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» Vulvodynia is a secret
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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

have I got it?

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have I got it?

Post  bad_daisy on Sun Jan 27, 2013 1:58 pm

Hi everybody!
I'm an Italian 27 years old who live in London! (so sorry in advance if i make mistakes Razz obviously you can correct me Smile )
My life was absolutely normal until 3 (or maybe 4) years ago. Then i found a boyfriend who present me a "new friend": Vaginal Herpes.
My doctor in Italy thought it was candida! so after almost a week of useless drugs i had herpes everywhere!
After that the real candida came... and it came 100 times! after one year, more or less, i was ok again. But not completely! indeed sometime i had disturbs, swelling, loss, red skin... every thing came and gone sometime.
some months ago all this started to be cronic.... almost everyday i felt something was wrong. The last time i went to Italy i went to my gyneacologist and she did me some tests and everythink was ok... just in the tests because i'm feeling worse everyday Sad
until today! i'm going back to Italy tomorrow to check again and i was thinking to find a clinic or a doctor here in London who can help me and make me understand if i have or not Vulvodynia and if i don't, what i have!

have a nice sunday!


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Re: have I got it?

Post  Aida Blanchett on Sun Jan 27, 2013 7:26 pm

Hi from me Daisy! Smile As I've written to you, asap I'll write here about my healing. Meanwhile, here you'll find many many things very useful and as I've asked you please keep me updated about the content of Vulvodyniasupport: I really haven't much time to read everything. Besitos!
Aida Wink
PS To All: a greeting from Rome to all women here, I promise I'll write asap about my healing journey! I know how this is so important, as I myself am a V. Forum admin - www.vulvodiniapuntoinfo.com - and first of all, a woman who has suffered a lot, since 2001! I was 23 then, this year I'm 36. Keep the faith in the healing process!
Last but not least, I heartily recommend to visit and read carefully this website, please give it a chance, because it changed my life forever! www.anamsong.com At first I was skeptical since I thought it was the same psyco-approch to v. as many I've seen in these long years; but as soon as I started reading more carefully, I understood it was something completely different. Your pain is real, is not in your head, as too many have told to us, I precise that for it's the real turning point of the matter! Read it through very carefully and see if for some of you it can be a way to be free from pain. I hope so for all of you!
The author of the blog is Abigail Steidley, a woman whose story, strenght and everything is incredible. I am so grateful for having discovered her blog!
PPS My last visit here was http://www.vulvodyniasupportforum.com/t749-hi-from-rome , and many many thing have changed since then! Bye for now. I love you
Aida Blanchett

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Join date : 2012-02-22
Age : 40
Location : Rome

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Nice to see faces

Post  lavrose on Fri Feb 15, 2013 1:25 pm

You know its so nice to see some of the faces of fellow sufferers , I tend to feel so gross and most of all ALONE in this condition.

Aida, you are gorgeous!!!!!!!!! WOW!!

I just feel like such a freak with this disease, and YES, the pain has drivin me absolutely crazy too, for years. Its so comforting to see others with this, normal, average gorgeous girls with the same problem.

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Re: have I got it?

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