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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


have I got it?

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have I got it?

Post  bad_daisy on Sun Jan 27, 2013 1:58 pm

Hi everybody!
I'm an Italian 27 years old who live in London! (so sorry in advance if i make mistakes Razz obviously you can correct me Smile )
My life was absolutely normal until 3 (or maybe 4) years ago. Then i found a boyfriend who present me a "new friend": Vaginal Herpes.
My doctor in Italy thought it was candida! so after almost a week of useless drugs i had herpes everywhere!
After that the real candida came... and it came 100 times! after one year, more or less, i was ok again. But not completely! indeed sometime i had disturbs, swelling, loss, red skin... every thing came and gone sometime.
some months ago all this started to be cronic.... almost everyday i felt something was wrong. The last time i went to Italy i went to my gyneacologist and she did me some tests and everythink was ok... just in the tests because i'm feeling worse everyday Sad
until today! i'm going back to Italy tomorrow to check again and i was thinking to find a clinic or a doctor here in London who can help me and make me understand if i have or not Vulvodynia and if i don't, what i have!

have a nice sunday!
D

bad_daisy

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Re: have I got it?

Post  Aida Blanchett on Sun Jan 27, 2013 7:26 pm

Hi from me Daisy! Smile As I've written to you, asap I'll write here about my healing. Meanwhile, here you'll find many many things very useful and as I've asked you please keep me updated about the content of Vulvodyniasupport: I really haven't much time to read everything. Besitos!
Aida Wink
PS To All: a greeting from Rome to all women here, I promise I'll write asap about my healing journey! I know how this is so important, as I myself am a V. Forum admin - www.vulvodiniapuntoinfo.com - and first of all, a woman who has suffered a lot, since 2001! I was 23 then, this year I'm 36. Keep the faith in the healing process!
Last but not least, I heartily recommend to visit and read carefully this website, please give it a chance, because it changed my life forever! www.anamsong.com At first I was skeptical since I thought it was the same psyco-approch to v. as many I've seen in these long years; but as soon as I started reading more carefully, I understood it was something completely different. Your pain is real, is not in your head, as too many have told to us, I precise that for it's the real turning point of the matter! Read it through very carefully and see if for some of you it can be a way to be free from pain. I hope so for all of you!
The author of the blog is Abigail Steidley, a woman whose story, strenght and everything is incredible. I am so grateful for having discovered her blog!
PPS My last visit here was http://www.vulvodyniasupportforum.com/t749-hi-from-rome , and many many thing have changed since then! Bye for now. I love you
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Aida Blanchett

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Nice to see faces

Post  lavrose on Fri Feb 15, 2013 1:25 pm

You know its so nice to see some of the faces of fellow sufferers , I tend to feel so gross and most of all ALONE in this condition.

Aida, you are gorgeous!!!!!!!!! WOW!!

I just feel like such a freak with this disease, and YES, the pain has drivin me absolutely crazy too, for years. Its so comforting to see others with this, normal, average gorgeous girls with the same problem.
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lavrose

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Re: have I got it?

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