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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


New and scared!

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New and scared!

Post  schaaram on Fri Jan 18, 2013 2:01 am

Hi everyone!

Maybe someone can help me or relate with my symptoms. In July 2012 I started to feel like I had a yeast infection / UTI. I was generally uncomfortable down below and had painful urination and increased frequency. I went to my gynecologist who ran all possible tests and said there was nothing at all wrong with me. She told me I was allergic to something and to wear loose fitting clothes. I cut out most soaps and switched to mild laundry detergent. It helped a little bit but did I still have painful symptoms.

I used to have a vibrant sex life but now have not even wanted too due to this. Also, does anyone experience clitoral pain as well as the burning / stinging around vulvar region? I feel like sometimes my clitoris is extremely painful to the touch and then the next day it won't be. This is so strange! Can anyone relate? I think that somehow nerves were damaged during sex one day?

Thanks for your support! Smile

schaaram

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Re: New and scared!

Post  jen007 on Fri Jan 18, 2013 4:09 am

schaaram,

Welcome to the forum!

I never experienced painful urination or anything like that with vulvodynia. That sounds more like a UTI or bladder infection like you said above. The clitoral pain and burning/ stinging I have had before. I also experienced spasms at times. It almost felt like little shocks or something. Weird.

Sex could do some damage if you're doing it too rough. Most of the time, a sure fire sign of vulvodynia is having constant yeast infections. Have you had this problem ?? Has a gyno. diagnosed you with vulvodynia?

One this you can try is lidocaine cream. It numbs out the area you put it on giving temporary relief. See if your gyno. will prescribe it to you, it really does help. If you do end up getting it just make sure you mix it with a little lubricant. Alone the lidocaine can cause burning until it numbs the area, causing you to feel worse until it works its numbing magic.

-Jen

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Re: New and scared!

Post  Alana3 on Fri Jan 18, 2013 12:23 pm

Actually I did have painful urination and uti at one point but idk if it we're related or not...

Alana3

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Re: New and scared!

Post  kellypitts on Wed Jan 23, 2013 12:16 am

Hi!

YES! I have the clitoral pain like you mention. It feels like I am over stimulated when I haven't been touched at all. So strange and the next day it is gone. Mine can be worse just before or after my period. What do you use for your clitoral pain? My doctor prescribed a 5% lidocaine cream that I slather on there and it usually takes the edge off.

-Kelly

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Re: New and scared!

Post  carby148 on Mon Feb 04, 2013 6:29 am

At this point, aside from labia majora pain, I have constant urethra irritation. It feels like I need to pee a little, but not from my bladder. Almost like when you've finished peeing, and then a little more comes out. I've been tested for UTIs twice, and both were negative.

I don't know if my vulva pain is related to the urethra pain as my doctors are still trying to figure it out.
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carby148

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Re: New and scared!

Post  jen007 on Mon Feb 04, 2013 2:12 pm

Hi carby148,

It sounds like you could possibly have internal cystitis or IC. I posted a link below that tells you a little bit about the condition. Hope this helps!


http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001508/

-Jen

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Re: New and scared!

Post  Alana3 on Mon Feb 04, 2013 3:48 pm

IC was the next thing I was going to say, it sounds like you have classic signs.

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Re: New and scared!

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