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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

have I got it?

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have I got it?

Post  bad_daisy on Sun Jan 27, 2013 1:58 pm

Hi everybody!
I'm an Italian 27 years old who live in London! (so sorry in advance if i make mistakes Razz obviously you can correct me Smile )
My life was absolutely normal until 3 (or maybe 4) years ago. Then i found a boyfriend who present me a "new friend": Vaginal Herpes.
My doctor in Italy thought it was candida! so after almost a week of useless drugs i had herpes everywhere!
After that the real candida came... and it came 100 times! after one year, more or less, i was ok again. But not completely! indeed sometime i had disturbs, swelling, loss, red skin... every thing came and gone sometime.
some months ago all this started to be cronic.... almost everyday i felt something was wrong. The last time i went to Italy i went to my gyneacologist and she did me some tests and everythink was ok... just in the tests because i'm feeling worse everyday Sad
until today! i'm going back to Italy tomorrow to check again and i was thinking to find a clinic or a doctor here in London who can help me and make me understand if i have or not Vulvodynia and if i don't, what i have!

have a nice sunday!


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Re: have I got it?

Post  Aida Blanchett on Sun Jan 27, 2013 7:26 pm

Hi from me Daisy! Smile As I've written to you, asap I'll write here about my healing. Meanwhile, here you'll find many many things very useful and as I've asked you please keep me updated about the content of Vulvodyniasupport: I really haven't much time to read everything. Besitos!
Aida Wink
PS To All: a greeting from Rome to all women here, I promise I'll write asap about my healing journey! I know how this is so important, as I myself am a V. Forum admin - www.vulvodiniapuntoinfo.com - and first of all, a woman who has suffered a lot, since 2001! I was 23 then, this year I'm 36. Keep the faith in the healing process!
Last but not least, I heartily recommend to visit and read carefully this website, please give it a chance, because it changed my life forever! www.anamsong.com At first I was skeptical since I thought it was the same psyco-approch to v. as many I've seen in these long years; but as soon as I started reading more carefully, I understood it was something completely different. Your pain is real, is not in your head, as too many have told to us, I precise that for it's the real turning point of the matter! Read it through very carefully and see if for some of you it can be a way to be free from pain. I hope so for all of you!
The author of the blog is Abigail Steidley, a woman whose story, strenght and everything is incredible. I am so grateful for having discovered her blog!
PPS My last visit here was http://www.vulvodyniasupportforum.com/t749-hi-from-rome , and many many thing have changed since then! Bye for now. I love you
Aida Blanchett

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Join date : 2012-02-22
Age : 40
Location : Rome

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Nice to see faces

Post  lavrose on Fri Feb 15, 2013 1:25 pm

You know its so nice to see some of the faces of fellow sufferers , I tend to feel so gross and most of all ALONE in this condition.

Aida, you are gorgeous!!!!!!!!! WOW!!

I just feel like such a freak with this disease, and YES, the pain has drivin me absolutely crazy too, for years. Its so comforting to see others with this, normal, average gorgeous girls with the same problem.

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Re: have I got it?

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