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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Trying for a baby after 9 years of vulvodynia

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Trying for a baby after 9 years of vulvodynia

Post  trying for a baby on Mon Jan 21, 2013 1:00 pm

Hi there

I'm new to this site but not to the condition! I was diagnosed with vulvodynia nearly 10 years ago and spent many months in and out of the Drs/Hospitals/Pain Clinics etc. The only help i found was pregabilin which I was on up until recently and really the symptoms pretty much stopped. however last year I started to try for a baby and was told I couldn't be on pregabilin as it can lead to abnormalities and so I slowly withdrew the does from 300mg to nothing over a few months. Initially the pain was bearable but over the last 2 months the pain has never been so bad and it's having a debilitating effect on myself and my partner. I have to wear anaesthetic every day just to walk now and sex is proving very difficult. I just wonder if anyone else out there has been or is trying for a baby and has been successful and whether anyone can offer any advice not just to me but for my partner too. I've wanted a baby for so long and now worry that I'm putting too much pressure on us to conceive ASAP. I'm 35 as well.

Many thanks for any help. It's the hardest condition to cope with and I think unless you've been through it, it's just so difficult to understand.


trying for a baby

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Re: Trying for a baby after 9 years of vulvodynia

Post  Alana3 on Wed Jan 23, 2013 2:46 pm

Can you ask for a topical instead of a pill? I don't know if this would have any effect or if it could be used safely but it would be absorbed thru your skin wall instead of your liver and bloodstream. I have no idea what to tell you, but maybe you can have his sperm put in you artifically? I have no idea how that works tho and how much it would be lol... But is not being able to walk really worth it? Are there other options you can consider? Don't get mad, at me suggesting this, but if I were in that much pain, I might consider a different option. Also, how will a pregnancy affect your pain? Can it be made worse, these are all things I would ask your doctor. I would hate for you to get worse after having a baby :/ freaking vulvodynia sucks! Sorry I couldn't help, but ask if a topical might help your pain and be safe to use.


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I am in a similar boat...

Post  Rainy Day on Thu Jan 24, 2013 10:56 pm

I am also 35, and I am wanting to have my 2nd baby. I have had V for 1 full year, and didn't get it under control until 5 months ago. I was thinking about going off of meds in another year to try, but my fears are that the pain would be overwhelming. I am even going to a doctor next week to ask questions about pregnancy with V and my options for drugs, etc. I just wonder if we can go on some type of low dose med or something to sort of numb the pain. I don't think a cream is an option for me, since my pain centers aroudn my thighs, not my vagina.

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Rainy Day

Post  Rainy Day on Thu Jan 24, 2013 11:00 pm

Something my physio said before is that people who have worse pain during their cycles tend to have easier pregnancies with V...and those with better cycles the opposite is true. She says most people grit their teeth through the V pain until they can get off pain meds. Not sure I could handle it for 9 months. In her opinion, it would be very difficult to work AND be pregnant with V due to teh pain issues. I feel for you so much, since I am also upset about this but at least I had one child right before V kicked in. I have a feeling this will be my only child.

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Re: Trying for a baby after 9 years of vulvodynia

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