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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


New and scared!

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New and scared!

Post  schaaram on Fri Jan 18, 2013 2:01 am

Hi everyone!

Maybe someone can help me or relate with my symptoms. In July 2012 I started to feel like I had a yeast infection / UTI. I was generally uncomfortable down below and had painful urination and increased frequency. I went to my gynecologist who ran all possible tests and said there was nothing at all wrong with me. She told me I was allergic to something and to wear loose fitting clothes. I cut out most soaps and switched to mild laundry detergent. It helped a little bit but did I still have painful symptoms.

I used to have a vibrant sex life but now have not even wanted too due to this. Also, does anyone experience clitoral pain as well as the burning / stinging around vulvar region? I feel like sometimes my clitoris is extremely painful to the touch and then the next day it won't be. This is so strange! Can anyone relate? I think that somehow nerves were damaged during sex one day?

Thanks for your support! Smile

schaaram

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Re: New and scared!

Post  jen007 on Fri Jan 18, 2013 4:09 am

schaaram,

Welcome to the forum!

I never experienced painful urination or anything like that with vulvodynia. That sounds more like a UTI or bladder infection like you said above. The clitoral pain and burning/ stinging I have had before. I also experienced spasms at times. It almost felt like little shocks or something. Weird.

Sex could do some damage if you're doing it too rough. Most of the time, a sure fire sign of vulvodynia is having constant yeast infections. Have you had this problem ?? Has a gyno. diagnosed you with vulvodynia?

One this you can try is lidocaine cream. It numbs out the area you put it on giving temporary relief. See if your gyno. will prescribe it to you, it really does help. If you do end up getting it just make sure you mix it with a little lubricant. Alone the lidocaine can cause burning until it numbs the area, causing you to feel worse until it works its numbing magic.

-Jen

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Re: New and scared!

Post  Alana3 on Fri Jan 18, 2013 12:23 pm

Actually I did have painful urination and uti at one point but idk if it we're related or not...

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Re: New and scared!

Post  kellypitts on Wed Jan 23, 2013 12:16 am

Hi!

YES! I have the clitoral pain like you mention. It feels like I am over stimulated when I haven't been touched at all. So strange and the next day it is gone. Mine can be worse just before or after my period. What do you use for your clitoral pain? My doctor prescribed a 5% lidocaine cream that I slather on there and it usually takes the edge off.

-Kelly

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Re: New and scared!

Post  carby148 on Mon Feb 04, 2013 6:29 am

At this point, aside from labia majora pain, I have constant urethra irritation. It feels like I need to pee a little, but not from my bladder. Almost like when you've finished peeing, and then a little more comes out. I've been tested for UTIs twice, and both were negative.

I don't know if my vulva pain is related to the urethra pain as my doctors are still trying to figure it out.
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Re: New and scared!

Post  jen007 on Mon Feb 04, 2013 2:12 pm

Hi carby148,

It sounds like you could possibly have internal cystitis or IC. I posted a link below that tells you a little bit about the condition. Hope this helps!


http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001508/

-Jen

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Re: New and scared!

Post  Alana3 on Mon Feb 04, 2013 3:48 pm

IC was the next thing I was going to say, it sounds like you have classic signs.

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Re: New and scared!

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