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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Trying for a baby after 9 years of vulvodynia

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Trying for a baby after 9 years of vulvodynia

Post  trying for a baby on Mon Jan 21, 2013 1:00 pm

Hi there

I'm new to this site but not to the condition! I was diagnosed with vulvodynia nearly 10 years ago and spent many months in and out of the Drs/Hospitals/Pain Clinics etc. The only help i found was pregabilin which I was on up until recently and really the symptoms pretty much stopped. however last year I started to try for a baby and was told I couldn't be on pregabilin as it can lead to abnormalities and so I slowly withdrew the does from 300mg to nothing over a few months. Initially the pain was bearable but over the last 2 months the pain has never been so bad and it's having a debilitating effect on myself and my partner. I have to wear anaesthetic every day just to walk now and sex is proving very difficult. I just wonder if anyone else out there has been or is trying for a baby and has been successful and whether anyone can offer any advice not just to me but for my partner too. I've wanted a baby for so long and now worry that I'm putting too much pressure on us to conceive ASAP. I'm 35 as well.

Many thanks for any help. It's the hardest condition to cope with and I think unless you've been through it, it's just so difficult to understand.

xx

trying for a baby

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Re: Trying for a baby after 9 years of vulvodynia

Post  Alana3 on Wed Jan 23, 2013 2:46 pm

Can you ask for a topical instead of a pill? I don't know if this would have any effect or if it could be used safely but it would be absorbed thru your skin wall instead of your liver and bloodstream. I have no idea what to tell you, but maybe you can have his sperm put in you artifically? I have no idea how that works tho and how much it would be lol... But is not being able to walk really worth it? Are there other options you can consider? Don't get mad, at me suggesting this, but if I were in that much pain, I might consider a different option. Also, how will a pregnancy affect your pain? Can it be made worse, these are all things I would ask your doctor. I would hate for you to get worse after having a baby :/ freaking vulvodynia sucks! Sorry I couldn't help, but ask if a topical might help your pain and be safe to use.

Alana3

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I am in a similar boat...

Post  Rainy Day on Thu Jan 24, 2013 10:56 pm

I am also 35, and I am wanting to have my 2nd baby. I have had V for 1 full year, and didn't get it under control until 5 months ago. I was thinking about going off of meds in another year to try, but my fears are that the pain would be overwhelming. I am even going to a doctor next week to ask questions about pregnancy with V and my options for drugs, etc. I just wonder if we can go on some type of low dose med or something to sort of numb the pain. I don't think a cream is an option for me, since my pain centers aroudn my thighs, not my vagina.

Rainy Day

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Rainy Day

Post  Rainy Day on Thu Jan 24, 2013 11:00 pm

Something my physio said before is that people who have worse pain during their cycles tend to have easier pregnancies with V...and those with better cycles the opposite is true. She says most people grit their teeth through the V pain until they can get off pain meds. Not sure I could handle it for 9 months. In her opinion, it would be very difficult to work AND be pregnant with V due to teh pain issues. I feel for you so much, since I am also upset about this but at least I had one child right before V kicked in. I have a feeling this will be my only child.

Rainy Day

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Re: Trying for a baby after 9 years of vulvodynia

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