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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Butt muscle clenching!

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Butt muscle clenching!

Post  cba321 on Sun Jan 13, 2013 10:50 am

Is it just me or is it common for women with pelvic floor dysfunction to clench the muscles of the butt all the time, I actually have the consciously tell them to relax. Interested to see if this happens to anyone else

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Re: Butt muscle clenching!

Post  Sarah001 on Sun Jan 13, 2013 3:58 pm

It's VERY common in women with sacroiliac joint dysfunction, have you had those checked? It is something some women do with stress too so it could be that. I do it all the time, my pelvis is very unstable so my tight pelvic floor is part of my brains effort to help but isn't enough so the brain searches for more muscles to recruit for more stability and the glutes are one of the obvious choices as they are technically a stabiliser as well as a mobiliser but gripping with them isn't how that's supposed to work so it causes more dysfunction. If you haven't had your pelvic stability checked I'd advise getting it done, it usually involves laying down and being asked to lift a leg at a time while they monitor your pelvis for movements and one leg standing where they monitor the ilium and sacrum to see how they move in relation to each other. Any physio should be able to check that but a Women's Health Physio will know more about it. If you clench the glutes they will also be weak and full of trigger points (much the same as the pelvic floor in pelvic floor dysfunction) so you should invest in a decent trigger point ball to work on those. The clenching can be consciously stopped but if instability is what's behind it the correct muscles (transversus abs and multifidus) will need to be worked on to replace the faulty stabilisation from the glutes. Clenching with the glutes also restricts the hips so your spine has to do all the flexion movements so it really is bad for us in loads of different ways!
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Re: Butt muscle clenching!

Post  cba321 on Mon Jan 14, 2013 6:33 am

Thanks for the info Sarah! I do currently see a women's health Physio but she hasn't done anything to check all the other muscles supporting the pelvis, just my pelvic floor muscles...i will ask her to check it over. I am seeing a chiro and a massage therapist who specialises in myofasical massage. I am seeing a Chiro who has said my pelvis is twisted and after 5 sessions, she can't make the adjustments stick which she said is unusual, so that is why I started seeing a massage therapist to look at all the muscles and attempt to release them and stop them pulling at my pelvis. The massage therapist said my glutes are weak as well. It is funny though, i don't get any back pain currently, even though the muscles are all screwed surround my pelvis! Guess that will change as I get older, my spine can only cope with so much!

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Re: Butt muscle clenching!

Post  Alana3 on Mon Jan 14, 2013 11:45 am

I had muscle issues likes that too but as soon as I got the surgery the muscle pain went away. Idk if that's an option for you but it worked for me. The only thing that still hurts is my hip but I was im an accident a few years ago and it'll never be right. I did pt but honestly that always made me feel worse because of the affected skin/nerves. I really feel that if you're in pain day in day out your muscles start compensating and you begin to hold yourself different putting even more strain on your body. Just a theory. I go for my 6 week appointment today so hopefully I know more but my muscles honestly stopped bugging me a few weeks after.

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Re: Butt muscle clenching!

Post  Sarah001 on Mon Jan 14, 2013 2:15 pm

cba321 if your chiro can't make the adjustments stay put you have pelvic instability, you need to work on your core strength (minus the pelvic floor) to stabilise things. The massage therapist needs to be careful not to release anything that is trying to stabilise you or it will make matters worse so if it's your right side that won't stay put (it usually is) have her avoid alot of that side and treat the other side which will be tighter and more stable (one side is always more stable than the other). Your pelvic floor is likely doing what mine is and attempting to stabilise you so it might take more stability first before your PF will release, your WH physio needs to know all about what the chiro is doing and where you can't stabilise. And no offence to Alana but surgery will not help when you have pelvic instability issues! If you want to chat more feel free I know tonnes about pelvic instability after suffering it for 8 years and counting!!
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Re: Butt muscle clenching!

Post  Alana3 on Mon Jan 14, 2013 6:29 pm

No, it wont but it made it significantly better for me. But that's me, everyone's different, so I don't see how you can say it won't make a difference. I still have muscle issues, but with the surgery, they have significantly decreased because I don't have constant pain. I have no idea what your treatments are like, but for me this worked, so it was just a suggestion. And obviously it won't work for everyone... I still see a PT specialist, but at least its better.

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Re: Butt muscle clenching!

Post  Sarah001 on Mon Jan 14, 2013 6:56 pm

Calm down Alana, my point is PELVIC INSTABILITY can't be helped by having the surgery not that nobody can be helped by it. Pelvic instability is caused by the pelvis not being stable and muscles hanging on to stabilise it which wouldn't be helped by a vestibulectomy, do you see what I mean? If your surgery has worked I'm very pleased for you but pelvic instability relates to alot more than just the pelvic floor and vulvar so needs a different treatment and if your surgery has worked then pelvic instability obviously wasn't your problem. We're at cross purposes here I think because we're discussing different causes of vulvar pain.
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Re: Butt muscle clenching!

Post  Alana3 on Mon Jan 14, 2013 7:03 pm

I'm calm, thanks, just pointing out that different things can cause it to diminish that's it. I don't know what pelvic instability is, but it wasn't mentioned in the first post, all I was doing was adding my opinion to the first post. But yeah, I get it, I'm over this whole deal, it sucks

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Re: Butt muscle clenching!

Post  cba321 on Tue Jan 15, 2013 7:47 am

Thanks for the info. I might speak to the physio first before going back to the massage therapist. My chiro has been talking to the physio, im seeing the chiro in 2 days so will ask her more about it.

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Re: Butt muscle clenching!

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