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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


Trying for a baby after 9 years of vulvodynia

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Trying for a baby after 9 years of vulvodynia

Post  trying for a baby on Mon Jan 21, 2013 1:00 pm

Hi there

I'm new to this site but not to the condition! I was diagnosed with vulvodynia nearly 10 years ago and spent many months in and out of the Drs/Hospitals/Pain Clinics etc. The only help i found was pregabilin which I was on up until recently and really the symptoms pretty much stopped. however last year I started to try for a baby and was told I couldn't be on pregabilin as it can lead to abnormalities and so I slowly withdrew the does from 300mg to nothing over a few months. Initially the pain was bearable but over the last 2 months the pain has never been so bad and it's having a debilitating effect on myself and my partner. I have to wear anaesthetic every day just to walk now and sex is proving very difficult. I just wonder if anyone else out there has been or is trying for a baby and has been successful and whether anyone can offer any advice not just to me but for my partner too. I've wanted a baby for so long and now worry that I'm putting too much pressure on us to conceive ASAP. I'm 35 as well.

Many thanks for any help. It's the hardest condition to cope with and I think unless you've been through it, it's just so difficult to understand.

xx

trying for a baby

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Re: Trying for a baby after 9 years of vulvodynia

Post  Alana3 on Wed Jan 23, 2013 2:46 pm

Can you ask for a topical instead of a pill? I don't know if this would have any effect or if it could be used safely but it would be absorbed thru your skin wall instead of your liver and bloodstream. I have no idea what to tell you, but maybe you can have his sperm put in you artifically? I have no idea how that works tho and how much it would be lol... But is not being able to walk really worth it? Are there other options you can consider? Don't get mad, at me suggesting this, but if I were in that much pain, I might consider a different option. Also, how will a pregnancy affect your pain? Can it be made worse, these are all things I would ask your doctor. I would hate for you to get worse after having a baby :/ freaking vulvodynia sucks! Sorry I couldn't help, but ask if a topical might help your pain and be safe to use.

Alana3

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I am in a similar boat...

Post  Rainy Day on Thu Jan 24, 2013 10:56 pm

I am also 35, and I am wanting to have my 2nd baby. I have had V for 1 full year, and didn't get it under control until 5 months ago. I was thinking about going off of meds in another year to try, but my fears are that the pain would be overwhelming. I am even going to a doctor next week to ask questions about pregnancy with V and my options for drugs, etc. I just wonder if we can go on some type of low dose med or something to sort of numb the pain. I don't think a cream is an option for me, since my pain centers aroudn my thighs, not my vagina.

Rainy Day

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Rainy Day

Post  Rainy Day on Thu Jan 24, 2013 11:00 pm

Something my physio said before is that people who have worse pain during their cycles tend to have easier pregnancies with V...and those with better cycles the opposite is true. She says most people grit their teeth through the V pain until they can get off pain meds. Not sure I could handle it for 9 months. In her opinion, it would be very difficult to work AND be pregnant with V due to teh pain issues. I feel for you so much, since I am also upset about this but at least I had one child right before V kicked in. I have a feeling this will be my only child.

Rainy Day

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Re: Trying for a baby after 9 years of vulvodynia

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