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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

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Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

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Butt muscle clenching!

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Butt muscle clenching!

Post  cba321 on Sun Jan 13, 2013 10:50 am

Is it just me or is it common for women with pelvic floor dysfunction to clench the muscles of the butt all the time, I actually have the consciously tell them to relax. Interested to see if this happens to anyone else

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Re: Butt muscle clenching!

Post  Sarah001 on Sun Jan 13, 2013 3:58 pm

It's VERY common in women with sacroiliac joint dysfunction, have you had those checked? It is something some women do with stress too so it could be that. I do it all the time, my pelvis is very unstable so my tight pelvic floor is part of my brains effort to help but isn't enough so the brain searches for more muscles to recruit for more stability and the glutes are one of the obvious choices as they are technically a stabiliser as well as a mobiliser but gripping with them isn't how that's supposed to work so it causes more dysfunction. If you haven't had your pelvic stability checked I'd advise getting it done, it usually involves laying down and being asked to lift a leg at a time while they monitor your pelvis for movements and one leg standing where they monitor the ilium and sacrum to see how they move in relation to each other. Any physio should be able to check that but a Women's Health Physio will know more about it. If you clench the glutes they will also be weak and full of trigger points (much the same as the pelvic floor in pelvic floor dysfunction) so you should invest in a decent trigger point ball to work on those. The clenching can be consciously stopped but if instability is what's behind it the correct muscles (transversus abs and multifidus) will need to be worked on to replace the faulty stabilisation from the glutes. Clenching with the glutes also restricts the hips so your spine has to do all the flexion movements so it really is bad for us in loads of different ways!
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Re: Butt muscle clenching!

Post  cba321 on Mon Jan 14, 2013 6:33 am

Thanks for the info Sarah! I do currently see a women's health Physio but she hasn't done anything to check all the other muscles supporting the pelvis, just my pelvic floor muscles...i will ask her to check it over. I am seeing a chiro and a massage therapist who specialises in myofasical massage. I am seeing a Chiro who has said my pelvis is twisted and after 5 sessions, she can't make the adjustments stick which she said is unusual, so that is why I started seeing a massage therapist to look at all the muscles and attempt to release them and stop them pulling at my pelvis. The massage therapist said my glutes are weak as well. It is funny though, i don't get any back pain currently, even though the muscles are all screwed surround my pelvis! Guess that will change as I get older, my spine can only cope with so much!

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Re: Butt muscle clenching!

Post  Alana3 on Mon Jan 14, 2013 11:45 am

I had muscle issues likes that too but as soon as I got the surgery the muscle pain went away. Idk if that's an option for you but it worked for me. The only thing that still hurts is my hip but I was im an accident a few years ago and it'll never be right. I did pt but honestly that always made me feel worse because of the affected skin/nerves. I really feel that if you're in pain day in day out your muscles start compensating and you begin to hold yourself different putting even more strain on your body. Just a theory. I go for my 6 week appointment today so hopefully I know more but my muscles honestly stopped bugging me a few weeks after.

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Re: Butt muscle clenching!

Post  Sarah001 on Mon Jan 14, 2013 2:15 pm

cba321 if your chiro can't make the adjustments stay put you have pelvic instability, you need to work on your core strength (minus the pelvic floor) to stabilise things. The massage therapist needs to be careful not to release anything that is trying to stabilise you or it will make matters worse so if it's your right side that won't stay put (it usually is) have her avoid alot of that side and treat the other side which will be tighter and more stable (one side is always more stable than the other). Your pelvic floor is likely doing what mine is and attempting to stabilise you so it might take more stability first before your PF will release, your WH physio needs to know all about what the chiro is doing and where you can't stabilise. And no offence to Alana but surgery will not help when you have pelvic instability issues! If you want to chat more feel free I know tonnes about pelvic instability after suffering it for 8 years and counting!!
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Re: Butt muscle clenching!

Post  Alana3 on Mon Jan 14, 2013 6:29 pm

No, it wont but it made it significantly better for me. But that's me, everyone's different, so I don't see how you can say it won't make a difference. I still have muscle issues, but with the surgery, they have significantly decreased because I don't have constant pain. I have no idea what your treatments are like, but for me this worked, so it was just a suggestion. And obviously it won't work for everyone... I still see a PT specialist, but at least its better.

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Re: Butt muscle clenching!

Post  Sarah001 on Mon Jan 14, 2013 6:56 pm

Calm down Alana, my point is PELVIC INSTABILITY can't be helped by having the surgery not that nobody can be helped by it. Pelvic instability is caused by the pelvis not being stable and muscles hanging on to stabilise it which wouldn't be helped by a vestibulectomy, do you see what I mean? If your surgery has worked I'm very pleased for you but pelvic instability relates to alot more than just the pelvic floor and vulvar so needs a different treatment and if your surgery has worked then pelvic instability obviously wasn't your problem. We're at cross purposes here I think because we're discussing different causes of vulvar pain.
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Re: Butt muscle clenching!

Post  Alana3 on Mon Jan 14, 2013 7:03 pm

I'm calm, thanks, just pointing out that different things can cause it to diminish that's it. I don't know what pelvic instability is, but it wasn't mentioned in the first post, all I was doing was adding my opinion to the first post. But yeah, I get it, I'm over this whole deal, it sucks

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Re: Butt muscle clenching!

Post  cba321 on Tue Jan 15, 2013 7:47 am

Thanks for the info. I might speak to the physio first before going back to the massage therapist. My chiro has been talking to the physio, im seeing the chiro in 2 days so will ask her more about it.

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Re: Butt muscle clenching!

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