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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Butt muscle clenching!

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Butt muscle clenching!

Post  cba321 on Sun Jan 13, 2013 10:50 am

Is it just me or is it common for women with pelvic floor dysfunction to clench the muscles of the butt all the time, I actually have the consciously tell them to relax. Interested to see if this happens to anyone else

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Re: Butt muscle clenching!

Post  Sarah001 on Sun Jan 13, 2013 3:58 pm

It's VERY common in women with sacroiliac joint dysfunction, have you had those checked? It is something some women do with stress too so it could be that. I do it all the time, my pelvis is very unstable so my tight pelvic floor is part of my brains effort to help but isn't enough so the brain searches for more muscles to recruit for more stability and the glutes are one of the obvious choices as they are technically a stabiliser as well as a mobiliser but gripping with them isn't how that's supposed to work so it causes more dysfunction. If you haven't had your pelvic stability checked I'd advise getting it done, it usually involves laying down and being asked to lift a leg at a time while they monitor your pelvis for movements and one leg standing where they monitor the ilium and sacrum to see how they move in relation to each other. Any physio should be able to check that but a Women's Health Physio will know more about it. If you clench the glutes they will also be weak and full of trigger points (much the same as the pelvic floor in pelvic floor dysfunction) so you should invest in a decent trigger point ball to work on those. The clenching can be consciously stopped but if instability is what's behind it the correct muscles (transversus abs and multifidus) will need to be worked on to replace the faulty stabilisation from the glutes. Clenching with the glutes also restricts the hips so your spine has to do all the flexion movements so it really is bad for us in loads of different ways!
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Re: Butt muscle clenching!

Post  cba321 on Mon Jan 14, 2013 6:33 am

Thanks for the info Sarah! I do currently see a women's health Physio but she hasn't done anything to check all the other muscles supporting the pelvis, just my pelvic floor muscles...i will ask her to check it over. I am seeing a chiro and a massage therapist who specialises in myofasical massage. I am seeing a Chiro who has said my pelvis is twisted and after 5 sessions, she can't make the adjustments stick which she said is unusual, so that is why I started seeing a massage therapist to look at all the muscles and attempt to release them and stop them pulling at my pelvis. The massage therapist said my glutes are weak as well. It is funny though, i don't get any back pain currently, even though the muscles are all screwed surround my pelvis! Guess that will change as I get older, my spine can only cope with so much!

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Re: Butt muscle clenching!

Post  Alana3 on Mon Jan 14, 2013 11:45 am

I had muscle issues likes that too but as soon as I got the surgery the muscle pain went away. Idk if that's an option for you but it worked for me. The only thing that still hurts is my hip but I was im an accident a few years ago and it'll never be right. I did pt but honestly that always made me feel worse because of the affected skin/nerves. I really feel that if you're in pain day in day out your muscles start compensating and you begin to hold yourself different putting even more strain on your body. Just a theory. I go for my 6 week appointment today so hopefully I know more but my muscles honestly stopped bugging me a few weeks after.

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Re: Butt muscle clenching!

Post  Sarah001 on Mon Jan 14, 2013 2:15 pm

cba321 if your chiro can't make the adjustments stay put you have pelvic instability, you need to work on your core strength (minus the pelvic floor) to stabilise things. The massage therapist needs to be careful not to release anything that is trying to stabilise you or it will make matters worse so if it's your right side that won't stay put (it usually is) have her avoid alot of that side and treat the other side which will be tighter and more stable (one side is always more stable than the other). Your pelvic floor is likely doing what mine is and attempting to stabilise you so it might take more stability first before your PF will release, your WH physio needs to know all about what the chiro is doing and where you can't stabilise. And no offence to Alana but surgery will not help when you have pelvic instability issues! If you want to chat more feel free I know tonnes about pelvic instability after suffering it for 8 years and counting!!
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Re: Butt muscle clenching!

Post  Alana3 on Mon Jan 14, 2013 6:29 pm

No, it wont but it made it significantly better for me. But that's me, everyone's different, so I don't see how you can say it won't make a difference. I still have muscle issues, but with the surgery, they have significantly decreased because I don't have constant pain. I have no idea what your treatments are like, but for me this worked, so it was just a suggestion. And obviously it won't work for everyone... I still see a PT specialist, but at least its better.

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Re: Butt muscle clenching!

Post  Sarah001 on Mon Jan 14, 2013 6:56 pm

Calm down Alana, my point is PELVIC INSTABILITY can't be helped by having the surgery not that nobody can be helped by it. Pelvic instability is caused by the pelvis not being stable and muscles hanging on to stabilise it which wouldn't be helped by a vestibulectomy, do you see what I mean? If your surgery has worked I'm very pleased for you but pelvic instability relates to alot more than just the pelvic floor and vulvar so needs a different treatment and if your surgery has worked then pelvic instability obviously wasn't your problem. We're at cross purposes here I think because we're discussing different causes of vulvar pain.
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Re: Butt muscle clenching!

Post  Alana3 on Mon Jan 14, 2013 7:03 pm

I'm calm, thanks, just pointing out that different things can cause it to diminish that's it. I don't know what pelvic instability is, but it wasn't mentioned in the first post, all I was doing was adding my opinion to the first post. But yeah, I get it, I'm over this whole deal, it sucks

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Re: Butt muscle clenching!

Post  cba321 on Tue Jan 15, 2013 7:47 am

Thanks for the info. I might speak to the physio first before going back to the massage therapist. My chiro has been talking to the physio, im seeing the chiro in 2 days so will ask her more about it.

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Re: Butt muscle clenching!

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