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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Trying for a baby after 9 years of vulvodynia

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Trying for a baby after 9 years of vulvodynia

Post  trying for a baby on Mon Jan 21, 2013 1:00 pm

Hi there

I'm new to this site but not to the condition! I was diagnosed with vulvodynia nearly 10 years ago and spent many months in and out of the Drs/Hospitals/Pain Clinics etc. The only help i found was pregabilin which I was on up until recently and really the symptoms pretty much stopped. however last year I started to try for a baby and was told I couldn't be on pregabilin as it can lead to abnormalities and so I slowly withdrew the does from 300mg to nothing over a few months. Initially the pain was bearable but over the last 2 months the pain has never been so bad and it's having a debilitating effect on myself and my partner. I have to wear anaesthetic every day just to walk now and sex is proving very difficult. I just wonder if anyone else out there has been or is trying for a baby and has been successful and whether anyone can offer any advice not just to me but for my partner too. I've wanted a baby for so long and now worry that I'm putting too much pressure on us to conceive ASAP. I'm 35 as well.

Many thanks for any help. It's the hardest condition to cope with and I think unless you've been through it, it's just so difficult to understand.

xx

trying for a baby

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Re: Trying for a baby after 9 years of vulvodynia

Post  Alana3 on Wed Jan 23, 2013 2:46 pm

Can you ask for a topical instead of a pill? I don't know if this would have any effect or if it could be used safely but it would be absorbed thru your skin wall instead of your liver and bloodstream. I have no idea what to tell you, but maybe you can have his sperm put in you artifically? I have no idea how that works tho and how much it would be lol... But is not being able to walk really worth it? Are there other options you can consider? Don't get mad, at me suggesting this, but if I were in that much pain, I might consider a different option. Also, how will a pregnancy affect your pain? Can it be made worse, these are all things I would ask your doctor. I would hate for you to get worse after having a baby :/ freaking vulvodynia sucks! Sorry I couldn't help, but ask if a topical might help your pain and be safe to use.

Alana3

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I am in a similar boat...

Post  Rainy Day on Thu Jan 24, 2013 10:56 pm

I am also 35, and I am wanting to have my 2nd baby. I have had V for 1 full year, and didn't get it under control until 5 months ago. I was thinking about going off of meds in another year to try, but my fears are that the pain would be overwhelming. I am even going to a doctor next week to ask questions about pregnancy with V and my options for drugs, etc. I just wonder if we can go on some type of low dose med or something to sort of numb the pain. I don't think a cream is an option for me, since my pain centers aroudn my thighs, not my vagina.

Rainy Day

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Rainy Day

Post  Rainy Day on Thu Jan 24, 2013 11:00 pm

Something my physio said before is that people who have worse pain during their cycles tend to have easier pregnancies with V...and those with better cycles the opposite is true. She says most people grit their teeth through the V pain until they can get off pain meds. Not sure I could handle it for 9 months. In her opinion, it would be very difficult to work AND be pregnant with V due to teh pain issues. I feel for you so much, since I am also upset about this but at least I had one child right before V kicked in. I have a feeling this will be my only child.

Rainy Day

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