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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

have I got it?

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have I got it?

Post  bad_daisy on Sun Jan 27, 2013 1:58 pm

Hi everybody!
I'm an Italian 27 years old who live in London! (so sorry in advance if i make mistakes Razz obviously you can correct me Smile )
My life was absolutely normal until 3 (or maybe 4) years ago. Then i found a boyfriend who present me a "new friend": Vaginal Herpes.
My doctor in Italy thought it was candida! so after almost a week of useless drugs i had herpes everywhere!
After that the real candida came... and it came 100 times! after one year, more or less, i was ok again. But not completely! indeed sometime i had disturbs, swelling, loss, red skin... every thing came and gone sometime.
some months ago all this started to be cronic.... almost everyday i felt something was wrong. The last time i went to Italy i went to my gyneacologist and she did me some tests and everythink was ok... just in the tests because i'm feeling worse everyday Sad
until today! i'm going back to Italy tomorrow to check again and i was thinking to find a clinic or a doctor here in London who can help me and make me understand if i have or not Vulvodynia and if i don't, what i have!

have a nice sunday!


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Re: have I got it?

Post  Aida Blanchett on Sun Jan 27, 2013 7:26 pm

Hi from me Daisy! Smile As I've written to you, asap I'll write here about my healing. Meanwhile, here you'll find many many things very useful and as I've asked you please keep me updated about the content of Vulvodyniasupport: I really haven't much time to read everything. Besitos!
Aida Wink
PS To All: a greeting from Rome to all women here, I promise I'll write asap about my healing journey! I know how this is so important, as I myself am a V. Forum admin - www.vulvodiniapuntoinfo.com - and first of all, a woman who has suffered a lot, since 2001! I was 23 then, this year I'm 36. Keep the faith in the healing process!
Last but not least, I heartily recommend to visit and read carefully this website, please give it a chance, because it changed my life forever! www.anamsong.com At first I was skeptical since I thought it was the same psyco-approch to v. as many I've seen in these long years; but as soon as I started reading more carefully, I understood it was something completely different. Your pain is real, is not in your head, as too many have told to us, I precise that for it's the real turning point of the matter! Read it through very carefully and see if for some of you it can be a way to be free from pain. I hope so for all of you!
The author of the blog is Abigail Steidley, a woman whose story, strenght and everything is incredible. I am so grateful for having discovered her blog!
PPS My last visit here was http://www.vulvodyniasupportforum.com/t749-hi-from-rome , and many many thing have changed since then! Bye for now. I love you
Aida Blanchett

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Join date : 2012-02-22
Age : 40
Location : Rome

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Nice to see faces

Post  lavrose on Fri Feb 15, 2013 1:25 pm

You know its so nice to see some of the faces of fellow sufferers , I tend to feel so gross and most of all ALONE in this condition.

Aida, you are gorgeous!!!!!!!!! WOW!!

I just feel like such a freak with this disease, and YES, the pain has drivin me absolutely crazy too, for years. Its so comforting to see others with this, normal, average gorgeous girls with the same problem.

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Re: have I got it?

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