightwatchers so I think Im having chocolate withdrawls and feel ratty.

Oooooooo woe is me! Im proper wingey-pants Smile

I stopped my injection (depo-provera) this month too as ive been on it for 2 years as I found periods just too painful ans sore to deal with. I just got fed up with random hormones and chemicals in my body, so maybe thats why im being a mardy-moo. I kind of have a tiny period but its just so sore.

I also just realised, since I broke up with matt ive been ok, but tonight im reeeeeeeeeeeeallly missing his hugs. Or actually not him , anyones. Yes thats it, I really want a hug. Damn it it's 2.58am...where is an available fitty to hug?? I was even sat watching Bridget Jones ealier eating icecream, lots of. Oh dear.

winge time over now...i feel so lame tonight! Does anyone ever feel like they are clinging on by the skin of their teeth just to feel 'normal' or 'happy', such a struggle.


translations: (for Julie JWAJULES!!)

NUT - its doing my head in/stressing me out

WINGEY-PANTS - feeling pitiful and sorry for ones self

MARDY-MOO - as above

FITTY- fine looking man, for example, Heath Ledger, Brad Pitt.


Right, I might try a cup of camomile tea. Night all xxxxxx
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naomi
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Re: wide awake and net surfing

Post  Sarah001 on Fri Aug 27, 2010 10:33 am

Ha ha! I feel a bit like my "search for a cure" is a full time job too! I never seem to find anything I haven't seen before though so I may try and knock it on the head!

I imagine your hormones are all over the place at the moment, it's a good idea to take a break from birth control though just in case it's adding to your symptoms.

Hope you managed to get some sleep eventually, things always look alot worse in the early hours of the morning when everyone else is asleep. Don't forget you've still got lots of things you can try to help yourself with this so all hope isn't lost! Good luck with the weight watchers, I can't follow diets I get too bored by them.
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Re: wide awake and net surfing

Post  naomi on Fri Aug 27, 2010 12:56 pm

Bloomin' ek! I woke up at 1.30 in the afternoon! I feel like Ive done the night shift Very Happy

Yeh u r right, birth control has a lot to answer for I think. It's just horrid having a period (which is heavier today) as it makes my symptoms worse. Hopefully it wont last too long.

Im waiting now for the 'specialists' to get off their cruise holidays etc and come back and treat me! It seems to be about 4 months between appointments at the moment but with no treatment plan. The last time I saw him he suggested things to use that ive already tried with other specialists (even though I had typed out a through list of treatments tried etc)

Well I weighed myself today after a week and Ive lost 4lbs....no granted I a) made sure i hadnt eaten anything and b) had a poo beforehand it probably wasnt much of a weigh in Smile tehehe! Only another 17lbs to go, crumbs!!

hope everyone has a good weekend! Ive cancelled on my uni pals as we were going camping but i really dont feel up to it with the prospect of crap weather and the extra soreness at the mo. So its a quiet one for me. Eyelash party tonight though! semi permenant ones...I might come away looking like BigBird off Seasame Street....hope not!
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Re: wide awake and net surfing

Post  Sarah001 on Fri Aug 27, 2010 6:26 pm

I can empathise with you right now, I've got extra soreness because of my period and terrible period pains too. What is your next treatment plan? Did you decide not to do the yeast diet?
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Re: wide awake and net surfing

Post  jules on Sat Aug 28, 2010 11:29 pm

Naomi.... LOL, thanks for your translation of English to American ha ha! i would have had no idea what you were talking out..maybe a little. I have searched the web as well. i have more pain right before my period than during. i have never been on shots or the pill...the hubby had a vasectomy years ago(luck me). I can't believe you have to wait like that for pain relief. Sarah001 seems to have done a lot of research that may lead you in the right direction. I need to pick back up w/ my P.T. to see if that will help. what i am realizing now is that physical activity (long walks and working-out cause flare ups for me)...so far that seems to be the one link. unfortunately, this was one of my very favorite things to do (yeah..kind of crazy).

Congrats on the 4 lbs. you don't have much to go, but easy for me to say. it's hard, but you can do it. glad you got some sleep. lack of sleep definitely affects the mood. i'll be interested to see what your doctors have in the works for you next. Sorry i couldn't give you a hug. i'm guessing you would prefer a man. I'm glad you feel good about your decision to end it w/ Matt. You must have done the right thing.

take care!! I would agree that Brad Pitt and Heath Ledger (although dead) are hotties! that's what we call them here.

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Re: wide awake and net surfing

Post  Sarah001 on Sun Aug 29, 2010 6:51 pm

Julie do you think working out and walking cause flare ups because you tense the muscles up? Or is your pelvis out of alignment? I find stretching the adductors is a definite flare up activity for me so I'm doing quite a bit of massage on them at the moment to try and loosen them up a bit. I think it's really useful to know which kinds of exercises create flare ups because I think it gives a more definite direction to work on.
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Re: wide awake and net surfing

Post  jules on Mon Aug 30, 2010 2:19 am

the work outs that create problems for me are cardio related...like the elliptical and trek machines.walking for long periods of time also creates problems some of the time. after 15 minutes of working out...i get warm and then i burn. my P.T. thinks it has to do w/ the core muscles and my muscles are pushing into the floor of the pelvis. there are nerves wrapped around the muscles creating burning pain. it was recommended by her that i only do cardio for 10 minutes and then go do other exercises w/ an exercise ball etc. i think there is just too much pressure on the pelvic muscles at this point.

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Re: wide awake and net surfing

Post  Sarah001 on Mon Aug 30, 2010 11:59 am

The other thing my therapist said about exercise was if some of your global muscles (mobiliser muscles, glutes, hamstrings etc) are weak and don't pull their weight they also put pressure on the pelvic floor and make it spasm harder. That definitely applies to me and I'm currently under strict instructions to do only the absolute basics and nothing else which is weird, usually my physio is pushing me on with more exercises!!
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Re: wide awake and net surfing

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