Log in

I forgot my password

Latest topics
» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 3

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


New and scared!

Go down

New and scared!

Post  schaaram on Fri Jan 18, 2013 2:01 am

Hi everyone!

Maybe someone can help me or relate with my symptoms. In July 2012 I started to feel like I had a yeast infection / UTI. I was generally uncomfortable down below and had painful urination and increased frequency. I went to my gynecologist who ran all possible tests and said there was nothing at all wrong with me. She told me I was allergic to something and to wear loose fitting clothes. I cut out most soaps and switched to mild laundry detergent. It helped a little bit but did I still have painful symptoms.

I used to have a vibrant sex life but now have not even wanted too due to this. Also, does anyone experience clitoral pain as well as the burning / stinging around vulvar region? I feel like sometimes my clitoris is extremely painful to the touch and then the next day it won't be. This is so strange! Can anyone relate? I think that somehow nerves were damaged during sex one day?

Thanks for your support! Smile

schaaram

Posts : 1
Join date : 2013-01-18

View user profile

Back to top Go down

Re: New and scared!

Post  jen007 on Fri Jan 18, 2013 4:09 am

schaaram,

Welcome to the forum!

I never experienced painful urination or anything like that with vulvodynia. That sounds more like a UTI or bladder infection like you said above. The clitoral pain and burning/ stinging I have had before. I also experienced spasms at times. It almost felt like little shocks or something. Weird.

Sex could do some damage if you're doing it too rough. Most of the time, a sure fire sign of vulvodynia is having constant yeast infections. Have you had this problem ?? Has a gyno. diagnosed you with vulvodynia?

One this you can try is lidocaine cream. It numbs out the area you put it on giving temporary relief. See if your gyno. will prescribe it to you, it really does help. If you do end up getting it just make sure you mix it with a little lubricant. Alone the lidocaine can cause burning until it numbs the area, causing you to feel worse until it works its numbing magic.

-Jen

jen007

Posts : 151
Join date : 2012-11-05
Age : 25
Location : U.S.A

View user profile

Back to top Go down

Re: New and scared!

Post  Alana3 on Fri Jan 18, 2013 12:23 pm

Actually I did have painful urination and uti at one point but idk if it we're related or not...

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New and scared!

Post  kellypitts on Wed Jan 23, 2013 12:16 am

Hi!

YES! I have the clitoral pain like you mention. It feels like I am over stimulated when I haven't been touched at all. So strange and the next day it is gone. Mine can be worse just before or after my period. What do you use for your clitoral pain? My doctor prescribed a 5% lidocaine cream that I slather on there and it usually takes the edge off.

-Kelly

kellypitts

Posts : 2
Join date : 2012-12-30

View user profile

Back to top Go down

Re: New and scared!

Post  carby148 on Mon Feb 04, 2013 6:29 am

At this point, aside from labia majora pain, I have constant urethra irritation. It feels like I need to pee a little, but not from my bladder. Almost like when you've finished peeing, and then a little more comes out. I've been tested for UTIs twice, and both were negative.

I don't know if my vulva pain is related to the urethra pain as my doctors are still trying to figure it out.
avatar
carby148

Posts : 17
Join date : 2013-02-04
Age : 31
Location : East Bay Area

View user profile

Back to top Go down

Re: New and scared!

Post  jen007 on Mon Feb 04, 2013 2:12 pm

Hi carby148,

It sounds like you could possibly have internal cystitis or IC. I posted a link below that tells you a little bit about the condition. Hope this helps!


http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001508/

-Jen

jen007

Posts : 151
Join date : 2012-11-05
Age : 25
Location : U.S.A

View user profile

Back to top Go down

Re: New and scared!

Post  Alana3 on Mon Feb 04, 2013 3:48 pm

IC was the next thing I was going to say, it sounds like you have classic signs.

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New and scared!

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum