Vulvodynia Support
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» Hope to all my suffering ladies
have I got it?  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
have I got it?  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
have I got it?  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
have I got it?  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
have I got it?  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
have I got it?  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
have I got it?  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
have I got it?  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
have I got it?  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


have I got it?

3 posters

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have I got it?  Empty have I got it?

Post  bad_daisy Sun Jan 27, 2013 1:58 pm

Hi everybody!
I'm an Italian 27 years old who live in London! (so sorry in advance if i make mistakes Razz obviously you can correct me Smile )
My life was absolutely normal until 3 (or maybe 4) years ago. Then i found a boyfriend who present me a "new friend": Vaginal Herpes.
My doctor in Italy thought it was candida! so after almost a week of useless drugs i had herpes everywhere!
After that the real candida came... and it came 100 times! after one year, more or less, i was ok again. But not completely! indeed sometime i had disturbs, swelling, loss, red skin... every thing came and gone sometime.
some months ago all this started to be cronic.... almost everyday i felt something was wrong. The last time i went to Italy i went to my gyneacologist and she did me some tests and everythink was ok... just in the tests because i'm feeling worse everyday Sad
until today! i'm going back to Italy tomorrow to check again and i was thinking to find a clinic or a doctor here in London who can help me and make me understand if i have or not Vulvodynia and if i don't, what i have!

have a nice sunday!
D

bad_daisy

Posts : 1
Join date : 2013-01-27

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Post  Aida Blanchett Sun Jan 27, 2013 7:26 pm

Hi from me Daisy! Smile As I've written to you, asap I'll write here about my healing. Meanwhile, here you'll find many many things very useful and as I've asked you please keep me updated about the content of Vulvodyniasupport: I really haven't much time to read everything. Besitos!
Aida Wink
PS To All: a greeting from Rome to all women here, I promise I'll write asap about my healing journey! I know how this is so important, as I myself am a V. Forum admin - www.vulvodiniapuntoinfo.com - and first of all, a woman who has suffered a lot, since 2001! I was 23 then, this year I'm 36. Keep the faith in the healing process!
Last but not least, I heartily recommend to visit and read carefully this website, please give it a chance, because it changed my life forever! www.anamsong.com At first I was skeptical since I thought it was the same psyco-approch to v. as many I've seen in these long years; but as soon as I started reading more carefully, I understood it was something completely different. Your pain is real, is not in your head, as too many have told to us, I precise that for it's the real turning point of the matter! Read it through very carefully and see if for some of you it can be a way to be free from pain. I hope so for all of you!
The author of the blog is Abigail Steidley, a woman whose story, strenght and everything is incredible. I am so grateful for having discovered her blog!
PPS My last visit here was http://www.vulvodyniasupportforum.com/t749-hi-from-rome , and many many thing have changed since then! Bye for now. I love you
Aida Blanchett
Aida Blanchett

Posts : 6
Join date : 2012-02-22
Age : 46
Location : Rome

http://www.vulvodiniapuntoinfo.com/

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have I got it?  Empty Nice to see faces

Post  lavrose Fri Feb 15, 2013 1:25 pm

You know its so nice to see some of the faces of fellow sufferers , I tend to feel so gross and most of all ALONE in this condition.

Aida, you are gorgeous!!!!!!!!! WOW!!

I just feel like such a freak with this disease, and YES, the pain has drivin me absolutely crazy too, for years. Its so comforting to see others with this, normal, average gorgeous girls with the same problem.
lavrose
lavrose

Posts : 152
Join date : 2012-04-28

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